Patient Lyme disease websites prioritize science; public health websites prioritize consistent messaging—Comment on ‘Lyme disease prevention: A content analysis of Canadian patient group and government websites’

2021 ◽  
Author(s):  
Vett Lloyd ◽  
Marilyn Cox ◽  
Jane Bailey ◽  
Chris Roy
Keyword(s):  
Public Health ◽  
Content Analysis ◽  
Lyme Disease ◽  
Disease Prevention ◽  
Patient Group ◽  
Government Websites ◽  
Canadian Patient

Lyme disease prevention: A content analysis of Canadian patient group and government websites

2019 ◽  
Vol 67 (2) ◽  
pp. 177-185
Author(s):  
Audrey‐Ann Journault ◽  
Lucie Richard ◽  
Cécile Aenishaenslin
Keyword(s):  
Content Analysis ◽  
Lyme Disease ◽  
Disease Prevention ◽  
Patient Group ◽  
Government Websites ◽  
Canadian Patient

scholarly journals Development and validation of a behavioral index for adaptation to lyme disease

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Pierre Valois ◽  
David Bouchard ◽  
Cécile Aenishaenslin ◽  
Denis Talbot ◽  
Catherine Bouchard ◽  
...  
Keyword(s):  
Public Health ◽  
Lyme Disease ◽  
Disease Prevention ◽  
Social Norms ◽  
Perceived Control ◽  
Disease Risk ◽  
Preventive Behaviors ◽  
Risk Area ◽  
Intention To Adopt ◽  
The Creation

Abstract Background Recent evidence suggests that climate change and other factors are leading to the emergence of Lyme disease in the province of Quebec, where it previously did not exist. As risk areas expand further north, the population can adopt specific preventive behaviors to limit chances of infection. The objectives of this study were to (1) create an index of Lyme disease prevention behaviors (LDPB), and (2) use the theory of planned behavior (TPB) to explain the decision-making process of people who choose to adopt LDPB. Methods A sample of 1959 adults living in a Lyme disease risk area completed a questionnaire by phone (n = 1003) or on the Web (n = 956). The questionnaire measured whether they did or did not adopt the LDPB proposed by public health officials. It also measured some TPB variables, including their attitude or perceived social norms regarding LDPB. Results Our findings led to the creation of a Lyme disease prevention index consisting of 10 behaviors, down from the 19 behaviors initially considered for inclusion in the index. Rates of adoption of each behavior varied tremendously, from 4.30 to 83.80%. All variables of the TPB model (attitude, social norms, and perceived control) were significantly associated with intention to adopt preventive behaviors. Intention itself was significantly associated with adoption of LDPB. Likewise, risk perception was positively correlated with the adoption of LDPB. Conclusions This study led to the creation of a Lyme disease prevention index that can be used by public health agencies, researchers, and professionals to monitor the evolution over time of individuals’ LDPB adoption rates. It also showed the usefulness of the TPB in understanding the adoption of LDPB and how intention to adopt such behaviors is formed.

scholarly journals Public perceptions of Lyme disease and climate change in southern Manitoba, Canada: making a case for strategic decoupling of climate and health messages

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Laura Cameron ◽  
Rhéa Rocque ◽  
Kailey Penner ◽  
Ian Mauro
Keyword(s):  
Public Health ◽  
Climate Change ◽  
Risk Perception ◽  
Lyme Disease ◽  
Risk Perceptions ◽  
Public Discourse ◽  
Behavioural Change ◽  
Health Messages ◽  
Urban Rural ◽  
Climate And Health

Abstract Background Despite scientific evidence that climate change has profound and far reaching implications for public health, translating this knowledge in a manner that supports citizen engagement, applied decision-making, and behavioural change can be challenging. This is especially true for complex vector-borne zoonotic diseases such as Lyme disease, a tick-borne disease which is increasing in range and impact across Canada and internationally in large part due to climate change. This exploratory research aims to better understand public risk perceptions of climate change and Lyme disease in order to increase engagement and motivate behavioural change. Methods A focus group study involving 61 participants was conducted in three communities in the Canadian Prairie province of Manitoba in 2019. Focus groups were segmented by urban, rural, and urban-rural geographies, and between participants with high and low levels of self-reported concern regarding climate change. Results Findings indicate a broad range of knowledge and risk perceptions on both climate change and Lyme disease, which seem to reflect the controversy and complexity of both issues in the larger public discourse. Participants in high climate concern groups were found to have greater climate change knowledge, higher perception of risk, and less skepticism than those in low concern groups. Participants outside of the urban centre were found to have more familiarity with ticks, Lyme disease, and preventative behaviours, identifying differential sources of resilience and vulnerability. Risk perceptions of climate change and Lyme disease were found to vary independently rather than correlate, meaning that high climate change risk perception did not necessarily indicate high Lyme disease risk perception and vice versa. Conclusions This research contributes to the growing literature framing climate change as a public health issue, and suggests that in certain cases climate and health messages might be framed in a way that strategically decouples the issue when addressing climate skeptical audiences. A model showing the potential relationship between Lyme disease and climate change perceptions is proposed, and implications for engagement on climate change health impacts are discussed.

scholarly journals Definitely Maybe: New Governance of Uncertainty and Risk in Patient Group Involvement with UK Guidance on Testing for Lyme Disease

2021 ◽  
pp. 097172182096024
Author(s):  
Alex Faulkner ◽  
Kate Bloor ◽  
Vahsti Hale
Keyword(s):  
Lyme Disease ◽  
Patient Group ◽  
New Governance ◽  
Difficult Patient ◽  
Consultation Process ◽  
Diagnostic Uncertainty ◽  
Policy Actors ◽  
Patient Groups ◽  
Evidence Review ◽  
The Uk

States that claim responsibility for citizens’ healthcare try to deal with knowledge uncertainties while preserving a duty of care. Production of clinical guidelines in disputed medical conditions or where uncertainty is high, is difficult. Patient groups may advocate non-credentialed evidence, contribute to debates and form alliances with established policy actors. In this context, Lyme disease, especially highly contested ‘chronic’ Lyme disease is a good case with which to examine how official governance institutions are managing diagnostic uncertainty and evidence for tests. The healthcare state has been provoked to develop extensive policy for Lyme disease. In the UK, national Health Technology Assessment agency, NICE, began a consultation process in 2016. NICE and other policy actors are moving towards more participatory modes of decision-making. The article analyses NICE’s recently published guidelines and consultation documents; patient groups’ contributions; observations of consultations and of evidence review processes; and recent Department of Health systematic reviews, including patient group participation. We draw on concepts of participatory governance, patient group activism and guideline involvement. We find an increased level of participation by patient groups in recent policy and evidence review processes, and hence legitimation of them as ‘stakeholders’, alongside a strengthened state position on pre-existing diagnostic and testing standards.

scholarly journals Epidemiology of Lyme Disease

1991 ◽  
Vol 2 (2) ◽  
pp. 58-60
Author(s):  
Dennis J White
Keyword(s):  
Public Health ◽  
Lyme Disease ◽  
Disease Surveillance ◽  
Vector Species ◽  
Potential Vector ◽  
Public Health Agencies ◽  
Laboratory Services ◽  
Health Agencies ◽  
Surveillance Programs ◽  
Risk Of Exposure

Investigation of the epidemiology of Lyme disease depends upon information generated from several sources. Human disease surveillance can be conducted by both passive and active means involving physicians, public health agencies and laboratories. Passive and active tick surveillance programs can document the extent of tick-borne activity, identify the geographic range of potential vector species, and determine the relative risk of exposure to Lyme disease in specific areas. Standardized laboratory services can play an important role in providing data. Epidemiologists can gain a better understanding of Lyme disease through the collection of data from such programs. The interpretation of data and provision of information to the medical and general communities are important functions of public health agencies.

A shift from science to politics : a content analysis of COVID-19 Videos on YouTube (Preprint)

2021 ◽  
Author(s):  
Chyun-Fung Shi ◽  
Matthew C So ◽  
Sophie Stelmach ◽  
Arielle Earn ◽  
David J D Earn ◽  
...  
Keyword(s):  
Public Health ◽  
Social Media ◽  
Content Analysis ◽  
Large Scale ◽  
Control Measures ◽  
Mitigation Measures ◽  
Health Campaigns ◽  
Public Attention ◽  
Conflicting Information ◽  
Social Media Platforms

BACKGROUND The COVID-19 pandemic is the first pandemic where social media platforms relayed information on a large scale, enabling an “infodemic” of conflicting information which undermined the global response to the pandemic. Understanding how the information circulated and evolved on social media platforms is essential for planning future public health campaigns. OBJECTIVE This study investigated what types of themes about COVID-19 were most viewed on YouTube during the first 8 months of the pandemic, and how COVID-19 themes progressed over this period. METHODS We analyzed top-viewed YouTube COVID-19 related videos in English from from December 1, 2019 to August 16, 2020 with an open inductive content analysis. We coded 536 videos associated with 1.1 billion views across the study period. East Asian countries were the first to report the virus, while most of the top-viewed videos in English were from the US. Videos from straight news outlets dominated the top-viewed videos throughout the outbreak, and public health authorities contributed the fewest. Although straight news was the dominant COVID-19 video source with various types of themes, its viewership per video was similar to that for entertainment news and YouTubers after March. RESULTS We found, first, that collective public attention to the COVID-19 pandemic on YouTube peaked around March 2020, before the outbreak peaked, and flattened afterwards despite a spike in worldwide cases. Second, more videos focused on prevention early on, but videos with political themes increased through time. Third, regarding prevention and control measures, masking received much less attention than lockdown and social distancing in the study period. CONCLUSIONS Our study suggests that a transition of focus from science to politics on social media intensified the COVID-19 infodemic and may have weakened mitigation measures during the first waves of the COVID-19 pandemic. It is recommended that authorities should consider co-operating with reputable social media influencers to promote health campaigns and improve health literacy. In addition, given high levels of globalization of social platforms and polarization of users, tailoring communication towards different digital communities is likely to be essential.

Arguments used by proponents and opponents in Brazil’s regulatory discussions of e-cigarettes and heated tobacco products

2021 ◽  
pp. tobaccocontrol-2021-056628
Author(s):  
Mônica Nunes-Rubinstein ◽  
Teresa Leão
Keyword(s):  
Public Health ◽  
Content Analysis ◽  
Cigarette Smoking ◽  
Health Risks ◽  
Regulatory Agency ◽  
Economic Consequences ◽  
The Other ◽  
Tobacco Products ◽  
The Right ◽  
Over Time

ObjectivesTo identify proponents and opponents of the commercialisation and marketing of e-cigarettes and heated tobacco products (HTPs), identify the arguments used on both sides and compare how the arguments have changed over time, we analysed three policy discussions occurring in 2009, 2018 and 2019.MethodsWe conducted a content analysis of one document and six videos from these discussions, provided on the Brazilian Health Regulatory Agency website, or upon request.ResultsThe arguments most used by tobacco companies were related to claims that the use of e-cigarettes and HTPs is less harmful than conventional tobacco. Unions that support its commercialisation also argued that lifting the ban would prevent smuggling and guarantee their quality. On the other side, universities, medical and anti-tobacco institutions argued that such devices may have health risks, including the risk of inducing cigarette smoking. In 2009, most arguments belonged to the ‘health’ theme, while in 2018 and 2019 economic arguments and those related to morals and ethics were frequently used.ConclusionsThose that supported the commercialisation and marketing of e-cigarettes and HTPs first focused on arguments of harm reduction, while 10 years later the right to access and potential economic consequences also became common. Public health agents and academics must gather evidence to effectively respond to these arguments and discuss these policies, and must prepare themselves to use and respond to arguments related to moral and economic themes.

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