fabry outcome survey
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scholarly journals Prompt Agalsidase Alfa Therapy Initiation is Associated with Improved Renal and Cardiovascular Outcomes in a Fabry Outcome Survey Analysis

2021 ◽  
Vol Volume 15 ◽  
pp. 3561-3572
Author(s):  
Derralynn Hughes ◽  
Aleš Linhart ◽  
Andrey Gurevich ◽  
Vasiliki Kalampoki ◽  
Dalia Jazukeviciene ◽  
...  
Keyword(s):  
Cardiovascular Outcomes ◽  
Survey Analysis ◽  
Agalsidase Alfa ◽  
Therapy Initiation ◽  
Fabry Outcome Survey

Fabry Outcome Survey (FOS): Highlights from a 20-year patient registry of Fabry disease

2021 ◽  
Vol 132 (2) ◽  
pp. S19
Author(s):  
Michael Beck ◽  
Uma Ramaswami ◽  
Derralynn Hughes ◽  
Christoph Kampmann ◽  
Kathy Nicholls ◽  
...  
Keyword(s):  
Fabry Disease ◽  
Patient Registry ◽  
Fabry Outcome Survey

Prompt initiation of agalsidase alfa therapy is associated with improved cardiovascular and renal outcomes in the Fabry Outcome Survey (FOS)

2020 ◽  
Vol 129 (2) ◽  
pp. S77
Author(s):  
Derralynn Hughes ◽  
Ales Linhart ◽  
Andrey Gurevich ◽  
Vasiliki Kalampoki ◽  
Dalia Jazukeviciene ◽  
...  
Keyword(s):  
Renal Outcomes ◽  
Agalsidase Alfa ◽  
Fabry Outcome Survey

scholarly journals Cardio- Renal Outcomes With Long- Term Agalsidase Alfa Enzyme Replacement Therapy: A 10- Year Fabry Outcome Survey (FOS) Analysis

2019 ◽  
Vol Volume 13 ◽  
pp. 3705-3715
Author(s):  
Uma Ramaswami ◽  
Michael Beck ◽  
Derralynn Hughes ◽  
Christoph Kampmann ◽  
Jaco Botha ◽  
...  
Keyword(s):  
Enzyme Replacement Therapy ◽  
Replacement Therapy ◽  
Renal Outcomes ◽  
Enzyme Replacement ◽  
Agalsidase Alfa ◽  
Fabry Outcome Survey

Menarche, menopause, and pregnancy data in untreated females and females treated with agalsidase alfa in the Fabry Outcome Survey

2018 ◽  
Vol 123 (2) ◽  
pp. S67
Author(s):  
Derralynn Hughes ◽  
Miguel-Ángel Barba Romero ◽  
Andrey Gurevich ◽  
Patrick Engrand ◽  
Roberto Giugliani
Keyword(s):  
Agalsidase Alfa ◽  
Fabry Outcome Survey

scholarly journals P1099Prompt initiation of agalsidase alfa therapy is associated with improved cardiovascular outcomes in the Fabry Outcome Survey

2017 ◽  
Vol 38 (suppl_1) ◽  
Author(s):  
A. Linhart ◽  
D. Hughes ◽  
A. Gurevich ◽  
A. Joseph ◽  
R. Kerstens ◽  
...  
Keyword(s):  
Cardiovascular Outcomes ◽  
Agalsidase Alfa ◽  
Fabry Outcome Survey
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