scholarly journals Prenatal Diagnosis in France: Between Regulation of Practices and Professional Autonomy

2019 ◽  
Vol 63 (2) ◽  
pp. 209-229 ◽  
Author(s):  
Isabelle Ville

Prenatal diagnosis (PND) was introduced in France in the 1970s on the initiative of medical researchers and clinicians. For many years the regulation of practices was self-imposed, decentralised and idiosyncratic. The advent of ‘therapeutic modernity’ in the 1990s gave rise to an ethical, legal and scientific framework designed to homogenise PND at a national level, with the creation of multidisciplinary centres (CPDPN) and theAgence de la biomédecine. This article first recovers the history of PND in France. It then compares the activities of two CPDPNs, using ethnographic fieldwork and by analysing national quantitative data compiled by theAgence. It argues that the official policy of nationally homogeneous practices is not born out in practice, at the local level. This lack of homogeneity is most apparent in the number of authorisations for pregnancy termination due to foetal malformation, which varies considerably from one centre to another. Rooted in local culture, this variation relates to organisational methods, decision-making processes and variable levels of tolerance towards the risk of disability. Foetal medicine practitioners, thus, maintain a certain amount of autonomy that is collective rather than individual and that is reflected in the particular ‘identity’ of a given centre.

Author(s):  
Jill Cottrell

Examining the Constitution of Kenya 2010, the chapter picks up its concept of public participation in decision-making and a more active form of democracy than simply voting once in five years. In Kenya, Parliament and other legislatures, as well as executive bodies and the judiciary’s administration regularly invite public input into their decision-making processes. The courts have held some legislation, though not at the national level, invalid for want of adequate participation, while the Supreme Court, rather the chief justice, has set out principles of participation in a major judgment. The chapter traces the rationale and the history of this development, and attempts a preliminary assessment of its impact on Kenyan democracy. Suggestions are also made for making public participation more effective.


2015 ◽  
Vol 9 ◽  
pp. CMPed.S21107
Author(s):  
Ghassan S.A. Salama ◽  
Mahmoud A.F. Kaabneh ◽  
Mohamed K. Al-Raqad ◽  
Ibrahim M.H. Al-Abdallah ◽  
Ayoub Ga Shakkoury ◽  
...  

Introduction Cyclopia (alobar holoprosencephaly) (OMIM% 236100) is a rare and lethal complex human malformation, resulting from incomplete cleavage of prosencephalon into right and left hemispheres occurring between the 18th and the 28th day of gestation. Holoprosencephaly occurs in 1/16,000 live births, and 1/250 during embryogenesis. Approximately 1.05 in 100,000 births are identified as infants with cyclopia, including stillbirths. Cyclopia typically presents with a median single eye or a partially divided eye in a single orbit, absent nose, and a proboscis above the eye. Extracranial malformations described in stillbirths with cyclopia include polydactyl, renal dysplasia, and an omphalocele. The etiology of this rare syndrome, which is incompatible with life, is still largely unknown. Most cases are sporadic. Heterogeneous risk factors have been implicated as possible causes. Case Presentation A live full-term baby with birth weight of 2900 g, product of cesarean section because of severe fetal bradycardia, was born at Prince Hashem Military Hospital – Zarqa city/Jordan. This newborn was the first baby to a non-consanguineous family, and a healthy 18-year-old mother, with no history of drug ingestion or febrile illnesses during pregnancy. Antenatal history revealed severe hydrocephalus diagnosed early by intrauterine ultrasound but the pregnancy was not terminated because of the lack of medical legitimization in the country. On examination, the newborn was found to have a dysmorphic face, with a median single eye, absence of nose, micrognathia, and a proboscis above the eye, all of which made cyclopia the possible initial diagnosis. Multiple unusual abdominal defects were present that include a huge omphalocele containing whole liver and spleen, urinary bladder extrophy, and undefined abnormal external genitalia, which called for urgent confirmation. Brain MRI was done and revealed findings consistent with alobar holoprosencephaly (cyclopia). Conclusion Presentation of cyclopia is not fully exposed and new cyclopian syndromes still can appear. The prenatal diagnosis of cyclopia can be made early by ultrasound, and the awareness of the spectrum of sonographic findings of cyclopia can improve the accuracy of prenatal diagnosis. The legitimization of pregnancy termination for indexed cases in many countries around the world should be revised.


Nordlit ◽  
2019 ◽  
Author(s):  
Marius Øfsti

De første norske videobutikkene åpnet dørene i 1979 og de siste stengte i 2017. I løpet av denne tidsperioden rakk de å bryte NRKs monopol på film og tv-serier i hjemmet, de ble utskjelt, de ble en av de viktigste kulturinstitusjonene i landet og de tilbød et relativt stort utvalg i film. Ved å studere bransjeblader, annonser, lokalaviser og kommunale arkiver tegner denne artikkelen et bilde av de norske videobutikkenes historie på nasjonalt plan og utdyper dette med en lokal case.The first Norwegian video-stores opened its doors in 1979 and the last ones closed in 2017. During this time, they were the first to break the state monopoly on filmed home entertainment. The video-stores became notorious, but they also established themselves as some of the most important cultural institutions in the country, with a relatively wide selection of films to offer customers. By studying trade magazines, advertisements, local newspapers and local council archives, this article traces the history of the Norwegian video-stores on a national level and, through the use of one case example, on a local level.


2018 ◽  
Vol 2 (3) ◽  
pp. 3-12
Author(s):  
Emmanuel Auvray

Antecedentes: En educación fïsica, como en otras materias, son conocidos y aplicados los estudios de personas de relevancia nacional e internacional. Sin embargo, los docentes anónimos, que en definitiva son los que aplican el currículo y le dan un carácter real, tienen mucho que decir en este sentido. La inclusión de la natación dentro de la materia de educación física ha sufrido una gran evolución a lo largo de los años, y son los profesores de campo los que más tienen que aportar al respecto.Objetivos: El propósito de este estudio fue dar cuenta de una investigación histórica sobre la evolución, según una población de profesores de educación física anónimos, de prácticas educativas escolares relacionadas con la natación en Educación Secundaria (Bachillerato, Educación Secundaria Obligatoria) durante la segunda mitad del siglo XX.Método: Se ha llevado a cabo una encuesta por cuestionario semiestructurado, completado con los testimonios escritos, y los registrosimpresos privados y semi-oficiales, donde han participado un total de 158 profesores de diferentes niveles educativos pertenecientes a 25 academinas educativas.Resultados: Se desprende de este estudio una periodización constituida en tres periodos: una natación utilitaria (1945-1959), una natación a la sombra de la natación deportiva federativa (1960-1986), y una natación que gira sobre ella misma (1987-2000). Además, a nivel local, existe una diversidad relativa de currículos reales, que sin embargo siguen estando basados en los currículos nacionales formales de educación física.Conclusiones: Concretamente, la disparidad curricular (real-oficial) parece estar relacionada con un conjunto de variables que dependen a nivel macro de los diferentes recorridos biográficos personales y profesionales de los profesores de campo; a nivel meso a los contextos educativos locales; y a nivel micro a la evolución en la identidad de la educación física y discursos sobre la pedagogía y la didáctica de la natación. Esta disparidad real nos hace cuestionarnos la democratización efectiva de la educación física a nivel nacional frente al lema de la República francesa "libertad, igualdad y fraternidad”.Palabras clave: Natación, historia, educación física y deportiva, curriculum y prácticas pedagógicas.Title: A history of the teaching of swimming in France in physical education seen through the real curricules of field teachersAbstractBackground: In physical education as in other subjects, the studies of people of national and international relevance are known and applied.However, anonymous teachers, who are ultimately those who apply the curriculum and give it a real character, have much to say in thisregard. The inclusion of swimming within the subject of physical education has undergone a great evolution over the years, and fieldteachers are the ones who have to contribute the most.Objectives: The purpose of this study is to account for a historical research on the evolution, according to a population of anonymousphysical education teachers, of school educational practices related to swimming in Secondary Education (Baccalaureate, CompulsorySecondary Education) in 25 academies, during the second half of the 20th century.Method: A survey was carried out by semi-structured questionnaire, completed with written testimonies, and private and semi-officialprinted records, where a total of 158 teachers of different educational levels belonging to 25 educational academinas participated.Results: Results: it is clear from this study a periodization constituted in three periods: a swimming of survival (1945-1959), a swimming inthe shadow of the federative sports swimming (1960-1986), and a swimming that turns on itself (1987 -2000). In addition, at the local level,there is a relative diversity of real curricula, which nonetheless continue to be based on formal national physical education curricula.Conclusions: Specifically, the curricular disparity (real-official) seems to be related to a set of variables that depend at the macro level of thedifferent personal and professional biographical paths of the field teachers; at a meso level to local educational contexts; and at the microlevel, the evolution in the identity of Physical Education and discourses on pedagogy and the didactic of swimming. This real disparity makesus question the effective democratization of physical education at the national level against the motto of the French Republic "freedom,equality and fraternity".Keywords: Swimming, history, physical and sports education, curriculum and pedagogical practices.Titulo: Uma história do ensino da natação na França na educação física visto através dos curriculos reais de professores de campoResumoAntecedentes: Na educação física, como em outros assuntos, são conhecidos e aplicados os estudos de pessoas de relevância nacional einternacional. No entanto, professores anônimos, que são, finalmente, aqueles que aplicam o currículo e dão um caráter real, têm muito adizer a este respeito. A inclusão da natação no sujeito da educação física sofreu uma ótima evolução ao longo dos anos, e professores decampo são os que têm de contribuir mais.Objetivos: O objetivo deste estudo é explicar uma pesquisa histórica sobre a evolução, de acordo com uma população de professoresanônimos de educação física, de práticas educacionais escolares relacionadas à natação em Ensino Secundário (Bacharelado em EnsinoSecundário Obrigatório) em 25 academias, durante a segunda metade do século XX.Método: uma pesquisa foi realizada por questionário semi-estruturado, completo com testemunhos escritos e registros impressos privadose semi-oficiais, onde participaram 158 professores de diferentes níveis educacionais pertencentes a 25 academias educacionais.Resultados: é claro a partir deste estudo uma periodização constituída em três períodos: um nado de sobrevivência (1945-1959), umanatação à sombra da natação desportiva federativa (1960-1986) e uma natação que gira sobre si mesma (1987 -2000). Além disso, a nívellocal, há uma diversidade relativa de currículos reais, que, no entanto, continuam a ser baseados em currículos nacionais formais deeducação física.Conclusões: especificamente, a disparidade curricular (real-oficial) parece estar relacionada a um conjunto de variáveis que dependem donível macro dos diferentes caminhos biográficos pessoais e profissionais dos professores de campo; em um nível meso para contextoseducacionais locais; e no nível micro, a evolução na identidade da Educação Física e os discursos sobre pedagogia e a didática da natação.Essa disparidade real nos faz questionar a democratização efetiva da educação física a nível nacional diante do lema da República Francesa"liberdade, igualdade e fraternidade".Palavras-chave: natação, história, educação física e esportiva, currículo e práticas pedagógicas.


Author(s):  
Dedi Arsa

Sawahlunto is a mining town that enjoyed the glory due to coal exploitation by the Dutch colonial government which began in the 1880s. But in the early 1930s to the end of the 1940s, triggered by successive world economic crises (malaise) and various political upheavals during and some time after the Pacific War, this city has experienced a number of long downturns. This paper looks at the effect of economic decline and political turmoil on a city, in this case the City of Sawahlunto as a mining city. Using modern historical methods (historiography, interpretation, interpretation and writing), with an approach to the history of the city, this article reveals several things: First, in the 1930s, due to the world's crisis, coal production was dimming, this caused no new development of the city. Second, in 1942 the Pacific War took place, Japan ruled over the mining company, and Sawahlunto became worse off. Third, after Indonesia gained its independence until the end of the 1960s, Sawalunto did not receive significant improvements, except for a few rebuilt infrastructures. Thus, economic sluggishness and political riot at the global [and national] level have had a direct influence on a city at the local level.


Author(s):  
Henry T. Chen

This study provides a detailed study of the fishing nation of Taiwan at a regional and local level in order to address the lack of academic research into the Taiwanese fishing industry in comparison to other nations. Over three stages of analysis it identifies the reasons for the rise and decline of Taiwanese distant-water fisheries. The first stage examines the broader historical background, government policy, and birth of the Taiwanese fishing industry. The second explores the industry at a national level, analysing the relationships between fishing, government, military, and ancillary industries. The third approach narrows the scope to individual fishing communities and explores the working lives and cultural habits of the fishermen. The major focus is the port of Kaohsiung and how it became the major supply base for the fishing industry. It explores Taiwan’s relationship with Japan and the postwar decline due to Japan’s losses in the Second World War. Finally, it considers the development of Taiwanese colonial and postwar fishing policies. It concludes that modern fishing techniques were introduced from Japan, and emboldened Taiwanese fisherman to risk entering remote and foreign waters. The author suggests that further research into Taiwan take would help scholars better understand the history of distant-fisheries. The journal consists of nine chapters, an introduction and conclusion, a list of interviewees, and a bibliography of English and Chinese-language sources.


2009 ◽  
Vol 25 (S1) ◽  
pp. 127-133 ◽  
Author(s):  
Carlo Favaretti ◽  
Americo Cicchetti ◽  
Giovanni Guarrera ◽  
Marco Marchetti ◽  
Walter Ricciardi

Objectives: The aim of this study was to review the history of health technology assessment (HTA) in Italy.Methods: Founded in 1978, the Italian National Health Service (NHS) has been strongly regionalized mainly after a constitutional reform, which started a devolution process. HTA started in the 1980s at the National Institute of Health and in a few University Hospitals, with a focus on big ticket technology: that process was driven by clinical engineers.Results: In recent years, HTA is becoming an important tool for decision-making processes at central, regional, and local levels. In particular, the National Agency for Regional Health Services (AGENAS) and five regions (of twenty-one) are strongly committed to develop HTA initiatives connected with the planning process.Conclusions: At the local level, the hospital-based HTA activity is probably the most important peculiarity of the country and the real driver of the HTA movement.


2004 ◽  
Vol 47 (1) ◽  
pp. 21-46 ◽  
Author(s):  
BRIAN COWAN

This article offers a history of British seventeenth-century coffeehouse licensing which integrates an understanding of the micro-politics of coffeehouse regulation at the local level with an analysis of the high political debates about coffeehouses at the national level. The first section details the norms and practices of coffeehouse licensing and regulation by local magistrates at the county, city, and parish levels of government. The second section provides a detailed narrative of attempts by agents of the Restoration monarchy to regulate or indeed suppress the coffeehouses at the national level. The political survival of the new institution is attributed to the ways in which public house licensing both regulated and also legitimated the coffeehouse. The rise of the coffeehouse should not be understood as a simple triumph of a modern public sphere over absolutist state authority; it offers instead an example of the ways in which the early modern norms and practices of licensed privilege could frustrate the policy goals of the Restored monarchy.


Author(s):  
Helmut Walser Smith

This article focuses on statehood, society, and the failed imperialist powers that continued to rampage Germany in the late nineteenth and early twentieth century. A social history of German politics is given in this article. It begins with analyzing the meaning of Kaiserreich and emphasizing its inner logic, and endogenous social and political processes. This article concentrates on the relationship between state, society, and democracy, and argues that the essential conflicts of the Kaiserreich involved the contradictory integration of a newly-formed, authoritarian national state, with an exceedingly dynamic and mobile society, into a competitive world of overseas empires in the process of imposing white hegemony on large parts of the globe. The interpretive emphasis, which is on the national level, rather than the state or local level, does not presuppose that endogenous structural elements brought about the crisis of the late imperial period.


2020 ◽  
Vol 62 (1) ◽  
pp. 106-134
Author(s):  
Amy Chazkel

AbstractDuring much of the nineteenth century, Rio de Janeiro, the Brazilian capital, was under a selective curfew that made it a crime to be in the city's public spaces after dark. The curfew bent normal rules and attenuated supposedly universal rights, overtly discriminating between people on the basis of class and race. Rules that legally defined the nighttime did not come from any national statute, or from newly independent Brazil's liberal Constitution (1824) or its Criminal Code (1830). Instead, Rio's nocturnal sociolegal world was the product of police edicts, on-the-ground policing practice, and city ordinances. It also emerged from the actions of people who used the darker hours for work, play, and resistance against oppression, especially members of the city's immense enslaved population and the growing number of free persons of African descent. In other words, this is a phenomenon of urban governance that allows, and indeed forces us to look beyond the nineteenth-century nation-state to understand the exercise of power at a local level. This article explores how the curfew established patterns and means of limiting the basic freedom to move about the city. It was at night when both the necessity and fragility of what jurists in Brazil called the “freedom to come and go” came into view. The daily transition between day and night enacted juridical changes that, although invisible at the national level, fundamentally shaped the social categories that determined people's places in society in ways that historical research has yet to explore.


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