Efforts by the National Academy for State Health Policy

The National Academy for State Health Policy hosts both the RAISE Act Family Caregiving Resource and Dissemination Center and the Hub for State Strategies to Build and Support Palliative Care, with generous funding from The John A. Hartford Foundation. The value of supporting individuals with serious illness and complex conditions as well as their family caregivers through telehealth, care management, advance care planning, and other added family caregiver supports has been especially evident during the COVID-19 pandemic. Policymakers are now grappling with how to restructure hard-hit health care and long-term services and supports systems to better support these individuals and their family caregivers. The State Hub provides concrete resources for states working to implement and expand high-quality palliative care, and the RAISE Center is assisting the Family Caregiving Advisory Council with creating the country’s first national Family Caregiver Strategy.

Activities Under the RAISE Family Caregiving Act: Developing a National Strategy to Support Family Caregivers

This presentation describes the unique collaboration between The John A. Hartford Foundation, the Administration or Community Living (ACL), and the National Academy for State Health Policy (NASHP) in supporting the RAISE Act Family Caregiver Resource and Dissemination Center, and the goals and activities of the RAISE Act Family Caregiving Advisory Council. Most importantly, she will present the the development of recommendations for a national strategy to support family caregivers involving all levels of government as well as private-sector actors. These recommendations fall into five primary areas, which Fox-Grage will discuss in detail. She will also discuss the Center’s development of family caregiving resources for state and federal policymakers and other stakeholders as well as next steps in turning the Council’s recommendations into concrete action.

Turning attention to clinician engagement in Victoria

The engagement of clinicians with employing organisations and with the broader health system results in better safer care for patients. Concerns about the adequacy of clinician engagement in the state of Victoria led the Victorian Department of Health and Human Services to commission a scoping study. During this investigation more than 100 clinicians were spoken with and 1800 responded to surveys. The result was creation of a clear picture of what engagement and disengagement looked like at all levels – from the clinical microsystem to state health policy making. Multiple interventions are possible to enhance clinician engagement and thus the care of future patients. A framework was developed to guide future Victorian work with four elements: setting the agenda, informing, involving and empowering clinicians. Concepts of work or employee engagement that are used in other industries don’t directly translate to healthcare and thus the definition of engagement chosen for use centred on involvement. This was designed to encourage system managers to ensure clinicians are full participants in design, planning and evaluation and in all decisions that affect them and their patients.

MODERN MODEL OF GENETIC MONITORING AS A PROMISING TOOL FOR REDUCING INCIDENCE OF GENETIC PATHOLOGIES IN UKRAINE

Introduction: The medical and social substantiation of an optimized system of genetic monitoring in Ukraine for providing of quality medical care with economic substantiation should be developed for quality medical care and justification of budget expenditures and the economic evaluation of the effectiveness of treatment and prevention measures. The aim is to develop a modern model for the genetic monitoring and provide substantiation of the measures for the prevention of hereditary transmission of genetic defects and birth of children with congenital defects. Materials and methods: The following research methods have been employed: systematic approach and analysis technique; bibliographic and semantic method; method of conceptual modeling. Conclusions: The model of genetic monitoring with the modern concepts of healthcare reform in Ukraine has been developed taking into account the priorities of the state health policy, modern internationally recognized and recommended by WHO.