scholarly journals A provider-facing eHealth tool on transitioning youth with special health care needs from pediatric to adult care: A mixed-methods, user engaged, usability study. (Preprint)

10.2196/22915 ◽  
2020 ◽  
Author(s):  
Darcy McMaughan ◽  
Sherry Lin ◽  
Jennifer Ozmetin ◽  
Judith Gayle Beverly ◽  
Joshua Brog ◽  
...  
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Usability Study ◽  
Care Needs ◽  
Adult Care ◽  
Special Health Care ◽  
Transitioning Youth ◽  
Special Health

Piloting a structured developmental tool to assess transition readiness for youth with special health-care needs: A mixed-methods exploration of health-care provider experiences

2019 ◽  
Vol 24 (1) ◽  
pp. 92-105
Author(s):  
Judy Bond ◽  
Susan Shanske ◽  
Roberta Hoffman ◽  
Abigail M Ross
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Patient Care ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Providers ◽  
Care Needs ◽  
Special Health Care ◽  
Transition Readiness ◽  
Special Health

This mixed-methods study examined providers’ experiences using a structured developmentally sensitive tool to assess transition readiness for youth with special health-care needs moving from pediatric to adult care. Twenty-eight health-care providers from three pediatric specialty clinics reported their experiences using the tool by surveys and semistructured telephone interviews. Qualitative data were analyzed using thematic analysis. Most (96%) believed routine practice should include a structured tool; 65.7% incorporated information from the tool into patient care plans. Salient themes pertained to practice behavior changes and implementation barriers. Integrating structured tools into standard clinical practice has the potential to optimize transition and improve patient care.

Transitioning youth with autism spectrum disorders and other special health care needs into adult primary care: A provider survey

Autism ◽  
2020 ◽  
pp. 136236132092631
Author(s):  
Jennifer L Ames ◽  
Maria L Massolo ◽  
Meghan N Davignon ◽  
Yinge Qian ◽  
Hilda J Cerros ◽  
...  
Keyword(s):  
Health Care ◽  
Autism Spectrum Disorders ◽  
Autism Spectrum ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Adult Care ◽  
Special Health Care ◽  
Spectrum Disorders ◽  
Special Health

Health care continuity during the transition from pediatric to adult care is critical to helping individuals with autism spectrum disorders manage complex medical and psychiatric co-morbidities that start in childhood and evolve with age. We conducted a brief online survey of pediatric and adult providers at Kaiser Permanente Northern California, a large integrated health care delivery system, to assess departmental policies and personal approaches to transitioning patients with special health care needs, including autism spectrum disorders. A total of 354 pediatric (43% response rate) and 715 adult providers (30% response rate) completed the survey. A large majority of departments did not have transition policies in place. Many providers in both primary care and mental health did not provide transition resources, review legal changes, use standardized assessment tools, or communicate with the next/previous provider. Transition planning was usually delayed until age 17 or later. Most providers did not have consistent approaches to the transition of care for youth with special health care needs and may be inadequately prepared to handle the process for patients with autism spectrum disorders. As the population of transition-age youth with autism spectrum disorders continues to grow, there is urgent need to understand how to best implement transition policies that promote early communication between providers and families and track outcomes among transitioning patients with special health care needs. Lay Abstract The transition from pediatric to adult care is a critical inflection point for the long-term health of youth with autism spectrum disorders and other special health care needs. However, for many patients, their caregivers, and providers, the transition lacks coordination. This survey study demonstrates that pediatric and adult providers struggle to implement many components of transition best practices for youth with autism and other chronic conditions, highlighting the urgent need for enhanced medical coordination and additional transition training and resources.

scholarly journals A provider-facing educational health website on transitioning children and youth with special health care needs from pediatric to adult care: a mixed-methods, user engaged, usability study. (Preprint)

2020 ◽  
Author(s):  
Darcy McMaughan ◽  
Sherry Lin ◽  
Jennifer Ozmetin ◽  
Judith Gayle Beverly ◽  
Joshua Brog ◽  
...  
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Task Performance ◽  
Medical Home ◽  
End Users ◽  
Special Health Care Needs ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Special Health

UNSTRUCTURED Youth with Special Health Care Needs (YSHCN) have chronic physical, developmental, behavioral, or emotional conditions that require health care and other services beyond typical utilization. We evaluated, using the concurrent think aloud (CTA) method , the Website Evaluation Questionnaire (WEQ), a task performance analysis, and Van Den Haak et als’ problem relevance metric, a care transition tool for providers of YSHCN. This tool, the Texas Transition Toolkit (T3) supports medical home providers by providing: a “one-stop-shop” to research literature on transition care, a catalog of relevant tools for providers to assess their organization or the YSHCN and families they work with, and guides for developing a transition program in their medical home. Our mixed-methods deep dive into the usability and functionality of the T3 focused on ten end-users from one medical home in Texas. While the T3 was well-received by end users, our analyses identified areas of concern regarding the application. End-users reported the most difficulty in two areas of functionality and usability: inefficient search function and navigation characteristics. This was reflected in both the CTA trial and the WEQ, and supported by the task performance and relevance analyses. Participants reported low satisfaction with search (75.3%) and navigation dimensions (ease of use=75.7%; hyperlinks=78%; and structure=79%), relatively high number of search and navigation related problems (n=21, or 67.75% of the total problems detected1), and low tasks completion for tasks involving finding tools (70%) which requires searching and navigation. The problems identified around search and navigation functionality were also assessed as ‘relevant’. Each of these areas of analyses triangulate on search and navigation issues, suggesting a robustness of results. Results from the usability trial provided a road map for optimizing the T3, and highlighted the importance of evaluating eHealth technologies with end users.

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