scholarly journals Intensity of Treatment and Health-Related Quality of Life in Pediatric Cancer: Findings From the Portuguese Version of Intensity of Treatment Rating Scale 3.0

2014 ◽  
Vol 3 (3) ◽  
pp. 158-171 ◽  
Author(s):  
Susana Santos ◽  
Carla Crespo ◽  
Maria Cristina Canavarro ◽  
Armando Pinto
Keyword(s):  
Quality Of Life ◽  
Pediatric Cancer ◽  
Rating Scale ◽  
Health Related Quality ◽  
Portuguese Version ◽  
Related Quality ◽  
Health Related ◽  
Post Hoc ◽  
Intensity Of Treatment

ObjetivoEste estudo teve como objetivos apresentar a versão portuguesa da Escala de Classificação da Intensidade do Tratamento 3.0, uma medida objetiva para avaliar a intensidade do tratamento no cancro pediátrico, e comparar a qualidade de vida relacionada com a saúde (QdVrS) em crianças/adolescentes com diferentes níveis de intensidade do tratamento.MétodoA amostra foi constituída por 129 crianças/adolescentes com cancro (98 em tratamento e 31 fora de tratamento). A intensidade do tratamento foi classificada pelos médicos oncologistas pediátricos com a Escala de Classificação da Intensidade do Tratamento 3.0 e a QdVrS foi avaliada pelas crianças/adolescentes através do DISABKIDS Chronic Generic Measure (DCGM-12).ResultadosAs análises do coeficiente de Kappa revelaram excelentes índices de fiabilidade interavaliadores. Verificou-se a existência de diferenças estatisticamente significativas na QdVrS de acordo com o nível de intensidade do tratamento. Comparações post-hoc revelaram níveis de QdVrS superiores em crianças/adolescentes com tratamentos de intensidade 2 comparativamente aos de intensidade 3 e 4.ConclusãoOs dados evidenciam a importância de intervenções para melhorar a QdVrS junto de potenciais grupos de risco, definidas de acordo com a intensidade do tratamento.

scholarly journals Validação do Questionário Otitis Media-6 para Português Europeu

2017 ◽  
Vol 30 (5) ◽  
pp. 381
Author(s):  
Ana Rita Lameiras ◽  
Deodato Silva ◽  
Assunção O'Neill ◽  
Pedro Escada
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Otitis Media ◽  
Health Related Quality ◽  
Portuguese Version ◽  
Culturally Adapted ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Introduction: Otitis media is one of the most prevalent childhood diseases. The impact of otitis media on quality of life of Portuguese children is unknown, because of the unavailability of a tool validated in European Portuguese to assess this consequence of otitis media. The Otitis Media-6 questionnaire (Otitis Media-6) is the most frequently used tool to assess health-related quality of life in children with otitis media. This study aims to create a version in the Portuguese language and culturally adapted to Portugal of the otitis media-6 questionnaire.Material and Methods: The Otitis Media-6 questionnaire was translated and culturally adapted to the Portuguese language and population. Then, to assess the instrument psychometric properties, it was applied to a sample of Portuguese children with chronic otitis media with effusion or recurrent acute otitis media.Results: The Portuguese version of Otitis Media-6 questionnaire demonstrated the following psychometric properties: constructvalidity for baseline (rs = 0.98) and change scores (rs = 0.97), internal consistency (α = 0.780), test-retest reliability (rs = 0.89) and responsiveness to clinical change (t(59) = 10.104).Discussion: The simplicity and brevity of application of the instrument make it ideal for use in research and in clinical practice, enabling a more objective assessment of the extension of the otitis media impact in children quality of life and a more targeted therapeutic decision.Conclusion: The Portuguese version of the Otitis Media-6 questionnaire is a valid, reliable and sensitive instrument to evaluate the health-related quality of life in Portuguese children with otitis media.

scholarly journals Portuguese Version of the EORTC QLQ-OES18 and QLQ-OG25 for Health-Related Quality of Life Assessment

2017 ◽  
Vol 30 (1) ◽  
pp. 47 ◽  
Author(s):  
Miguel Relvas-Silva ◽  
Rui Almeida Silva ◽  
Mário Dinis-Ribeiro
Keyword(s):  
Quality Of Life ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
European Organization ◽  
Pilot Testing ◽  
Quality Of Life Questionnaire ◽  
Portuguese Version ◽  
Related Quality ◽  
Health Related

Introduction: Health-related quality of life assessment is increasingly important as it can help both clinical research and care for patients, particularly among oncological patients. Quality of Life Questionnaire – OES18 (esophageal module) and Quality of Life Questionnaire – OG25 (esophagogastric module) are the European Organization for Research and Treatment of Cancer modules for the evaluation of quality of life in patients with esophageal and esophagogastric cancers, respectively. The aim of our study was to translate, to culturally adapt and to perform a pilot testing to create the Portuguese version of both questionnaires.Material and Methods: The European Organization for Research and Treatment of Cancer guidelines were followed for translation, cultural adaptation and pilot testing of Quality of Life Questionnaire – OES18 (esophageal module) and Quality of Life Questionnaire – OG25 (esophagogastric module). The Quality of Life Questionnaire – OG25 (esophagogastric module) went through a process of forward (English → Portuguese) and backward (Portuguese → English) translation, by independent native speaker translators. After review, a preliminary version was created to be pilot tested among Portuguese patients. As a Brazilian version was already available for Quality of Life Questionnaire – OES18 (esophageal module), the questionnaire was simply culturally adapted and pilot tested. Both cancer and non-cancer patients were included.Results: Overall, 30 patients completed the Portuguese version of each questionnaire. Afterwards, a structured interview was conducted to find and report any problematic items. Troublesome items and wording were changed according to the pilot testing results. The final versions were sent to the European Organisation for Research and Treatment of Cancer Quality of Life Group and approved.Conclusion: The Portuguese versions of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire – OES18 (esophageal module) and OG25 (esophagogastric module) questionnaires are useful, reliable and valid tools for measuring health-related quality of life in patients with esophageal and esophagogastric cancers, respectively. They can now be used in clinical setting and for scientific purposes.

Impact of Restless Leg Syndrome on Fatigue and Quality of Life Among Hemodialysis Patients

2021 ◽  
Vol 4 (1) ◽  
pp. 17-21
Author(s):  
Saad Ali Nasir ◽  
Fareeha Amjad ◽  
Sana Rafaqat
Keyword(s):  
Quality Of Life ◽  
Rating Scale ◽  
Hemodialysis Patients ◽  
Activity Level ◽  
Moderate Activity ◽  
Health Related Quality ◽  
Restless Leg Syndrome ◽  
Related Quality ◽  
Health Related

Abstract:Restless Legs Syndrome (RLS) is a sensorymotor sleep disorder which his very common in hemodialysis (HD) patients. It is called also as uremic RLS and it is affecting almost 30%of the HD population. Objective: To find out impact of Restless Leg Syndrome on fatigue and quality of life in patients of hemodialysis.Methadology: 131 hemodialysis patients (male, female) were approached from different hospitals in Lahore. Demographic data of the patients were collected. Questionnaires were included Fatigue Severity Scale, Restless Legs Syndrome Questionnaire (Rating Scale) and health quality questionnaire SF-12®. All responses entered in SPSS version 21.Results: In this survey SF12 was used to nd about health related quality of life in patients with RLS and undergoing hemodialysis and fatigue was observed in (n-75%) patients with exercise, (n34%) reported fatigue interference with work and (n-22%) reported fatigue was constant problem. Quality of life was overall poor as (n-72 %) patient's complaint that they cannot do any kind of work with full focus and 34 % reported their moderate activity level was limited.Conclusion: RLS was frequent in patients with hemodialysis. it had an association with fatigue and poor quality of life. As hemodialysis patients spend most of their time on bed RLS has negative impact on the sleep. Health Related Quality Of Life affects both physical and mental health.Keywords: Restless Leg Syndrome, Fatigue, low quality oflife, Hemodialysis patients

9134 POSTER Tumour Response, Skin Rash and Health-related Quality of Life (HRQoL) – Post-hoc Data From the IPASS Study

2011 ◽  
Vol 47 ◽  
pp. S633-S634 ◽  
Author(s):  
Y. Wu ◽  
M. Fukuoka ◽  
T.S.K. Mok ◽  
N. Saijo ◽  
S. Thongprasert ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Skin Rash ◽  
Tumour Response ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Post Hoc

W1173 A Single-Item Numeric Rating Scale Shows Excellent Correlation with Measures of Crohn's Disease Activity and Health-Related Quality of Life

2009 ◽  
Vol 136 (5) ◽  
pp. A-670
Author(s):  
Gil Y. Melmed ◽  
Andrew Ippoliti ◽  
Eric A. Vasiliauskas ◽  
Dermot P. McGovern ◽  
Marla Dubinsky ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rating Scale ◽  
Numeric Rating Scale ◽  
Health Related Quality ◽  
Excellent Correlation ◽  
Single Item ◽  
Related Quality ◽  
Health Related ◽  
Numeric Rating
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