brain tumor center
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2020 ◽  
Vol 22 (Supplement_2) ◽  
pp. ii119-ii119
Author(s):  
Jacob Pawloski ◽  
Lisa Scarpace ◽  
Nestelynn Gay ◽  
Hassan Fadel ◽  
Rachel Hunt ◽  
...  

Abstract INTRODUCTION Developing and advancing patient-centered care within neuro-oncology is an essential element of any tertiary brain tumor center. Patient-centered care of neuro-oncology patients requires a holistic approach that integrates oncologic treatment with social and psychological support. OBJECTIVE The aim of this study is to evaluate how a Patient Family Advisory Council can be created within an existing brain tumor center and utilized to improve patient-centered care. METHODS Current patients and caregivers were recruited by brain tumor staff to participate in monthly meetings. All participants underwent screening and training by our Patient Education Research Center team. Discussions focused on current and future brain tumor center initiatives, and participants were encouraged to give feedback from the patient perspective. New ideas to improve the patient experience were solicited. RESULTS A total of 15 participants (female = 57%) were recruited, including 10 with grade 3 or higher brain tumors. Monthly meetings, in-person or virtual, were held for two years. Utilizing participant feedback, the group updated our 80-page patient handbook that contained a variety of patient-caregiver focused resources. Participants also provided feedback on other brain tumor center initiatives such as development of a magnet featuring key phone numbers, an easily accessible website URL for emergencies, and numerous updates to the external website. Additional discussions involved development of neuro-oncology care pathways as we move to a stand-alone cancer center facility and initiation of OncoSTAT and palliative services in this population. CONCLUSION Brain tumor patients require a comprehensive oncologic treatment team as well as a wide variety of support services. A Patient Family Advisory Council is an effective method of advancing patient-centered care and a step toward improving the neuro-oncology patient experience.


2014 ◽  
Vol 119 (3) ◽  
pp. 465-472 ◽  
Author(s):  
Adam M. Robin ◽  
Tobias Walbert ◽  
Tom Mikkelsen ◽  
Steven N. Kalkanis ◽  
Jack Rock ◽  
...  

2014 ◽  
Vol 16 (suppl 3) ◽  
pp. iii50-iii50
Author(s):  
M. L. Rosenblum ◽  
A. Robin ◽  
T. Walbert ◽  
T. Mikkelsen ◽  
S. Kalkanis ◽  
...  

2011 ◽  
Vol 17 (4) ◽  
pp. 506-506

www.centauro.it Interventional Neuroradiology 17: 286–295, 2011 Intra-Arterial Chemotherapy for Malignant Gliomas: a Critical Analysis JAN-KARL BURKHARDT1, H.A. RIINA1, B.J. SHIN1, J.A. MOLITERNO2, C.P. HOFSTETTER1, J.A. BOOCKVAR1 1 Department of Neurological Surgery, Weill Cornell Brain Tumor Center, Weill Cornell Medical College, New York Presbyterian Hospital; New York, USA 2 Department of Neurosurgery, Yale University School of Medicine; New Haven, USA


2004 ◽  
Vol 69 (1-3) ◽  
pp. 169-180 ◽  
Author(s):  
Mark L. Rosenblum ◽  
Tom Mikkelsen

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