Young children with disabilities, marginalised and voiceless: A case of Eswatini

Significantly, many people with disabilities are victims of classification over generalizations with the assumption that disability is equal to inability. This study focused on challenges faced by children with disabilities in accessing Early Childhood Care and Development (ECCD) services in Manzini Region of Eswatini. Anchored on the Critical Disability Theory which views disability as a cultural, historical, relative, social, and political phenomenon, the study assessed and analysed the disability issues on the accessibility to ECCD services for young children. Through interviews, data was collected from10 ECCD centres in Manzini which were purposively selected. Ten ECCD teachers, 5 principals, and 5 parents/caregivers participated in the study. The results revealed that failure by these children to access ECCD services in the community impacts negatively on their holistic development. Sadly, young children living with a disability in Eswatini face significant challenges, one of the reasons, just like most of our African countries, being that those who have some form of disability were bewitched or inflicted by some bad spirits. ECCD specialist educators highlighted the need for comprehensive training services that will help them cater to children with special needs. The study recommended for extensive awareness programmes to sensitize communities on the rights of the child, regardless of body, mental or sensory condition.

“Intertwined Lives”

Sibling relationships are complex and unique, often spanning a range of deep emotions. The experiences of children with disabilities and their siblings are arguably seldom documented, particularly in the Global South. The aim of this chapter was to uncover the narratives of young children with disabilities and their siblings in Sri Lanka. Ten dyads of children with disabilities and their siblings and one quartet of siblings were included in this study. Opportunities were offered to the participants to engage in conversation aided by kinetic family drawings. An interview guide was used to support this process. The participant data were analyzed through the lens of the “lived experience” of family dynamics in the tradition of interpretative phenomenological analysis. This chapter will discuss the two complex broad themes of a surrogate parenting role and normative sibling relationships, which at times converge and at times diverge.

Impact of Challenging Behavior on Marginalized and Minoritized Caregivers of Children With Disabilities

Challenging behavior (CB) is a common occurrence in early childhood and frequently occurs in young children with disabilities. CB is also culturally perceived and includes differences in how caregivers understand and define the topography of CB. Despite the cultural interpretation, CB is known to impact the child and their family but there has been little exploration of what marginalized caregivers perceive as the impact of the CB that their young children with disabilities exhibit. We used semi-structured interviews to explore the perceptions of 24 caregivers, who identified as Black, Mexican American, and White, about the impact of their child’s CB. Caregivers shared how the CB impacted themselves, their families, their child, and others. Although much of the impact was similar among caregivers, we discuss nuanced differences across ethnic groups.

Inclusive Early Childhood Education for Children With and Without Autism: Progress, Barriers, and Future Directions

University-affiliated lab and model schools play an important role in creating educational innovations in inclusive early childhood education (ECE) for young children with Autism Spectrum Disorder (ASD). In the United States, access to inclusive high-quality ECE programs for young children with disabilities has been required by law for over 40 years, has been recommended by leading professional organizations, and has been emphasized in federal public policy initiatives. Yet, improvement in the rates of young children with disabilities experiencing inclusion has been limited. This review article consists of three parts. First, we identify and describe four barriers to wide-scale implementation of inclusive ECE programs for children with ASD in the US. These barriers include (1) the fragmented nature of the ECE system in the United States, (2) the age at which ASD is typically first diagnosed in the community, (3) the diverse presentation/support needs of children with ASD, and (4) the thoughts and feelings of parents of children without disability about inclusion. Second, we used a snowball sampling approach to identify nine leading university-affiliated, inclusive lab and model schools for young children with ASD. By describing these programs, we highlight similarities and differences between programs, and capture the unique ways in which these programs adapt to local conditions, resources, and barriers (e.g., federal and state regulations, funding sources, community resources, institutional structures and priorities, professional orientation and training, access to families and staff). Finally, we propose a roadmap for researchers focused on the development, evaluation, and implementation of community-viable inclusive ECE programs in ASD. This roadmap leverages synergies between inclusive university-affiliated lab and model preschools in ASD, and proposes the formation of a research network that creates an infrastructure for cross-program collaboration.

MODELING OF THE SYSTEM OF FAMILY PREPARATION FOR PSYCHOLOGICAL AND PEDAGOGICAL CORRECTIONAL SUPPORT OF AN EARLY-AGE CHILD WITH DISABILITIES

The article reveals the need to prepare a family raising a child with disabilities for psychological and pedagogical correctional work. A model of a personality-oriented system of preparing parents for psychological and pedagogical correctional support for young children with disabilities is provided. The model is built taking into account the individual characteristics of parents, such as social status, psychological state, type of motivation to acquire knowledge in the field of upcoming activities. The model of the system of preparing parents to support a child with disabilities is based on the structural and content components included in it, which ensure a high level of target orientation of the system for the development of parents ' stable readiness and ability for new activities. The article assumes that the proposed system of training parents will ensure an increase in the quality of psychological and pedagogical correctional support for young children with disabilities.

Remote Delivery of Services for Young Children With Disabilities During the Early Stages of the COVID-19 Pandemic in the United States

This study used a nationally distributed survey to explore how classroom-based early childhood personnel delivered remote services to young children with disabilities and their families during the early months of the U.S. response to the COVID-19 pandemic. A concurrent equal status fully mixed-method approach was used to analyze 221 participants’ responses to closed- and open-ended survey questions. Findings indicated that children with disabilities received modified special education services during school closures; most comments noted that early childhood personnel shifted to provide remote coaching to families. Other comments mentioned one-on-one services and accommodations for remote learning. Personnel described some benefits of remote services such as improved partnerships with families. Top reported challenges included children not receiving the same quality of services and high levels of educator stress. These and other study findings are discussed regarding the implications of COVID-19 for providing services to young children with disabilities and their families.