Nurses’ perceptions regarding transitional care for adolescents and young adults with childhood‐onset chronic diseases

2020 ◽  
Vol 17 (3) ◽  
Author(s):  
Seigo Suzuki ◽  
Sachiko Kita ◽  
Mayumi Morisaki ◽  
Ryota Kikuchi ◽  
Iori Sato ◽  
...  
Keyword(s):  
Young Adults ◽  
Chronic Diseases ◽  
Transitional Care ◽  
Adolescents And Young Adults ◽  
Childhood Onset ◽  
Nurses Perceptions

scholarly journals Transition Readiness in Adolescents and Young Adults With Chronic Rheumatic Disease in Oman: Today’s Needs and Future Challenges

2022 ◽  
Author(s):  
Reem Abdwani ◽  
Rumaitha Al Sabri ◽  
Zawan Zawan Alhasni ◽  
Seyad Rizvi ◽  
Humaid Al Wahshi ◽  
...  
Keyword(s):  
Health Care ◽  
Young Adults ◽  
Rheumatic Diseases ◽  
Adolescents And Young Adults ◽  
Age Group ◽  
Health Providers ◽  
Childhood Onset ◽  
Adult Care ◽  
Transition Readiness ◽  
The Mean

Abstract Introduction:In Oman, the “transfer” healthcare rather than the “transition” of health care of adolescents to adult care occurs at a young age, like many other GCC countries for cultural reasons. In order to address this concern, this study was conducted to determine the transition readiness skills of adolescents and young adults with childhood onset rheumatic diseases using a cross-cultural adaptation of the UNC TRxANSITION scale.Methods: We used a professionally translated/back translated, provider-administered UNC TRxANSITION Scale. This 32-question scale measures HCT in ten domains including knowledge about diagnosis or treatment, diet, reproductive health, school/work, insurance, ability to self-manage and looking for new health providers. The maximum transitional score of 10, was categorized as low (1-4), moderate (4 - 7) and high (7 -10) transitional readiness scores.Results:We enrolled 81 Omani adolescents and young adults (AYA) with chronic childhood onset rheumatic diseases. The cohort consisted of 79% females, with mean age of 15.8 years (± 3.53) and mean disease duration of 6.95 years (± 4.83). Our cohort's overall mean score is low 5.22 (±1.68). Only 14.8% of the cohort achieved a high transition score ≥7). Significant direct relationship was observed between age and the mean transition readiness score (r = .533, P < .001). The mean transition readiness score in the younger age group (10-13 years) was 4.07 (±1.29), the middle age group (14-18 years) was 5.43 ( ±1.27), while the older age group (19-21 year), was 6.12 ( ±1.81), Mean transition score of youngest age group was found to be significantly lower than the other two age groups (p =.003).Conclusion:Overall, the transition readiness of AYA in Oman is low compared to other western countries indicating the need to initiate a health care transition preparation program for patients with chronic diseases across the country. In addition, we need to establish regional guidelines to address the transitional age policy to be in line to international recommendations.

Age of Transition Readiness of Adolescents and Young Adults With Chronic Diseases in Oman

2022 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Reem Abdwani ◽  
Muna al Saadoon ◽  
Sanjay Jaju ◽  
Mohamed Elshinawy ◽  
Asmaa Almaimani ◽  
...  
Keyword(s):  
Young Adults ◽  
Chronic Diseases ◽  
Adolescents And Young Adults ◽  
Transition Readiness

scholarly journals Perceptions of adolescents and young adults with allergy and/or asthma and their parents on EAACI guideline recommendations about transitional care: A European survey.

Allergy ◽  
2021 ◽  
Author(s):  
Ekaterina Khaleva ◽  
Rebecca Knibb ◽  
Audrey DunnGalvin ◽  
Marta Vazquez‐Ortiz ◽  
Pasquale Comberiati ◽  
...  
Keyword(s):  
Young Adults ◽  
Transitional Care ◽  
Adolescents And Young Adults ◽  
European Survey

scholarly journals Mortality in adolescents and young adults with chronic diseases during 16 years: a study in a Latin American tertiary hospital

2019 ◽  
Vol 95 (6) ◽  
pp. 667-673
Author(s):  
Gabriel F. Ramos ◽  
Vanessa P. Ribeiro ◽  
Mariana P. Mercadante ◽  
Maira P. Ribeiro ◽  
Artur F. Delgado ◽  
...  
Keyword(s):  
Young Adults ◽  
Chronic Diseases ◽  
Latin American ◽  
Tertiary Hospital ◽  
Adolescents And Young Adults

scholarly journals Cigarette Smoking and Alcohol Use among Adolescents and Young Adults with Asthma

2011 ◽  
Vol 2011 ◽  
pp. 1-7 ◽  
Author(s):  
Elizabeth Burgess Dowdell ◽  
Michael A. Posner ◽  
M. Katherine Hutchinson
Keyword(s):  
Young Adults ◽  
Alcohol Use ◽  
Cigarette Smoking ◽  
Health Risk ◽  
Chronic Diseases ◽  
Risk Behaviors ◽  
Secondary Analysis ◽  
Health Risk Behaviors ◽  
Adolescents And Young Adults ◽  
Behavior Change Interventions

Asthma is one of the most common, serious chronic diseases in pediatric and young adult populations. Health-risk behaviors, including cigarette smoking and alcohol use, may exacerbate chronic diseases and complicate their management. The aim of this study was to longitudinally analyze rates of cigarette smoking and alcohol use in adolescents and young adults who have asthma and those who do not have asthma. A secondary analysis of data from the National Longitudinal Study of Adolescent Health was undertaken. Individuals with asthma were found to exhibit increasing rates of cigarette smoking and alcohol use as they aged. When an adolescent with a chronic health issue begins health-risk-taking behaviors, behavior change interventions must be planned. Pediatric nurses, practitioners, and clinicians are uniquely positioned to assess for health-risk behaviors in youth with asthma and to intervene with plans of care that are tailored for the needs of this vulnerable population.

Metabolic syndrome in adolescents and young adults with childhood-onset GH deficiency

2013 ◽  
Author(s):  
Joanna Oswiecimska ◽  
Katarzyna Ziora ◽  
Magdalena Pys-Spychala ◽  
Agnieszka Szymlak ◽  
Agata Mikolajczak
Keyword(s):  
Metabolic Syndrome ◽  
Young Adults ◽  
Gh Deficiency ◽  
Adolescents And Young Adults ◽  
Childhood Onset

Transition from a renal paediatric clinic to an adult clinic: Perspectives of adolescents and young adults, parents and health professionals

2021 ◽  
pp. 136749352110284
Author(s):  
Kimberley Crawford ◽  
Jac Kee Low ◽  
Amelia K Le Page ◽  
William Mulley ◽  
Rosemary Masterson ◽  
...  
Keyword(s):  
Young Adults ◽  
Health Professionals ◽  
Transitional Care ◽  
Transition Process ◽  
Adolescents And Young Adults ◽  
Transition To Adult Care ◽  
Adult Health ◽  
Structured Interviews ◽  
Adult Care ◽  
Health Services Need

The management of chronic kidney disease is complex. With disease management being the responsibility of parents in the paediatric renal clinic, the responsibility is gradually shifted to adolescents and young adults during the transition to adult care. This multi-perspective qualitative study aimed to explore the experiences of adolescents and young adults, their parents and health professionals to gain an insight into transitional care. Focussing on the transition process and transfer to adult care, 18 adolescents and young adults and eight mothers participated in individual semi-structured interviews. Additionally, three focus groups were conducted with 20 multidisciplinary health professionals. Data were transcribed verbatim and analysed thematically. Similar responses from adolescents and young adults and mothers included the reluctance to leave the paediatric health service. Mothers found the transition to adult care more challenging than the adolescents and young adults. While health professionals acknowledged that engaging adolescents and young adults in their own care was challenging, they believed parents had an important role in facilitating their child’s independence. This study highlights that health professionals in both paediatric and adult health services need to work collaboratively. However, importantly, health professionals need to be mindful that parents require an equal amount of engagement as adolescents and young adults, if not more, to mitigate parental barriers in achieving a successful transfer.

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