scholarly journals Daily Life Benefits and Usage Characteristics of Dynamic Arm Supports in Subjects with Neuromuscular Disorders

Sensors ◽  
2020 ◽  
Vol 20 (17) ◽  
pp. 4864
Author(s):  
Johannes Essers ◽  
Alessio Murgia ◽  
Anneliek Peters ◽  
Kenneth Meijer
Keyword(s):  
Social Life ◽  
Daily Life ◽  
Contextual Information ◽  
Neuromuscular Disorders ◽  
Activities Of Daily Life ◽  
Self Reports ◽  
Actual Use ◽  
And Performance ◽  
Over Time

Neuromuscular disorders cause progressive muscular weakness, which limits upper extremity mobility and performance during activities of daily life. Dynamic arm supports can improve mobility and quality of life. However, their use is often discontinued over time for unclear reasons. This study aimed to evaluate whether users of dynamic arm supports demonstrate and perceive quantifiable mobility benefits over a period of two months. Nine users of dynamic arm supports were included in this observational study. They had different neuromuscular disorders and collectively used four different arm supports. They were observed for three consecutive weeks during which they were equipped with a multi-sensor network of accelerometers to assess the actual use of the arm support and they were asked to provide self-reports on the perceived benefits of the devices. Benefits were experienced mainly during anti-gravity activities and the measured use did not change over time. The self-reports provided contextual information in domains such as participation to social life, in addition to the sensor system. However self-reports overestimated the actual use by up to three-fold compared to the accelerometer measures. A combination of objective and subjective methods is recommended for meaningful and quantifiable mobility benefits during activities of daily life.

scholarly journals Daily Life Benefits and Usage Characteristics of Dynamic Arm Supports in Subjects with Neuromuscular Disorders

2020 ◽  
Author(s):  
Johannes Essers ◽  
Alessio Murgia ◽  
Anneliek Peters ◽  
Kenneth Meijer
Keyword(s):  
Social Life ◽  
Daily Life ◽  
Contextual Information ◽  
Neuromuscular Disorders ◽  
Activities Of Daily Life ◽  
Self Reports ◽  
Arm Support ◽  
Actual Use ◽  
And Performance ◽  
Over Time

Neuromuscular disorders cause progressive muscular weakness, which limits upper extremity mobility and performance during activities of daily life. A dynamic arm support can improve mobility and quality of life. However, their use is often discontinued over time for unclear reasons. This study aimed to evaluate whether users of dynamic arm supports demonstrate and perceive quantifiable mobility benefits over a period of two months. Nine users of dynamic arm supports were included in this observational study. They had different neuromuscular disorders and collectively used four different arm supports. They were observed for three consecutive weeks during which they were equipped with a multi-sensor network of accelerometers to assess the actual use of the arm support and they were asked to provide self-reports on the perceived benefits of the devices. Benefits were experienced mainly during anti-gravity activities and the measured use did not change over time. The self-reports provided contextual information in domains such as participation to social life, in addition to the sensor system. However self-reports overestimated the actual use by up to three-fold compared to the accelerometer measures. A combination of objective and subjective methods is recommended for meaningful and quantifiable mobility benefits during activities of daily life.

scholarly journals The effect of exercise on quality of life and activities of daily life in frail older adults: A systematic review of randomised control trials

2021 ◽  
Vol 147 ◽  
pp. 111287
Author(s):  
Evan Campbell ◽  
Fanny Petermann-Rocha ◽  
Paul Welsh ◽  
Carlos Celis-Morales ◽  
Jill P. Pell ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Older Adults ◽  
Daily Life ◽  
Frail Older Adults ◽  
Activities Of Daily Life ◽  
Randomised Control Trials

scholarly journals User Perspectives on Issues that Influence the Quality of Daily life of Ventilator-Assisted Individuals with Neuromuscular Disorders

2004 ◽  
Vol 11 (8) ◽  
pp. 547-554 ◽  
Author(s):  
Dina Brooks ◽  
Audrey King ◽  
Mark Tonack ◽  
Helen Simson ◽  
Maria Gould ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Daily Living ◽  
Daily Life ◽  
Neuromuscular Disorders ◽  
Care Providers ◽  
Daily Lives ◽  
Personal Support ◽  
User Perspectives

OBJECTIVES:To identify user perspectives on the issues that impact the quality of the daily lives of ventilator-assisted individuals living in the community.METHODS:Semistructured interviews were held with 26 Canadian ventilator-assisted individuals (mean age 44±14 [SD] years, range 23 to 60 years; mean ventilator experience 18±13 years, range three to 53 years) whose disability from neuromuscular conditions necessitated assistance with activities of daily living. Participants described their daily life experiences and perceptions of the factors that limited or enhanced their quality. Interviews were tape-recorded, transcribed and analyzed for emergent codes and themes.RESULTS:Ventilator users characterized important issues in terms of personal successes and limitations, as well as dependencies on others for daily living. Personal support services, income security, health care and transportation were important positive contributors to their quality of life. Dependency on others was clearly a negative contributor. The ventilator was regarded as a form of assistive technology, similar to a wheelchair. Ventilator users perceived that ventilation was associated with a stigma and negative assumptions about disability, particularly if suctioning was required.CONCLUSIONS:The majority of participants considered home mechanical ventilation to be a positive benefit for independent living, enhancing their overall health. They were clear as to the issues of importance to them, and formulated recommendations for health care providers and policy makers that could improve the quality of their daily lives. Many of the issues identified in the present report are faced by the growing community of ventilator users.

scholarly journals Paving the Way Toward Distinguishing Fallers From Non-fallers in Bilateral Vestibulopathy: A Wide Pilot Observation

2021 ◽  
Vol 12 ◽  
Author(s):  
Nolan Herssens ◽  
Bieke Dobbels ◽  
Julie Moyaert ◽  
Raymond Van de Berg ◽  
Wim Saeys ◽  
...  
Keyword(s):  
Outcome Measures ◽  
Fear Of Falling ◽  
Daily Life ◽  
Contextual Information ◽  
Vestibular Function ◽  
Future Research ◽  
Risk Of Falling ◽  
Bilateral Vestibulopathy ◽  
Activities Of Daily Life ◽  
Increased Risk

Patients with bilateral vestibulopathy (BVP) present with unsteadiness during standing and walking, limiting their activities of daily life and, more importantly, resulting in an increased risk of falling. In BVP patients, falls are considered as one of the major complications, with patients having a 31-fold increased risk of falling compared to healthy subjects. Thus, highlighting objective measures that can easily and accurately assess the risk of falling in BVP patients is an important step in reducing the incidence of falls and the accompanying burdens. Therefore, this study investigated the interrelations between demographic characteristics, vestibular function, questionnaires on self-perceived handicap and balance confidence, clinical balance measures, gait variables, and fall status in 27 BVP patients. Based on the history of falls in the preceding 12 months, the patients were subdivided in a “faller” or “non-faller” group. Results on the different outcome measures were compared between the “faller” and “non-faller” subgroups using Pearson's chi-square test in the case of categorical data; for continuous data, Mann–Whitney U test was used. Performances on the clinical balance measures were comparable between fallers and non-fallers, indicating that, independent from fall status, the BVP patients present with an increased risk of falling. However, fallers tended to report a worse self-perceived handicap and confidence during performing activities of daily life. Spatiotemporal parameters of gait did not differ between fallers and non-fallers during walking at slow, preferred, or fast walking speed. These results may thus imply that, when aiming to distinguish fallers from non-fallers, the BVP patients' beliefs concerning their capabilities may be more important than the moderately or severely affected physical performance within a clinical setting. Outcome measures addressing the self-efficacy and fear of falling in BVP patients should therefore be incorporated in future research to investigate whether these are indeed able to distinguish fallers form non-fallers. Additionally, information regarding physical activity could provide valuable insights on the contextual information influencing behavior and falls in BVP.

Idolatry

2018 ◽  
Author(s):  
Stephen Fowl
Keyword(s):  
Daily Life ◽  
Central Place ◽  
Ancient World ◽  
The Bible ◽  
Activities Of Daily Life ◽  
The Face ◽  
The One ◽  
Almost All ◽  
Over Time ◽  
The Invisible

The use of material images of various gods (idols) in religious worship has a long history and a central place in the polytheistic religions of the ancient world. The worship of these gods is strictly prohibited in Judaism, Christianity and Islam. This practice is generally referred to as idolatry. In addition, the making of images of the one God along with the use of such images in worship is also considered idolatry within these three monotheistic faiths. In the ancient societies within which Judaism, Christianity and, later, Islam emerged, almost all aspects of life were touched by the presence of idols. For a Jew (particularly in the diaspora) or a Christian to faithfully negotiate one’s way through the activities of daily life in such a world required sustained attentiveness and resolve. Over time, idolatry became more generally and metaphorically associated with ideas, motivations, beliefs and commitments that draw believers’ attention away from God. In some instances in Christianity, idolatry simply becomes a synonym for sin. Although it is not common today for Jews, Christians or Muslims to worship fabricated images of their own or other gods, some of the ongoing philosophical and theological issues concern how God’s creation can manifest the invisible God. In what ways, if any, can the created world mediate God truthfully to humans? Can such things as icons be instrumental in the worship of the one God without that worship being idolatrous? In recent French phenomenological writing, some of these issues receive attention. Although these concerns may seem distant from those of the Bible and Quran, they share a common recognition that idolatry stems from a failure of attentiveness, an inability or unwillingness to focus one’s attention and desire upon God in the face of myriad distractions.

scholarly journals Qualitative evaluation of the influence of Acute Oxaliplatin‐Induced Peripheral Neuropathy on Quality of Life and Activities of Daily Life

Pain Practice ◽  
2020 ◽  
Author(s):  
Frank van Haren ◽  
Monique Steegers ◽  
Marloes Thijssen ◽  
Selina van der Wal ◽  
Kris Vissers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Peripheral Neuropathy ◽  
Daily Life ◽  
Qualitative Evaluation ◽  
Activities Of Daily Life

scholarly journals Clinical Aspects of Physiology Teaching for Ergotherapists

2019 ◽  
Vol 26 (4) ◽  
Author(s):  
Uliana Shalamay ◽  
Nadiia Pobigun
Keyword(s):  
Social Life ◽  
Medical Knowledge ◽  
The Body ◽  
Care Work ◽  
Educational Institutions ◽  
Clinical Aspects ◽  
Clinical Physiology ◽  
And Performance ◽  
Clinical Thinking

Ergotherapist – is the youngest specialty in medical practice of Ukraine. The aim of higher medical educational institutions is to formulate logical, clinical thinking and effective assimilation of medical knowledge to be used by ergotherapists-practitioners. One of the main tasks of an ergotherapist is to restore the body’s functions that have been lost as a result of illness or injury, and to restore a person to a full social life (self-care, work, etc.). These specialists are working to restore the sensory and motor functions of the body, to develop new skills and abilities for the person to adapt to living in society. Achievement of the goal and performance of these tasks is impossible without knowledge of physiology, which provides the basis for the study of pathophysiology, pharmacology, cardiology, physiotherapy and other clinical disciplines. It improves the quality of study and helps to better acquire theoretical material, to master the skills of clinical physiology a competent approach in the organization of Physiology teaching.

scholarly journals Executive functions and quality of life in children with neurofibromatosis type 1

2021 ◽  
Author(s):  
Arnaud Roy ◽  
Jean-Luc Roulin ◽  
Christèle Gras-Le Guen ◽  
Marie-Laure Corbat ◽  
Sébastien Barbarot
Keyword(s):  
Quality Of Life ◽  
Executive Function ◽  
Executive Functions ◽  
Neurofibromatosis Type 1 ◽  
School Environment ◽  
Daily Life ◽  
Neurofibromatosis Type ◽  
Self Reports

Abstract Background. To examine the impact of executive function disorders on health-related quality of life (QoL) in children with neurofibromatosis type 1 (NF1). Prospective single-center study among 40 children with NF1 aged 812 years (mean = 9.7, SD = 1.4) and their parents, comparing them with 56 healthy control children matched for age, sex, parental education level, and handedness. We collected children’s self-reports and parents’ proxy reports of QoL with the Kidscreen-52 questionnaire, and measured executive functions by combining seven performance-based tests and a daily life questionnaire completed by parents and teachers. Results. Several QoL domains were significantly impaired in the children with NF1, compared with healthy controls, according to both their self-reports (3 out of 9 scales; Cohen’s d: .40.42) and their parents’ reports (6 out of 9 scales; Cohen’s d: .34.75), with a systematic decrease in the social support and peers and school environment domains. Executive function disorders (Cohen’s d: .641.72) significantly predicted the impairment of QoL domains as perceived by the children or their parents, regardless of the indirect indicators of learning disabilities. Conclusions. Both performance-based executive function scores and behavior ratings of executive functions in daily life by parents and teachers were associated with low QoL levels in the children with NF1. The school environment and social integration appear to be particularly affected, and should therefore be targeted in the management of the disease. 227 words

scholarly journals The Roles Of Woman In Nggorea Village In Order To Increase The Economic Social Of Family By Local Weaving Cloth Heritage

2020 ◽  
Vol 17 (1) ◽  
pp. 11-20
Author(s):  
Hasti Sulaiman
Keyword(s):  
Higher Education ◽  
Social Status ◽  
Direct Observation ◽  
Social Life ◽  
Qualitative Data ◽  
Social Economic ◽  
Daily Life ◽  
The Social ◽  
Culture Heritage

The aims of this research is to describe the roles of woman in Nggorea village in order to increase the economic social of family by local weaving cloth heritage. This research is a descriptive qualitative. Data collected by direct observation, documentation, and interview. In this research shows that beside as the housewife, the woman at Nggorea village roles to increase the economic in their family by using the local weaving cloth, which is the culture heritage of the ancestor. Generally, the activity of weaving by woman in Nggorea village is just to spend their time after finishing the homework and to continue the culture heritage. The product of woven cloth can be used as the daily clothing and as used at the culture ceremony. Meanwhile, to fulfill their daily life needs are getting by gardening and fishing. However, the product of woven cloth is known by many people and the function of the woven cloth is varied such as to make a coat, bag, skirt, blanket, and so on. The quality of woven cloth give an effect to its price, so it can influenced the economic social of Nggorea society. There are some kinds of social economic increasing at Nggorea village, such as fulfill the life needs and to get the higher education so that it can influence to the better social life. Automatically it influenced to the social status of society.

scholarly journals Antidepressant Potential of Cinnamic Acids: Mechanisms of Action and Perspectives in Drug Development

Molecules ◽  
2019 ◽  
Vol 24 (24) ◽  
pp. 4469 ◽  
Author(s):  
Lúcio Ricardo Leite Diniz ◽  
Marilia Trindade de Santana Souza ◽  
Joice Nascimento Barboza ◽  
Reinaldo Nóbrega de Almeida ◽  
Damião Pergentino de Sousa
Keyword(s):  
Social Life ◽  
Age Groups ◽  
Antidepressant Activity ◽  
Mechanisms Of Action ◽  
Behavioral Disorder ◽  
Cinnamic Acids ◽  
Work Activities ◽  
And Performance ◽  
Different Levels

Depression is a health problem that compromises the quality of life of the world′s population. It has different levels of severity and a symptomatic profile that affects social life and performance in work activities, as well as a high number of deaths in certain age groups. In the search for new therapeutic options for the treatment of this behavioral disorder, the present review describes studies on antidepressant activity of cinnamic acids, which are natural products found in medicinal plants and foods. The description of the animal models used and the mechanisms of action of these compounds are discussed.

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