What Surrogates Understand (and Don’t Understand) About Patients’ Wishes After Engaging Advance Care Planning: A Qualitative Analysis

Background: The goal of advance care planning (ACP) is to improve end-of-life decision-making for patients and their spokespersons, but multiple studies have failed to show substantial or consistent benefit from ACP. Understanding how and why ACP under-performs in the setting of complex medical decision-making is key to optimizing current, or designing new, ACP interventions. Aim: To explore how ACP did or did not contribute to a spokespersons’ understanding of patient wishes after engaging in ACP. Design: Thematic analysis of 200 purposively sampled interviews from a randomized control trial of an ACP decision aid. Setting/Participants: 200 dyads consisting of patients 18 years or older with advanced serious illness and their spokesperson at 2 tertiary care centers in Hershey, PA and Boston, MA. Participants were interviewed 1 month after completing ACP. Results: ACP helped participants: 1) express clear end-of-life wishes, 2) clarify values, and 3) recognize challenges associated with applying those wishes in complex situations. Shortcomings of ACP included 1) unknown prognostic information or quality-of-life outcomes to inform decision-making, 2) skepticism about patients’ wishes, and 3) complicated emotions impacting end-of-life discussions. Conclusions: Helping patients and their spokespersons better anticipate decision-making in the face of prognostic and informational uncertainty as well as the emotional complexities of making medical decisions may improve the efficacy of ACP interventions.

Why community specialist practitioner district nurses should promote tissue donation

A high proportion of patients are being supported with end-of-life (EoL) care in the community, many of which are known to district nursing (DN) caseloads. Over time, community specialist practitioner district nursing (CSPDN) teams build therapeutic relationships with patients, and they are adept at providing EoL care. They are also now actively and routinely undertaking verification of death (VoD). Thus, they are in a prime position to promote and facilitate community tissue donation among patients and their families. The Government has recognised a need to promote organ and tissue donation, implementing the Organ Donation (Deemed Consent) Act (2019) , whereby every person over the age of 18 years is now considered for organ and tissue donation with the anticipation of more recipients receiving life-changing tissue transplantation. DN teams seem to lack awareness of the change in law and, therefore, are not actively promoting this in practice. Further, there is no available community-focused guidance or training to support DNs to have these difficult and complex conversations enabling exploration of patients' wishes with regard to promote tissue donation. Therefore, guidance and education are needed in order to improve overall referrals, in the hope that they lead to an increase in donation.

55 The Case for A Best-Interest Meeting Decision Toolkit to Guide Preferred Place of Care and Interventions For Community Dwelling Older People Who Lack Mental Capacity

Introduction The Hammersmith and Fulham Community Independence Service (CIS), runs a “virtual ward” to allow people to remain independent in their own homes where possible. Place-of-care decisions made for community-dwelling older people who lack capacity are formulated in a best-interest meeting (BIM), involving health and social care professionals, family and carers. Often BIMs centre around beliefs and wishes of the patient or family but fail to objectively evaluate risks and mitigants of staying at home versus placement. We observed that BIMs were not being held on a consistent basis, and when held lacked the necessary structure for an effective decision-making forum. Even experienced professionals find it difficult to chair BIMs because of the complexity of the decision-making process. Not all involved parties may be represented. We found BIMs more likely to be held, attended and effective when structured to identify the major relevant considerations. Method The CIS “virtual ward” team developed a BIM decision toolkit, comprising: a check-list of risks and mitigants for home versus care home; a list of required attendees; who should document and chair the meeting; and who should action the interventions raised. From 6th January to 25th October 2019, BIMs were held for 48 patients on the CIS “virtual ward”. Results 234 interventions were carried out following toolkit-led BIMs. 1 month after BIM, 34 of 44 patients’ wishes (77%) were honoured (3 not recorded, 1 died). 3 months after BIM, 23 of 31 patients’ wishes (74%) were honoured (15 not recorded, 2 died). Case studies are included in the presentation. Conclusion We developed a toolkit to support decision-making for older community dwellers who lack capacity regarding their place of care. The toolkit assures standardisation and structure to minimise bias, whilst recognising personal beliefs and preferences. It enables any member of the multidisciplinary team to hold and lead a BIM, to reliably identify appropriate interventions and care plans which may not otherwise have been implemented or recognised. The majority of the patients reviewed using the BIM toolkit remained in their preferred place of care well after the team’s interventions. Further evaluation is required to compare CIS BIM toolkit-based outcomes against other community services which do not use this toolkit, and appraise the toolkit in a hospital setting.

Advance Care Planning and End-Of-Life Communications: Practical Tips for Oncology Advanced Practitioners

Advance care planning discussions ensure patients’ values and goals of care, including the freedom to choose their place of death, are respected. The benefits of advance care planning and early end-of-life care discussions are often delayed, as these discussions are not initiated early in patients’ cancer trajectories. As a result, patients’ wishes often remain unknown until the last phase of their life. Evidence suggests that many patients inappropriately receive aggressive treatment near the end of life, which leads to higher resource utilization, decreased quality of life, and increased cost. The purpose of this article is to provide practical tips to the oncology advanced practitioner on initiating advance care planning and end-of-life care discussions with patients and their families or caregivers.

Planning and orthodontic preparation for maxillary incisors reshaping

ABSTRACT Introduction: Having a beautiful smile is the main desire of people seeking dental treatment. To achieve this goal, many variables must be considered. These include tooth alignment, color, shape and size, besides their harmonious relationship with the lips and face. An individualized diagnosis is essential to achieve the best result. Within this context, facial analysis and the characteristics of shape, size and position of maxillary incisors play a key role. Methods: This paper describes clinical situations in which interdisciplinary treatment was performed to achieve esthetic results in a conservative manner and ensuring greater stability. In most cases requiring reshaping of maxillary incisors for esthetic reasons, prior orthodontic movement is essential. The main focus of this paper is to discuss the many variables involved in these situations. Results and Conclusion: The results of treatments described in this paper were obtained by means of a multidisciplinary approach, involving Orthodontics and Esthetic Dentistry, acting in harmony and recognizing their possibilities and limitations, in order to offer patients the best esthetic solution for their smile. The best treatment option is not always the easiest or fastest. The dentist, as a health professional, should consider the patients’ wishes but also perform treatments with minimal intervention, and the best and most predictable esthetic result, also focusing on function and health.

Ethical implications of coronavirus disease 2019 for ENT surgeons – a discussion

BackgroundCoronavirus disease 2019 has had a dramatic effect on society and healthcare. Preparations were based on predictive models of need, and with uncertainty regarding risk to patients and healthcare workers. Actions taken had both immediate and ongoing ethical impacts. The most obvious of these was the shift in duty of care from individual patients to public health centred ethics and decision making.RelevanceIn ENT, many procedures are aerosol-generating and so our capacity to provide care will remain significantly reduced. This reduction in capacity may result in difficult choices for patients when optimal care may be replaced by acceptable care. ENT surgeons may also be faced with unaccustomed paternalism when capacity prevents them from acting within the patients’ wishes.ConclusionDespite these challenges, the novel uses of technology highlight the desire to preserve and enhance the autonomy of our patients.

Mother nature and oral health

Your patients' wishes for a brighter, more eco-friendly future, might just lie in your hands