scholarly journals The Role of Family Caregiving in Adult and Pediatric Allogeneic Hematopoietic Cell Transplantation: Using Health Information Technology to Advance Patient-Centered Care

2018 ◽  
Vol 24 (3) ◽  
pp. S484-S485 ◽  
Author(s):  
Alex Fauer ◽  
Flora Hoodin ◽  
Michelle Byrd ◽  
Leah McDiarmid ◽  
Sajjad Seyedsalehi ◽  
...  
Keyword(s):  
Information Technology ◽  
Health Information Technology ◽  
Health Information ◽  
Cell Transplantation ◽  
Family Caregiving ◽  
Hematopoietic Cell Transplantation ◽  
Hematopoietic Cell ◽  
Patient Centered ◽  
Centered Care

scholarly journals Novel Health Information Technology Tool Use by Adult Patients Undergoing Allogeneic Hematopoietic Cell Transplantation: Longitudinal Quantitative and Qualitative Patient-Reported Outcomes

2018 ◽  
pp. 1-12 ◽  
Author(s):  
Lyndsey Runaas ◽  
Flora Hoodin ◽  
Anna Munaco ◽  
Alex Fauer ◽  
Roshun Sankaran ◽  
...  
Keyword(s):  
Information Technology ◽  
Health Information Technology ◽  
Health Information ◽  
Cell Transplantation ◽  
Patient Engagement ◽  
Patient Reported Outcomes ◽  
Hematopoietic Cell Transplantation ◽  
Hematopoietic Cell ◽  
Health It ◽  
Patient Reported

Purpose Health information technology (IT) is an ideal medium to improve the delivery of patient-centered care and increase patient engagement. Health IT interventions should be designed with the end user in mind and be specific to the needs of a given population. Hematopoietic cell transplantation (HCT), commonly referred to as blood and marrow transplantation (BMT), is a prime example of a complex medical procedure where patient-caregiver-provider engagement is central to a safe and successful outcome. We have previously reported on the design and development of an HCT-specific health IT tool, BMT Roadmap. Methods This study highlights longitudinal quantitative and qualitative patient-reported outcomes (PROs) in 20 adult patients undergoing allogeneic HCT. Patients completed PROs at three time points (baseline, day 30 post-HTC, and day 100 post-HCT) and provided weekly qualitative data through semistructured interviews while using BMT Roadmap. Results The mean hospital stay was 23.3 days (range, 17 to 37 days), and patients had access to BMT Roadmap for a mean of 21.3 days (range, 15 to 37 days). The total time spent on BMT Roadmap ranged from 0 to 139 minutes per patient, with a mean of 55 minutes (standard deviation, 47.6 minutes). We found that patients readily engaged with the tool and completed qualitative interviews and quantitative PROs. The Patient Activation Measure, a validated measure of patient engagement, increased for patients from baseline to discharge and day 100. Activation was significantly and negatively correlated with depression and anxiety PROs at discharge, suggesting that this may be an important time point for intervention. Conclusion Given the feasibility and promising results reported in this study, next steps include expanding our current health IT platform and implementing a randomized trial to assess the impact of BMT Roadmap on critical PROs.

scholarly journals Health Information Technology Challenges to Support Patient-Centered Care Coordination

2015 ◽  
Vol 24 (01) ◽  
pp. 8-10 ◽  
Author(s):  
B. Séroussi ◽  
M.-C. Jaulent ◽  
C. U. Lehmann
Keyword(s):  
Information Technology ◽  
Health Information Technology ◽  
Health Information ◽  
Care Coordination ◽  
Clinical Pathways ◽  
Patient Centered Care ◽  
Patient Centered ◽  
Holistic View ◽  
25Th Anniversary ◽  
Centered Care

Summary Objectives: To provide an editorial introduction to the 2015 IMIA Yearbook of Medical Informatics. Methods: We provide a brief overview of the 2015 special topic “Patient-Centered Care Coordination”, discuss the addition of two new sections to the Yearbook, Natural Language Processing and Public Health & Epidemiology Informatics, and present our editorial plans for the upcoming celebration of the 25th anniversary of the Yearbook. Results: Care delivery currently occurs through the processing of complex clinical pathways designed for increasingly multi-morbid patients by various practitioners in different settings. To avoid the consequences of the fragmentation of services, care should be organized to coordinate all providers, giving them the opportunity to share the same holistic view of the patient’s condition, and to be informed of the planned clinical pathway that establishes the roles and interventions of each one. The adoption and use of electronic health records (EHRs) is a solution to address health information sharing and care coordination challenges. However, while EHRs are necessary, they are not sufficient to achieve care coordination, creating information availability does not mean the information will be accessed. This edition of the Yearbook acknowledges the fact that health information technology (HIT), and EHRs in particular, are not yet fully addressing the challenges in care coordination. Emerging trends, tools, and applications of HIT to support care coordination are presented through the keynote paper, survey papers, and working group contributions. Conclusions: In 2015, the IMIA Yearbook has been extended to emphasize two fields of biomedical informatics through new sections. Next year, the 25th anniversary of the Yearbook will be celebrated in grand style! A special issue with a touch of reflection, a bit of rediscovery, and some “science-fiction” will be published in addition to the usual edition.

scholarly journals The evolution of quality improvement in healthcare: Patient-centered care and health information technology applications

2016 ◽  
Vol 5 (2) ◽  
pp. 62 ◽  
Author(s):  
John Cantiello ◽  
Panagiota Kitsantas ◽  
Shirley Moncada ◽  
Sabiheen Abdul
Keyword(s):  
Information Technology ◽  
Quality Improvement ◽  
Health Information Technology ◽  
Health Information ◽  
Patient Centered Care ◽  
Healthcare Industry ◽  
Patient Centered ◽  
Technology Applications ◽  
Centered Care

Objective: Quality improvement in the healthcare industry has evolved over the past few decades. In recent years, an increased focus on coordination of care efforts and the introduction of health information technology has been of high importance in improving the quality of patient care.Methods: In this review, we present a history of quality improvement efforts, discuss quality improvement in the healthcare industry, and examine quality improvement strategies with a focus on patient-centered care and information technology applications via patient registries.Results: Evidence shows that the key to quality improvement efforts in the healthcare industry is the coordination of patient care efforts through better data evaluation processes. By utilizing patient registries that can be linked to electronic health records (EHRs) and the Patient-Centered Medical Home (PCMH) framework, the quality of care provided to patients can be improved.Conclusions: While many healthcare organizations have quality improvement departments or teams in place that may be able to handle these types of efforts, it is important for organizations to be familiar with processes and frameworks that employees at different levels of the organization can be involved in. In order to ensure successful outcomes from quality improvement initiatives, managers and clinicians should work together in identifying problems and developing solutions.

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