Multicenter study of utility and acceptability of depression and anxiety screening in adolescents and young adults with childhood‐onset systemic lupus

2021 ◽  
Author(s):  
Tamar B. Rubinstein ◽  
Marija Dionizovik‐Dimanovski ◽  
Alaina M. Davis ◽  
Chelsey Smith ◽  
Lauren Faust ◽  
...  
2011 ◽  
Author(s):  
Elizabeth S. Molzon ◽  
Stephanie E. Hullmann ◽  
Angelica R. Eddington ◽  
Carmen A. Del Olmo Vazquez ◽  
Larry L. Mullins

2011 ◽  
Vol 29 (15_suppl) ◽  
pp. e14127-e14127
Author(s):  
M. A. Kaplan ◽  
A. Isikdogan ◽  
M. Gumus ◽  
Ü. Yalçintas Arslan ◽  
C. Geredeli ◽  
...  

2016 ◽  
Vol 68 (6) ◽  
pp. 828-837 ◽  
Author(s):  
David J. Tunnicliffe ◽  
Davinder Singh-Grewal ◽  
Jeffrey Chaitow ◽  
Fiona Mackie ◽  
Nicholas Manolios ◽  
...  

2011 ◽  
Vol 39 (1) ◽  
pp. 174-179 ◽  
Author(s):  
TRACY V. TING ◽  
DEEPA KUDALKAR ◽  
SHANNEN NELSON ◽  
SANDRA CORTINA ◽  
JOSHUA PENDL ◽  
...  

Objective.In a cohort of 70 patients with childhood-onset systemic lupus erythematosus (cSLE): to determine the baseline adherence to medications and visits; to investigate the effects of cellular text messaging reminders (CTMR) on adherence to clinic visits; and to study the influence of CTMR on adherence to use of hydroxychloroquine (HCQ).Methods.CTMR were sent to 70 patients prior to clinic visits for 14 months. A subgroup of patients were evaluated for medication adherence to HCQ: 19 patients receiving CTMR prior to each scheduled HCQ dose were compared to 22 patients randomized to standard of care education about HCQ. Visit adherence was measured using administrative databases. Pharmacy refill information, self-report of adherence, and HCQ blood levels were utilized to monitor medication adherence to HCQ. Sufficient adherence to visits or HCQ was defined as estimates > 80%. Disease activity was primarily monitored with the Systemic Lupus Erythematosus Disease Activity Index.Results.At baseline, 32% of patients were sufficiently adherent to HCQ, and 81% to clinic visits. Visit adherence improved significantly by > 80% among those who were nonadherent to clinic visits at the baseline CTMR (p = 0.01). CTMR did not influence adherence to HCQ over time.Conclusion.Patients with cSLE were only modestly adherent to HCQ and clinic visits. CTMR may be effective for improving visit adherence among adolescents and young adults with cSLE, but it does not improve adherence to HCQ.


2011 ◽  
Vol 1 (1) ◽  
pp. 30-37 ◽  
Author(s):  
Merih Berberoğlu ◽  
Zeynep Şıklar ◽  
Feyza Darendeliler ◽  
Şükran Poyrazoğlu ◽  
Şükran Darcan ◽  
...  

2022 ◽  
Author(s):  
Reem Abdwani ◽  
Rumaitha Al Sabri ◽  
Zawan Zawan Alhasni ◽  
Seyad Rizvi ◽  
Humaid Al Wahshi ◽  
...  

Abstract Introduction:In Oman, the “transfer” healthcare rather than the “transition” of health care of adolescents to adult care occurs at a young age, like many other GCC countries for cultural reasons. In order to address this concern, this study was conducted to determine the transition readiness skills of adolescents and young adults with childhood onset rheumatic diseases using a cross-cultural adaptation of the UNC TRxANSITION scale.Methods: We used a professionally translated/back translated, provider-administered UNC TRxANSITION Scale. This 32-question scale measures HCT in ten domains including knowledge about diagnosis or treatment, diet, reproductive health, school/work, insurance, ability to self-manage and looking for new health providers. The maximum transitional score of 10, was categorized as low (1-4), moderate (4 - 7) and high (7 -10) transitional readiness scores.Results:We enrolled 81 Omani adolescents and young adults (AYA) with chronic childhood onset rheumatic diseases. The cohort consisted of 79% females, with mean age of 15.8 years (± 3.53) and mean disease duration of 6.95 years (± 4.83). Our cohort's overall mean score is low 5.22 (±1.68). Only 14.8% of the cohort achieved a high transition score ≥7). Significant direct relationship was observed between age and the mean transition readiness score (r = .533, P < .001). The mean transition readiness score in the younger age group (10-13 years) was 4.07 (±1.29), the middle age group (14-18 years) was 5.43 ( ±1.27), while the older age group (19-21 year), was 6.12 ( ±1.81), Mean transition score of youngest age group was found to be significantly lower than the other two age groups (p =.003).Conclusion:Overall, the transition readiness of AYA in Oman is low compared to other western countries indicating the need to initiate a health care transition preparation program for patients with chronic diseases across the country. In addition, we need to establish regional guidelines to address the transitional age policy to be in line to international recommendations.


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