Guiding Assistive-Technology Adaptations Through Intelligent Stream Mining of Patient Data

Users with cognitive impairments use assistive technology as part of a treatment plan. As the AT interface is manipulated, data stream mining techniques are used to monitor user goals. In this context, data mining aids caregivers in tracking user behaviors as they attempt to achieve their goals. Divergences over consecutive stream-mined models identify potential changes in user goal attainment, as the user learns his or her personalized emailing system. When a data-mined model diverges significantly from recent models, the user's behavior is flagged as a significant behavioral change. The specific changes in behavior are then characterized by analyzing model divergence as well as the underlying data. This chapter describes how divergence analysis of decision-tree and hidden Markov models can aid recognition and diagnoses of behavioral changes in support of AT adaptation, in a case study of cognitive AT for emailing. The technique may be more widely applicable to other behavior monitoring contexts.

PELATIHAN CAREGIVER ODHA DI JAKARTA DENGAN MEDIA AUDIOVISUAL

Edukasi bagi caregiver ODHA tidak selalu diberikan dengan lengkap mengingat kurangnya tenaga kesehatan yang mendampingi dan belum terstandarnya metode pendampingan caregiver. Tujuan kegiatan adalah meningkatkan pengetahuan caregiver pasien HIV/AIDS melalui film edukasi. Sasaran kegiatan adalah pelaku rawat pasien HIV AIDS di Jakarta sebanyak 10 orang. Metode kegiatan yang digunakan berupa pemberian edukasi bagi caregiver mengenai urgensi pengobatan dan motivasi kepatuhan berobat serta testimoni dari role model. Sebanyak 10 orang caregiver terlibat dalam pelatihan. Sebagian besarnya laki-laki (90%), berusia 35-35 tahun (90%), dan berpendidikan menengah (60%). Dari pelatihan didapatkan rata-rata pengetahuan meningkat dari cukup menjadi baik. Evaluasi terhadap video berdurasi 6 menit yang dibuat adalah diperlukannya animasi yang lebih banyak dan perlu menampilkan pasangan ODHA di sesi testimoni role model. Diharapkan pengabdian masyarakat ini dapat menjadi solusi bagi tenaga kesehatan dalam menyampaikan pendidikan kesehatan untuk pelaku rawat HIV AIDS Kata kunci: media, edukasi, caregiver, ODHA. Abstract Education for HIV caregivers is not always provided in full considering the lack of health workers who assist and have not yet standardized caregiver assistance methods. The purpose of the activity is to improve caregiver knowledge of HIV / AIDS patients through educational films. The target of the activity was 10 people caring for HIV AIDS patients in Jakarta. The method of activity used was in the form of providing education for caregivers regarding the urgency of treatment and motivation for treatment compliance and testimony of role models. A total of 10 caregivers were involved in the training. Most are male (90%), aged 35-35 years (90%), and middleclass education (60%). From the training, the average knowledge increased from fair to good. The evaluation of the 6-minute video that was made was the need for more animations and needed to present HIV partners in a testimonial role model session. It is hoped that this community service can be a solution for health workers in delivering health education for HIV/AIDS caregivers Keywords: media, education, caregiver, HIV.

Caring for terminal AIDS patients: The experiences of caregivers in a palliative care institution

This research focused on the lived experiences of caregivers working with AIDS patients, particularly patients who die from this disease whilst resident in a formal institution. A qualitative, exploratory, descriptive, and contextual research design with a phenomenological approach to inquiry was utilised. Thirteen unstructured interviews, which were audio-taped, were conducted with caregivers working full-time in a formal institution caring for patients who are dying from AIDS. The transcribed interviews were analysed using Tesch’s method of descriptive analysis (in Creswell 1994:115).One central theme emerged, namely that in their daily duty (at their place of work), caregivers experienced various challenges as a result of having to deal with the death of their patients suffering from AIDS, and five sub-themes were formulated from further analysis. The five subthemes were:• Caregivers experienced emotional challenges in caring for patients dying of AIDS;• Caregivers experienced a difference in death and dying of adults as apposed to children;• Caregivers experienced the rationalisation of death and dying differently;• Caregivers experienced that faith in God give them strength to cope with death and dying;• Caregivers experienced caring for patients as fulfilling and meaningful to them despite the sadness of death and dying.The participants face the death of their patients daily, from a disease that causes untold suffering to the patients, family members and to the caregivers themselves, who wish they could prevent the anguish, the pain and the inability of the medical profession to do more than they are at present towards curing this disease. They described their emotional experiences, which included the various challenges that they face as a result of having to deal with the death and dying of their patients suffering from AIDS. The information shared by these participants formed the foundation of the broad guidelines that were developed in order to provide support for such caregivers.OpsommingDie fokus van hierdie navorsing was op die beleefde ervaringe van die versorgers wat met VIGS pasiënte werk, veral pasiënte wat sterf aan die siekte terwyl hulle in 'n formele inrigting is. 'n Kwalitatiewe, eksploratiewe, beskrywende en kontektuele navorsingsontwerp met 'n fenomenologiese benadering was gebruik. Dertien ongestruktueërde onderhoude, wat op 'n audioband opgeneem was is gehou met versorgers wat voltyds in 'n formele inrigting sorg vir pasiënte wat aan VIGS sterf werk. Tesch se metode van beskrywende analise was gebruik om die transkribeerde onderhoude te analiseer (in Cresswell 1994:115).Een sentrale tema het na vore gekom, naamlik dat versorgers tydens die uitvoering van hulle daaglikse pligte (in die werk) 'n verskeidenheid uitdagings ondervind het as gevolg van hul pasiënte wat sterf van VIGS en vyf sub-temas is geformuleer deur verdure analise. Hierdie vyf sub-temas was:• Versorgers ervaar emosionele uitdagings tydings die versorging van pasiënte wat van VIGS sterf;• Versorgers ervaar n verskil in die dood en sterfte van volwassesnes teenoor die van kinders;• Versorgers ervaar die rasionaliseering van dood en sterfte verskillend;• Versorgers ervaar dat vertroue in God hulle krag gee om die dood en sterfte beter te hanteer;• Versorgers ervaar dat die versorging van pasiënte wat sterf of sterwend is vervullend is ten spyte van die hartseer van dood en sterfte.Die deelnemers ervaar die dood van hul pasiënte daagliks van 'n siekte wat ongetelde lyding vir hulself, die pasiënt en hul familie veroorsaak. Die versorgers wens dat hulle kon die angs en die pyn voorkom, sowel as die ombekwaamheid van die mediese beroep om huidiglik meer te kan doen om die siekte te genees. Hulle beskryf hul emosionele ervaringe wat die verskillende uitdagings wat hul ervaar as gevolg van hul betrokkenheid by die dood en afsterwe van hul pasiënte aan VIGS. Die inligting wat deur hierdie deelnemers gedeel word, vorm die basis van die ontwikkeling van breë riglyne om die versorgers te ondersteun.