Evaluation of Patients’ Opinion and Metabolic Control after Transfer of Young Adults with Type 1 Diabetes from a Pediatric Diabetes Clinic to Adult Care

BACKGROUND Adolescents with type 1 diabetes differ from their parents and physicians about what they need from healthcare. Therefore, it is important to implement patient-centered diabetes care for adolescents. OBJECTIVE This study used human-centered design to reveal diabetes self-management challenges faced by youth with type 1 diabetes and their parents. This was a pre-study design phase of a larger study to develop a patient-centered automated decision support tool for diabetes clinic. METHODS Data were collected from youth and parents in two settings 1) a diabetes summer camp to capture challenges faced by youth and parents, 2) youth and parents participating in human-centered design sessions to further explore challenges. RESULTS Fifty-six people completed the camp worksheet, identifying 15 unique themes. The sessions further verified three problematic themes each for youth and parents. Youth generated 23 questions and parents identified 33 questions for potential use for the decision support tool development. CONCLUSIONS Including patient and parent self-management needs is vital. Providers should understand the psychosocial factors associated with barriers to self-management. The incorporation of patient and parent questions, ideas, and subsequent patient-provider communication in the support tool may improve trust in the provider and youth self-efficacy as they navigate the transition to independent adult care. CLINICALTRIAL Trial Registration: ClinicalTrials.gov NCT03084900

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Characterization of dyslipidaemia and association of lipoprotein(A) plasma levels with metabolic control in young adults with type 1 diabetes

Endocrine Abstracts ◽

10.1530/endoabs.70.aep1034 ◽

2020 ◽

Author(s):

Isabel Inácio ◽

Sara Ferrreira ◽

Patrícia Rosinha ◽

Teresa Azevedo ◽

Márcia Alves ◽

...

Keyword(s):

Type 1 Diabetes ◽

Young Adults ◽

Metabolic Control ◽

Plasma Levels ◽

Lipoprotein A

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Influence of the Type of Basal Insulin and Other Variables on Clinical Outcomes in Children with Newly Diagnosed Type 1 Diabetes

ISRN Pediatrics ◽

10.1155/2014/758343 ◽

2014 ◽

Vol 2014 ◽

pp. 1-6

Author(s):

Ruth M. Garrison ◽

Jeremy L. Johnson ◽

Michelle E. Condren ◽

Kevin C. Farmer ◽

David H. Jelley

Keyword(s):

Type 1 Diabetes ◽

Children And Adolescents ◽

Basal Insulin ◽

Retrospective Chart Review ◽

Severe Hypoglycemia ◽

First Year ◽

Newly Diagnosed ◽

Diabetes Clinic ◽

Pediatric Diabetes

Background. Basal insulin detemir and glargine each have characteristics that may make them a superior choice in children and adolescents with type 1 diabetes, but there is a paucity of data on glycemic results in this population. Objective. Examination of variables associated with achievement of HbA1c goal in children and adolescents with newly diagnosed type 1 diabetes. Methods. The primary outcome, factors associated with achievement of HbA1c goal, was examined in a retrospective chart review. Variables, including type of basal insulin, were collected during the first year of diagnosis of patients in a pediatric diabetes clinic. Secondary outcomes included change in HbA1c, severe hypoglycemic events, and episodes of DKA. Results. 94 patients were included in the study. HbA1c at diagnosis was found to be a significant predictor of achievement of goal at 3 months (P=0.002) and of change in HbA1c at 3 and 12 months (P<0.001 for each). Severe hypoglycemia and episodes of DKA were uncommon. Conclusions. Choice of basal insulin was not found to be a predictor of achieving HbA1c goal or of change in HbA1c over the course of the first year of diagnosis with type 1 diabetes.

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