Parental needs and nursing response following SUFE Surgery: An interpretive descriptive study

<p><b>The parental experience of caring for a child following the unexpected admission and surgery for a significant hip injury has largely been unexplored in the New Zealand (NZ) context. Slipped Upper Femoral Epiphysis (SUFE) is one of the most common orthopaedic hip disorders prevalent amongst children between the ages of nine to fifteen years. In New Zealand, Māori and Pacific children are the most vulnerable population at risk of this hip condition. Existing literature focuses on the demographic and epidemiological studies, including surgical treatment and management of SUFE; however, there is a dearth of research concerning SUFE that focuses on parents’ experiences in the postoperative, discharge and rehabilitative phases of care and the nurses’ experience of caring for these children and their families.</b></p> <p>This qualitative study was undertaken at a large public hospital in New Zealand and interpretive descriptive methodology was utilised to examine the experiences of parents and nurses in caring for a child following invasive SUFE repair. As Māori and Pacific Island populations are highly represented in the SUFE statistics, most of the parents used in this study are from these socio-cultural backgrounds. Through transcribed semi-structured interviews with parents of five children who underwent SUFE repair, and five paediatric nurses caring for children and their families in the hospital ward, this study offers two perspectives of the journey for these parents following such an injury, from the child’s hospitalisation to caring for these children once they are home. Following thematic analysis, these perspectives are presented and contrasted revealing, insights of the parents’ ongoing need for support, information and planning for care and nurses’ efforts to meet these needs. Implications of nursing practice and parental education include the need for improved information sharing and delivery to aid parents understanding of the SUFE condition and effective management of care during hospitalisation and at home following discharge. Recommendations are made to improve the parental experience to support their child’s recovery following SUFE surgery.</p> <p>Key Words:SUFE, Parents and caregivers, Māori and Pacific populations, Nurses</p>

Parental needs and nursing response following SUFE Surgery: An interpretive descriptive study

<p><b>The parental experience of caring for a child following the unexpected admission and surgery for a significant hip injury has largely been unexplored in the New Zealand (NZ) context. Slipped Upper Femoral Epiphysis (SUFE) is one of the most common orthopaedic hip disorders prevalent amongst children between the ages of nine to fifteen years. In New Zealand, Māori and Pacific children are the most vulnerable population at risk of this hip condition. Existing literature focuses on the demographic and epidemiological studies, including surgical treatment and management of SUFE; however, there is a dearth of research concerning SUFE that focuses on parents’ experiences in the postoperative, discharge and rehabilitative phases of care and the nurses’ experience of caring for these children and their families.</b></p> <p>This qualitative study was undertaken at a large public hospital in New Zealand and interpretive descriptive methodology was utilised to examine the experiences of parents and nurses in caring for a child following invasive SUFE repair. As Māori and Pacific Island populations are highly represented in the SUFE statistics, most of the parents used in this study are from these socio-cultural backgrounds. Through transcribed semi-structured interviews with parents of five children who underwent SUFE repair, and five paediatric nurses caring for children and their families in the hospital ward, this study offers two perspectives of the journey for these parents following such an injury, from the child’s hospitalisation to caring for these children once they are home. Following thematic analysis, these perspectives are presented and contrasted revealing, insights of the parents’ ongoing need for support, information and planning for care and nurses’ efforts to meet these needs. Implications of nursing practice and parental education include the need for improved information sharing and delivery to aid parents understanding of the SUFE condition and effective management of care during hospitalisation and at home following discharge. Recommendations are made to improve the parental experience to support their child’s recovery following SUFE surgery.</p> <p>Key Words:SUFE, Parents and caregivers, Māori and Pacific populations, Nurses</p>

Risiko KDRT terhadap Anak sebagai Dampak Ketegangan Sosial Akibat Pandemi Covid-19

Various drastic and sudden changes caused by the COVID-19 pandemic have an impact on economic and social implications that affect various aspects of life, including life in the family. Increased social tensions arise in line with economic imbalances and self-isolation as a result of the pandemic, so that it has the potential to create ideal conditions involving Domestic Violence (KDRT) against children by parents. This study sought to monitor this potential by using a survey-based study to determine the relationship between parental experience (n=150) with increased social tension and risky behavior patterns towards children. The results obtained will be analyzed contextually with existing research, namely regarding the factors of Domestic Violence (KDRT) against children. The results obtained indicate a relationship between social tension and risky behavior of parents towards their children. Keywords: Pandemic, domestic violence, social tension Abstract: Berbagai perubahan drastis dan mendadak yang diakibatkan oleh pandemi COVID-19 berdampak pada implikasi ekonomi dan sosial yang mempengaruhi beragam aspek kehidupan, termasuk kehidupan dalam keluarga. Peningkatan ketegangan sosial muncul sejalan dengan adanya ketidakseimbangan ekonomi dan isolasi diri yang merupakan dampak dari pandemi, sehingga berpotensi untuk menciptakan kondisi ideal yang melibatkan Kekerasan Dalam Rumah Tangga (KDRT) terhadap anak oleh orang tua. Penelitian ini berusaha mengawasi potensi terjadinya hal tersebut dengan menggunakan studi berbasis survei untuk menentukan hubungan antara pengalaman orang tua (n=150) dengan peningkatan ketegangan sosial dan pola perilaku beresiko terhadap anak. Hasil yang didapatkan akan dianalisis secara kontekstual dengan penelitian yang telah ada, yaitu mengenai faktor-faktor Kekerasan Dalam Rumah Tangga (KDRT) terhadap anak. Hasil temuan yang didapatkan menunjukkan adanya hubungan antara ketegangan sosial dan perilaku berisiko orang tua terhadap anak. Kata Kunci: Pandemi, KDRT, ketegangan sosial

Parental experiences of psychological interventions for recurrent abdominal pain in childhood

Active components of psychological intervention for RAP remain unclear. This study involved completing interviews about parental experience of psychological intervention for RAP to ascertain how and why psychological intervention can be effective. Difficulty making sense of RAP and barriers to treatment were identified as struggles. Acceptance and containment were key overlapping mechanisms, which allowed families to develop a changed relationship with the pain and manage the impact of pain. To further develop interventions, the role of containment should be considered and acceptance-based interventions explored, given the growing evidence base in this area. Practical implications of this research are also discussed.

Parental experience of child death in the paediatric intensive care unit: a scoping review

ObjectiveThe purpose of this scoping review was to identify the experiences of parents who endured the death of their child in the paediatric intensive care unit (PICU) and what end-of-life care they perceived as supportive.DesignScoping review using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews guidance.Data sourcesFour databases, PubMed, Embase, CINAHL and PsycINFO, were searched for studies published until 24 August 2021, with no limitation on the year of publication.Eligibility criteriaWe identified qualitative studies published in English that focused on parents’ experiences during the death of their child in the PICU and excluded studies conducted in non-PICU settings, such as neonatal intensive care units and emergency departments.Data extraction and synthesisA five-step methodological approach (‘identifying the research question’, ‘searching for relevant studies’, ‘selecting studies’, ‘charting the data’ and ‘collating, summarising and reporting the results’) developed by Arksey and O’Malley was used to chart the purpose and methods of the study and the characteristics of the study participants. The extracted parental experiences were inductively summarised.ResultsOf 435 articles, 14 studies conducted in seven countries were included in the final review. The background regarding the child’s condition varied, including whether it was acute or chronic, and the length of stay in the PICU. Parents needed effective interaction with healthcare providers to fulfil their parental role and be involved in critical decision-making regarding their child’s treatment in a rapidly evolving situation. The themes inductively extracted were ‘parental suffering’, ‘roles and responsibilities of parents’, ‘information sharing’, and ‘support of parents by healthcare providers’.ConclusionsAlthough parent–healthcare provider interactions influence parents’ experiences with their dying children in the PICU, by affecting parental roles and level of involvement, there is a lack of research focusing on improving these interactions.

Parental caringscapes – the analyses of mothering practices in local community contexts

During the last two decades of Family Sociology there is a growing interest toward understanding the complex phenomenon of parental experience. According to the changing perspective of the field, parental experience is embracing three different but interrelated aspects: the parenthood as a social institution, practices and agency of parenting and the intimate relationship between a particular child and her/his parent. This approach reflects to the changing social interpretations of parenthood and the growing emphasize on the “good parenting” in lay and professional discourses, and diversification of institutional and informal contexts of parental care. As a part of this process the status that parents occupy in different social fields shows diversity as well, and sometimes parents experience distance between the value of their parental status in varying contexts. Becoming a new mother can lead to central position in the family, while on the societal level it may goes together with a kind of isolation and the feeling of periphery. This gap has an effect on evaluation of parental competencies, autonomy and parental interpretations of care. In our study implementing a human geographic approach we suggest that parental care and the relating experiences cannot be separated from the wider and narrower space, place and time where the actual caring work is occurring.

99 Impact of COVID-19 pandemic on children with medical complexity: Parental perspective about the role of a Complex Care program

Primary Subject area Complex Care Background The COVID-19 pandemic led to major and rapid organizational and structural healthcare changes including a switch from ambulatory services towards telemedicine and decreased access to home services. Children with medical complexity (CMC) require many medical services and are generally prone to infectious complications. Little is known about the impact of the pandemic on families of CMC. Understanding how CMC families experience the COVID-19 pandemic is essential to tailor healthcare services to answer their needs more effectively. Objectives We explored parental experience of CMC during the COVID-19 pandemic, and how the complex care program (CCP) answers their new needs. Design/Methods This qualitative study was conducted between July 2020 and January 2021 in a tertiary care pediatric university hospital centre. Semi-structured interviews were done with parents of CMC, admitted in the CCP at least 1 year prior to the beginning of the pandemic. The interview guide was co-constructed by physicians and nurses from the CCP. Interviews were transcribed verbatim and analyzed using NVivo. Data were organized into codes and categories. Thematic content analysis was performed by grouping categories and highlighting emerging themes. Results Eleven families (14 parents – 4 fathers, including 3 couples) were interviewed. The first wave of the pandemic seemed to have caused important uncertainty and anxiety amongst parents of CMC. Almost all the parents reported cancelling numerous appointments in order to avoid coming to the hospital at all costs. Some parents, worrying specifically about the fragility of their child, stopped working and stayed home to reduce transmission risks. Fear of facing shortages in medications, nutritional supplements and medical equipment for home care was frequently expressed. They did not express worries about the de-confinement periods. The support provided by the CCP’s staff was greatly appreciated, namely active problem-solving via phone calls, videoconferences, emails and pictures, leading to fewer hospital visits and less need to seek emergency care. Some reported that more general communication from the CCP (e.g., a weekly information email), would have helped to interpret the overwhelming amount of information from the media. Parents expressed a strong desire to maintain telemedicine services after the pandemic. Conclusion The COVID-19 pandemic brought additional worries to parents of CMC enrolled in CCPs, including fear of shortages and virus transmission. Direct communication with the CCP and remote problem-solving were greatly appreciated by families. Improvement to follow-up include finding ways to help interpreting data from the media.