scholarly journals Benchmarking care outcomes for young adults with type 1 diabetes in Australia after transition to adult care

2021 ◽  
Vol 4 (4) ◽  
Author(s):  
Phidias Rueter ◽  
Kaye Farrell ◽  
Helen Phelan ◽  
Peter Colman ◽  
Maria E. Craig ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Transition To Adult Care ◽  
Adult Care ◽  
Care Outcomes

scholarly journals Young Adults With Type 1 Diabetes Preparing to Transition to Adult Care: Psychosocial Functioning and Associations With Self-Management and Health Outcomes

2020 ◽  
Vol 33 (3) ◽  
pp. 255-263
Author(s):  
Ana M. Gutierrez-Colina ◽  
Sarah Corathers ◽  
Sarah Beal ◽  
Holly Baugh ◽  
Katie Nause ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Health Outcomes ◽  
Psychosocial Functioning ◽  
Self Management ◽  
Transition To Adult Care ◽  
Adult Care

Clinical Care in Young Adults with Type 1 Diabetes After Transition to Adult Care

2014 ◽  
Vol 38 (5) ◽  
pp. S46
Author(s):  
Rashmi Nedadur ◽  
Cheril Clarson ◽  
Selam Mequanint ◽  
Tracy Robinson ◽  
Tamara Spaic
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Clinical Care ◽  
Transition To Adult Care ◽  
Adult Care

scholarly journals Experiences and perspectives of the parents of emerging adults living with type 1 diabetes

2020 ◽  
Vol 8 (1) ◽  
pp. e001125
Author(s):  
Cheryl Pritlove ◽  
Benjamin Markowitz ◽  
Geetha Mukerji ◽  
Andrew Advani ◽  
Janet A Parsons
Keyword(s):  
Type 1 Diabetes ◽  
Emerging Adulthood ◽  
Emerging Adults ◽  
Diabetes Management ◽  
Self Management ◽  
Comparative Approach ◽  
Transition To Adult Care ◽  
Adult Care ◽  
Difficult Time

IntroductionWhereas it is widely recognized that emerging adulthood can be a difficult time in the life of an individual living with type 1 diabetes, relatively little is known about the experiences of their parents or guardians. These individuals once shouldered much of the burden for their child’s diabetes ‘self’-management, yet their contribution is often overlooked by the adult healthcare system. Here, we set out to gain an understanding of the perspectives of parents of emerging adults living with type 1 diabetes.Research design and methodsSemi-structured interviews were performed with a purposeful sample of parents of emerging adults with type 1 diabetes recruited from two urban young adult diabetes clinics and through a national diabetes charity. Thematic coding was derived using a constant comparative approach.ResultsAnalysis of interviews with 16 parents of emerging adults with type 1 diabetes identified three themes: parental experiences of the transition to adult care; negotiating parent–child roles, responsibilities and relationships; and new and evolving fears. Parents spoke in detail about the time surrounding their child’s diagnosis of type 1 diabetes to emphasize the complexity of diabetes care and the need to establish a ‘new normal’ for the family. In turn, adolescence and emerging adulthood required a renegotiation of roles and responsibilities, with many parents continuing to play a role in high-level diabetes management. Several parents of emerging adults with type 1 diabetes (particularly those of young men) vocalized worries about their child’s readiness to assume responsibility for their self-care, and some expressed frustration with the apparent dichotomy in the role expectations of parents between the pediatric and adult care settings.ConclusionsAdult healthcare providers should recognize both the ongoing involvement of parents in the ‘self’-management of emerging adults with type 1 diabetes and the unique aspects of the caregiver burden that they experience.

scholarly journals Evaluation of a Systems Navigator Model for Transition From Pediatric to Adult Care for Young Adults With Type 1 Diabetes

Diabetes Care ◽  
2008 ◽  
Vol 31 (8) ◽  
pp. 1529-1530 ◽  
Author(s):  
N. Van Walleghem ◽  
C. A. MacDonald ◽  
H. J. Dean
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Adult Care

scholarly journals Health Care Transition in Youth With Type 1 Diabetes and an A1C >9%: Qualitative Analysis of Pre-Transition Perspectives

2020 ◽  
Author(s):  
Elise Schlissel Tremblay ◽  
Jessica Ruiz ◽  
Tess Buccigrosso ◽  
Taylor Dean ◽  
Katharine C. Garvey
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Qualitative Analysis ◽  
Diabetes Care ◽  
Gradual Transition ◽  
Special Focus ◽  
Care Providers ◽  
Adult Care ◽  
Gradual Process

<b>Objective. </b>To explore expectations for transition to adult care and experiences with transition planning among adolescents and young adults with type 1 diabetes and an A1C >9% at a tertiary care U.S. pediatric center. <p><b> Methods. </b>We conducted semi-structured interviews in a purposive sample of patients 14–23 years of age who had had type 1 diabetes for at least 1 year and had an A1C >9%. A multidisciplinary team conducted iterative thematic analysis with deductive and inductive coding aided by NVivo software.</p> <p><b> Results. </b>Fourteen subjects participated (nine adolescents and five young adults, mean age 17.1 ± 3.2 years, 57% male, 79% Caucasian, 14% Hispanic, diabetes duration 8.2 ± 4.6 years, mean A1C 10.0 ± 0.8% for adolescents and 10.1 ± 0.7% for young adults). Qualitative analysis yielded four key themes. The first was lack of formal preparation; participants of all ages demonstrated a lack of preparation for transition and ignorance about the process, describing it as coming “out of the blue.” The second was a desire for delayed and gradual transition; participants wanted to defer being “serious” about transition to a later/uncertain date, with a preference to “wait until I’m older” among all ages. Participants described ideal transition as a gradual, process taking place “a little at a time.” The third was attachment to pediatric providers; participants demonstrated a nearly universal attachment to and “familiarity” with their pediatric diabetes care providers and expressed worries about an “uncomfortable” transition to adult providers. The fourth was concern about an impersonal adult care setting: participants perceived adult care as “formal,” “scarier,” and “tougher,” with increased criticism about poor control; participants expressed fear that adult providers would not “know me” or appreciate “my diabetes journey.”</p> <p><b> Conclusion. </b>We demonstrated a lack of transition preparation and anxiety about transition and adult care among youth with type 1 diabetes and elevated A1C. Our results may help guide early, iterative pediatric transition counseling, with a special focus on addressing attachment and fears about adult diabetes care. </p>

Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes

2019 ◽  
Vol 33 (3) ◽  
pp. 723-730
Author(s):  
Elisabeth Iversen ◽  
Beate‐Christin H. Kolltveit ◽  
Ingvild Hernar ◽  
Jan Mårtensson ◽  
Anne Haugstvedt
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Qualitative Study ◽  
Adult Care
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