The Importance of Disability Identity, Self-Advocacy, and Disability Activism

Disability identity development is an important part of the experience of people with disabilities. Participation in disability community activism and advocacy for the goals of the disability community is related to self-advocacy and plays a fundamental role in shifting individuals’ views of themselves and their disabilities. This article explores a political disability identity conceptual framework and provides recommendations for teachers to develop an understanding of disability in school focused on self-worth and pride; awareness of discrimination, common cause within the disability community, and policy alternatives; and engagement in political action.

Aging Into Disability: A Conceptual Challenge for Gerontology

One of the most fraught subjects facing a fast growing aging population is the subject of aging into disability. This paper examines the processes of aging into disability as a distinct challenge for not only older persons, but also for the field of gerontology, and public policy-makers. Disability in youth and in middle age has largely defined the disability rights agenda, and elders aging into disability have not been the subject of much attention from scholars in the field of disability. Surprisingly, however, scholars and policy-makers in gerontology have also by and large avoided the subject of older persons aging into disability—a complex process that involves impairment, environmental disablement, and changes in social relationships. This process accelerates with advancing age, and disproportionately affects women. Moreover, when older adults develop mobility limitations, experience falls, become hard of hearing, or experience other such impairments of age related disability, they do not think of themselves as aging into disability, or being disabled. This lack of disability identity may protect them from stigma and from low self-esteem. At the same time, it stands in the way of seeking accommodations and from developing a bond with other older adults who are aging into disability. This paper explores the dynamics of disability avoidance as an ideal that can harm older adults and their caregivers. It aims to bring disability more fully into the normal life-course, and to suggest lines of inquiry for gerontological research, to broaden the field, and to make service communities more inclusive .

Service inclusion: the role of disability identity in retail

Purpose The purpose of this research is to explore the role of identity for consumers with disabilities in a retail context. Understanding disability identity is critical to ensuring inclusion in service environments. Despite the growing call to understand the role of identity in consumer services, research on disability identity and the impacts of identity on service inclusion remains minimal. Design/methodology/approach A qualitative methodology generated data through personal narratives from people with disabilities revealing deep insights into the complexity of identity in a fashion retail context. Findings Emergent themes detail five consumer disability identities – authentic unique self, integrated self, community self, expressive self and practical self – seen when viewing service experiences from the perspective of people with lived experience of disability. Individual and collective agency also emerged as key themes that enable people with disabilities to feel a sense of inclusion. Originality/value This research explores the service experiences of people with disabilities in a retail context through a disability identity lens. The authors contribute to service literature by identifying five consumer disability identities that people with a disability adopt through their service experience and present a typology that demonstrates how each identity impacts on agency, with implications for service inclusion.

Mobility Tool Use Relates to Disability Affirmation among Adults with Visual Impairments

Introduction: Research is beginning to support the association between positive disability identity and well-being among individuals with disabilities, including those with visual impairments (i.e., blindness and low vision). To enhance practitioner understanding of how to support individuals with visual impairments, research is needed to examine how disability identity attitudes may vary based on disability characteristics in this population. Methods: Using multiple linear regression, the author examined the association between impairment-related factors and personal disability identity (PDI; i.e., disability affirmation and disability acceptance) and group disability identity (GDI) in a sample of 212 adult U.S. residents with visual impairments. Results: Results of this study indicated that participants who use a mobility tool (cane, dog guide, or both) have higher self-reported disability affirmation ( p = .001)—an identity construct related to feelings of disability pride versus shame—after controlling for age, gender, and impairment-related factors (e.g., severity indicators). The Cohen’s f 2 value for the affirmation model was .15, a medium effect size (Cohen, 1988). The regression on GDI indicated that younger participants, in general, reported higher feelings of connection to the disability community (i.e., higher GDI; p = .001); Cohen’s f 2 was .13, a small effect. The regression on disability acceptance yielded non-significant findings. Discussion: Researchers and practitioners working with adults who have visual impairments should consider the relationship between an individual’s disability affirmation and decision-making regarding mobility tool use and training . Future research should also examine hypotheses regarding the negative association between age and GDI among adults with visual impairments. Implications for practitioners: Practitioners within the field of visual impairment may benefit from a consideration of consumer disability identity, including disability affirmation and disability group affiliation.

Negotiating Multiple Identities of Brazilian Paralympians

In this article, I draw on the personal narratives of 41 Brazilian Paralympic athletes who competed in the 2016 Rio Paralympic Games to explore their multiple identities shaped within and outside sport and how they negotiated those self-representations. Parathletes’ narratives gave a sense of who they are, how they live their lives, and what their struggles, hopes, and aspirations are within and outside sport. The available studies in disability sport and the representation of disabled athletes have largely failed to examine the stories of these individuals and address their unique realities and perspectives. Five major themes emerged from the interview analysis regarding the parathletes’ self-representation: athletic identity, gender identity, disability identity, national identity, and activist identity. These accounts also revealed how these individuals negotiated their multiple identities in different settings and the tensions they experienced in their social interactions. The Rio Paralympics presented such a new interaction setting for the Brazilian parathletes who competed on such a grand scale at home for the first time and provided multiple examples in the athletes’ accounts of their identities.

Deaf Uzbek Jehovah’s Witnesses: The Case of Intersection of Disability, Ethnic and Religious Inequalities in Post-Soviet Uzbekistan

This study explores how intersecting identities based on disability, ethnicity and religion impact the wellbeing of deaf Uzbek Jehovah’s Witnesses in post-Soviet Uzbekistan. By analysing the collected ethnographic data and semi-structured interviews with deaf people, Islamic religious figures, and state officials in the capital city Tashkent, it provides the case of how a reaction of a majority religious group to the freedom of religious belief contributes to the marginalisation and exclusion of religious deaf minorities who were converted from Islam to the Jehovah’s Witnesses. The paper argues that the insensitivity of the dominant Muslim communities to the freedom of religious belief of deaf Uzbek Christian converts excluded them from their project activities and allocation of resources provided by the newly established Islamic Endowment Public charity foundation ‘Vaqf’. Deaf people in Uzbekistan are often stigmatised and discriminated against based on their disability identity, and religious inequality may further exacerbate existing challenges, lead to unintended exclusionary tendencies within the local deaf communities, and ultimately inhibit the formation of collective deaf identity and agency to advocate for their legitimate rights and interests.

Principal Leadership for Inclusion: Supporting Positive Student Identity Development for Students with Disabilities

Researchers in special education and educational leadership have engaged in collective efforts to highlight the critical role of the principal when it comes to creating inclusive schools for students with disabilities. Primarily, research and prescriptive writings have focused on a set of school improvement practices tailored to creating systems, interventions, and teaching practices that support inclusion. However, much of this scholarship has overlooked the importance of disability identity development. In this article, we review leadership practices that support inclusion with a focus on how principals can foster a school that supports positive disability identity development through a social model perspective.