scholarly journals Ethical Crossroads: Expanded Access, Patient Advocacy, and the #SaveJosh Social Media Campaign

2017 ◽  
Vol 1 ◽  
pp. maapoc.0000019 ◽  
Author(s):  
Kenneth I. Moch
Keyword(s):  
Social Media ◽  
Chief Executive ◽  
Patient Advocacy ◽  
Experimental Medicine ◽  
Media Campaign ◽  
Expanded Access ◽  
Access Request ◽  
Patient Advocates ◽  
The Right ◽  
The Impact

Expanded access programs raise complex ethical dilemmas regarding the use of experimental medicines to treat life-threatening medical conditions – issues for which there are no simple, monolithic solutions. Beyond the risks to an individual, how does society or a company balance the immediate needs of a critically ill individual versus the potential needs of many future patients? This article offers insights into and learning experiences from the case of a 7-year-old boy whose family sought access to an experimental antiviral medicine being developed by Chimerix, where the author was Chief Executive Officer. The high-profile #SaveJosh social media campaign helped to catalyze and crystalize the international debate on issues of ethics and equity in expanded access, raising questions regarding the role of patient advocacy and the impact of social media on healthcare and the biopharmaceutical industry. Additionally, the #SaveJosh campaign demonstrated how easily thoughtful dialogue can be overwhelmed by a hyper-immediacy that increases the intensity and scrutiny under which these issues must be addressed. Given that the decision to grant an expanded access request lies solely with the leadership of the company developing the experimental medicine, management must evaluate and balance a request against what is known about the safety and efficacy of the compound, where it is in its testing pathway, and any other complexities or risks identified during the development process. Furthermore, companies must craft and be prepared to explain their rationale, including the right not to make an experimental medicine available, to regulators, legislators, patient advocates, and patients in need.

Consumer attitude towards Eco-friendly products

2019 ◽  
Vol 118 (6) ◽  
pp. 163-170
Author(s):  
M. Amarnath ◽  
PS. Nagarajan
Keyword(s):  
Social Media ◽  
Social Networking ◽  
Electronic Communication ◽  
Secondary Data ◽  
Primary Data ◽  
Consumer Attitude ◽  
Purchase Decisions ◽  
Market Place ◽  
The Right ◽  
The Impact

The purchaser mindfulness and inspiration kept on driving change in the market place, strikingly through the presentation of more eco- friendly products.  This study deals with eco-friendly products and its impact on social media.  In this scenario social media had emerged as a platform of electronic communication through sharing of knowledge, ideas and user generated contents through networking and blogging. It tries to assess how different level of perceived feeling from usage influence the impact of advertisements through social media, blogs, peer opinion via social networking and products update towards making green purchase decisions of the consumers.  With respect to this, buyers are assuming liability and doing the right things. Customer frame of mind and inspiration keep on driving change in market place, outstandingly through the presentation of more eco- friendly products.  This paper analyses the consumer attitude towards eco-friendly products both directly and indirectly.  In this paper both primary and secondary data were collected. Structured questionnaires were used to collect primary data from the consumers through questionnaires.  The secondary data was collected from website and reports.  For statistical analyses, SPSS used and Statistical tools like (i.e.) percentage analysis, ANOVA, Correlation and ‘z’ test were applied.  The findings were based on the Research hypothesis, demographic profile and various dimensions of consumer attitude towards eco-friendly products.  Suggestions and Conclusion are based on these findings.   

scholarly journals #Datasaveslives: mixed methods analysis of a social media campaign to promote the benefits of using health data for research purposes (Preprint)

2019 ◽  
Author(s):  
Lamiece Hassan ◽  
Goran Nenadic ◽  
Mary Patricia Tully
Keyword(s):  
Social Media ◽  
Health Informatics ◽  
Data Science ◽  
Health Data ◽  
Media Campaign ◽  
Wide Audience ◽  
Personal Support ◽  
Twitter Users ◽  
The Uk ◽  
The Impact

BACKGROUND Social media provides the potential to engage a wide audience about scientific research, including the public. However little empirical research exists to guide health scientists regarding what works and how to optimize impact. We examined the social media campaign #datasaveslives, which was established in 2014 to highlight positive examples of the use and reuse of health data in research. OBJECTIVE The study aimed to examine how the #datasaveslives hashtag was used on social media, how often and by whom; thus, the study aimed to provide insights into the impact of a major social media campaign in the UK health informatics research community and further afield. METHODS We analyzed all publicly available posts (tweets) between 1 September 2016 and 31 August 2017 on the microblogging platform Twitter that included the hashtag #datasaveslives (n=13,895). Using a combination of qualitative and quantitative analyses, we determined the frequency and purpose of tweets. Social network analysis was used to analyze and visualize tweet sharing (‘retweet’) networks among hashtag users. RESULTS Overall, we found 4,175 original tweets and 9,720 retweets featuring #datasaveslives by 3,649 unique Twitter users. In total, 2,756 (66.0%) of original posts were retweeted at least once. Higher frequencies of tweets were observed during the weeks of prominent policy publications, popular conferences and public engagement events. Cluster analysis based on retweet relationships revealed an interconnected series of groups of #datasaveslives users in academia, health services and policy, and charities and patient networks. Thematic analysis of tweets showed that #datasaveslives was used for a broader range of purposes than indexing information, including event reporting, encouraging participation and action, and showing personal support for data sharing. CONCLUSIONS This study shows that a hashtag-based social media campaign was effective in encouraging a wide audience of stakeholders to disseminate positive examples of health research. Furthermore, the findings suggest the campaign supported community-building and bridging practices within and between the interdisciplinary sectors related to the field of health data science and encouraged individuals to demonstrate personal support for sharing health data. CLINICALTRIAL

The impact of social media platforms on book marketing and advertising : a case of selected South African authors

2020 ◽  
Vol 3 (2) ◽  
pp. 43-60
Author(s):  
Selaelo John Mabeba
Keyword(s):  
Social Media ◽  
South African ◽  
Primary Data ◽  
Target Market ◽  
Uses And Gratification ◽  
Uses And Gratification Theory ◽  
The Social ◽  
Social Media Platforms ◽  
The Right ◽  
The Impact

Authors use social media platforms to reach out to potential readers. Social media play an important role in book marketing and advertising and is convenient for meeting authors' goals of finding a wide target market in a short space of time. In light of this, this paper assessed the impact of social media platforms (Facebook, Twitter, Instagram and WhatsApp) on marketing and advertising books: poetry, fiction, and non-fiction. The paper emanates from an empirical study undertaken to establish whether such platforms do guarantee optimum sales for authors. The paper is grounded on the Uses and Gratification Theory (UGT) that explains the different reasons that inspire social media users to choose certain media to satisfy their specific needs. These needs develop out of the social territory. The theory states that receivers select the types of media and media content to fulfil their needs. UGT links the need for gratification to a specific medium choice that rests with the audience member. As a result, a qualitative method was used with an unstructured questionnaire to collect primary data. The findings show that authors have a challenge in terms of identifying the right target market on their social media accounts. The findings further show that social media platforms do not necessarily guarantee sales; instead, they are crucial for creating awareness.

Calculating value: a digital library’s social media campaign

2015 ◽  
Vol 28 (4) ◽  
pp. 106-111 ◽  
Author(s):  
Lisa Lamont ◽  
Jordan Nielsen
Keyword(s):  
Social Media ◽  
Digital Library ◽  
Return On Investment ◽  
Design Methodology ◽  
Media Campaign ◽  
Content Type ◽  
Testing Period ◽  
Social Media Platforms ◽  
The Impact

Purpose – The purpose of this paper is to discuss a social media campaign used to promote a digital library of archival resources. Design/methodology/approach – Librarians planned and executed a social media campaign using Tumblr and Pinterest and consulted Google Analytics and database reports to determine the impact. Findings – The campaign resulted in few conversions back to the digital library and little return on investment. Research limitations/implications – The campaign has been in effect for only five months, a longer testing period may be needed. Also, additional social media platforms will be added to the test. Originality/value – This is one of few examples of return on investment applied to social media and digital library promotion.

scholarly journals Development of Novel Classifying System to Identify the Right Sense of Audio Conversation in Social Networks using Deep Convolution Neural Network

2019 ◽  
Vol 8 (2S6) ◽  
pp. 522-525
Keyword(s):  
Machine Learning ◽  
Social Networks ◽  
Social Media ◽  
Learning Strategies ◽  
Human Interaction ◽  
Training Data ◽  
Deep Convolutional Neural Networks ◽  
Use Of Social Media ◽  
The Right ◽  
The Impact

Social media has paved a new way for communication and interacting with others. The use of social media differs according to the socio-cultural, demographic and psychological aspects of individuals. People chat, share ideas and visual material, and feel that they satisfy their needs of belonging along with the groups they have joined. Social networks is not only a area of freedom where persons express themselves openly or furtively, but also an area where several ways of violence emerge or even a means used for some aspects of violence.. The present research throws light on a few of the regular and trendy methods of abuse and risks faced by the users of social media. Develop a system to identify abusing audio file by an individual on a people/ group based on common language, race, sexual preferences, religion, or nationality. We examine a new model from machine learning, namely deep machine learning by probing design configurations of deep Convolutional Neural Networks (CNN) and the impact of different hyper-parameter settings in identifying the negative aspects in social media. Deep CNN automatically generate powerful features by hierarchical learning strategies from massive amounts of training data with a minimum of human interaction or expert process knowledge. An application of the proposed method demonstrates excellent results with low false alarm rates for Twitter data

Abstract 472: Organizations Unite in “Call-Push-Shock” Movement to Impact Public Understanding That Drives Action

Circulation ◽  
2019 ◽  
Vol 140 (Suppl_2) ◽  
Author(s):  
Mary M Newman ◽  
Martha E Lopez-Anderson ◽  
Jennifer F Chap ◽  
Carissa B Caramanis ◽  
Maureen Legg ◽  
...  
Keyword(s):  
Social Media ◽  
Public Understanding ◽  
Social Media Analytics ◽  
Media Campaign ◽  
Loved One ◽  
The Public ◽  
Bystander Cpr ◽  
User Friendly ◽  
The Impact ◽  
Over Time

Introduction: The incidence of OHCA in the U.S. is high (>350,000); the survival rate is low, about 1 in 10. Less than half of victims receive bystander CPR (39%) or treatment with an AED (6%) before EMS arrival. Consumer research indicates the public’s motivation to learn CPR/AED skills and help in emergencies increases with understanding of CA and the impact of bystander action. Two tested messages resonate most with the public: CPR/AED use can double or triple the chance of survival, and CA can happen to a loved one. Hypothesis: An inclusive national movement of organizations using unified, co-branded and tested messaging in a coordinated, multi-channel social media campaign could improve targeted reach and, over time, public understanding of CA and the importance of bystander action. Creating a gold standard for educational content on CA could improve message retention and motivation to act over time. Methods: We created a movement through consistent messaging in a user-friendly toolkit. We built a landing page (CallPushShock.org) and co-sponsored a social media campaign on CA and the importance of bystander action. We launched the campaign during CPR-AED Awareness Week (June 2018). We invited other organizations to join for SCA Awareness Month (Oct 2018), providing co-branded social media assets (Facebook/Twitter posts, videos, infographic) and posting schedules to all partners. Social media analytics were used to measure the reach of the campaign. Results: The campaign launched in June, attracting 20 partners by October. Combined co-sponsor results for June were: News release: 548,464 headline impressions (PR Web); hashtag (#callpushshock) impressions: 243,345 (Keyhole); FB reach: 86,134; Twitter impressions: 25,107; YouTube views: 351; e-news opens: 4,226 (MailChimp, Constant Contact); landing page: 1,291 users (Google). [ Oct 2018 and June 2019 results in development, reflecting extended partner reach.] Conclusion: A social media campaign, leveraging consumer-tested messaging used by multiple organizations in a unified, consistent movement can be effective in improving targeted reach and educational outcomes. A sustained effort is needed to determine campaign impact in improving public understanding of CA and bystander action over time.

The Impact of Social Media on Social Movements

2017 ◽  
pp. 224-252 ◽  
Author(s):  
İrem Eren-Erdoğmuş ◽  
Sinem Ergun
Keyword(s):  
Social Media ◽  
Social Movements ◽  
Content Analysis ◽  
Online Community ◽  
Emerging Market ◽  
Primary Objective ◽  
The Usa ◽  
Similarities And Differences ◽  
The Right ◽  
The Impact

The primary objective of this chapter is to analyze the support of social media for social movements within the context of the anti-consumption movement. Social media have proved to be strategic for initiating, organizing and communicating social movements. The anti-consumption movement is a trend of the postmodernism era that has not yet reached a large following. A secondary aim of this chapter is to analyze the similarities and differences in the support of social media for the anti-consumption movement between one developed and one emerging market. To achieve this goal, a content analysis was employed to analyze Facebook accounts of anti-consumption online communities in the USA and Turkey. The findings show that social media can be the right medium to increase coverage of social movements in society. Additionally, the online institutionalization and decentralized organization of the online community as well as stable social media sharing help support non-radical social movements like anti-consumption.

scholarly journals Role of Social Networks in the Spread of the Arabic Revolutions

2015 ◽  
Vol 16 (SE) ◽  
pp. 309-317
Author(s):  
Ehsan Madmalil ◽  
Hamed Mohagheghnia
Keyword(s):  
Social Networks ◽  
Social Media ◽  
Middle East ◽  
New Media ◽  
North Africa ◽  
The Internet ◽  
Wide Range ◽  
The Right ◽  
The Impact

Recent political developments in the Middle East and North Africa have been occurred in the globalization era. With the advent of globalization and the information revolution, human relations have been greatly altered. The impact of these developments is in such a way that the policy can be analyzed and classified into the periods of before and after the advent of the information technology. Accommodating a wide range of social and political actors in cyberspace, internet and social networks are means to advertise and promote political, social and cultural entities on the one hand and provide a source of political and social awareness on the other hand. They link the political activists to people, and finally provoke the actions of protest and mobilize protests. Hence, the role of the new social media such as the internet and social networks in the acceleration and continuity and expansion of the revolutionary developments in the Middle East and North Africa cannot be ignored. The role of the internet and new media in these revolutions has been so strong that some of them are called revolutions of Facebook and Twitter. Thus, in order to access the right results, you should understand the features and functions of social media, analyze their role in the development of revolutionary upheavals in the Middle East and North Africa. The current study is trying to explain the effect of social networks in the context of globalization on the formation and expansion of recent political developments in the Middle East and North Africa, for instance, in Tunisia, Egypt and Bahrain.

scholarly journals The Impact of online short and motivational videos by ISIS on twitter towards the Saudi youth?

2018 ◽  
Vol 7 (2.29) ◽  
pp. 136
Author(s):  
Hasmah Zanuddin ◽  
Yazeed Alyousef
Keyword(s):  
Social Media ◽  
Saudi Arabia ◽  
Data Collection ◽  
The Internet ◽  
Play Area ◽  
The World ◽  
Social Media Tools ◽  
The Right ◽  
Facebook Pages ◽  
The Impact

Social Media tools especially Twitter and YouTube are helping ISIS spread their promulgation and philosophy to a great many online sympathizers over the world. For sure, the gathering has effectively been utilizing online networking destinations, for example, Twitter, Facebook and YouTube to enroll new would be individuals. This is being done through pictures and the spilling of fierce online viral recordings shot and professionally altered that are focusing on youthful and susceptible individuals. Depicting a glamorized and 'cool' picture, Isis contenders are starting to go about as the new demigods of worldwide digital jihad. The Internet in this way is turning into the virtual play area for fanatic perspectives to be strengthened and go about as a resound chamber. This examination dissected 100 distinctive Facebook pages and 50 Twitter client accounts which produced more than 2050 outcomes and helped the writer make a typology of seven key conduct attributes and inspirations. The discoveries in this examination affirmed the creator's unique speculation, i.e. online detest is being utilized by gatherings, for example, Isis for an assortment of reasons, for example, enlistment and publicity. In addition, this material is composed and controlled by Isis as a method for distributing and conveying key messages. While these activities may make the figment of wellbeing, physical obstructions may not be a match for ISIS's innovatively smart techniques. Utilizing online networking and scrambled informing applications is an approach to for all intents and purposes manage homegrown fear based oppressors that are a great many miles away. Training and guidance towards the right can restrict youth from getting influenced by such activities and this paper will work on finding such solutions for the Saudi Youth. To gather data and analysis, interviews will be used as the instrument for data collection and the focus will be on assessing the impact of motivational videos on youth through Twitter in Saudi Arabia. 

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