scholarly journals A Novel Health Information Technology Communication System to Increase Caregiver Activation in the Context of Hospital-Based Pediatric Hematopoietic Cell Transplantation: A Pilot Study

2015 ◽  
Vol 4 (4) ◽  
pp. e119 ◽  
Author(s):  
Molly Maher ◽  
David A Hanauer ◽  
Elizabeth Kaziunas ◽  
Mark S Ackerman ◽  
Holly Derry ◽  
...  
Keyword(s):  
Information Technology ◽  
Pilot Study ◽  
Health Information Technology ◽  
Health Information ◽  
Cell Transplantation ◽  
Communication System ◽  
Hematopoietic Cell Transplantation ◽  
Hematopoietic Cell

scholarly journals Novel Health Information Technology Tool Use by Adult Patients Undergoing Allogeneic Hematopoietic Cell Transplantation: Longitudinal Quantitative and Qualitative Patient-Reported Outcomes

2018 ◽  
pp. 1-12 ◽  
Author(s):  
Lyndsey Runaas ◽  
Flora Hoodin ◽  
Anna Munaco ◽  
Alex Fauer ◽  
Roshun Sankaran ◽  
...  
Keyword(s):  
Information Technology ◽  
Health Information Technology ◽  
Health Information ◽  
Cell Transplantation ◽  
Patient Engagement ◽  
Patient Reported Outcomes ◽  
Hematopoietic Cell Transplantation ◽  
Hematopoietic Cell ◽  
Health It ◽  
Patient Reported

Purpose Health information technology (IT) is an ideal medium to improve the delivery of patient-centered care and increase patient engagement. Health IT interventions should be designed with the end user in mind and be specific to the needs of a given population. Hematopoietic cell transplantation (HCT), commonly referred to as blood and marrow transplantation (BMT), is a prime example of a complex medical procedure where patient-caregiver-provider engagement is central to a safe and successful outcome. We have previously reported on the design and development of an HCT-specific health IT tool, BMT Roadmap. Methods This study highlights longitudinal quantitative and qualitative patient-reported outcomes (PROs) in 20 adult patients undergoing allogeneic HCT. Patients completed PROs at three time points (baseline, day 30 post-HTC, and day 100 post-HCT) and provided weekly qualitative data through semistructured interviews while using BMT Roadmap. Results The mean hospital stay was 23.3 days (range, 17 to 37 days), and patients had access to BMT Roadmap for a mean of 21.3 days (range, 15 to 37 days). The total time spent on BMT Roadmap ranged from 0 to 139 minutes per patient, with a mean of 55 minutes (standard deviation, 47.6 minutes). We found that patients readily engaged with the tool and completed qualitative interviews and quantitative PROs. The Patient Activation Measure, a validated measure of patient engagement, increased for patients from baseline to discharge and day 100. Activation was significantly and negatively correlated with depression and anxiety PROs at discharge, suggesting that this may be an important time point for intervention. Conclusion Given the feasibility and promising results reported in this study, next steps include expanding our current health IT platform and implementing a randomized trial to assess the impact of BMT Roadmap on critical PROs.

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