scholarly journals A Web-Based Knowledge Translation Resource for Families and Service Providers (The “F-Words” in Childhood Disability Knowledge Hub): Developmental and Pilot Evaluation Study

10.2196/10439 ◽  
2018 ◽  
Vol 5 (2) ◽  
pp. e10439 ◽  
Author(s):  
Andrea Cross ◽  
Peter Rosenbaum ◽  
Danijela Grahovac ◽  
Julie Brocklehurst ◽  
Diane Kay ◽  
...  
2018 ◽  
Author(s):  
Andrea Cross ◽  
Peter Rosenbaum ◽  
Danijela Grahovac ◽  
Julie Brocklehurst ◽  
Diane Kay ◽  
...  

BACKGROUND The “F-words in Childhood Disability” (Function, Family, Fitness, Fun, Friends, and Future) are an adaptation and an attempt to operationalize the World Health Organization’s (2001) International Classification of Functioning, Disability and Health (ICF) framework. Since the paper was published (November 2011), the “F-words” have attracted global attention (>12,000 downloads, January 2018). Internationally, people have adopted the “F-words” ideas, and many families and service providers have expressed a need for more information, tools, and resources on the “F-words”. OBJECTIVE This paper reports on the development and pilot evaluation of a Web-based knowledge translation (KT) resource, the “F-words” Knowledge Hub that was created to inform people about the “F-words” and to provide action-oriented tools to support the use of the “F-words” in practice. METHODS An integrated research team of families and researchers at CanChild Centre for Childhood Disability Research collaborated to develop, implement, and evaluate the Knowledge Hub. A pilot study design was chosen to assess the usability and utility of the Web-based hub before implementing a larger evaluation study. Data were collected using a brief anonymous Web-based survey that included both closed-ended and open-ended questions, with the closed-ended responses being based on a five-point Likert-type scale. We used descriptive statistics and a summary of key themes to report findings. RESULTS From August to November 2017, the Knowledge Hub received >6,800 unique visitors. In 1 month (November 2017), 87 people completed the survey, of whom 63 completed the full survey and 24 completed 1 or 2 sections. The respondents included 42 clinicians and 30 family members or individuals with a disability. The majority of people visited the Knowledge Hub 1-5 times (n=63) and spent up to 45 minutes exploring (n=61) before providing feedback. Overall, 66 people provided information on the perceived usefulness of the Knowledge Hub, of which 92% (61/66) found the Knowledge Hub user-friendly and stated that they enjoyed exploring the hub, and a majority (n=52) reported that the Knowledge Hub would influence what they did when working with others. From the open-ended responses (n=48), the “F-words” videos (n=21) and the “F-words” tools (n=15) were rated as the best features on the Knowledge Hub. CONCLUSIONS The “F-words” Knowledge Hub is an evidence-informed Web-based KT resource that was useful for respondents, most of whom were seen as “early adopters” of the “F-words” concepts. Based on the findings, minor changes are to be made to improve the Knowledge Hub before completing a larger evaluation study on the impact at the family, clinician, and organizational levels with a wider group of users. Our hope is that the “F-words” Knowledge Hub will become a go-to resource for knowledge sharing and exchange for families and service providers.


2019 ◽  
Author(s):  
Julien Déry ◽  
Angel Ruiz ◽  
François Routhier ◽  
Marie-Pierre Gagnon ◽  
André Côté ◽  
...  

BACKGROUND Queueing patients on waiting lists is a common practice to manage access to rehabilitation services. To increase fairness and equity in access, a strategy emerging from the literature is patient prioritization. The goal is for patients with the greatest needs to be treated first and for patient wait times to be determined objectively on the basis of explicit criteria. Selecting criteria, however, is a complex task because it is important to simultaneously consider the objectives of all stakeholders. OBJECTIVE The aim of this study was to compare service users’ and service providers’ perspectives regarding patient prioritization criteria in two rehabilitation programs. METHODS We conducted a multiple case study in two rehabilitation programs at the Centre intégré universitaire de santé et de services sociaux de la Capitale-Nationale in Quebec City (Canada), i.e. a driving evaluation program (DEP) and a compression garment manufacturing program (CGMP). We sent a web-based survey asking two groups (patients and providers) of informed stakeholders to individually produce a set of criteria. We then conducted an inductive thematic analysis where each group’s individual answers were coded and combined in a single set of criteria. RESULTS Stakeholders from the DEP identified a total of 22 criteria to prioritize patients while those from the CGMP listed 27 criteria. Providers shared 76% of the criteria mentioned by patients. Some criteria, such as age, occupation, functional level, pain, absence of caregiver, and time since referral, were considered important by both stakeholders in both programs. CONCLUSIONS Patients and providers tended to have similar opinions about a majority of the criteria to prioritize patients in waitlists. Nonetheless, our study confirms that patients and providers base their choices on different types of knowledge and values, which explains some of the differences observed. Taking into consideration the opinions of all stakeholders concerning prioritization criteria is an important part of the decision-making process, based on a multiple constituency approach.


2015 ◽  
Vol 15 (2) ◽  
pp. 147-164
Author(s):  
Gabriela Novotná ◽  
Maureen Dobbins ◽  
Wendy Sword ◽  
Alison Niccols

2017 ◽  
Author(s):  
Daniele Pierpaolo Colobraro ◽  
Paolo Romano

Due to the fragmentation of microbial information and the several branch of human activities encompassed by microorganism applications, a comprehensive approach for merging information on microbes is needed. Although on line service providers collect several data on microorganisms and provide services for microbial Biological Resource Centres (mBRCs), such services are still limited both in contents and aims. The USMI Galaxy Demonstrator (UGD), an implementation of the Galaxy framework exploiting the XML-based Microbiological Common Language (MCL), is meant to support researchers to make an integrated access to enriched information from microbial catalogues, as well as to help mBRC curators in validating and enriching the contents of their catalogues. Researchers and mBRC curators may exploit the UGD to avoid manual, potentially long, searches on the web and to identify and select microorganisms of interest. UGD tools are written in Python, version 2.7. They allow to enrich the basic information provided by catalogues with related taxonomy, literature, sequence and chemical compound data retrieved from some of the main databases on the basis of the strain number, i.e. the unique identifier for a given culture, and the species names. The data is retrieved by querying database Web Services using either the Simple Object Access Protocol (SOAP) or the Representational State Transfer (REST) access protocols. The MCL format provides a versatile way to archive and exchange data among mBRCs. Galaxy is a well-known, open, web-based platform which offers many tools to retrieve, manage and analyze different kind of information arising from any life science domain. By exploiting Galaxy flexibility,UGD implements some tools and workflows that can be used to find and integrate several information on microorganisms. UGD tools integrate basic information which may support mBRC staff in the insertion of all fundamental strain information in a proper format allowing integration and interoperability with external databases. They also extend the output by adding information on source materials, including species and strain numbers, and retrieve associated microorganisms which use a compound or an enzyme in whatever metabolic pathway by returning the accession number, synonyms, links to external databases, taxon name, and strain number of the requested molecule.


10.2196/17349 ◽  
2020 ◽  
Vol 22 (5) ◽  
pp. e17349
Author(s):  
Aijing Luo ◽  
Zirui Xin ◽  
Yifeng Yuan ◽  
Tingxiao Wen ◽  
Wenzhao Xie ◽  
...  

Background With the rapid development of online health communities, increasing numbers of patients and families are seeking health information on the internet. Objective This study aimed to discuss how to fully reveal the health information needs expressed by patients with hypertension in their questions in a web-based environment and how to use the internet to help patients with hypertension receive personalized health education. Methods This study randomly selected 1000 text records from the question data of patients with hypertension from 2008 to 2018 collected from Good Doctor Online and constructed a classification system through literature research and content analysis. This paper identified the background characteristics and questioning intention of each patient with hypertension based on the patient’s question and used co-occurrence network analysis and the k-means clustering method to explore the features of the health information needs of patients with hypertension. Results The classification system for the health information needs of patients with hypertension included the following nine dimensions: drugs (355 names), symptoms and signs (395 names), tests and examinations (545 names), demographic data (526 kinds), diseases (80 names), risk factors (37 names), emotions (43 kinds), lifestyles (6 kinds), and questions (49 kinds). There were several characteristics of the explored web-based health information needs of patients with hypertension. First, more than 49% of patients described features, such as drugs, symptoms and signs, tests and examinations, demographic data, and diseases. Second, patients with hypertension were most concerned about treatment (778/1000, 77.80%), followed by diagnosis (323/1000, 32.30%). Third, 65.80% (658/1000) of patients asked physicians several questions at the same time. Moreover, 28.30% (283/1000) of patients were very concerned about how to adjust the medication, and they asked other treatment-related questions at the same time, including drug side effects, whether to take the drugs, how to treat the disease, etc. Furthermore, 17.60% (176/1000) of patients consulted physicians about the causes of clinical findings, including the relationship between the clinical findings and a disease, the treatment of a disease, and medications and examinations. Fourth, by k-means clustering, the questioning intentions of patients with hypertension were classified into the following seven categories: “how to adjust medication,” “what to do,” “how to treat,” “phenomenon explanation,” “test and examination,” “disease diagnosis,” and “disease prognosis.” Conclusions In a web-based environment, the health information needs expressed by Chinese patients with hypertension to physicians are common and distinct, that is, patients with different background features ask relatively common questions to physicians. The classification system constructed in this study can provide guidance to health information service providers for the construction of web-based health resources, as well as guidance for patient education, which could help solve the problem of information asymmetry in communication between physicians and patients.


2019 ◽  
Vol 15 (1) ◽  
pp. 77-84
Author(s):  
Warjiyono Warjiyono ◽  
Sopian Aji ◽  
Tri Indah Permesti

Public service is an activity of service for every citizen and resident for goods, services, and / or administrative services provided by public service providers, namely the Regional Disaster Management Agency (BPBD) of Brebes Regency. The quality of public services must have the principle of openness or transparency, easily accessible, accountability and cling to the principles of efficiency and effectiveness. But in fact the current information and reporting of disasters is still conventional. This study aims to reflect and build a Web-Based Disaster Geographic Information System using Extreme Programming method. The research method uses qualitative methods with descriptive data analysis techniques. Data obtained by observation and interviews. The benefit of this application is to improve services to the Brebes Regional Disaster Management Agency also useful for internal from the Implementing Party or Admin who can manage Disaster Area data online, accurately, and quickly. As well as greatly helping the community to obtain maps of information on disaster-prone areas, the latest disaster information and the community can report directly on disaster events so that the Regional Government can directly handle the disaster.


Author(s):  
Peter J. Allen ◽  
Lynne D. Roberts

The increasing level of Internet penetration over the last decade has made web surveying a viable option for data collection in academic research. Software tools and services have been developed to facilitate the development and deployment of web surveys. Many academics and research students are outsourcing the design and/or hosting of their web surveys to external service providers, yet ethical issues associated with this use have received limited attention in academic literature. In this article, the authors focus on specific ethical concerns associated with the outsourcing of web surveys with particular reference to external commercial web survey service providers. These include threats to confidentiality and anonymity, the potential for loss of control over decisions about research data, and the reduced credibility of research. Suggested guidelines for academic institutions and researchers in relation to outsourcing aspects of web-based survey research are provided.


2020 ◽  
Vol 2 (3) ◽  
pp. 174-180
Author(s):  
Adriyansah Efendi Noor ◽  
Pahrul Irfan

Vocational High School or in Indonesian abbreviated as SMK, is a government program that was built with the aim that students can have expertise in certain fields and can be the initial capital for them in looking for work. An accredited educational curriculum and the many practical activities provided to students can also ensure that SMK graduates are ready to enter the workforce. However, in today's world of work, it requires workers who, in addition to having skills, must also have work experience. There are events held by the government regarding Job Vacancy info which are held only a few times a year so that more participants are participating and the unemployment rate in the regions is getting higher. Based on the above problems, the authors provide a solution by creating a "Freelance Service Provider Application" which is expected to bring together workers and job seekers. The application is made web-based so that it can be easily accessed through various types of devices. The author also implements Progressive Web Apps technology or also known as PWA so that it can be more easily accessed on mobile devices. Based on the results of the discussion on the implementation of PWA technology for making applications for freelance service providers, this can be a means for the public and prospective workers to meet and conduct transactions. So based on the questionnaire data obtained from the respondents, it can be concluded that the research carried out was successful and it is felt that it can help the graduates of SMK 3 Mataram to get jobs and also work experience


2021 ◽  
Author(s):  
Chentel Cunningham ◽  
Hylein Sung ◽  
James Benoit ◽  
Jennifer Conway ◽  
Shannon D Scott

BACKGROUND Childhood heart failure is a factor in many hospital admissions each year. It can impose a steep learning curve for parents who need to learn the key information to care for their child at home. In this study, we conducted an environmental scan to identify and assess web-based knowledge translation tools about childhood heart failure for parent audiences developed within North America. OBJECTIVE The aim of this study is to inventory tool publicly available to parents about childhood heart failure from popular web-based venues, and assess each how each tool communicates health information and explore how they were developed. METHODS Modelled after previously published environmental scan methods, our search strategy included searching two popular internet-based venues including: 1) two App stores (Google PlayTM and Apple AppTM) and 2) GoogleTM search. Common search terms were used and results were uploaded to Microsoft Excel for screening amongst two reviewers. Inclusion criteria included: 1) content primarily focused on educating parents about their child’s heart failure, 2) English language, and 3) tools originated within North American. Two reviewers screened the application (app) store and internet search results for relevant tools. Each tool was assessed using the Suitability Assessment of Materials (SAM), a validated tool that objectively assesses the literacy of health information for a particular audience. Key informants who were involved in the tool development were invited for a qualitative interview using semi structured interview guide to provide more adjunct data about the development process. Frequencies were reported to summarize App and Internet screening and SAM rating results. Key themes were identified in the semi-structured interview process. RESULTS No applications exist for parents relating to pediatric heart failure. Seventeen relevant internet tools were identified, and their suitability was assessed for the parent audience. The tools scored well in the layout and type but lower in the readability and graphics scores. Qualitative interviews with key informants revealed three key themes: 1) timely & introductory knowledge, 2) credible & trustworthy knowledge, and 3) challenges & evolution in knowledge. CONCLUSIONS This is the first environmental scan looking for parent tool relating to childhood heart failure. Findings from this study reveal that no tools scored in the superior range using the Suitability of Materials Assessment and that further work in the area of knowledge translation targeting parents needs to be done to provide effective education for this parent population. These findings will inform the development of a new resource on children’s heart failure. CLINICALTRIAL Not applicable


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