Lyme disease prevention: A content analysis of Canadian patient group and government websites

2019 ◽  
Vol 67 (2) ◽  
pp. 177-185
Author(s):  
Audrey‐Ann Journault ◽  
Lucie Richard ◽  
Cécile Aenishaenslin
2021 ◽  
pp. 097172182096024
Author(s):  
Alex Faulkner ◽  
Kate Bloor ◽  
Vahsti Hale

States that claim responsibility for citizens’ healthcare try to deal with knowledge uncertainties while preserving a duty of care. Production of clinical guidelines in disputed medical conditions or where uncertainty is high, is difficult. Patient groups may advocate non-credentialed evidence, contribute to debates and form alliances with established policy actors. In this context, Lyme disease, especially highly contested ‘chronic’ Lyme disease is a good case with which to examine how official governance institutions are managing diagnostic uncertainty and evidence for tests. The healthcare state has been provoked to develop extensive policy for Lyme disease. In the UK, national Health Technology Assessment agency, NICE, began a consultation process in 2016. NICE and other policy actors are moving towards more participatory modes of decision-making. The article analyses NICE’s recently published guidelines and consultation documents; patient groups’ contributions; observations of consultations and of evidence review processes; and recent Department of Health systematic reviews, including patient group participation. We draw on concepts of participatory governance, patient group activism and guideline involvement. We find an increased level of participation by patient groups in recent policy and evidence review processes, and hence legitimation of them as ‘stakeholders’, alongside a strengthened state position on pre-existing diagnostic and testing standards.


2019 ◽  
Vol 8 (3) ◽  
pp. 367-385 ◽  
Author(s):  
Joyce Stroobant ◽  
Karin Raeymaeckers

By means of a quantitative content analysis of two Belgian net-native health news websites, this article investigates the reliability and usability of the hyperlinks in various forms of online news. Hyperlinks in our sample overwhelmingly redirect readers to government websites and websites that contain scientific information such as websites of universities, scientific research groups and peer-reviewed academic journals. Hyperlinks to information generally perceived as less reliable and possibly biased such as user-generated content or pharmaceutical companies are used rarely. This suggests that online health journalists strongly share the preferences of their offline colleagues. However, in terms of the potential of hypertext to tailor health news to the needs of the audience, for instance by including multimedia content or even simply by hyperlinking to webpages in the same language as the original, there are clear indications that Belgian online net-native health news falls short. The practical hindrances and hurdles identified in this content analysis constitute an invitation for online health journalists to consider the possibilities of hypertext in the light of how users might appreciate this practice.


2021 ◽  
Vol 8 (Supplement_1) ◽  
pp. S690-S690
Author(s):  
Grace E Marx ◽  
Anna M Schotthoefer ◽  
Brian S Schwartz ◽  
Evan Draper ◽  
Christina G Rivera ◽  
...  

Abstract Background Lyme disease, the most common tickborne disease in the United States, may be prevented by taking a single 200-mg dose of oral doxycycline after a high-risk bite from a blacklegged tick. Currently, it is not known how Lyme disease post-exposure prophylaxis (PEP) might vary by region and healthcare system. We identified single-dose doxycycline medication orders in three healthcare systems in states with high incidence of Lyme disease and compared associated patient and provider characteristics. Methods Electronic health record data during 2012 – 2016 were obtained from three healthcare systems: Geisinger (Pennsylvania), Marshfield Clinic (Wisconsin), and Mayo Clinic (Minnesota/Wisconsin). Creation of analytic variables and analysis were harmonized across the three sites. Medication orders for single-dose doxycycline ≤200 mg that were accompanied by specific key words or diagnostic codes (e.g., tick bite; Lyme disease prevention) were considered evidence of PEP. Manual chart review was performed from a random subset to evaluate the algorithms used to identify PEP. Results Among 2,937,585 patients with at least one medication order or clinical encounter during the study period, 14,102 single-dose doxycycline orders for Lyme disease PEP for 13,172 unique patients were identified. The typical patient receiving PEP was older (mean age 51 – 58 years), male (56 – 59%), and non-Hispanic White (81 – 98%). The annual seasonality of medication orders was bimodal, with peaks occurring during April – July and October – November. The most common encounter setting was an outpatient clinic or urgent care center (80 – 91%); medication orders after patient phone calls in the absence of an in-person visit occurred frequently (14 – 19%) in two health systems. Chart abstractions (n=600) revealed instances of PEP prescribed inappropriately (e.g., bite from a non-blacklegged tick; patient with symptoms of acute Lyme disease). Conclusion Lyme disease PEP with a single dose of doxycycline was frequently prescribed in healthcare systems where there is a high incidence of Lyme disease. PEP was most commonly prescribed to non-Hispanic Whites over the age of 50 years. Public health initiatives for tickborne disease prevention should include clinician education on the appropriate use of Lyme disease PEP. Disclosures Anna M. Schotthoefer, PhD, HelixBind (Other Financial or Material Support, salary support) John Zeuli, PharmD, INSMED (Other Financial or Material Support, honoraria for educational speaking)


Author(s):  
Jing Jing Lim ◽  
Yong Long Lim

Leprosarium or leprosy asylum has always been associated with cruel segregation of leprosy sufferers from the society. However, humane approach was suggested in the international arena in 1923 to reform the former unsympathetic compulsory segregation to make leprosy sufferers “human” again. Prior to this revelation that leprosarium should be attractive to persuade leprosy sufferers to admit themselves voluntarily, missionary organizations have been establishing humane leprosarium that mirrors a home rather than an institution. There are studies on the eminent Mission to Lepers, such as Kakar (1996), Buckingham (2002), Joseph (2003), and Robertson (2009). However, the architectural and planning idea of the missionary organizations, which is disparate from the conventional leprosy institutions established since the medieval time, has yet to be studied. The aim of this paper is to identify the idea and principles of humane segregation in leprosarium practiced by missionary organizations, especially the influential leprosarium model by Mission to Lepers. It is carried out through content analysis on missionary books, reports and biographies, leprosy journals, newspapers, drawings, and photographs. The analysis enables the identification of unique spatial planning and built form of missionary leprosarium model. The findings showed that missionary leprosarium model imitates the natural village to create a sense of home for leprosy sufferers, and self-sustainable in character. Missionary leprosaria are also community-driven and semi-autonomous. All this has accredited missionary leprosy organizations as the forerunner in humane leprosarium design that thrives in the 1920s to 1930s. This study would be able to help us to understand how architecture was utilized as a tool in disease prevention yet aspired to preserve the humanity among leprosy outcasts. Further research can be done to enhance the study such as human perception and psychology towards the architectural design of leprosarium and the socio-cultural impact on the residence as well as the society.


2009 ◽  
Vol 3 (2) ◽  
pp. 103-114
Author(s):  
Achmad Syarief ◽  
◽  
Agung Eko Budiwaspada ◽  
Irfansyah Irfansyah ◽  
Ifa Shafira Mustikadara

2019 ◽  
Vol 10 (2) ◽  
pp. 58-66
Author(s):  
N. Soroka ◽  
◽  
N. Ovcharuk ◽  
V. Ovcharuk ◽  
O. Kravchuk ◽  
...  

Author(s):  
Christopher G. Reddick

This chapter examines the provision of emergency management information on government websites. E-government websites can be an effective tool for communicating with residents of a community on preparedness measures that they can take, and provides information for those that have been impacted by disasters. This chapter demonstrates that there is much variability in the content provided on emergency management websites. This chapter focuses on the role of websites in emergency management through a content analysis of their websites. There chapter will first provide a rationale for studying e-government through emergency management websites. It will then examine the commonly found e-government growth models indentified in the literature. The factors that influence the adoption of government websites are also examined in this chapter. The most commonly found studies of the content provided on websites are benchmarking reports, which are discussed. Accessibility and transparency are two important issues in the advancement of e-government websites, and are also mentioned in this chapter. The main thrust of this chapter is a content analysis of state government emergency management websites. The conclusion to this chapter summarizes the main research findings of the chapter.


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