Children’s Understanding of Informed Assents in Research Studies

The assent procedure reflects an effort to enable the minor to understand, to the degree they are capable of, what their participation in the decision making process would involve. Aims: To evaluate the minors’ ability to understand the information provided to them when obtaining assent and to evaluate the opinion of the parents regarding the importance of asking the child’s assent. Methods: The sample included a total of 52 minors aged between 10 and 17 years who underwent exercise echocardiogram. The Quality of Informed Consent is divided into two parts: Part A was used to measure objective understanding and part B to measure subjective understanding. Results: The results show that the minors have a high capacity to understand the information given to them when asking for assent. A positive relationship was found between the two parts of the questionnaire. No statistically significant relationship was found between age and sex and part A and part B or between both age groups (<14 years old and ≥14 years old) and the measure. In the case of the parents, 96.6% of parents consider assent as an advantage for the child’s acceptance of health care. The opinion of the parents is not related to the age, sex or level of schooling. Conclusion: Minors showed a substantial level of understanding regarding the information provided to them. The parents considered the implementation of assent fundamental to the child’s acceptance of health care.

Unpacking Social Isolation in Men’s Suicidality

Social isolation has featured as a significant and oftentimes all-encompassing risk factor for male suicide, yet, as an explanatory mechanism, it has not been unpacked in terms of what it constitutes in everyday life. The current photovoice study explores the various dimensions of the lived experience of social isolation, as embedded in accounts of suicidality drawn from 35 Canadian men. Study participants narrated the following factors as underpinning their social isolation: (a) family dysfunction and estrangement, (b) marginality and feeling like misfits at school and work, (c) alienation and provisional acceptance of health care, (d) ineffectual and self-harming management, (e) intrusive dislocating thoughts, and (f) society’s burdensome and immoral subjects. These interwoven but discrete spheres provide a means for understanding the phenomenology of social isolation and a basis for melding ideas about connectedness, relationality, personal history, and care, along with strategies to support and reduce men’s suicidality.

Improving user acceptance of health-care telematics

Telehealth represents a new approach to health-care with the potential for improving accessibility and reducing costs. Over the years, technology has become increasingly interactive, cheaper and standardized. Despite this, the uptake of technology has been low. One of the main reasons is that the introduction of telematics in health-care requires more than technology and software—organizational and cultural change is required as well. A suggested approach is based on the principles of service quality and quality management, to produce a partnership between the users and the developers of new technologies. This will in turn make it possible to bring user-validated requirements into the design of the system and create feelings of ownership and motivation on the part of users, in order to prepare their environment for the change. The methodology has been effectively used in various projects of the Telematics Application Programme of the European Commission.