European Academy of Paediatric consensus statement on successful transition from paediatric to adult care for adolescents with chronic conditions

2017 ◽  
Vol 106 (8) ◽  
pp. 1354-1357 ◽  
Author(s):  
Artur Mazur ◽  
Lukasz Dembinski ◽  
Lenneke Schrier ◽  
Adamos Hadjipanayis ◽  
Pierre-André Michaud
Keyword(s):  
Chronic Conditions ◽  
Consensus Statement ◽  
Adult Care ◽  
European Academy ◽  
Successful Transition

Evaluation of the TRxANSITION Index–Parent Version for assessment of readiness to transition to adult care among youth with chronic conditions

2021 ◽  
Vol 58 ◽  
pp. 1-8
Author(s):  
Laura C. Hart ◽  
Maria Díaz-González de Ferris ◽  
Meaghan Nazareth ◽  
Richard A. Faldowski ◽  
Eniko Rak ◽  
...  
Keyword(s):  
Chronic Conditions ◽  
Transition To Adult Care ◽  
Adult Care ◽  
Parent Version

scholarly journals A qualitative study on the educational needs of young people with chronic conditions transitioning from pediatric to adult care

2018 ◽  
Vol Volume 12 ◽  
pp. 2649-2660 ◽  
Author(s):  
Maxime Morsa ◽  
Pierre Lombrail ◽  
Bernard Boudailliez ◽  
Cécile Godot ◽  
Vincent Jeantils ◽  
...  
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Chronic Conditions ◽  
Educational Needs ◽  
Adult Care

scholarly journals European Academy of Neurology and European Stroke Organization consensus statement and practical guidance for pre-hospital management of stroke

2018 ◽  
Vol 25 (3) ◽  
pp. 425-433 ◽  
Author(s):  
A. Kobayashi ◽  
A. Czlonkowska ◽  
G. A. Ford ◽  
A. C. Fonseca ◽  
G. J. Luijckx ◽  
...  
Keyword(s):  
Consensus Statement ◽  
Hospital Management ◽  
European Academy ◽  
Practical Guidance

scholarly journals Improving Transitions of Care for Young Adults With Congenital Heart Disease: Mobile App Development Using Formative Research (Preprint)

2018 ◽  
Author(s):  
Keila N Lopez ◽  
Michael O'Connor ◽  
Jason King ◽  
James Alexander ◽  
Melissa Challman ◽  
...  
Keyword(s):  
Best Practices ◽  
Technology Use ◽  
Congenital Heart ◽  
Formative Research ◽  
Mobile App ◽  
Transition To Adult Care ◽  
Adult Care ◽  
Transition Readiness ◽  
Successful Transition ◽  
App Development

BACKGROUND Congenital heart diseases (CHDs) are the most common type of birth defects. Improvements in CHD care have led to approximately 1.4 million survivors reaching adulthood. Successful transition and transfer from pediatric to adult care is crucial. Unfortunately, less than 30% of adolescents with CHD successfully transition to adult care; this number is lower for minority and lower socioeconomic status populations. Few CHD programs exist to facilitate successful transition. OBJECTIVE The goal of our study was to describe the formative research used to develop a prototype mobile app to facilitate transition to adult care for adolescents with CHD. METHODS A literature search about best practices in transition medicine for CHD was conducted to inform app development. Formative research with a diverse group of CHD adolescents and their parents was conducted to determine gaps and needs for CHD transition to adult care. As part of the interview, surveys assessing transition readiness and CHD knowledge were completed. Two adolescent CHD expert panels were convened to inform educational content and app design. RESULTS The literature review revealed 113 articles, of which 38 were studies on transition programs and attitudes and 3 identified best practices in transition specific to CHD. A total of 402 adolescents aged 15 to 22 years (median 16 years) participated in semistructured interviews. The group was racially and ethnically diverse (12.6% [51/402] African American and 37.8% [152/402] Latino) and 42.0% (169/402) female; 36.3% (146/402) received public insurance. Most adolescents (313/402, 76.7%) had moderate or severe CHD complexity and reported minimal CHD understanding (79.0% [275/348] of those aged 15 to 17 years and 61.1% [33/54] of those aged 18 to 22 years). Average initial transition readiness score was 50.9/100, meaning that transition readiness training was recommended. When participants with moderate to severe CHD (313/402, 77.9%) were asked about technology use, 94.2% (295/313) reported having access to a mobile phone. Interviews with parents revealed limited interactions with the pediatric cardiologist about transition-related topics: 79.4% (331/417) reported no discussions regarding future family planning, and 55.2% (230/417) reported the adolescent had not been screened for mental health concerns (depression, anxiety). Further, 66.4% (277/417) reported not understanding how health care changes as adolescents become adults. Adolescents in the expert panels (2 groups of 3 adolescents each) expressed interest in a CHD-specific tailored app consisting of quick access to specific educational questions (eg, “Can I exercise?”), a CHD story-blog forum, a mentorship platform, a question and answer space, and a checklist to facilitate transition. They expressed interest in using the app to schedule CHD clinic appointments and receive medication reminders. Based on this data, a prototype mobile app was created to assist in adolescent CHD transition. CONCLUSIONS Formative research revealed that most adolescents with CHD had access to mobile phones, were not prepared for transition to adult care, and were interested in an app to facilitate transition to adult CHD care. Understanding adolescent and parent needs, interests, and concerns helped in the development of a mobile app with a broader, tailored approach for adolescents with CHD.

Recommendations for Successful Transition of Adolescents With Inflammatory Bowel Diseases to Adult Care

2020 ◽  
Vol 18 (2) ◽  
pp. 276-289.e2 ◽  
Author(s):  
Jordan M. Shapiro ◽  
Hashem B. El-Serag ◽  
Cassandra Gandle ◽  
Cynthia Peacock ◽  
Lee A. Denson ◽  
...  
Keyword(s):  
Inflammatory Bowel Diseases ◽  
Adult Care ◽  
Successful Transition ◽  
Bowel Diseases ◽  
Inflammatory Bowel

Readiness to Transfer to Adult Care of Adolescents with Chronic Conditions: Exploration of Associated Factors

2011 ◽  
Vol 48 (3) ◽  
pp. 295-302 ◽  
Author(s):  
AnneLoes van Staa ◽  
Heleen A. van der Stege ◽  
Susan Jedeloo ◽  
Henriëtte A. Moll ◽  
Sander R. Hilberink
Keyword(s):  
Chronic Conditions ◽  
Associated Factors ◽  
Adult Care

scholarly journals Health Care Transition Outcomes in Inflammatory Bowel Disease: A Multinational Delphi Study

2019 ◽  
Vol 13 (9) ◽  
pp. 1163-1172 ◽  
Author(s):  
Gertrude van den Brink ◽  
Martha A C van Gaalen ◽  
Lissy de Ridder ◽  
C Janneke van der Woude ◽  
Johanna C Escher
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Delphi Study ◽  
Expert Panel ◽  
Self Management ◽  
Management Skills ◽  
Adult Care ◽  
Successful Transition ◽  
Inflammatory Bowel ◽  
Stage 1

Abstract Background Transition programmes are designed to prepare adolescent inflammatory bowel disease [IBD] patients for transfer to adult care. It is still unclear which outcome parameters define ‘successful transition’. Therefore, this study aimed to identify outcomes important for success of transition in IBD. Methods A multinational Delphi study in patients, IBD nurses, and paediatric and adult gastroenterologists was conducted. In stage 1, panellists commented on an outcome list. In stage 2, the refined list was graded from 1 to 9 [least to very important], by an expert and a patient panel. In stage 3, the expert panel ranked important outcomes from 1 to 10 [least to most important]. Descriptive statistics and Mann–Whitney U-tests were performed. Results The final item list developed in stage 1 was tested by the expert [n = 74 participants, 52.7% paediatric] and patient panel [n = 61, aged 16–25 years, 49.2% male]. Respectively, ten and 11 items were found to be important by the expert and patient panel. Both panels agreed on eight of these items, of which six reflected self-management skills. In stage 3, the expert panel formed a top-ten list. The three most important items were: decision-making regarding IBD [mean score 6.7], independent communication [mean score 6.3] and patient satisfaction [mean score 5.8]. Conclusion This is the first study identifying outcomes that IBD healthcare providers and patients deem important factors for successful transition. Self-management skills were considered more important than IBD-specific items. This is a first step to further define success of transition in IBD and subsequently evaluate the efficacy of different transition models.

Sign in / Sign up

Export Citation Format

Share Document