Health care Needs of Women Immediately Post-Incarceration: A Mixed Methods Study

2013 ◽  
Vol 30 (5) ◽  
pp. 409-419 ◽  
Author(s):  
Alison M. Colbert ◽  
L. Kathleen Sekula ◽  
Rick Zoucha ◽  
Susan M. Cohen
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Health Care Needs ◽  
Care Needs

Piloting a structured developmental tool to assess transition readiness for youth with special health-care needs: A mixed-methods exploration of health-care provider experiences

2019 ◽  
Vol 24 (1) ◽  
pp. 92-105
Author(s):  
Judy Bond ◽  
Susan Shanske ◽  
Roberta Hoffman ◽  
Abigail M Ross
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Patient Care ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Providers ◽  
Care Needs ◽  
Special Health Care ◽  
Transition Readiness ◽  
Special Health

This mixed-methods study examined providers’ experiences using a structured developmentally sensitive tool to assess transition readiness for youth with special health-care needs moving from pediatric to adult care. Twenty-eight health-care providers from three pediatric specialty clinics reported their experiences using the tool by surveys and semistructured telephone interviews. Qualitative data were analyzed using thematic analysis. Most (96%) believed routine practice should include a structured tool; 65.7% incorporated information from the tool into patient care plans. Salient themes pertained to practice behavior changes and implementation barriers. Integrating structured tools into standard clinical practice has the potential to optimize transition and improve patient care.

scholarly journals Respite care and short breaks for young adults aged 18–40 with complex health-care needs: mixed-methods systematic review and conceptual framework development

2021 ◽  
Vol 9 (6) ◽  
pp. 1-268
Author(s):  
Katherine Knighting ◽  
Gerlinde Pilkington ◽  
Jane Noyes ◽  
Brenda Roe ◽  
Michelle Maden ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Mixed Methods ◽  
Cost Effectiveness ◽  
Conceptual Framework ◽  
Respite Care ◽  
Knowledge Map ◽  
Health Care Needs ◽  
Care Needs ◽  
Adult Services

Background The number of young adults with complex health-care needs due to life-limiting conditions/complex physical disability has risen significantly over the last 15 years, as more children now survive into adulthood. The transition from children to adult services may disrupt provision of essential respite/short break care for this vulnerable population, but the impact on young adults, families and providers is unclear. Aim To review the evidence on respite care provision for young adults (aged 18–40 years) with complex health-care needs, provide an evidence gap analysis and develop a conceptual framework for respite care. Design A two-stage mixed-methods systematic review, including a knowledge map of respite care and an evidence review of policy, effectiveness, cost-effectiveness and experience. Data sources Electronic databases and grey/unpublished literature were searched from 2002 to September 2019. The databases searched included Cumulative Index to Nursing and Allied Health Literature, MEDLINE, EMBASE, PsycINFO, Applied Social Sciences Index and Abstracts, Health Management Information Consortium, PROSPERO, Turning Research into Practice, COnNECT+, British Nursing Index, Web of Science, Social Care Online, the National Institute for Health Research Journals Library, Cochrane Effective Practice and Organisation of Care specialist register, databases on The Cochrane Library and international clinical trials registers. Additional sources were searched using the CLUSTER (Citations, Lead authors, Unpublished materials, Scholar search, Theories, Early examples, Related projects) approach and an international ‘call for evidence’. Methods and analysis Multiple independent reviewers used the SPICE (Setting, Perspective, Intervention/phenomenon of interest, Comparison, Evaluation) framework to select and extract evidence for each stage, verified by a third reviewer. Study/source characteristics and outcomes were extracted. Study quality was assessed using relevant tools. Qualitative evidence was synthesised using a framework approach and UK policy was synthesised using documentary content analysis. GRADE-CERQual (Grading of Recommendations Assessment, Development and Evaluation-Confidence in the Evidence from Reviews of Qualitative Research) was used to assess confidence in the evidence. Logic models developed for each type of respite care constituted the conceptual framework. Results We identified 69 sources (78 records) from 126,267 records. The knowledge map comprised the following types of respite care: residential, home based, day care, community, leisure/social provision, funded holidays and emergency. Seven policy intentions included early transition planning and prioritising respite care according to need. No evidence was found on effectiveness and cost-effectiveness. Qualitative evidence focused largely on residential respite care. Facilitators of accessible/acceptable services included trusted and valued relationships, independence and empowerment of young adults, peer social interaction, developmental/age-appropriate services and high standards of care. Barriers included transition to adult services, paperwork, referral/provision delay and travelling distance. Young adults from black, Asian and minority ethnic populations were under-represented. Poor transition, such as loss of or inappropriate services, was contrary to statutory expectations. Potential harms included stress and anxiety related to safe care, frustration and distress arising from unmet needs, parental exhaustion, and a lack of opportunities to socialise and develop independence. Limitations No quantitative or mixed-methods evidence was found on effectiveness or cost-effectiveness of respite care. There was limited evidence on planned and emergency respite care except residential. Conclusions Policy intentions are more comprehensively met for young people aged < 18 years who are accessing children’s services. Young adults with complex needs often ‘fall off a cliff’ following service withdrawal and this imbalance needs addressing. Future work Research to quantify the effectiveness and cost-effectiveness of respite care to support service development and commissioning. Development of a core set of outcomes measures to support future collation of evidence. Study registration This study is registered as PROSPERO CRD42018088780. Funding This project was funded by the National Institute for Health Research (NIHR) Health Services and Delivery Research programme and will be published in full in Health Services and Delivery Research; Vol. 9, No. 6. See the NIHR Journals Library website for further project information.

scholarly journals A provider-facing educational health website on transitioning children and youth with special health care needs from pediatric to adult care: a mixed-methods, user engaged, usability study. (Preprint)

2020 ◽  
Author(s):  
Darcy McMaughan ◽  
Sherry Lin ◽  
Jennifer Ozmetin ◽  
Judith Gayle Beverly ◽  
Joshua Brog ◽  
...  
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Task Performance ◽  
Medical Home ◽  
End Users ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Special Health

UNSTRUCTURED Youth with Special Health Care Needs (YSHCN) have chronic physical, developmental, behavioral, or emotional conditions that require health care and other services beyond typical utilization. We evaluated, using the concurrent think aloud (CTA) method , the Website Evaluation Questionnaire (WEQ), a task performance analysis, and Van Den Haak et als’ problem relevance metric, a care transition tool for providers of YSHCN. This tool, the Texas Transition Toolkit (T3) supports medical home providers by providing: a “one-stop-shop” to research literature on transition care, a catalog of relevant tools for providers to assess their organization or the YSHCN and families they work with, and guides for developing a transition program in their medical home. Our mixed-methods deep dive into the usability and functionality of the T3 focused on ten end-users from one medical home in Texas. While the T3 was well-received by end users, our analyses identified areas of concern regarding the application. End-users reported the most difficulty in two areas of functionality and usability: inefficient search function and navigation characteristics. This was reflected in both the CTA trial and the WEQ, and supported by the task performance and relevance analyses. Participants reported low satisfaction with search (75.3%) and navigation dimensions (ease of use=75.7%; hyperlinks=78%; and structure=79%), relatively high number of search and navigation related problems (n=21, or 67.75% of the total problems detected1), and low tasks completion for tasks involving finding tools (70%) which requires searching and navigation. The problems identified around search and navigation functionality were also assessed as ‘relevant’. Each of these areas of analyses triangulate on search and navigation issues, suggesting a robustness of results. Results from the usability trial provided a road map for optimizing the T3, and highlighted the importance of evaluating eHealth technologies with end users.

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