scholarly journals Informal Caregivers’ Experiences and Perceptions of a Web-Based Peer Support Network: Mixed-Methods Study

2018 ◽  
Vol 20 (8) ◽  
pp. e257 ◽  
Author(s):  
Christine Vaughan ◽  
Thomas E Trail ◽  
Ammarah Mahmud ◽  
Stephanie Dellva ◽  
Terri Tanielian ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Peer Support ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
Support Network ◽  
Web Based

scholarly journals Informal Caregivers� Experiences and Perceptions of a Web-Based Peer Support Network: Mixed-Methods Study (Preprint)

2018 ◽  
Author(s):  
Christine Vaughan ◽  
Thomas E Trail ◽  
Ammarah Mahmud ◽  
Stephanie Dellva ◽  
Terri Tanielian ◽  
...  
Keyword(s):  
Social Support ◽  
Mixed Methods ◽  
Focus Group ◽  
Peer Support ◽  
Support Groups ◽  
Emotional Support ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
Web Based ◽  
Support Intervention

BACKGROUND Web-based peer support interventions have shown promise in reducing social isolation and social support deficits among informal caregivers, but little research has examined how caregivers use and perceive these interventions. OBJECTIVE In this study, we examined utilization and perceptions of a Web-based social support intervention for informal caregivers of wounded, ill, and injured United States military service members and veterans. METHODS This was a mixed-methods study that used quantitative survey data and qualitative data from focus groups and interviews with informal caregivers enrolled in a Web-based peer support intervention to explore their use and perceptions of the intervention. The intervention was delivered via a website that featured interest groups organized around specific topics, webinars, webchats, and messaging functionality and was moderated by professionally trained peers. This study occurred in the context of a quasi-experimental outcome evaluation of the intervention, where intervention participants were compared with a group of military caregivers who were not enrolled in the intervention. RESULTS Survey findings indicated that caregivers used the website infrequently, with 60.7% (128/211) visiting the website once a month or less, and passively, with a minority (32/144, 22.2%) of users (ie, those who had visited the website at least once during the past 3 months, N=144) posting comments or links to the network. Nonetheless, most users (121/144, 84.0%) endorsed moderate or greater satisfaction with the website on the survey, and focus group and interview participants reported benefiting sufficiently from passive use of the website (eg, reading posts). Quantitative and qualitative findings suggested that users viewed the website primarily as a source of informational support. Among 63.2% (91/144) of users who completed the survey, the most commonly reported network-related activity was obtaining information from the network’s resource library, and focus group and interview participants viewed the network primarily as an informational resource. Focus group and interview participants expressed an unmet need for emotional support and the desire for a more personal touch in the forms of more active engagement with other caregivers in the network and the creation of local, in-person support groups for caregivers. CONCLUSIONS These findings suggest that Web-based peer support interventions may lend themselves better to the provision of informational (vs emotional) support and may need to be supplemented by in-person peer support groups to better meet caregivers’ needs for emotional support.

scholarly journals Correction: Combined Use of Web-Based and In-Person Education on Ill Health Self-management Skills in Adults With Bipolar Disorder: Protocol for a Mixed Methods Study

10.2196/33506 ◽  
2021 ◽  
Vol 10 (9) ◽  
pp. e33506
Author(s):  
Anna Hatzioannou ◽  
Andreas Chatzittofis ◽  
Virginia Sunday Koutroubas ◽  
Evridiki Papastavrou ◽  
Maria Karanikola
Keyword(s):  
Bipolar Disorder ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Self Management ◽  
Management Skills ◽  
Web Based ◽  
Combined Use

scholarly journals Seeking the balance between caregiving in dementia, family and employment: study protocol for a mixed methods study in Northern Germany

BMJ Open ◽  
2018 ◽  
Vol 8 (2) ◽  
pp. e019444 ◽  
Author(s):  
Lydia Neubert ◽  
Hans-Helmut König ◽  
Christian Brettschneider
Keyword(s):  
Mixed Methods ◽  
Labour Force ◽  
Informal Caregivers ◽  
Personal Characteristics ◽  
Labour Force Participation ◽  
Informal Caregiving ◽  
German Society ◽  
Mixed Methods Study ◽  
Northern Germany ◽  
Study Results

IntroductionThe debate on reconciliation between childcare and working has to be expanded to caregiving for the elderly, since the importance of informal caregiving will increase in the future due to populations’ ageing and women’s increasing labour force participation. Informal caregivers who are caring for the rising number of persons with dementia (PwD) are often female and subjected to high caregiving requirements. These are added to further demands emerging from their family and work life. How affected caregivers seek to balance those requirements depends on, inter alia, their own characteristics and the informal caregiving network to whom they relate. Both aspects were not yet considered in previous studies. This mixed methods study thus aims to explore the reconciliation between caregiving in dementia, family and employment by including different members of caregiving networks of home-dwelling PwD and by considering their personal characteristics.Methods and analysisBy purposive sampling, we include at least five caregiving networks of home-dwelling PwD; each of them consisting of at least three informal caregivers living in Northern Germany. Narrative interviews of participants will be recorded, transcribed verbatim and interpreted according to the Documentary Method (QUAL). By completing standardised questionnaires, participants will provide sociodemographic and psychographic data concerning themselves and the networks from whom they arise (quan). This supplemental, descriptive information will give further background to the themes and types emerging from the interviews. Hence, the quan-data enrich the QUAL-data by exploring the narratives of participants in the light of their personal and network-related characteristics.Ethics and disseminationEthical approval was obtained from the Ethics Committee of the German Society of Nursing Sciences. Study results will be disseminated through conference presentations and publications in peer-reviewed journals.Trial registration numberDRKS00012929.

Experiences of informal caregivers of people with dementia with nursing care in acute hospitals: A descriptive mixed‐methods study

2021 ◽  
Vol 77 (12) ◽  
pp. 4887-4899
Author(s):  
Annette Keuning‐Plantinga ◽  
Petrie Roodbol ◽  
Barbara C. Munster ◽  
Evelyn J. Finnema
Keyword(s):  
Mixed Methods ◽  
Nursing Care ◽  
Informal Caregivers ◽  
Mixed Methods Study ◽  
People With Dementia ◽  
Acute Hospitals

Peer Support Needs of Adolescents with Cancer in Pediatrics: A Canadian Mixed Methods Study

2021 ◽  
Author(s):  
Danielle R. Weidman ◽  
Philippe Desmarais ◽  
Katye Stevens ◽  
Christopher A. Klinger ◽  
Heather Colquhoun ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Peer Support ◽  
Mixed Methods Study ◽  
Support Needs

scholarly journals Facing the Unknown: Healthcare Workers’ Concerns, Experiences, and Burnout during the COVID-19 Pandemic—A Mixed-Methods Study in an Israeli Hospital

2021 ◽  
Vol 13 (16) ◽  
pp. 9021
Author(s):  
Keren Dopelt ◽  
Osnat Bashkin ◽  
Nadav Davidovitch ◽  
Noam Asna
Keyword(s):  
Mixed Methods ◽  
Healthcare Workers ◽  
Online Survey ◽  
Psychosocial Support ◽  
Health And Safety ◽  
Hospital Staff ◽  
Study Data ◽  
Mixed Methods Study ◽  
Support Network ◽  
Depth Interviews

The aim of this study was to describe the experiences of healthcare workers during the first wave of the coronavirus crisis. In a mixed-methods study, data were collected through an online survey completed by 263 hospital staff members, as well as 10 semi-structured, in-depth interviews with physicians, nurses, and medical technologists working on coronavirus wards. Respondents expressed extremely high levels of concern for family members, but they were less apprehensive about their own health and safety. Nurses displayed more apprehension and burnout compared to healthcare workers in other professional roles. The in-depth interviews reinforced and supplemented the survey findings and deepened our understanding of the experience of healthcare workers directly involved in the first wave of coronavirus patient care. The findings of this study illuminate the main concerns of hospital staff during the first wave of the COVID-19 pandemic and deepen our understanding of issues that require systemic attention in order to strengthen mental resilience among hospital staff. The steps required to continue fighting the virus include the development of a mental and emotional support network for healthcare workers to safeguard them and their health, as they care for patients, and to provide ongoing psychosocial support. As later waves of COVID-19 continued, these recommendations are even more pertinent.

scholarly journals A Web-Based Psychosocial Intervention for Family Caregivers of Older People: Results from a Mixed-Methods Study in Three European Countries

2016 ◽  
Vol 5 (4) ◽  
pp. e196 ◽  
Author(s):  
Francesco Barbabella ◽  
Arianna Poli ◽  
Frida Andréasson ◽  
Benjamin Salzmann ◽  
Roberta Papa ◽  
...  
Keyword(s):  
Mixed Methods ◽  
Older People ◽  
Family Caregivers ◽  
Psychosocial Intervention ◽  
Mixed Methods Study ◽  
European Countries ◽  
Web Based
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