family autonomy
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Author(s):  
Michelle Grunauer ◽  
Jenny Hynson

Care planning is not merely another task on the checklist for providing children’s palliative care (CPC), but rather can be regarded as the foundation for accomplishing nearly all other CPC goals. Based on continuous communication and holistic assessment, care planning is a means to facilitating patient-family quality of life, not an end in and of itself. This CPC task is important because it enables practitioners to celebrate patient-family autonomy, improve the delivery of care according to their wishes and values, and avoid uncertainty. Care planning is also foundational to other activities which are pivotal to quality of life, including communication, acceptance, and trust.


2021 ◽  
pp. 1-18
Author(s):  
Élodie C. Audet ◽  
Shelby L. Levine ◽  
Anne C. Holding ◽  
Theodore A. Powers ◽  
Richard Koestner

2021 ◽  
pp. 146-169
Author(s):  
Rebecca C. Johnson

This chapter discusses Jules Verne's works. The thematization of the world, what literary scholars currently call “worlding,” was precisely the work that Jules Verne's novels performed. As Verne himself described the fifty-four novels that constitute his Voyages Extraordinaires, their very task was “to portray the entire earth, the entire world, under the form of the novel,” using what his publisher, Pierre-Jules Hetzel, described as the “knowledge... amassed by modern science.” Translations of Verne's fiction made the world available to their readers as a single discursive unit, during a decade in which the material conditions of globality were not only economic and physical precarity but increased government involvement in bodily and family autonomy and movement, as well as direct colonial rule. Verne based his narrative on newspaper accounts of transportation innovations, updating each new edition as new information and routes became available. Arabic translations of Verne's novels are not simply a result of the globalization of the novel but are ambivalent participants in that process. These Arabic versions helped establish his fiction as a worldwide phenomenon. By his death in 1905, Verne's novels had been published in at least thirty-six languages, including five Middle Eastern ones.


2020 ◽  
Vol 2 (1) ◽  
pp. 11-18
Author(s):  
Ulfa Suryani ◽  
Rizka Ausrianti ◽  
Yola Yolanda ◽  
Asriwan Guci

Hasil riset kesehatan 2018, menyatakan 15 persen dari populasi penduduk Indonesia terdeteksi mengalami gangguan jiwa atau sekitar 34.350.000 jiwa dan persentase itu juga berlaku di semua daerah dan mengindentifikasi prevelensi masalah kesehatan jiwa sebesar 12.06% dengan kata lain dari 100 penduduk Indonesia, 12 sampai 13 diantaranya mengalami gangguan jiwa ringan sampai dengan berat. Kegiatan ini bertujuan Tujuan dari kegiatan ini adalah resolusi (perubahan) permasalahan dengan segera, meningkatkan keterampilan koping keluarga, meningkatkan kemampuan keluarga menggunakan sumber kopingnya, meningkatkan otonomi keluarga dalam keputusan tentang pengobatan, meningkatkan kemampuan keluarga mencapai kemandirian seoptimal mungkin, serta meningkatkan kemampuan mengurangi distres subyektif dan respon koping yang maladaptif. Kata kunci: keluarga; gangguan jiwa; terapi supportif GIVING SUPPORTIVE THERAPY TO FAMILIES WHO HAVE A FAMILY MEMBER WITH SOUL DISORDERS IN THE WORKING AREAS OF THE NANGGALO COMMUNITY HEALTH CENTER IN PADANG CITY ABSTRACT The results of 2018 health research stated that 15 percent of Indonesia's population was detected as having a mental disorder or around 34,350,000 people and that percentage also applies in all regions and identified the prevalence of mental health problems by 12.06% in other words from 100 Indonesians, 12 to 13 including experiencing mild to severe mental disorders. This activity aims The objectives of this activity are the resolution (change) of problems immediately, improve family coping skills, improve the ability of families to use their coping resources, increase family autonomy in decisions about treatment, increase the family's ability to achieve independence as optimal as possible, and increase the ability to reduce subjective distress and maladaptive coping responses Keywords: family; mental disorders; supportive therapy


2020 ◽  
Vol 73 (2) ◽  
Author(s):  
Maria Angélica de Almeida Peres ◽  
Lygia Paim ◽  
Marcos Antonio Gomes Brandão

ABSTRACT Objectives: to reflect on professional, user and family autonomy as a centrality in Best Practices in nursing in Brazil. Methods: this is a theoretical-reflective study. Results: from a retrospective look at the creation and evolution of nursing autonomy in its knowledge and care practices, it exposes the use of autonomy in nursing care and foster the participation of the user and his family as the center of Best Practices in nursing. Final considerations: the text suggests the institutional commitment of health services to the formal postgraduate education of nurses and the prospect of more autonomy and quality for the expression of Best Practices in nursing.


Deliberate examination of ladies' progress in the executives is moderately new. It started in North America, fundamentally in the USA, during the 1970s, in Western Europe in the mid 1980s and in Asia towards the mid-1980s to look at the role conflict face by ladies business people. Aim of this study is to decide the helpers and difficulties come before ladies business visionaries in IT sector. There are numerous components which urge ladies to enter in this field uniquely to gain cash, money related help to family, autonomy and so forth yet there are numerous obstacles before them like continuing in market, capital, sex biasness, and job struggle. Ladies face more job struggle then men business visionaries as social desire are more from them. Life partner's help is an incredible quality for them. Organizing capital is major ordeal for another business person. Furthermore, to maintain a business she should have a decent systems administration. Next to bunches of requirements on the off chance that she get support from her family and particularly from her life partner it will assist her a ton with maintaining her work-life-balance


2019 ◽  
Vol 51 (2) ◽  
pp. 595-601
Author(s):  
L.A.C. Sardinha ◽  
M.V.O. Athayde ◽  
S.L.L. Rodrigues ◽  
M.R.P.D. Cunha ◽  
V.P. Dantas Filho ◽  
...  

2019 ◽  
Vol 10 (1) ◽  
Author(s):  
Ednalva Alves Heliodoro ◽  
Darci De Oliveira Santa Rosa

Objetivo: analisar os aspectos éticos e legais da morte encefálica conhecidos por estudantes de enfermagem. Metodologia: pesquisa qualitativa com vinte estudantes de enfermagem de uma instituição superior de ensino, no período de junho a julho 2014, por entrevistas gravadas, submetida a análise do discurso do Sujeito Coletivo. Resultados: os conhecimentos adquiridos pelos estudantes de enfermagem envolvem seis dimensões expressa nas ideias centrais: Ações para identificação de possíveis doadores em morte encefálica; Confirmação de morte encefálica e seu registro; Aspectos éticos e legais da comunicação à família sobre morte encefálica; Tomada de decisão da família sobre a doação ou não de órgãos; Assinatura do Termo de consentimento livre e esclarecido pela família; Garantia da integridade do corpo. Conclusão: os estudantes de enfermagem conhecem as normativas que regem a doação de órgãos, valorizam a autonomia da família, necessários para a tomada de decisão frente a ética do cuidado.Descritores: Morte encefálica, Estudantes de enfermagem, Ética, Legislação.ETHICAL AND LEGAL ASPECTS OF ENCEPHALIC DEATH KNOWN BY NURSING STUDENTSObjective: to analyze the ethical and legal aspects of brain death known to nursing students. Methodology: qualitative research with twenty nursing students from a higher education institution, from June to July 2014, by recorded interviews, submitted to the analysis of the Discourse of the Collective Subject. Results: the knowledge acquired by nursing students involves six dimensions expressed in the central ideas: Actions to identify possible donors in brain death; Confirmation of encephalic death and its registration; Ethical and legal aspects of communication to the family about brain death; Family decision-making on organ donation or non-donation; Signature of the informed consent form by the family; Guarantee of the integrity of the body. Conclusion: nursing students know the rules governing organ donation, value family autonomy, necessary for decision-making regarding the ethics of care.Descriptors: Brain death, Nursing students, Ethics, Legislation.ASPECTOS ÉTICOS Y LEGALES DE LA MUERTE ENCEFÁLICA CONOCIDOS POR ESTUDIANTES DE ENFERMERÍAObjetivo: analizar los aspectos éticos y legales de la muerte encefálica conocidos por estudiantes de enfermería. Metodología: investigación cualitativa con veinte estudiantes de enfermería de una institución superior de enseñanza, en el período de junio a julio de 2014, por entrevistas grabadas, sometida a análisis del discurso del Sujeto Colectivo. Resultados: los conocimientos adquiridos por los estudiantes de enfermería involucra seis dimensiones expresadas en las ideas centrales: Acciones para la identificación de posibles donantes en muerte encefálica; Confirmación de muerte encefálica y su registro; Aspectos éticos y legales de la comunicación a la familia sobre muerte encefálica; Toma de decisión de la familia sobre la donación o no de órganos; Firma del Término de consentimiento libre y esclarecido por la familia; Garantía de la integridad del cuerpo. Conclusión: los estudiantes de enfermería conocen las normativas que rigen la donación de órganos, valoran la autonomía de la familia, necesarios para la toma de decisión frente a la ética del cuidado.Descriptores: Muerte encefálica, Estudiantes de enfermería, Ética, Legislación.


Author(s):  
Lucinda Ferguson

This chapter’s argument stems from the premise that legal language should speak for itself. The ‘paramountcy’ principle suggests the prioritisation of children’s interests, and ‘children’s rights’ suggests some aspect of distinctiveness to children’s interests. But there is academic consensus in respect of both that children’s interests cannot and should not be prioritised over those of others. This chapter examines the justification for the contrary perspective, and for treating children as a prioritised ‘special case’ in all legal decisions affecting them. Four key counter-arguments frame the discussion. First, the ‘social construct’ objection: as a social construct, childhood cannot sustain the prioritisation of children’s interests over those of others. Second, the ‘vulnerability’ objection: children’s vulnerability is either not unique or suggests dependency or interdependency, not prioritisation. Third, the ‘family autonomy’ objection: parents’ rights and the family unit justify deference of children’s interests. Fourth, the ‘equality’ objection: equal moral consideration makes prioritisation unjustifiable.


Legal Studies ◽  
2018 ◽  
Vol 38 (1) ◽  
pp. 164-186
Author(s):  
Lucy-Ann Buckley

AbstractUnlike England and Wales, Ireland has not yet moved from the traditional common law rejection of prenuptial agreements. Nevertheless, similar policy concerns continue to be debated in both jurisdictions, particularly regarding the balance between autonomy and fairness concerns, and gender equity. In 2007, an Irish ministerial Study Group recommended limited recognition of prenuptial agreements, foreshadowing similar proposals by the Law Commission for England and Wales in 2014. However, the Irish recommendations were never implemented, despite sustained lobbying. This paper draws on relational theory to scrutinise the Study Group's proposals, identifying its core assumptions and their implications. The paper contends that Irish courts dealing with spousal agreements have tacitly accepted liberal conceptualisations of autonomy, which may lead to injustice. Furthermore, the Study Group's recommendations have been overtaken by events. Recent decisions on spousal agreements emphasise respect for party autonomy, without interrogating what this means. This could be problematic if applied to prenuptial agreements. Accordingly, the paper suggests modifications to the Study Group's proposals, to address relational concerns. In this regard, the paper speaks to the broader debate on family autonomy, and draws on comparative perspectives, including the recommendations of the Law Commission for England and Wales, and the Canadian experience.


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