scholarly journals Lupus Means Sacrifices: Perspectives of Adolescents and Young Adults With Systemic Lupus Erythematosus

2016 ◽  
Vol 68 (6) ◽  
pp. 828-837 ◽  
Author(s):  
David J. Tunnicliffe ◽  
Davinder Singh-Grewal ◽  
Jeffrey Chaitow ◽  
Fiona Mackie ◽  
Nicholas Manolios ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Young Adults ◽  
Lupus Erythematosus ◽  
Adolescents And Young Adults ◽  
Systemic Lupus

Usefulness of Cellular Text Messaging for Improving Adherence Among Adolescents and Young Adults with Systemic Lupus Erythematosus

2011 ◽  
Vol 39 (1) ◽  
pp. 174-179 ◽  
Author(s):  
TRACY V. TING ◽  
DEEPA KUDALKAR ◽  
SHANNEN NELSON ◽  
SANDRA CORTINA ◽  
JOSHUA PENDL ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Young Adults ◽  
Medication Adherence ◽  
Disease Activity ◽  
Lupus Erythematosus ◽  
Text Messaging ◽  
Adolescents And Young Adults ◽  
Systemic Lupus ◽  
Visit Adherence ◽  
Clinic Visits

Objective.In a cohort of 70 patients with childhood-onset systemic lupus erythematosus (cSLE): to determine the baseline adherence to medications and visits; to investigate the effects of cellular text messaging reminders (CTMR) on adherence to clinic visits; and to study the influence of CTMR on adherence to use of hydroxychloroquine (HCQ).Methods.CTMR were sent to 70 patients prior to clinic visits for 14 months. A subgroup of patients were evaluated for medication adherence to HCQ: 19 patients receiving CTMR prior to each scheduled HCQ dose were compared to 22 patients randomized to standard of care education about HCQ. Visit adherence was measured using administrative databases. Pharmacy refill information, self-report of adherence, and HCQ blood levels were utilized to monitor medication adherence to HCQ. Sufficient adherence to visits or HCQ was defined as estimates > 80%. Disease activity was primarily monitored with the Systemic Lupus Erythematosus Disease Activity Index.Results.At baseline, 32% of patients were sufficiently adherent to HCQ, and 81% to clinic visits. Visit adherence improved significantly by > 80% among those who were nonadherent to clinic visits at the baseline CTMR (p = 0.01). CTMR did not influence adherence to HCQ over time.Conclusion.Patients with cSLE were only modestly adherent to HCQ and clinic visits. CTMR may be effective for improving visit adherence among adolescents and young adults with cSLE, but it does not improve adherence to HCQ.

scholarly journals Drusen-like Deposits in Young Adults Diagnosed With Systemic Lupus Erythematosus

2017 ◽  
Vol 175 ◽  
pp. 68-76 ◽  
Author(s):  
Alessandro Invernizzi ◽  
Laura dell'Arti ◽  
Gaia Leone ◽  
Daniela Galimberti ◽  
Elena Garoli ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Young Adults ◽  
Lupus Erythematosus ◽  
Systemic Lupus
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