scholarly journals Persons with dementia and informal caregivers prioritizing care: A mixed‐methods study

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Joost D. Wammes ◽  
Nanon H. M. Labrie ◽  
George O. Agogo ◽  
Joan K. Monin ◽  
Esther W. Bekker‐Grob ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Informal Caregivers ◽  
Mixed Methods Study

scholarly journals Seeking the balance between caregiving in dementia, family and employment: study protocol for a mixed methods study in Northern Germany

BMJ Open ◽  
2018 ◽  
Vol 8 (2) ◽  
pp. e019444 ◽  
Author(s):  
Lydia Neubert ◽  
Hans-Helmut König ◽  
Christian Brettschneider
Keyword(s):  
Mixed Methods ◽  
Labour Force ◽  
Informal Caregivers ◽  
Personal Characteristics ◽  
Labour Force Participation ◽  
Informal Caregiving ◽  
German Society ◽  
Mixed Methods Study ◽  
Northern Germany ◽  
Study Results

IntroductionThe debate on reconciliation between childcare and working has to be expanded to caregiving for the elderly, since the importance of informal caregiving will increase in the future due to populations’ ageing and women’s increasing labour force participation. Informal caregivers who are caring for the rising number of persons with dementia (PwD) are often female and subjected to high caregiving requirements. These are added to further demands emerging from their family and work life. How affected caregivers seek to balance those requirements depends on, inter alia, their own characteristics and the informal caregiving network to whom they relate. Both aspects were not yet considered in previous studies. This mixed methods study thus aims to explore the reconciliation between caregiving in dementia, family and employment by including different members of caregiving networks of home-dwelling PwD and by considering their personal characteristics.Methods and analysisBy purposive sampling, we include at least five caregiving networks of home-dwelling PwD; each of them consisting of at least three informal caregivers living in Northern Germany. Narrative interviews of participants will be recorded, transcribed verbatim and interpreted according to the Documentary Method (QUAL). By completing standardised questionnaires, participants will provide sociodemographic and psychographic data concerning themselves and the networks from whom they arise (quan). This supplemental, descriptive information will give further background to the themes and types emerging from the interviews. Hence, the quan-data enrich the QUAL-data by exploring the narratives of participants in the light of their personal and network-related characteristics.Ethics and disseminationEthical approval was obtained from the Ethics Committee of the German Society of Nursing Sciences. Study results will be disseminated through conference presentations and publications in peer-reviewed journals.Trial registration numberDRKS00012929.

Experiences of informal caregivers of people with dementia with nursing care in acute hospitals: A descriptive mixed‐methods study

2021 ◽  
Vol 77 (12) ◽  
pp. 4887-4899
Author(s):  
Annette Keuning‐Plantinga ◽  
Petrie Roodbol ◽  
Barbara C. Munster ◽  
Evelyn J. Finnema
Keyword(s):  
Mixed Methods ◽  
Nursing Care ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
People With Dementia ◽  
Acute Hospitals

scholarly journals Development of a Caregivers’ Support Platform (Connected Health Sustaining Home Stay in Dementia): Protocol for a Longitudinal Observational Mixed Methods Study

10.2196/13280 ◽  
2019 ◽  
Vol 8 (8) ◽  
pp. 13280
Author(s):  
Estefania Guisado-Fernandez ◽  
Brian Caulfield ◽  
Paula Alexandra Silva ◽  
Laura Mackey ◽  
David Singleton ◽  
...  
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Home Care ◽  
Informal Caregivers ◽  
Intervention Group ◽  
Well Being ◽  
Mixed Methods Study ◽  
Care Plan ◽  
Connected Health ◽  
At Home

Background Dementia disease is a chronic condition that leads a person with dementia (PwD) into a state of progressive deterioration and a greater dependence in performing their activities of daily living (ADL). It is believed nowadays that PwDs and their informal caregivers can have a better life when provided with the appropriate services and support. Connected Health (CH) is a new technology-enabled model of chronic care delivery where the stakeholders are connected through a health portal, ensuring continuity and efficient flow of information. CH has demonstrated promising results regarding supporting informal home care and Aging in Place, and it has been increasingly considered by researchers and health care providers as a method for dementia home care management. Objective This study aims to describe the development and implementation protocol of a CH platform system to support informal caregivers of PwDs at home. Methods This is a longitudinal observational mixed methods study where quantitative and qualitative data will be combined for determining the utility of the CH platform for dementia home care. Dyads, consisting of a PwD and their informal caregiver living in the community, will be divided into 2 groups: the intervention group, which will receive the CH technology package at home, and the usual care group, which will not have any CH technology at all. Dyads will be followed up for 12 months during which they will continue with their traditional care plan, but in addition, the intervention group will receive the CH package for their use at home during 6 months (months 3 to 9 of the yearly follow-up). Further comprehensive assessments related to the caregiver’s and PwD’s emotional and physical well-being will be performed at the initial assessment and at 3, 6, 9, and 12 months using international and standardized validated questionnaires and semistructured individual interviews. Results This 3-year funded study (2016-2019) is currently in its implementation phase and is expected to finish by December 2019. We believe that CH can potentially change the PwD current care model, facilitating a proactive and preventive model, utilizing self-management–based strategies, and enhancing caregivers’ involvement in the management of health care at home for PwDs. Conclusions We foresee that our CH platform will provide knowledge and promote autonomy for the caregivers, which may empower them into greater control of the care for PwDs, and with it, improve the quality of life and well-being for the person they are caring for and for themselves through a physical and cognitive decline predictive model. We also believe that facilitating information sharing between all the PwDs’ care stakeholders may enable a stronger relationship between them, facilitate a more coordinated care plan, and increase the feelings of empowerment in the informal caregivers. International Registered Report Identifier (IRRID) DERR1-10.2196/13280

Predicting institutional long-term care admission in dementia: a mixed-methods study of informal caregivers’ reports

2014 ◽  
Vol 71 (6) ◽  
pp. 1351-1362 ◽  
Author(s):  
Basema Afram ◽  
Hilde Verbeek ◽  
Michel H.C. Bleijlevens ◽  
David Challis ◽  
Helena Leino-Kilpi ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Long Term Care ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
Term Care

scholarly journals Informal Caregivers’ Experiences and Perceptions of a Web-Based Peer Support Network: Mixed-Methods Study

2018 ◽  
Vol 20 (8) ◽  
pp. e257 ◽  
Author(s):  
Christine Vaughan ◽  
Thomas E Trail ◽  
Ammarah Mahmud ◽  
Stephanie Dellva ◽  
Terri Tanielian ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Peer Support ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
Support Network ◽  
Web Based

scholarly journals 124WHAT ARE THE NEEDS AND PREFERENCES OF PEOPLE WITH PARKINSON’S AND THEIR INFORMAL CAREGIVERS FOR THE EFFECTIVE SELF-MANAGEMENT OF FALLING? A MIXED METHODS STUDY

2019 ◽  
Vol 48 (Supplement_1) ◽  
pp. i36-i36
Author(s):  
C L Owen ◽  
L Dennison ◽  
C Gaulton ◽  
A Boswell ◽  
K Ibrahim ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
Self Management

scholarly journals Informal Caregivers� Experiences and Perceptions of a Web-Based Peer Support Network: Mixed-Methods Study (Preprint)

2018 ◽  
Author(s):  
Christine Vaughan ◽  
Thomas E Trail ◽  
Ammarah Mahmud ◽  
Stephanie Dellva ◽  
Terri Tanielian ◽  
...  
Keyword(s):  
Social Support ◽  
Mixed Methods ◽  
Focus Group ◽  
Peer Support ◽  
Support Groups ◽  
Emotional Support ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
Web Based ◽  
Support Intervention

BACKGROUND Web-based peer support interventions have shown promise in reducing social isolation and social support deficits among informal caregivers, but little research has examined how caregivers use and perceive these interventions. OBJECTIVE In this study, we examined utilization and perceptions of a Web-based social support intervention for informal caregivers of wounded, ill, and injured United States military service members and veterans. METHODS This was a mixed-methods study that used quantitative survey data and qualitative data from focus groups and interviews with informal caregivers enrolled in a Web-based peer support intervention to explore their use and perceptions of the intervention. The intervention was delivered via a website that featured interest groups organized around specific topics, webinars, webchats, and messaging functionality and was moderated by professionally trained peers. This study occurred in the context of a quasi-experimental outcome evaluation of the intervention, where intervention participants were compared with a group of military caregivers who were not enrolled in the intervention. RESULTS Survey findings indicated that caregivers used the website infrequently, with 60.7% (128/211) visiting the website once a month or less, and passively, with a minority (32/144, 22.2%) of users (ie, those who had visited the website at least once during the past 3 months, N=144) posting comments or links to the network. Nonetheless, most users (121/144, 84.0%) endorsed moderate or greater satisfaction with the website on the survey, and focus group and interview participants reported benefiting sufficiently from passive use of the website (eg, reading posts). Quantitative and qualitative findings suggested that users viewed the website primarily as a source of informational support. Among 63.2% (91/144) of users who completed the survey, the most commonly reported network-related activity was obtaining information from the network’s resource library, and focus group and interview participants viewed the network primarily as an informational resource. Focus group and interview participants expressed an unmet need for emotional support and the desire for a more personal touch in the forms of more active engagement with other caregivers in the network and the creation of local, in-person support groups for caregivers. CONCLUSIONS These findings suggest that Web-based peer support interventions may lend themselves better to the provision of informational (vs emotional) support and may need to be supplemented by in-person peer support groups to better meet caregivers’ needs for emotional support.

scholarly journals Development of a Caregivers’ Support Platform (Connected Health Sustaining Home Stay in Dementia): Protocol for a Longitudinal Observational Mixed Methods Study (Preprint)

2019 ◽  
Author(s):  
Estefania Guisado-Fernandez ◽  
Brian Caulfield ◽  
Paula Alexandra Silva ◽  
Laura Mackey ◽  
David Singleton ◽  
...  
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Home Care ◽  
Informal Caregivers ◽  
Intervention Group ◽  
Well Being ◽  
Mixed Methods Study ◽  
Care Plan ◽  
Connected Health ◽  
At Home

BACKGROUND Dementia disease is a chronic condition that leads a person with dementia (PwD) into a state of progressive deterioration and a greater dependence in performing their activities of daily living (ADL). It is believed nowadays that PwDs and their informal caregivers can have a better life when provided with the appropriate services and support. Connected Health (CH) is a new technology-enabled model of chronic care delivery where the stakeholders are connected through a health portal, ensuring continuity and efficient flow of information. CH has demonstrated promising results regarding supporting informal home care and Aging in Place, and it has been increasingly considered by researchers and health care providers as a method for dementia home care management. OBJECTIVE This study aims to describe the development and implementation protocol of a CH platform system to support informal caregivers of PwDs at home. METHODS This is a longitudinal observational mixed methods study where quantitative and qualitative data will be combined for determining the utility of the CH platform for dementia home care. Dyads, consisting of a PwD and their informal caregiver living in the community, will be divided into 2 groups: the intervention group, which will receive the CH technology package at home, and the usual care group, which will not have any CH technology at all. Dyads will be followed up for 12 months during which they will continue with their traditional care plan, but in addition, the intervention group will receive the CH package for their use at home during 6 months (months 3 to 9 of the yearly follow-up). Further comprehensive assessments related to the caregiver’s and PwD’s emotional and physical well-being will be performed at the initial assessment and at 3, 6, 9, and 12 months using international and standardized validated questionnaires and semistructured individual interviews. RESULTS This 3-year funded study (2016-2019) is currently in its implementation phase and is expected to finish by December 2019. We believe that CH can potentially change the PwD current care model, facilitating a proactive and preventive model, utilizing self-management–based strategies, and enhancing caregivers’ involvement in the management of health care at home for PwDs. CONCLUSIONS We foresee that our CH platform will provide knowledge and promote autonomy for the caregivers, which may empower them into greater control of the care for PwDs, and with it, improve the quality of life and well-being for the person they are caring for and for themselves through a physical and cognitive decline predictive model. We also believe that facilitating information sharing between all the PwDs’ care stakeholders may enable a stronger relationship between them, facilitate a more coordinated care plan, and increase the feelings of empowerment in the informal caregivers. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID) DERR1-10.2196/13280

Determining Emotional Tone and Verbal Behavior in Patients With Tinnitus and Hyperacusis: An Exploratory Mixed-Methods Study

2019 ◽  
Vol 28 (3) ◽  
pp. 660-672
Author(s):  
Suzanne H. Kimball ◽  
Toby Hamilton ◽  
Erin Benear ◽  
Jonathan Baldwin
Keyword(s):  
Mixed Methods ◽  
Verbal Behavior ◽  
Coping Strategies ◽  
Mixed Methods Study ◽  
Self Report ◽  
Anxiety And Depression ◽  
Negative Consequences ◽  
Emotional Tone ◽  
Explanatory Mixed Methods ◽  
Quantitative Results

Purpose The purpose of this study was to evaluate the emotional tone and verbal behavior of social media users who self-identified as having tinnitus and/or hyperacusis that caused self-described negative consequences on daily life or health. Research Design and Method An explanatory mixed-methods design was utilized. Two hundred “initial” and 200 “reply” Facebook posts were collected from members of a tinnitus group and a hyperacusis group. Data were analyzed via the LIWC 2015 software program and compared to typical bloggers. As this was an explanatory mixed-methods study, we used qualitative thematic analyses to explain, interpret, and illustrate the quantitative results. Results Overall, quantitative results indicated lower overall emotional tone for all categories (tinnitus and hyperacusis, initial and reply), which was mostly influenced by higher negative emotion. Higher levels of authenticity or truth were found in the hyperacusis sample but not in the tinnitus sample. Lower levels of clout (social standing) were indicated in all groups, and a lower level of analytical thinking style (concepts and complex categories rather than narratives) was found in the hyperacusis sample. Additional analysis of the language indicated higher levels of sadness and anxiety in all groups and lower levels of anger, particularly for initial replies. These data support prior findings indicating higher levels of anxiety and depression in this patient population based on the actual words in blog posts and not from self-report questionnaires. Qualitative results identified 3 major themes from both the tinnitus and hyperacusis texts: suffering, negative emotional tone, and coping strategies. Conclusions Results from this study suggest support for the predominant clinical view that patients with tinnitus and hyperacusis have higher levels of anxiety and depression than the general population. The extent of the suffering described and patterns of coping strategies suggest clinical practice patterns and the need for research in implementing improved practice plans.

Sign in / Sign up

Export Citation Format

Share Document