Psychosocial factors affecting uptake of prenatal genetic testing: a pilot study

2013 ◽  
Vol 33 (13) ◽  
pp. 1276-1282 ◽  
Author(s):  
Monica Pivetti ◽  
Giannino Melotti ◽  
Davide Morselli ◽  
Mariangela Olivieri
2003 ◽  
Vol 120A (3) ◽  
pp. 418-422 ◽  
Author(s):  
Carron Sher ◽  
Orly Romano-Zelekha ◽  
Manfred S. Green ◽  
Tamy Shohat

2018 ◽  
Author(s):  
Meagan Rubel

To assess how participants receiving abnormal prenatal genetic testing results seek information and understand the implications of results, 27 US female patients and 12 of their male partners receiving positive prenatal microarray testing results completed semi-structured phone interviews. These interviews documented participant experiences with chromosomal microarray testing, understanding of and emotional response to receiving results, factors affecting decision-making about testing and pregnancy termination, and psychosocial needs throughout the testing process. Interview data were analyzed using a modified grounded theory approach. In the absence of certainty about the implications of results, understanding of results is shaped by biomedical expert knowledge (BEK) and cultural expert knowledge (CEK). When there is a dearth of BEK, as in the case of receiving results of uncertain significance, participants rely on CEK, including religious/spiritual beliefs, “gut instinct,” embodied knowledge, and social network informants. CEK is a powerful platform to guide understanding of prenatal genetic testing results. The utility of culturally situated expert knowledge during testing uncertainty emphasizes that decision-making occurs within discourses beyond the biomedical domain. These forms of “knowing” may be integrated into clinical consideration of efficacious patient assessment and counseling.


Author(s):  
Micaella Sotera Hansen ◽  
Wubshet Tesfaye ◽  
Beena Sewlal ◽  
Bharati Mehta ◽  
Kamal Sud ◽  
...  

2021 ◽  
Vol 13 (11) ◽  
pp. 6148
Author(s):  
Nicolás Bronfman ◽  
Paula Repetto ◽  
Paola Cordón ◽  
Javiera Castañeda ◽  
Pamela Cisternas

Previous studies have reported differences between men and women in the adoption of preventive behaviors against infectious diseases. This study aims to examine gender differences on a set of psychosocial factors shown to influence preventive behaviors against infectious diseases such as COVID-19. We conducted a web survey (N = 1.004) a few weeks after the end of the peak of the first wave of infections in Chile. The survey assessed participants’ perception of risk and worry about the COVID-19 pandemic, confidence in the government’s competence and integrity in dealing with the crisis, attribution of responsibility to various stakeholders, and adoption of preventive behaviors such as hygiene, distancing, and information-seeking. Our results confirm significant gender-based differences for both the psychosocial factors and the adoption of preventive behaviors. We conclude that women show a higher level of worry and fear of the pandemic and are keener to adopt preventive hygiene and social distancing behaviors. Similarly, participants report a low level of trust in government authorities, with women reporting the lowest trust level. The implications of these findings for the design of future risk communication strategies are discussed.


2019 ◽  
Vol 22 (2) ◽  
pp. 258-267 ◽  
Author(s):  
Sharon J. M. Kessels ◽  
Drew Carter ◽  
Benjamin Ellery ◽  
Skye Newton ◽  
Tracy L. Merlin

2012 ◽  
Vol 158A (7) ◽  
pp. 1556-1567 ◽  
Author(s):  
Rebecca L. Wu ◽  
Cathleen S. Lawson ◽  
Ethylin Wang Jabs ◽  
Saskia C. Sanderson

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