Title: Web-based Knowledge Translation Tools for Parents about Childhood Heart Failure: An Environmental Scan (Preprint)

2021 ◽  
Author(s):  
Chentel Cunningham ◽  
Hylein Sung ◽  
James Benoit ◽  
Jennifer Conway ◽  
Shannon D Scott
Keyword(s):  
Heart Failure ◽  
Knowledge Translation ◽  
Health Information ◽  
Hospital Admissions ◽  
Qualitative Interviews ◽  
Structured Interview ◽  
Web Based ◽  
Key Informants ◽  
Environmental Scan ◽  
Translation Tools

BACKGROUND Childhood heart failure is a factor in many hospital admissions each year. It can impose a steep learning curve for parents who need to learn the key information to care for their child at home. In this study, we conducted an environmental scan to identify and assess web-based knowledge translation tools about childhood heart failure for parent audiences developed within North America. OBJECTIVE The aim of this study is to inventory tool publicly available to parents about childhood heart failure from popular web-based venues, and assess each how each tool communicates health information and explore how they were developed. METHODS Modelled after previously published environmental scan methods, our search strategy included searching two popular internet-based venues including: 1) two App stores (Google PlayTM and Apple AppTM) and 2) GoogleTM search. Common search terms were used and results were uploaded to Microsoft Excel for screening amongst two reviewers. Inclusion criteria included: 1) content primarily focused on educating parents about their child’s heart failure, 2) English language, and 3) tools originated within North American. Two reviewers screened the application (app) store and internet search results for relevant tools. Each tool was assessed using the Suitability Assessment of Materials (SAM), a validated tool that objectively assesses the literacy of health information for a particular audience. Key informants who were involved in the tool development were invited for a qualitative interview using semi structured interview guide to provide more adjunct data about the development process. Frequencies were reported to summarize App and Internet screening and SAM rating results. Key themes were identified in the semi-structured interview process. RESULTS No applications exist for parents relating to pediatric heart failure. Seventeen relevant internet tools were identified, and their suitability was assessed for the parent audience. The tools scored well in the layout and type but lower in the readability and graphics scores. Qualitative interviews with key informants revealed three key themes: 1) timely & introductory knowledge, 2) credible & trustworthy knowledge, and 3) challenges & evolution in knowledge. CONCLUSIONS This is the first environmental scan looking for parent tool relating to childhood heart failure. Findings from this study reveal that no tools scored in the superior range using the Suitability of Materials Assessment and that further work in the area of knowledge translation targeting parents needs to be done to provide effective education for this parent population. These findings will inform the development of a new resource on children’s heart failure. CLINICALTRIAL Not applicable

Performance of web-based self-care compared to multidisciplinary monitoring when managing heart failure (HF) and chronic obstructive pulmonary disease (COPD)

2018 ◽  
Vol 6 (4) ◽  
pp. 526
Author(s):  
Eñaut Agirre ◽  
Naiara Perez ◽  
Iratxe Urreta ◽  
Isabel Huerta ◽  
Ander Berroeta ◽  
...  
Keyword(s):  
Heart Failure ◽  
Chronic Obstructive Pulmonary Disease ◽  
Pulmonary Disease ◽  
Hospital Admissions ◽  
Self Care ◽  
Chronic Obstructive ◽  
Historical Cohort ◽  
Care Programme ◽  
Obstructive Pulmonary Disease ◽  
Web Based

Rationale: The Personalised Multidisciplinary Care Programme (PMCC) in operation at Donostia University Hospital since 2009 for patients suffering from Heart Failure (HF) and/or Chronic Obstructive Pulmonary Disease (COPD) has helped to cut down the number of re-admissions and visits to the emergency department (ED), at the expense of increasing the number of consultations and telephone calls.Objectives: To compare whether a web-based self-care programme (WSC group) can maintain the same standard as that found in the PMCC programme, while reducing the number of times patients needed to contact professionals (consultations and calls). Methods: Randomised clinical trials with concealment of the randomised sequence, not blind, involving 100 patients recruited from a historical cohort study (PMCC study participants) and monitored for one year (from May 2014 to May 2015). Mortality rates, the number of visits to the ED and hospital admissions in relation to the process, the number of telephone calls and consultations and quality of life (QoL) were measured using EuroQol while patients were a part of the study.Results: No significant statistical differences were observed in terms of mortality, visits to the ED and hospital admissions between the comparison groups. More in-person consultations and calls from nurses to patients were registered with the PMCC group, as expected as this was part of the procedure.Conclusion: A self-care web can be an effective and useful tool when managing chronic diseases in re-admitted patients, the effectiveness of which greatly depends on the patients’ preparedness and on their access to multimedia format.

scholarly journals The development and usability testing of digital knowledge translation tools for parents of children with bronchiolitis

2021 ◽  
Author(s):  
Anne Le ◽  
Lisa Hartling ◽  
Shannon D Scott
Keyword(s):  
Knowledge Translation ◽  
Health Information ◽  
Acute Infection ◽  
Usability Testing ◽  
Digital Tools ◽  
Healthcare Decision ◽  
Translation Tools ◽  
Healthcare Decision Making ◽  
Ed Visits ◽  
Digital Knowledge

Bronchiolitis is an acute infection of the lower respiratory tract that predominantly affects children less than two years old. Although self-limiting, symptoms of bronchiolitis can be distressing for young children. Research has demonstrated that parents may not have the necessary information to be able to identify bronchiolitis symptoms, resulting in emergency department (ED) visits and hospitalizations. Parents have expressed that they feel unprepared, afraid, and that they lack information on their child's condition. Digital knowledge translation (KT) tools have the potential to convey complex health information to parents. We worked with parents of children with bronchiolitis to develop and evaluate three digital tools on bronchiolitis (whiteboard animation video, infographic, and e-Book). Following prototype completion, usability testing was conducted using iPads in two Alberta ED waiting rooms. Parents were randomized to one out of the three tools. Overall, the tools were highly rated, suggesting that arts-based digital tools are useful in delivering complex health information to parents to support their healthcare decision-making needs.

scholarly journals Cultural adaptation of digital knowledge translation tools to improve child health outcomes in low-middle-income countries: A mixed-methods usability evaluation (Preprint)

2019 ◽  
Author(s):  
Salima Meherali ◽  
Lisa Hartling ◽  
Shannon Scott
Keyword(s):  
Child Health ◽  
Knowledge Translation ◽  
Health Information ◽  
Cultural Adaptation ◽  
Usability Evaluation ◽  
Middle Income ◽  
Middle Income Countries ◽  
Translation Tools ◽  
Low Middle Income Countries ◽  
Digital Knowledge

BACKGROUND Healthcare decisions based on the best available research are crucial for ensuring high quality patient care, optimal health outcomes and quality and safety in health care systems. Healthcare challenges in low-middle income countries (LMICs) have been the focus of many digital or ehealth initiatives that have aimed to improve both the access and the quality of healthcare delivery. Digital interventions have been identified as useful public health tool, particularly in LMICs. A wealth of research evidence is available from developed countries; however much less attention has been paid to how to scale up digital knowledge translation tools to be used by people in LMICs can use it. OBJECTIVE The objective of this research project was to augment digital art and story-based KT tools developed for Canadian parents on acute otitis media (AOM) for parents in Pakistan, a LMIC. In this paper we have presented the usability evaluation conducted to evaluate the usefulness and effectiveness of the digital KT tools for use by parents in Pakistan. METHODS A mixed-methods design (quantitative survey and qualitative focus groups) were used to evaluate the usability of translated digital arts-based KT tools for pediatric AOM. Participants were recruited from a private hospital in Karachi, Pakistan. A total of 47 parents completed the survey forms and 21 parents participated in focus group interviews. RESULTS The usability evaluation of translated digital tools revealed that both of the KT tools (whiteboard video and infographic) are useful and effective in communicating health information to parents. Parents reported that the tools are very usable and they preferred receiving health information in a narrative form in their own language through digital media. This study identified that culturally adapted translated digital KT tools are better than traditional format in transferring health information to parents. CONCLUSIONS Cultural adaptation of the KT tools generated important knowledge that will contribute to the science of KT. Scaling up of digital KT tools for use in a different culture provide the necessary leadership to enable innovative solutions to reach patients and their families in LMICs and can change the trajectory of child health globally.

Health Information on the Web for Canadian Teens: A Survey of Web Portals Designed for Teen Health Information Seekers

2013 ◽  
Author(s):  
Leanne Bowler
Keyword(s):  
Health Information ◽  
General Health ◽  
Web Portals ◽  
Environmental Scan ◽  
The Web

This paper reports on an environmental scan of the Web, the purpose of which was to identify and describe portals to general health information, in English and French, designed specifically for teens.Cet article présente une analyse de l'environnement du Web dont le but est d'identifier et de décrire les portails regroupant de l'information générale sur la santé, en anglais et en français, conçus précisément pour les adolescents. 

scholarly journals Biomarkers-based personalized follow-up in chronic heart failure improves patient’s outcomes and reduces care associate cost

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Antonio Leon-Justel ◽  
Jose I. Morgado Garcia-Polavieja ◽  
Ana Isabel Alvarez-Rios ◽  
Francisco Jose Caro Fernandez ◽  
Pedro Agustin Pajaro Merino ◽  
...  
Keyword(s):  
Heart Failure ◽  
Hospital Admissions ◽  
Left Ventricular ◽  
Left Ventricular Ejection ◽  
Secondary Outcome ◽  
Ventricular Ejection Fraction ◽  
Number Of Patients ◽  
Ed Visits ◽  
The Impact

Abstract Background Heart failure (HF) is a major and growing medical and economic problem, with high prevalence and incidence rates worldwide. Cardiac Biomarker is emerging as a novel tool for improving management of patients with HF with a reduced left ventricular ejection fraction (HFrEF). Methods This is a before and after interventional study, that assesses the impact of a personalized follow-up procedure for HF on patient’s outcomes and care associated cost, based on a clinical model of risk stratification and personalized management according to that risk. A total of 192 patients were enrolled and studied before the intervention and again after the intervention. The primary objective was the rate of readmissions, due to a HF. Secondary outcome compared the rate of ED visits and quality of life improvement assessed by the number of patients who had reduced NYHA score. A cost-analysis was also performed on these data. Results Admission rates significantly decreased by 19.8% after the intervention (from 30.2 to 10.4), the total hospital admissions were reduced by 32 (from 78 to 46) and the total length of stay was reduced by 7 days (from 15 to 9 days). The rate of ED visits was reduced by 44% (from 64 to 20). Thirty-one percent of patients had an improved functional class score after the intervention, whereas only 7.8% got worse. The overall cost saving associated with the intervention was € 72,769 per patient (from € 201,189 to € 128,420) and €139,717.65 for the whole group over 1 year. Conclusions A personalized follow-up of HF patients led to important outcome benefits and resulted in cost savings, mainly due to the reduction of patient hospitalization readmissions and a significant reduction of care-associated costs, suggesting that greater attention should be given to this high-risk cohort to minimize the risk of hospitalization readmissions.

External validation of a heart failure risk prediction model in a remote monitoring cohort submitted to cardiac resynchronization therapy

2020 ◽  
Vol 41 (Supplement_2) ◽  
Author(s):  
I Cardoso ◽  
M Coutinho ◽  
G Portugal ◽  
A Valentim ◽  
A.S Delgado ◽  
...  
Keyword(s):  
Heart Failure ◽  
Heart Rate ◽  
High Risk ◽  
Remote Monitoring ◽  
Hospital Admissions ◽  
External Validation ◽  
Left Ventricular Ejection ◽  
National Database ◽  
Failure Risk

Abstract Background Patients (P) submitted to cardiac ressynchronization therapy (CRT) are at high risk of heart failure (HF) events during follow-up. Continuous analysis of various physiological parameters, as reported by remote monitoring (RM), can contribute to point out incident HF admissions. Tailored evaluation, including multi-parameter modelling, may further increase the accuracy of such algorithms. Purpose Independent external validation of a commercially available algorithm (“Heart Failure Risk Status” HFRS, Medtronic, MN USA) in a cohort submitted to CRT implantation in a tertiary center. Methods Consecutive P submitted to CRT implantation between January 2013 and September 2019 who had regular RM transmissions were included. The HFRS algorithm includes OptiVol (Medtronic Plc., MN, USA), patient activity, night heart rate (NHR), heart rate variability (HRV), percentage of CRT pacing, atrial tachycardia/atrial fibrillation (AT/AF) burden, ventricular rate during AT/AF (VRAF), and detected arrhythmia episodes/therapy delivered. P were classified as low, medium or high risk. Hospital admissions were systematically assessed by use of a national database (“Plataforma de Dados de Saúde”). Accuracy of the HFRS algorithm was evaluated by random effects logistic regression for the outcome of unplanned hospital admission for HF in the 30 days following each transmission episode. Results 1108 transmissions of 35 CRT P, corresponding to 94 patient-years were assessed. Mean follow-up was 2.7 yrs. At implant, age was 67.6±9.8 yrs, left ventricular ejection fraction 28±7.8%, BNP 156.6±292.8 and NYHA class >II in 46% of the P. Hospital admissions for HF were observed within 30 days in 9 transmissions. Stepwise increase in HFRS was significantly associated with higher risk of HF admission (odds ratio 12.7, CI 3.2–51.5). HFRS had good discrimination for HF events with receiving-operator curve AUC 0.812. Conclusions HFRS was significantly associated with incident HF admissions in a high-risk cohort. Prospective use of this algorithm may help guide HF therapy in CRT recipients. Funding Acknowledgement Type of funding source: None

scholarly journals How different combinations of comorbidities affect healthcare use by elderly patients with obstructive lung disease

2021 ◽  
Vol 31 (1) ◽  
Author(s):  
Alessandra Buja ◽  
Andrea Bardin ◽  
Giulia Grotto ◽  
Stefania Elvini ◽  
Pietro Gallina ◽  
...  
Keyword(s):  
Heart Failure ◽  
Elderly Patients ◽  
Lung Disease ◽  
Ambulatory Care ◽  
Obstructive Lung Disease ◽  
Hospital Admissions ◽  
Large Population ◽  
Healthcare Resources ◽  
Outpatient Visits ◽  
Common Causes

AbstractPrevious research had shown the number of comorbidities is a major factor influencing the burden of care for elderly patients with obstructive lung disease (OLD). This retrospective cohort study on a large population of elderly patients (age > 65 years) with OLD in northern Italy measures the use of healthcare resources associated with the most frequent combinations of comorbidities and investigates the most common reasons for hospitalization. Total health costs, pharmacy costs, emergency department (ED) visits, outpatient visits, and hospital admissions are assessed for every subject. The most common causes of hospitalization by a number of comorbidities and the most common sets of three comorbidities are identified. For each comorbidity group, we rank a list of the most frequent causes of hospitalization, both overall and avoidable with effective ambulatory care. A small group of patients suffering from major comorbidities accounts for the use of most healthcare resources. The most frequent causes of hospitalization are respiratory failure, heart failure, chronic bronchitis, and bronchopneumonia. The most common conditions manageable with ambulatory care among causes of hospitalizations are heart failure, bacterial pneumonia, and COPD. The set of three comorbidities responsible for the highest average total costs, and the highest average number of hospitalizations and outpatient visits comprised hypertension, cardiac arrhythmias, and heart failure. The main reasons for hospitalization proved to remain linked to heart failure and acute respiratory disease, regardless of specific combinations of comorbidities. Based on these findings, specific public health interventions among patients with OLD cannot be advised on the basis of specific sets of comorbidities only.

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