scholarly journals A provider-facing educational health website on transitioning children and youth with special health care needs from pediatric to adult care: a mixed-methods, user engaged, usability study. (Preprint)

2020 ◽  
Author(s):  
Darcy McMaughan ◽  
Sherry Lin ◽  
Jennifer Ozmetin ◽  
Judith Gayle Beverly ◽  
Joshua Brog ◽  
...  
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Task Performance ◽  
Medical Home ◽  
End Users ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Special Health

UNSTRUCTURED Youth with Special Health Care Needs (YSHCN) have chronic physical, developmental, behavioral, or emotional conditions that require health care and other services beyond typical utilization. We evaluated, using the concurrent think aloud (CTA) method , the Website Evaluation Questionnaire (WEQ), a task performance analysis, and Van Den Haak et als’ problem relevance metric, a care transition tool for providers of YSHCN. This tool, the Texas Transition Toolkit (T3) supports medical home providers by providing: a “one-stop-shop” to research literature on transition care, a catalog of relevant tools for providers to assess their organization or the YSHCN and families they work with, and guides for developing a transition program in their medical home. Our mixed-methods deep dive into the usability and functionality of the T3 focused on ten end-users from one medical home in Texas. While the T3 was well-received by end users, our analyses identified areas of concern regarding the application. End-users reported the most difficulty in two areas of functionality and usability: inefficient search function and navigation characteristics. This was reflected in both the CTA trial and the WEQ, and supported by the task performance and relevance analyses. Participants reported low satisfaction with search (75.3%) and navigation dimensions (ease of use=75.7%; hyperlinks=78%; and structure=79%), relatively high number of search and navigation related problems (n=21, or 67.75% of the total problems detected1), and low tasks completion for tasks involving finding tools (70%) which requires searching and navigation. The problems identified around search and navigation functionality were also assessed as ‘relevant’. Each of these areas of analyses triangulate on search and navigation issues, suggesting a robustness of results. Results from the usability trial provided a road map for optimizing the T3, and highlighted the importance of evaluating eHealth technologies with end users.

The “Every Child Deserves a Medical Home” Training Program: More Than a Traditional Continuing Medical Education Course

PEDIATRICS ◽  
2004 ◽  
Vol 113 (Supplement_4) ◽  
pp. 1479-1484
Author(s):  
Bob Moore ◽  
Thomas F. Tonniges
Keyword(s):  
Health Care ◽  
Medical Education ◽  
Training Program ◽  
Medical Home ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Home Training ◽  
Special Health

Objectives. 1) To develop and implement an innovative, interactive, and nontraditional continuing medical education (CME) curriculum to educate primary care physicians, pediatric office staff, child health advocates, allied health care professionals, and parents of children with special health care needs (CSHCN) about the medical home concept of care and 2) to identify key partners in communities to plan the CME program and ultimately plan for fostering medical homes at the community and state levels. Methods. Participant outcomes for the CME program and planning process include 1) explaining the elements of the medical home concept as applied to their practice environment or child’s care; 2) understanding the concepts, skills, and information necessary to care successfully for CSHCN who are enrolled in managed care organizations; 3) accurately describing trends and developments in caring for CSHCN; 4) identifying programs in the community that serve CSHCN; and 5) assessing and, if necessary, improving pediatric office practices to ensure that they are sensitive to families of children and youths with special health care needs. Conclusion. A diverse national committee that included physicians, nonphysicians, and family members developed the Medical Home Training Program curriculum. The medical home curriculum was written to meet the needs of the local community. The training program can offer CME credit and use a direct, outcome-based adult learning technique (eg, determine short- and long-term goals). Furthermore, the program parallels and complements the Healthy People 2010 goals and objectives.

Identifying What Pediatric Residents Are Taught About Children and Youth With Special Health Care Needs and the Medical Home

PEDIATRICS ◽  
2010 ◽  
Vol 126 (Supplement 3) ◽  
pp. S183-S189 ◽  
Author(s):  
Beverly L. Nazarian ◽  
Laurie Glader ◽  
Roula Choueiri ◽  
Deborah L. Shipman ◽  
Matthew Sadof
Keyword(s):  
Health Care ◽  
Medical Home ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Pediatric Residents ◽  
Special Health

scholarly journals The Experience of Latina Mothers of Children and Youth With Special Health Care Needs: A Qualitative Study

2019 ◽  
Vol 6 ◽  
pp. 2333794X1985139 ◽  
Author(s):  
Nicola Brodie ◽  
Bruce Bernstein ◽  
Francis McNesby ◽  
Renee Turchi
Keyword(s):  
Health Care ◽  
Medical Home ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Patient Centered Medical Home ◽  
Health Care Needs ◽  
Care Needs ◽  
Patient Centered ◽  
Special Health Care ◽  
Special Health

Children and youth with special health care needs (CYSHCN) comprise a growing proportion of the pediatric population; the patient- and family-centered medical home provides a comprehensive model for caring for these patients. Given the limited literature available as well as extreme patient vulnerability, we sought to understand the experience of Latino parents in caring for their CYSHCN within our patient-centered medical home in an urban neighborhood in North Philadelphia. A convenience sample of 14 mothers or grandmothers of CYSHCN participated in semistructured interviews, which were analyzed using a thematic, constant comparative approach to identify common themes. Themes identified included “Waiting,” “Communication/Trust,” “All-Consuming Requirements of Care/Sacrifice,” and “Fate/Faith/Blessings.” These themes corresponded with identified goals of the patient-centered medical home. Our findings suggest that the principles of the patient-centered medical home can be applied in unique ways to caring for this unique patient population.

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