scholarly journals Powerless facing the wave of change: the lived experience of providing services in rural areas under the National Disability Insurance Scheme

2019 ◽  
Author(s):  
Rhys Dintino ◽  
Luke Wakely ◽  
Rebecca Wolfgang ◽  
Katrina Wakely ◽  
Alexandra Little
Keyword(s):  
Lived Experience ◽  
Rural Areas ◽  
Disability Insurance ◽  
Insurance Scheme

scholarly journals 1490Activist and Epidemiologist: Collision or Synergy?

2021 ◽  
Vol 50 (Supplement_1) ◽  
Author(s):  
Anne Kavanagh
Keyword(s):  
Lived Experience ◽  
Expert Witness ◽  
Disability Insurance ◽  
Government Policies ◽  
Royal Commission ◽  
Disabled People ◽  
Insurance Scheme ◽  
Epidemiological Research ◽  
Disability Support ◽  
Knowledge Claims

Abstract Focus of Presentation In this presentation, I discuss how activism and lived experience can enhance epidemiological research. I argue that my lived experience of disability and activism, enhance my research because I: have understanding of the contexts in which disabled people live, I focus on what is relevant to disabled people, and have the impetus to interrogate government knowledge claims. I illustrate this through two research/activism scenarios: COVID-19 pandemic proposed reforms to Australia’s National Disability Insurance Scheme (NDIS) – which provides individual budgets for nearly 500,000 Australians with disability. Findings During the COVID-19, I spearheaded ‘calls to action’ for governments to respond to the specific risks faced by people with disability. I led a research demonstrating the risks to disability support workers. My expert witness testimonies at the Disability Royal Commission were central to the Commission’s recommendations. And my work changed government policies relating to managing outbreaks in disability settings and vaccination. In relation to the NDIS, I have critiqued the research government conducts, and the data they use, to support their arguments for reform. Conclusions/Implications Being an activist with lived experience requires reflexivity to ensure individual biases are not reinforced, but it also offers opportunities. Research is contextualised and the pathway to change more easily charted. Epidemiology should foster the careers of researchers with lived experience who maybe activists as well. Key messages Lived experience researchers and activists can enhance epidemiological research bringing unique insights and new opportunities for change.

Correction: ‘National Disability Insurance Scheme and the Lived Experience of Psychosocial Disability for People Presenting to the Emergency Department: Protocol for a Mixed Methods Study’. (Preprint)

2021 ◽  
Author(s):  
Heather McIntyre ◽  
Mark Loughhead ◽  
Laura Hayes ◽  
Nicholas Gerard Procter
Keyword(s):  
Emergency Department ◽  
Mixed Methods ◽  
Lived Experience ◽  
Disability Insurance ◽  
Mixed Methods Study ◽  
Insurance Scheme ◽  
Psychosocial Disability

UNSTRUCTURED In ‘National Disability Insurance Scheme and the Lived Experience of Psychosocial Disability for People Presenting to the Emergency Department: Protocol for a Mixed Methods Study’ some errors were noted after publication. One author has requested a revision of the text; although the article was signed off the author’s contribution was not contained in the article.

scholarly journals National Disability Insurance Scheme and the Lived Experience of Psychosocial Disability for People Presenting to the Emergency Department: Protocol for a Mixed Methods Study (Preprint)

2021 ◽  
Author(s):  
Heather McIntyre ◽  
Mark Loughhead ◽  
Laura Hayes ◽  
Nicholas Gerard Procter
Keyword(s):  
Emergency Department ◽  
Focus Group ◽  
Data Collection ◽  
Lived Experience ◽  
Research Team ◽  
Disability Insurance ◽  
Advisory Group ◽  
Insurance Scheme ◽  
Psychosocial Disability ◽  
Current Practices

BACKGROUND Currently, within Australia, 3.6% of all emergency department (ED) presentations are mental health–related. Information about the context of the person presenting to the ED (beyond immediate needs), including their psychosocial disability (PSD) National Disability Insurance Scheme (NDIS) plan, is reported as incomplete and fragmented. There are missed opportunities for early intervention and care continuity that could potentially inform ED practitioners to revise current practices. OBJECTIVE The aims of this study are: (1) to obtain original data from the lived experience voice of those with the PSD NDIS plan and their experience when presenting to an ED, (2) to gather information from NDIS service providers to reveal communication pathways between the ED and NDIS services, and (3) to gain knowledge from ED clinicians around processes for continuity of care with this population group. METHODS This inductive, mixed methods phenomenological study will involve data collection analyzed sequentially, with each stage informing future stages of the research. Interviews will focus on the lived experience voice exploring potential indicators that have led to an ED presentation, alongside an analysis of associated clinical and administrative documentation and communications. Focus groups with NDIS support workers and support coordinators will provide phenomenological data around the experience from their perspective. National quantitative surveys among those with a PSD NDIS plan and emergency services clinicians will provide insight into current practices within community care and ED presentations. The research project design includes a lived experience advisory group who are assisting with the design of the interview and focus group schedules and national surveys, as well as in shaping the interpretation of qualitative information. All transcripts will be subject to thematic analysis to understand individuals’ meaning-making of these complex and particular phenomena. The research team includes a lived experience researcher and a lived experience carer (PhD candidate). RESULTS This study is funded by MIND Australia as a PhD industry scholarship, which commenced in April 2020. A systematic review as a preresearch activity has been completed and is currently under review. The Human Research Ethics Committee of the University of South Australia has approved this project. An advisory group has been selected, and interview, focus group, and survey schedules are currently being codesigned. Recruitment will commence in November 2021. It is envisaged that data collection will be completed by June 2022. CONCLUSIONS Understanding the lived experience of the precare, during care, and postcare stages of ED presentations from the perspective of those with a PSD NDIS plan will inform the research team around current practices and provide information about improvement for pathways of care for this vulnerable group of people, while also informing health policy. INTERNATIONAL REGISTERED REPORT PRR1-10.2196/33268

scholarly journals The Implementation of the NDIS: Who Wins, Who Loses?

2014 ◽  
Vol 6 (2) ◽  
pp. 25-39 ◽  
Author(s):  
Jenny Green ◽  
Jane Mears
Keyword(s):  
Paradigm Shift ◽  
Service Providers ◽  
Disability Insurance ◽  
Government Funding ◽  
Disability Rights ◽  
Insurance Scheme ◽  
Major Step ◽  
For Profit ◽  
Not For Profit ◽  
People With Disability

The National Disability Insurance Scheme (NDIS) is a major paradigm shift in funding and support for people with disability in Australia. It is a person centered model that has at its core a change in government funding away from service providers direct to individuals with disability. In principle it is heralded as a major step forward in disability rights. Nonetheless, the implementation poses threats as well as benefits. This paper outlines potential threats or risks from the perspective of not-for-profit organisations, workers in the sector and most importantly people with disability.  It draws on a range of recent reports on the sector, person centered models of funding and care, the NDIS and past experience. Its purpose is to forewarn the major issues so that implementers can be forearmed. 

‘The age of entitlement has ended’: designing a disability insurance scheme in turbulent times

2017 ◽  
Vol 33 (2) ◽  
pp. 95-113 ◽  
Author(s):  
Pavla Miller
Keyword(s):  
Social Insurance ◽  
Path Dependence ◽  
Disability Insurance ◽  
Insurance Scheme ◽  
Transformative Potential ◽  
Turbulent Times ◽  
General Revenue ◽  
Unpaid Labour ◽  
Policy Analysts ◽  
Liberal Government

AbstractIn a period of welfare state retrenchment, Australia's neo-liberal government is continuing to implement an expensive National Disability Insurance Scheme (NDIS). Australia is among the pioneers of welfare measures funded from general revenue. Until recently, however, attempts to establish national schemes of social insurance have failed. The paper reviews this history through the lenses of path dependence accounts. It then presents contrasting descriptions of the NDIS by its Chair, the politician who inspired him, and two feminist policy analysts from a carers’ organisation. Path dependence, these accounts illustrate, has been broken in some respects but consolidated in others. In particular, the dynamics of ‘managed’ capitalist markets, gendered notions of abstract individuals and organisations, and the related difficulties in accounting for unpaid labour are constraining the transformative potential of the NDIS.

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