Family management of childhood chronic conditions: Does it make a difference if the child has an intellectual disability?

2017 ◽  
Vol 176 (1) ◽  
pp. 82-91 ◽  
Author(s):  
Marcia Van Riper ◽  
George J. Knafl ◽  
Cecelia Roscigno ◽  
Kathleen A. Knafl
Keyword(s):  
Intellectual Disability ◽  
Chronic Conditions ◽  
Family Management ◽  
Childhood Chronic Conditions

scholarly journals Patterns of Family Management of Childhood Chronic Conditions and Their Relationship to Child and Family Functioning

2013 ◽  
Vol 28 (6) ◽  
pp. 523-535 ◽  
Author(s):  
Kathleen A. Knafl ◽  
Janet A. Deatrick ◽  
George J. Knafl ◽  
Agatha M. Gallo ◽  
Margaret Grey ◽  
...  
Keyword(s):  
Family Functioning ◽  
Chronic Conditions ◽  
Family Management ◽  
Childhood Chronic Conditions

The Family Management of Childhood Chronic Conditions: Measurement in a Turkish Sample

2019 ◽  
Vol 47 ◽  
pp. e16-e23 ◽  
Author(s):  
Ayse Ergun ◽  
Fatma Nevin Sisman ◽  
Saime Erol ◽  
Kamer Gur ◽  
Nurcan Kolac ◽  
...  
Keyword(s):  
Chronic Conditions ◽  
Family Management ◽  
The Family ◽  
Childhood Chronic Conditions

Development of the Family Management Measure for Childhood Chronic Conditions

2009 ◽  
Author(s):  
Kathleen A. Knafl ◽  
Janet A. Deatrick ◽  
Agatha Gallo ◽  
Jane Dixon ◽  
Margaret Grey
Keyword(s):  
Chronic Conditions ◽  
Family Management ◽  
The Family ◽  
Management Measure ◽  
Childhood Chronic Conditions

scholarly journals People with an intellectual disability in the discourse of chronic and complex conditions: an invisible group?

2008 ◽  
Vol 32 (3) ◽  
pp. 405 ◽  
Author(s):  
Linda Goddard ◽  
Patricia M Davidson ◽  
John Daly ◽  
Sandra Mackey
Keyword(s):  
Health Care ◽  
Intellectual Disability ◽  
Chronic Conditions ◽  
Health Professions ◽  
Disability Services ◽  
Complex Care ◽  
Competency Development ◽  
Care Needs ◽  
Complex Care Needs ◽  
Respiratory Conditions

People with an intellectual disability and their families experience poorer health care compared with the general population. Living with an intellectual disability is often challenged by coexisting complex and chronic conditions, such as gastrointestinal and respiratory conditions. A literature review was undertaken to document the needs of this vulnerable population, and consultation was undertaken with mothers of children with disabilities and with professionals working within disability services for people with an intellectual disability and their families. Based on this review, there is a need to increase the profile of people with an intellectual disability in the discourse surrounding chronic and complex conditions. Strategies such as guideline and competency development may better prepare health professions to care for people with disabilities and chronic and complex care needs and their families.

Uncertainty in Childhood Chronic Conditions and Family Distress in Families of Young Children

2000 ◽  
Vol 6 (3) ◽  
pp. 252-266 ◽  
Author(s):  
Joan E. Dodgson ◽  
Ann Garwick ◽  
Shelley A. Blozis ◽  
Joän M. Patterson ◽  
Forrest C. Bennett ◽  
...  
Keyword(s):  
Young Children ◽  
Chronic Conditions ◽  
Childhood Chronic Conditions ◽  
Family Distress

Growth in Childhood Chronic Conditions

2019 ◽  
pp. 102-117 ◽  
Author(s):  
Kung-Ting Kao ◽  
Syed Faisal Ahmed ◽  
Sze Choong Wong
Keyword(s):  
Chronic Conditions ◽  
Childhood Chronic Conditions

Ethnocultural Variations in the Prevalence and Impact of Childhood Chronic Conditions

PEDIATRICS ◽  
1993 ◽  
Vol 91 (5) ◽  
pp. 1031-1039 ◽  
Author(s):  
Paul W. Newacheck ◽  
Jeffrey J. Stoddard ◽  
Margaret McManus
Keyword(s):  
Native American ◽  
Chronic Illness ◽  
Racial Differences ◽  
Chronic Conditions ◽  
Mental Illnesses ◽  
Racial And Ethnic Differences ◽  
Household Interview ◽  
American Children ◽  
Interview Studies ◽  
Childhood Chronic Conditions

Chronic physical and mental illnesses are an important contributor to childhood morbidity. National survey data indicate that childhood chronic illnesses result in more than 35 million bed days and 40 million school absence days annually.1 There is also evidence to suggest that the burden of chronic illness is growing for children.2-4 Specifically, advances in diagnosis and treatment have dramatically changed mortality rates for children with chronic conditions, with the result that many children with life-threatening chronic conditions now survive into adulthood.5,6 In addition, a new class of childhood conditions, often referred to as the "new morbidities," has emerged in recent years.4,7 Despite concern about the welfare of this population, relatively little is known about the prevalence of childhood chronic conditions or their impact, especially for minority youth. Past studies have often categorized minority populations into the general and nonspecific category of "nonwhite." Alternatively some studies have reported results only for white and black children; hence published information is particularly sparse on chronic illness among Hispanic, Asian, and Native American children. Previous studies that have examined racial and ethnic variations in the prevalence of childhood chronic conditions can be divided into those that are based on household interviews, those based on medical records, and those based on birth-defects-monitoring systems. The results for some of the larger studies are summarized in Table 1. Excluded from this table are disease-specific studies. Only a few household interview studies have reported results concerning racial and ethnic differences in prevalence of chronic conditions. One of the earliest household interview studies to explore racial differences derived data from a survey of parents in Alamance County, North Carolina.8

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