Experiences of informal caregivers of people with dementia with nursing care in acute hospitals: A descriptive mixed‐methods study

2021 ◽  
Vol 77 (12) ◽  
pp. 4887-4899
Author(s):  
Annette Keuning‐Plantinga ◽  
Petrie Roodbol ◽  
Barbara C. Munster ◽  
Evelyn J. Finnema
Keyword(s):  
Mixed Methods ◽  
Nursing Care ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
People With Dementia ◽  
Acute Hospitals

scholarly journals O5-02-05: IMPROVING MEAL TIMES FOR PEOPLE WITH DEMENTIA IN ACUTE HOSPITALS: A MIXED METHODS STUDY

2006 ◽  
Vol 14 (7S_Part_31) ◽  
pp. P1643-P1643
Author(s):  
Naomi R. Gallant ◽  
Sue Green ◽  
Lisette Schoonhoven ◽  
Lesley Collier
Keyword(s):  
Mixed Methods ◽  
Mixed Methods Study ◽  
People With Dementia ◽  
Acute Hospitals

scholarly journals Seeking the balance between caregiving in dementia, family and employment: study protocol for a mixed methods study in Northern Germany

BMJ Open ◽  
2018 ◽  
Vol 8 (2) ◽  
pp. e019444 ◽  
Author(s):  
Lydia Neubert ◽  
Hans-Helmut König ◽  
Christian Brettschneider
Keyword(s):  
Mixed Methods ◽  
Labour Force ◽  
Informal Caregivers ◽  
Personal Characteristics ◽  
Labour Force Participation ◽  
Informal Caregiving ◽  
German Society ◽  
Mixed Methods Study ◽  
Northern Germany ◽  
Study Results

IntroductionThe debate on reconciliation between childcare and working has to be expanded to caregiving for the elderly, since the importance of informal caregiving will increase in the future due to populations’ ageing and women’s increasing labour force participation. Informal caregivers who are caring for the rising number of persons with dementia (PwD) are often female and subjected to high caregiving requirements. These are added to further demands emerging from their family and work life. How affected caregivers seek to balance those requirements depends on, inter alia, their own characteristics and the informal caregiving network to whom they relate. Both aspects were not yet considered in previous studies. This mixed methods study thus aims to explore the reconciliation between caregiving in dementia, family and employment by including different members of caregiving networks of home-dwelling PwD and by considering their personal characteristics.Methods and analysisBy purposive sampling, we include at least five caregiving networks of home-dwelling PwD; each of them consisting of at least three informal caregivers living in Northern Germany. Narrative interviews of participants will be recorded, transcribed verbatim and interpreted according to the Documentary Method (QUAL). By completing standardised questionnaires, participants will provide sociodemographic and psychographic data concerning themselves and the networks from whom they arise (quan). This supplemental, descriptive information will give further background to the themes and types emerging from the interviews. Hence, the quan-data enrich the QUAL-data by exploring the narratives of participants in the light of their personal and network-related characteristics.Ethics and disseminationEthical approval was obtained from the Ethics Committee of the German Society of Nursing Sciences. Study results will be disseminated through conference presentations and publications in peer-reviewed journals.Trial registration numberDRKS00012929.

P4-276: Health services development research with people with dementia: Key features, factors, and learning from a multi-site, mixed methods study

2015 ◽  
Vol 11 (7S_Part_19) ◽  
pp. P891-P891
Author(s):  
Michael Bowen ◽  
Rosa Pepe ◽  
Sarah Buchanan ◽  
David Edgar ◽  
Lesley Hall ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Health Services ◽  
Mixed Methods Study ◽  
Development Research ◽  
People With Dementia ◽  
Key Features

The impact of a creative play intervention on satisfaction with nursing care: A mixed-methods study

2017 ◽  
Vol 22 (1) ◽  
pp. e12169 ◽  
Author(s):  
Emel Teksoz ◽  
Ibrahim Bilgin ◽  
Suna Eryigit Madzwamuse ◽  
Ayse Ferda Oscakci
Keyword(s):  
Mixed Methods ◽  
Nursing Care ◽  
Mixed Methods Study ◽  
Play Intervention ◽  
Creative Play ◽  
The Impact

scholarly journals Commissioning care for people with dementia at the end of life: a mixed - methods study

BMJ Open ◽  
2016 ◽  
Vol 6 (12) ◽  
pp. e013554 ◽  
Author(s):  
Zoe M Gotts ◽  
Nicole Baur ◽  
Emma McLellan ◽  
Claire Goodman ◽  
Louise Robinson ◽  
...  
Keyword(s):  
Mixed Methods ◽  
End Of Life ◽  
Mixed Methods Study ◽  
People With Dementia

scholarly journals Persons with dementia and informal caregivers prioritizing care: A mixed‐methods study

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Joost D. Wammes ◽  
Nanon H. M. Labrie ◽  
George O. Agogo ◽  
Joan K. Monin ◽  
Esther W. Bekker‐Grob ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Informal Caregivers ◽  
Mixed Methods Study

scholarly journals A Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD): Mixed-Methods Evaluation of Usability (Preprint)

2017 ◽  
Author(s):  
Paraskevi Zafeiridi ◽  
Kevin Paulson ◽  
Rosie Dunn ◽  
Emma Wolverson ◽  
Caroline White ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Social Care ◽  
Informal Caregivers ◽  
Dropout Rate ◽  
Ease Of Use ◽  
Perceived Usefulness ◽  
Web Based ◽  
People With Dementia ◽  
Health And Social Care ◽  
Administration Time

BACKGROUND The increasing number of people with dementia (PwD) drives research exploring Web-based support interventions to provide effective care for larger populations. In this concept, a Web-based platform (CAREGIVERSPRO-MMD, 620911) was designed to (1) improve the quality of life for PwD, (2) reduce caregiver burden, (3) reduce the financial costs for care, and (4) reduce administration time for health and social care professionals. OBJECTIVE The objective of this study was to evaluate the usability and usefulness of CAREGIVERSPRO-MMD platform for PwD or mild cognitive impairment (MCI), informal caregivers, and health and social care professionals with respect to a wider strategy followed by the project to enhance the user-centered approach. A secondary aim of the study was to collect recommendations to improve the platform before the future pilot study. METHODS A mixed methods design was employed for recruiting PwD or MCI (N=24), informal caregivers (N=24), and professionals (N=10). Participants were asked to rate their satisfaction, the perceived usefulness, and ease of use of each function of the platform. Qualitative questions about the improvement of the platform were asked when participants provided low scores for a function. Testing occurred at baseline and 1 week after participants used the platform. The dropout rate from baseline to the follow-up was approximately 10% (6/58). RESULTS After 1 week of platform use, the system was useful for 90% (20.75/23) of the caregivers and for 89% (5.36/6) of the professionals. When users responded to more than 1 question per platform function, the mean of satisfied users per function was calculated. These user groups also provided positive evaluations for the ease of use (caregivers: 82%, 18.75/23; professionals: 97%, 5.82/6) and their satisfaction with the platform (caregivers: 79%, 18.08/23; professionals: 73%, 4.36/6). Ratings from PwD were lower than the other groups for usefulness (57%, 13/23), ease of use (41%, 9.4/23), and overall satisfaction (47%, 11/23) with the platform (P<.05). Qualitative comments related to both improvements for functionality and the platform interface. CONCLUSIONS Although caregivers and professionals were overall satisfied with the platform, further adaptations were recommended by PwD. This reiterates the importance of the involvement of end users in the development of Web-based interventions. Recommendations from users in this paper apply for the interface and functionality of a wider range of Web-based support interventions.

scholarly journals Development of a Caregivers’ Support Platform (Connected Health Sustaining Home Stay in Dementia): Protocol for a Longitudinal Observational Mixed Methods Study

10.2196/13280 ◽  
2019 ◽  
Vol 8 (8) ◽  
pp. 13280
Author(s):  
Estefania Guisado-Fernandez ◽  
Brian Caulfield ◽  
Paula Alexandra Silva ◽  
Laura Mackey ◽  
David Singleton ◽  
...  
Keyword(s):  
Health Care ◽  
Mixed Methods ◽  
Home Care ◽  
Informal Caregivers ◽  
Intervention Group ◽  
Well Being ◽  
Mixed Methods Study ◽  
Care Plan ◽  
Connected Health ◽  
At Home

Background Dementia disease is a chronic condition that leads a person with dementia (PwD) into a state of progressive deterioration and a greater dependence in performing their activities of daily living (ADL). It is believed nowadays that PwDs and their informal caregivers can have a better life when provided with the appropriate services and support. Connected Health (CH) is a new technology-enabled model of chronic care delivery where the stakeholders are connected through a health portal, ensuring continuity and efficient flow of information. CH has demonstrated promising results regarding supporting informal home care and Aging in Place, and it has been increasingly considered by researchers and health care providers as a method for dementia home care management. Objective This study aims to describe the development and implementation protocol of a CH platform system to support informal caregivers of PwDs at home. Methods This is a longitudinal observational mixed methods study where quantitative and qualitative data will be combined for determining the utility of the CH platform for dementia home care. Dyads, consisting of a PwD and their informal caregiver living in the community, will be divided into 2 groups: the intervention group, which will receive the CH technology package at home, and the usual care group, which will not have any CH technology at all. Dyads will be followed up for 12 months during which they will continue with their traditional care plan, but in addition, the intervention group will receive the CH package for their use at home during 6 months (months 3 to 9 of the yearly follow-up). Further comprehensive assessments related to the caregiver’s and PwD’s emotional and physical well-being will be performed at the initial assessment and at 3, 6, 9, and 12 months using international and standardized validated questionnaires and semistructured individual interviews. Results This 3-year funded study (2016-2019) is currently in its implementation phase and is expected to finish by December 2019. We believe that CH can potentially change the PwD current care model, facilitating a proactive and preventive model, utilizing self-management–based strategies, and enhancing caregivers’ involvement in the management of health care at home for PwDs. Conclusions We foresee that our CH platform will provide knowledge and promote autonomy for the caregivers, which may empower them into greater control of the care for PwDs, and with it, improve the quality of life and well-being for the person they are caring for and for themselves through a physical and cognitive decline predictive model. We also believe that facilitating information sharing between all the PwDs’ care stakeholders may enable a stronger relationship between them, facilitate a more coordinated care plan, and increase the feelings of empowerment in the informal caregivers. International Registered Report Identifier (IRRID) DERR1-10.2196/13280

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