scholarly journals Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study

PeerJ ◽  
2020 ◽  
Vol 8 ◽  
pp. e10516
Author(s):  
Celia Martí-García ◽  
Manuel Fernández-Alcántara ◽  
Patricia Suárez López ◽  
Carolina Romero Ruiz ◽  
Rocío Muñoz Martín ◽  
...  
Keyword(s):  
Mixed Methods ◽  
End Of Life Care ◽  
Qualitative Interview ◽  
Mixed Methods Study ◽  
Life Care ◽  
Structured Interviews ◽  
Terminal Disease ◽  
Oncological Patients ◽  
At Home

The aim of this study was to analyze the perceptions and experiences of relatives of patients dying from a terminal disease with regard to the care they received during the dying process, considering the oncological or non-oncological nature of the terminal disease, and the place where care was provided (at home, emergency department, hospital room, or palliative care unit). For this purpose, we conducted a mixed-methods observational study in which two studies were triangulated, one qualitative using semi-structured interviews (n = 30) and the other quantitative, using questionnaires (n = 129). The results showed that the perception of relatives on the quality of care was highly positive in the quantitative evaluation but more critical and negative in the qualitative interview. Experience of the support received and palliative measures was more positive for patients attended in hospital in the case of oncological patients but more positive for those attended at home in the case of non-oncological patients.

scholarly journals Optimum hospice at home services for end-of-life care: protocol of a mixed-methods study employing realist evaluation

BMJ Open ◽  
2018 ◽  
Vol 8 (5) ◽  
pp. e021192 ◽  
Author(s):  
Claire Butler ◽  
Charlotte Brigden ◽  
Heather Gage ◽  
Peter Williams ◽  
Laura Holdsworth ◽  
...  
Keyword(s):  
Mixed Methods ◽  
End Of Life ◽  
End Of Life Care ◽  
Realist Evaluation ◽  
Mixed Methods Study ◽  
Life Care ◽  
Care Protocol ◽  
Hospice At Home ◽  
At Home

scholarly journals Disturbing and distressing: a mixed methods study on the psychological impact of end of life care on junior doctors

2018 ◽  
Vol 188 (2) ◽  
pp. 633-639 ◽  
Author(s):  
Hannah Linane ◽  
Fergal Connolly ◽  
Lyle McVicker ◽  
Sharon Beatty ◽  
Orla Mongan ◽  
...  
Keyword(s):  
Mixed Methods ◽  
End Of Life ◽  
End Of Life Care ◽  
Psychological Impact ◽  
Mixed Methods Study ◽  
Junior Doctors ◽  
Life Care

scholarly journals ‘. . . and then no more kisses!’ Exploring patients’ experiences on multidrug-resistant bacterial microorganisms and hygiene measures in end-of-life care A mixed-methods study

2019 ◽  
Vol 34 (2) ◽  
pp. 219-230 ◽  
Author(s):  
Maria Heckel ◽  
Alexander Sturm ◽  
Stephanie Stiel ◽  
Christoph Ostgathe ◽  
Franziska A Herbst ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Mixed Methods ◽  
End Of Life ◽  
End Of Life Care ◽  
Multidrug Resistant ◽  
Life Care ◽  
Hygiene Measures ◽  
Patients Wishes

Background: In end-of-life care hygiene, measures concerning multidrug-resistant bacterial microorganisms may contradict the palliative care approach of social inclusion and be burdensome for patients. Objectives: To integrate patients’ perspectives on handling multidrug-resistant bacterial microorganisms at their end of life, their quality of life, the impact of positive multidrug-resistant bacterial microorganisms’ diagnosis, protection and isolation measures on their well-being and patients’ wishes and needs regarding their care. Design: A mixed-methods convergent parallel design embedded quantitative data on the patients’ multidrug-resistant bacterial microorganisms’ trajectory and quality of life assessed by the Schedule for the Evaluation of Individual Quality of Life in qualitative data collection via interviews and focus groups. Data analysis was performed according to Grounded Theory and qualitative and quantitative results were interrelated. Setting/participants: Between March 2014 and September 2015 at two hospitals adult patients diagnosed with multidrug-resistant bacterial microorganisms and treated in a palliative care department or a geriatric ward were included in the sample group. Results: Patients in end-of-life and geriatric care reported emotional and social impact through multidrug-resistant bacterial microorganisms’ diagnosis itself, hygiene measures and lack of information. This impact affects aspects relevant to the patients’ quality of life. Patients’ wishes for comprehensive communication/information and reduction of social strain were identified from the focus group discussion. Conclusion: Patients would benefit from comprehensible information on multidrug-resistant bacterial microorganisms. Strategies minimizing social exclusion and emotional impact of multidrug-resistant bacterial microorganisms’ diagnosis in end-of-life care are needed as well as adaption or supplementation of standard multidrug-resistant bacterial microorganisms’ policies of hospitals.

scholarly journals End-of-life Care Preferences among Cancer Patients in Southern Thailand: A University Hospital-based Cross-Sectional Survey

2021 ◽  
Author(s):  
Jarurin Pitanupong ◽  
Sahawit Janmanee
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
University Hospital ◽  
Life Care ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
At Home

Abstract Background: End-of-life care preferences may be highly individual, heterogenic, and variable according to culture and belief. This study aimed to explore preferences and factors associated with end-of-life care among Thai cancer patients with the goal of helping optimize their quality of life.Methods: A cross-sectional study surveyed cancer outpatients at Songklanagarind Hospital from August to November 2020. The questionnaires inquired about: 1) personal and demographic information, 2) experiences with end-of-life care received by relatives, and 3) end-of-life care preferences. To determine end-of life preferences, the data were analyzed using descriptive statistics. The data concerning patient demographics and end-of-life care preferences were compared using Fisher’s exact test. Results: The majority of the 96 cancer outpatients were female (65.6%), and the overall mean age was 55.8 ±11.6 years. More than half of them had an experience of observing someone die (68.8%), and they were predominantly satisfied with the care received by their relatives in passing away at home surrounded by family (47.0%) and being conscious until the time of death (68.2%). Most participants preferred receiving the full truth regarding their illness (99.0%), being free of uncomfortable symptoms (96.9%), having their loved ones around (93.8%), being mentally aware at the last hour (93.8%), and having the sense of being meaningful in life (92.7%). Their 3 most important end-of-life care wishes were receiving the full truth regarding their illness, disclosing the full truth regarding their illness to family members, and passing away at home. Conclusion: In order to optimize the quality of life of terminal patients, end-of-life care should ensure they receive the full truth regarding their illness, experience no distress symptoms, remain mentally aware at the last hour of life, feel meaningful in life, and pass away comfortably with loved ones around.

scholarly journals End-of-life care preferences among cancer patients in Southern Thailand: a university hospital-based cross-sectional survey

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Jarurin Pitanupong ◽  
Sahawit Janmanee
Keyword(s):  
Quality Of Life ◽  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
University Hospital ◽  
Life Care ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
At Home

Abstract Background End-of-life care preferences may be highly individual, heterogenic, and variable according to culture and belief. This study aimed to explore preferences and factors associated with end-of-life care among Thai cancer patients. Its findings could help optimize the quality of life of palliative cancer patients. Methods A cross-sectional study surveyed palliative cancer outpatients at Songklanagarind Hospital from August to November 2020. The questionnaires inquired about: (1) personal and demographic information, (2) experiences with end-of-life care for their relatives, and (3) end-of-life care preferences. To determine end-of life preferences, the data were analyzed using descriptive statistics. The data concerning patient demographics and end-of-life care preferences were compared using Fisher’s exact test. Results The majority of the 96 palliative cancer outpatients were female (65.6 %), and the overall mean age was 55.8 ± 11.6 years. More than half of them had an experience of observing someone die (68.8 %), and they were predominantly being conscious until the time of death (68.2 %). Most participants preferred receiving the full truth satisfied with the care their relatives had received in passing away at home surrounded by family (47.0 %) and regarding their illness (99.0 %), being free of uncomfortable symptoms (96.9 %), having their loved ones around (93.8 %), being mentally aware at the last hour (93.8 %), and having the sense of being meaningful in life (92.7 %). Their 3 most important end-of-life care wishes were receiving the full truth regarding their illness, disclosing the full truth regarding their illness to family members, and passing away at home. Conclusions In order to optimize the quality of life of palliative cancer patients, end-of-life care should ensure they receive the full truth regarding their illness, experience no distressing symptoms, remain mentally aware at the last hour of life, feel meaningful in life, and pass away comfortably with loved ones around.

Impact of a clinical pathway on end-of-life care following stroke: A mixed methods study

2014 ◽  
Vol 29 (3) ◽  
pp. 249-259 ◽  
Author(s):  
Eileen Cowey ◽  
Lorraine N Smith ◽  
David J Stott ◽  
Christine H McAlpine ◽  
Gillian E Mead ◽  
...  
Keyword(s):  
Mixed Methods ◽  
End Of Life ◽  
Clinical Pathway ◽  
End Of Life Care ◽  
Mixed Methods Study ◽  
Life Care

scholarly journals O-10  Effectiveness of social media versus classroom-based education in palliative and end-of-life care topics: mixed methods study

2016 ◽  
Author(s):  
Munikumar Ramasamy Venkatasalu ◽  
Sarah Chapman ◽  
Hannah Dunn ◽  
Rachel Broad ◽  
Aruna Subramanim
Keyword(s):  
Social Media ◽  
Mixed Methods ◽  
End Of Life ◽  
End Of Life Care ◽  
Mixed Methods Study ◽  
Life Care ◽  
O 10

scholarly journals Surgeons' Perceived Barriers to Palliative and End-of-Life Care: A Mixed Methods Study of a Surgical Society

2018 ◽  
Vol 21 (6) ◽  
pp. 780-788 ◽  
Author(s):  
Pasithorn A. Suwanabol ◽  
Ari C. Reichstein ◽  
Z. Tuba Suzer-Gurtekin ◽  
Jane Forman ◽  
Maria J. Silveira ◽  
...  
Keyword(s):  
Mixed Methods ◽  
End Of Life ◽  
End Of Life Care ◽  
Mixed Methods Study ◽  
Perceived Barriers ◽  
Life Care
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