Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes

2019 ◽  
Vol 33 (3) ◽  
pp. 723-730
Author(s):  
Elisabeth Iversen ◽  
Beate‐Christin H. Kolltveit ◽  
Ingvild Hernar ◽  
Jan Mårtensson ◽  
Anne Haugstvedt
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Qualitative Study ◽  
Adult Care

scholarly journals Young adults with type 1 diabetes and their experiences with diabetes follow‐up and participation in the DiaPROM pilot trial: A qualitative study

2021 ◽  
Author(s):  
Ingvild Hernar ◽  
Marit Graue ◽  
Ragnhild B. Strandberg ◽  
Silje S. Lie ◽  
Arun K. Sigurdardottir ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Qualitative Study ◽  
Pilot Trial

scholarly journals Evaluation of a Systems Navigator Model for Transition From Pediatric to Adult Care for Young Adults With Type 1 Diabetes

Diabetes Care ◽  
2008 ◽  
Vol 31 (8) ◽  
pp. 1529-1530 ◽  
Author(s):  
N. Van Walleghem ◽  
C. A. MacDonald ◽  
H. J. Dean
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Adult Care

scholarly journals Health Care Transition in Youth With Type 1 Diabetes and an A1C >9%: Qualitative Analysis of Pre-Transition Perspectives

2020 ◽  
Author(s):  
Elise Schlissel Tremblay ◽  
Jessica Ruiz ◽  
Tess Buccigrosso ◽  
Taylor Dean ◽  
Katharine C. Garvey
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Qualitative Analysis ◽  
Diabetes Care ◽  
Gradual Transition ◽  
Special Focus ◽  
Care Providers ◽  
Adult Care ◽  
Gradual Process

<b>Objective. </b>To explore expectations for transition to adult care and experiences with transition planning among adolescents and young adults with type 1 diabetes and an A1C >9% at a tertiary care U.S. pediatric center. <p><b> Methods. </b>We conducted semi-structured interviews in a purposive sample of patients 14–23 years of age who had had type 1 diabetes for at least 1 year and had an A1C >9%. A multidisciplinary team conducted iterative thematic analysis with deductive and inductive coding aided by NVivo software.</p> <p><b> Results. </b>Fourteen subjects participated (nine adolescents and five young adults, mean age 17.1 ± 3.2 years, 57% male, 79% Caucasian, 14% Hispanic, diabetes duration 8.2 ± 4.6 years, mean A1C 10.0 ± 0.8% for adolescents and 10.1 ± 0.7% for young adults). Qualitative analysis yielded four key themes. The first was lack of formal preparation; participants of all ages demonstrated a lack of preparation for transition and ignorance about the process, describing it as coming “out of the blue.” The second was a desire for delayed and gradual transition; participants wanted to defer being “serious” about transition to a later/uncertain date, with a preference to “wait until I’m older” among all ages. Participants described ideal transition as a gradual, process taking place “a little at a time.” The third was attachment to pediatric providers; participants demonstrated a nearly universal attachment to and “familiarity” with their pediatric diabetes care providers and expressed worries about an “uncomfortable” transition to adult providers. The fourth was concern about an impersonal adult care setting: participants perceived adult care as “formal,” “scarier,” and “tougher,” with increased criticism about poor control; participants expressed fear that adult providers would not “know me” or appreciate “my diabetes journey.”</p> <p><b> Conclusion. </b>We demonstrated a lack of transition preparation and anxiety about transition and adult care among youth with type 1 diabetes and elevated A1C. Our results may help guide early, iterative pediatric transition counseling, with a special focus on addressing attachment and fears about adult diabetes care. </p>

Prevalence of dyslipidemia and factors affecting dyslipidemia in young adults with type 1 diabetes: evaluation of statin prescribing

2019 ◽  
Vol 32 (4) ◽  
pp. 327-334 ◽  
Author(s):  
Elie Abed ◽  
Brenton LaBarbera ◽  
Justin Dvorak ◽  
Ying Zhang ◽  
Joni Beck ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Statin Therapy ◽  
Density Lipoprotein ◽  
Lipoprotein Cholesterol ◽  
High Risk Population ◽  
Limited Information ◽  
Adult Care ◽  
Cross Sectional

Abstract Background There is limited information about cardiovascular complications among young adults (YA) with type 1 diabetes mellitus (T1DM) who are transitioning from pediatric to adult care. We aimed to study the prevalence and associated factors of dyslipidemia (DLD) and statin treatment in these patients. Methods We recruited 129 YA with T1DM aged 15–25 years. In a cross-sectional analysis, the prevalence of DLD (low-density lipoprotein cholesterol [LDL-C] ≥ 100 mg/dL, high-density lipoprotein cholesterol [HDL-C] <40 mg/dL [males] or <50 mg/dL [females], total cholesterol [TC] ≥200 mg/dL or triglycerides [TG] ≥150 mg/dL) was reported. Socioeconomic and clinical characteristics were compared between YA with and without DLD. We also assessed statin use among YA with DLD. Results DLD was found in 64% of YA, predominantly increased LDL-C (34.9%). Higher mean glycated hemoglobin (HbA1c) was associated with DLD (p < 0.043). Of all YA who met the criteria for statin therapy, only 42% had one prescribed. Conclusions The prevalence of DLD is high in YA with T1DM and is associated with poor glycemic control, and use of statin therapy in this high-risk population is low.

scholarly journals Young Adults With Type 1 Diabetes Preparing to Transition to Adult Care: Psychosocial Functioning and Associations With Self-Management and Health Outcomes

2020 ◽  
Vol 33 (3) ◽  
pp. 255-263
Author(s):  
Ana M. Gutierrez-Colina ◽  
Sarah Corathers ◽  
Sarah Beal ◽  
Holly Baugh ◽  
Katie Nause ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Health Outcomes ◽  
Psychosocial Functioning ◽  
Self Management ◽  
Transition To Adult Care ◽  
Adult Care

scholarly journals What’s distressing about having type 1 diabetes? A qualitative study of young adults’ perspectives

2013 ◽  
Vol 13 (1) ◽  
Author(s):  
Myles Balfe ◽  
Frank Doyle ◽  
Diarmuid Smith ◽  
Seamus Sreenan ◽  
Ruairi Brugha ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Young Adults ◽  
Qualitative Study
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