scholarly journals A Multi-Institutional Collaborative To Assess the Knowledge and Skills of Medicine-Pediatrics Residents in Health Care Transition

Cureus ◽  
2021 ◽  
Author(s):  
Colby Feeney ◽  
Emily Hotez ◽  
Lori Wan ◽  
Laura Bishop ◽  
Jason Timmerman ◽  
...  
Keyword(s):  
Health Care ◽  
Care Transition ◽  
Knowledge And Skills ◽  
Health Care Transition

scholarly journals Protocol of the BEST SIBS study: a qualitative case study to investigate the roles and responsibilities of siblings of youth with a neurodisability during health care transition

2021 ◽  
Vol 3 (1) ◽  
Author(s):  
Linda Nguyen ◽  
Susan M. Jack ◽  
Briano Di Rezze ◽  
Marjolijn Ketelaar ◽  
Jan Willem Gorter
Keyword(s):  
Health Care ◽  
Transition To Adulthood ◽  
Qualitative Case Study ◽  
Single Case ◽  
Advisory Council ◽  
Care Transition ◽  
Knowledge And Skills ◽  
Roles And Responsibilities ◽  
Health Care Transition

Abstract Background Children and youth with neurodisabilities may experience different challenges during their transition to adulthood, such as pursuing postsecondary education, finding employment, and navigating a new adult health care system. Families, including siblings, have an important role in the process for when youth with neurodisabilities are transitioning to adulthood. Siblings are in a unique position, where they can have different roles such as a friend, mentor, or caregiver. Siblings can offer various supports to their brother or sister with a neurodisability, but they require knowledge and skills for these different supporting roles. Currently, there are limited programs available for siblings to learn how to support their brother or sister with a neurodisability during transition. A first step to develop these sibling support programs is to understand the experiences of siblings of youth with a neurodisability. The purpose of this report is to describe a protocol of a qualitative case study aimed at examining the experiences of siblings including their roles and responsibilities to their brother or sister with a neurodisability during health care transition. Methods An exploratory single case study design will be used. An integrated knowledge translation approach to conducting this study will be used by partnering with the Sibling Youth Advisory Council comprised of siblings who have a brother or sister with a disability throughout all study phases. Participants will include siblings (ages 14–40 years old) with a brother or sister (ages 14–21 years old) with a neurodisability in Ontario, Canada. Semi-structured interviews will be conducted, that will be augmented by photo elicitation and drawings of family tree diagrams. Data will be analyzed using reflexive thematic analysis. Discussion Findings from this study will be shared with siblings, families, researchers, and the broader community. It is important to understand the roles and responsibilities that siblings are choosing to have to support their brother or sister with a neurodisability, and how these roles may change over time as their sibling is growing up and transitions to adulthood. Siblings may require knowledge and skills in these roles, and an understanding about siblings’ experiences in certain roles can help to inform the development of a resource to support siblings during health care transition.

Beliefs About Health Care Transition in Pediatric Thoracic Organ Transplant

2010 ◽  
Author(s):  
Cindy L. Buchanan ◽  
Debra Lefkowitz ◽  
Karen McCandless ◽  
Samuel Goldfarb
Keyword(s):  
Health Care ◽  
Organ Transplant ◽  
Care Transition ◽  
Health Care Transition ◽  
Thoracic Organ

Health-care Transition: A Vital Part of Care, Growth, and Change for Pediatric Patients

2021 ◽  
Vol 42 (12) ◽  
pp. 684-693
Author(s):  
Lynn F. Davidson ◽  
Maya H. Doyle
Keyword(s):  
Health Care ◽  
Transition Process ◽  
Smooth Transition ◽  
Pediatric Care ◽  
Care Transition ◽  
Care Needs ◽  
Adult Care ◽  
Health Care Transition ◽  
Care Gaps ◽  
Growth And Change

Preparing all youth for the transition to adult-oriented care, adulthood itself, and a greater responsibility for their own health and health-care is an essential part of pediatric care. This process, typically described as health-care transition, can occur throughout ongoing pediatric health-care to prepare patients for transfer to an adult clinician and integration into adult care. Gaps remain in practice and in outcomes research regarding health-care transition. This review discusses recent literature, details best practices, and recommends guidance and tools to assist pediatric clinicians in providing a smooth transition process and a successful transfer to adult care for youth with and without special health-care needs.

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