Unmet needs of patients with psoriasis and psoriatic arthritis

2021 ◽  
Author(s):  
Gloabl Rheumatology By PANLAR

"During the last year, PANLAR designed a strategy focused on identifying the needs that arise in the day-to-day care of patients with psoriasis and psoriatic arthritis, generally focused on improving access and care for our patients.

2021 ◽  
Author(s):  
Adriana Denisse García Coello

PANLAR collected feedback and recommendations from patients and expert rheumatologists on the unmet needs of those diagnosed with psoriatic disease and set them down in a position paper


1991 ◽  
Vol 158 (6) ◽  
pp. 810-816 ◽  
Author(s):  
Frank Holloway

Seven units providing psychiatric day care to residents of an inner-city area were surveyed. The extent to which the clinical and special problems of attenders were adequately managed by the services was measured using a ‘needs-assessment’ technique. Units differed in the proportion of clinical and social problems that were rated as ‘unmet needs', although the extent of ‘unmet need’ was not clearly related to the morbidity of attenders at a unit or the available staffing.


Dementia ◽  
2018 ◽  
Vol 19 (5) ◽  
pp. 1586-1603 ◽  
Author(s):  
Sarah Kate Smith ◽  
Gail A Mountain ◽  
Rebecca J Hawkins

Introduction Opportunities to participate with enjoyable activities is one of the most frequently reported unmet needs by the person living with dementia. Enabling and intuitive technologies may offer accessible ways to engage with such activities. Objectives To explore how tablet computers might encourage participation in enjoyable activities by people with moderate levels of dementia and to consider how such technologies might be incorporated into the repertoire of activities currently provided through day care settings. Methods A focused visual ethnographic approach was developed specifically to meet the research objectives. Twelve participants attending a community day care centre and nine supporters (both volunteers and paid staff) consented to take part in the research. Technology facilitated group activity sessions took place twice a week for a period of four weeks and all were video recorded. Findings: Video analysis demonstrated that the majority of people with dementia found the technology an effective means of participating in enjoyable activities. Analysis also revealed the extent to which participation relies on the existence of effective support. It showed how maintaining focus on retained strengths and abilities enabled the group overall to meet and often exceed their own and others perceived capacity to participate. Finally, analysis confirmed the importance of enjoyment of activities ‘in the moment’ and the need for those supporting people in the moderate stages of dementia to acknowledge and work with this. Conclusion The use of tablet computers to enhance participation in sociable and enjoyable activities in day care settings is realistic and achievable if supported appropriately.


2015 ◽  
Vol 74 (Suppl 2) ◽  
pp. 1170.1-1170
Author(s):  
S. Gabriel ◽  
E. Sullivan ◽  
A. Roughley ◽  
J.B. Palmer ◽  
V. Herrera

1989 ◽  
Vol 19 (3) ◽  
pp. 725-736 ◽  
Author(s):  
B. MacCarthy ◽  
A. Lesage ◽  
C. R. Brewin ◽  
T. S. Brugha ◽  
S. Mangen ◽  
...  

SynopsisWe report the results of a survey of the burdens and needs for items of care of 45 supporters of long-term users of psychiatric day care facilities in Camberwell. The supporters reported high levels of disturbed behaviour and low levels of self-care skills in the attenders. They were also subject to high levels of social and economic burden, not all of which could be attributed to the attenders' problems. The needs assessment identified a large number of unmet needs, although the supporters themselves were largely resigned to their situation and expressed little dissatisfaction with the services they were offered. The advantage of conducting this kind of assessment of supporters' needs as a routine part of clinical practice was discussed.


Author(s):  
George E. Fragoulis ◽  
Iain B. McInnes

Psoriatic arthritis (PsA) is a chronic inflammatory arthritis, occurring in about one third of psoriasis patients, and exhibiting very varied clinical manifestations and comorbidities. Although the clinical outcome of the disease has been significantly improved recently, mainly due to utilization of novel agents targeting the IL-23/-17 axis, unmet needs still exist. Emerging insights into the disease’s pathogenesis led to development of new drugs acting against critical molecular targets and their efficacy in psoriasis and/or PsA has been tested in Phase III clinical trials. Some of these therapeutic regimens have been already approved; some look promising but others have been proven inefficacious. Future studies are expected to determine the place of these compounds within the therapeutic algorithm of PsA. In this chapter we describe the rationale and clinical impact of incorporating small molecules in PsA treatment, as well as specific molecules involved in pathogenesis that may serve as therapeutic targets.


2019 ◽  
Vol 38 (6) ◽  
pp. 1615-1626 ◽  
Author(s):  
Rieke Alten ◽  
P. G. Conaghan ◽  
V. Strand ◽  
E. Sullivan ◽  
S. Blackburn ◽  
...  

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