scholarly journals Preliminary Investigation of the Usability Characteristics Required for Wound Management Products by Semi-Structural Interview of Medical Staff

Pharmacy ◽  
2020 ◽  
Vol 8 (3) ◽  
pp. 152
Author(s):  
Kaoru Hirose ◽  
Yayoi Kawano ◽  
Nahoko Shigeno ◽  
Yoshikatsu Mizutani ◽  
Hiraku Onishi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Thematic Analysis ◽  
Healthcare Professionals ◽  
Preliminary Investigation ◽  
Wound Management ◽  
Medical Professionals ◽  
Development Projects ◽  
Structured Interviews ◽  
Care Clinic

Consideration of drug usability characteristics is important during the design process. Although many wound management products have been developed in recent years, there are few studies on their usability. We investigated the needs and characteristics of wound management products required by medical professionals, so as to consider these in future development projects. Semi-structured interviews were conducted in a group of healthcare professionals. Interview responses were analyzed based on thematic analysis. Four themes common to all facilities were secondary wounds, adaptability of materials, convenience, and physicochemical properties. Economic efficiency of medical care was found to be considered only at the hospital, and quality of life of patients was found to be considered only at the home palliative care clinic. Requirements for wound management products can be affected by participants’ roles and their facility settings. However, there were needs common to all fields that all wound management products should aim to incorporate.

scholarly journals Exploring the Competencies of Japanese Expert Nurse Practitioners: A Thematic Analysis

Healthcare ◽  
2021 ◽  
Vol 9 (12) ◽  
pp. 1674
Author(s):  
Mari Igarashi ◽  
Ryuichi Ohta ◽  
Yasuo Kurita ◽  
Akinori Nakata ◽  
Tsutomu Yamazaki ◽  
...  
Keyword(s):  
Medical Care ◽  
Nurse Practitioners ◽  
Thematic Analysis ◽  
Interprofessional Collaboration ◽  
Quality Of Healthcare ◽  
Medical Professionals ◽  
Clinical Settings ◽  
Structured Interviews ◽  
Personal Qualities

Nurse practitioners (NPs) provide medical care equivalent to that of physicians and facilitate access to healthcare. Although Japan’s first NP graduated in 2010, how Japanese expert NPs work effectively in clinical contexts is yet to be investigated. We aimed to identify the competencies that make expert NPs in Japan effective. Twelve Japanese expert NPs were purposely selected. The average age of the participants was 44.8 years, average NP experience was 7.5 years, and eight participants were women. Semi-structured interviews were conducted online from March to May 2021. Interviews were recorded, transcribed verbatim, and analyzed using thematic analysis. Thematic analysis revealed five themes: working in physicians’ contexts, interprofessional collaboration, involvement in nurses’ work, contribution to healthcare, and personal qualities for effective working. Japanese expert NPs can function effectively in clinical settings by flexibly and humbly collaborating with other medical professionals who have autonomous positions. They can improve the quality of healthcare by proposing practical solutions to problems faced by patients and medical organizations. These explored competencies can be applied to other aging and more complex societal contexts, and in updating the required competencies of Japanese NPs.

scholarly journals Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families

Autism ◽  
2021 ◽  
pp. 136236132110337
Author(s):  
Jane Goodwin ◽  
Priyanka Rob ◽  
Mark Freeston ◽  
Deborah Garland ◽  
Victoria Grahame ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Thematic Analysis ◽  
Intolerance Of Uncertainty ◽  
Well Being ◽  
Anxiety Reduction ◽  
Autistic Children ◽  
Structured Interviews ◽  
Daily Lives ◽  
The Impact

Approximately 50% of autistic children experience high anxiety. Intolerance of uncertainty (tendency to react negatively to uncertain situations) is a key mechanism in the development and maintenance of anxiety. This study aimed to provide a descriptive, thematic analysis of the impact on uncertainty on the daily lives of autistic children and their families. Semi-structured interviews were conducted with parents and caregivers of 53 autistic children (including 3 dyads) aged 6–16 years to elicit examples of uncertain situations that the children found challenging and to explore the impact of these situations on family life. Thematic analysis revealed five overarching themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. These findings provide a crucial understanding into the range of uncertain situations autistic children with anxiety experience. Anxiety-reduction approaches based on increasing tolerance to everyday uncertain situations could help improve well-being, quality of life and participation for autistic children and their families. Lay abstract Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child’s reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children’s ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families.

scholarly journals Dignity of informal caregivers of migrant patients in the last phase of life. A qualitative study.

2020 ◽  
Author(s):  
Xanthe de Voogd ◽  
Dick Willems ◽  
Marieke Torensma ◽  
Bregje Onwuteaka-Philipsen ◽  
Jeanine Suurmond
Keyword(s):  
Quality Of Life ◽  
Healthcare Professionals ◽  
Informal Caregiver ◽  
Informal Caregivers ◽  
Good Care ◽  
Structured Interviews ◽  
Value Differences ◽  
Centered Care ◽  
Family Centered

Abstract Background An important aim of palliative care is to improve the family’s and patient’s quality of life. To ensure quality of life for migrant patients’ families, the objective of this study was to get insight into the dignity of informal caregivers. This could provide insight on family-centered care for migrant patients. Methods 20 semi-structured interviews with informal caregivers with a Turkish, Moroccan or Surinamese migration background living in the Netherlands were analyzed thematically. Results We found the dignity of the patient and the dignity of the informal caregiver were strongly related. Most important for the dignity of the informal caregiver was to ensure good care for and preserve the dignity of the patient. Ensuring good care encompassed advocating for good and dignified care and wishes of the patient. For many caregivers, it also included delivering care to the patient themselves or with other family members, despite having to give up a part of their own lives. Giving care themselves was part of maintaining a good relationship, it could cater to the patient’s preferences or preserve the patient’s dignity, and it could come with valuable aspects such as times for good conversations. The informal caregiver’s dignity and the patient’s dignity were often compromised simultaneously. When informal caregivers felt healthcare professionals were impairing the dignity of the patient, their own dignity suffered. Also, dignified behavior by the patient such as thankfulness influenced the informal caregiver’s dignity positively, undignified behavior of the informal caregiver themselves, such as showing their emotions to significant others could influence it negatively. According to informal caregivers, healthcare professionals can help them preserve their dignity by taking their advice about the patient seriously, informing them about the disease and the patient’s prognosis, and dealing respectfully with value differences at the end of life. Conclusion The dignity of migrant patients’ informal caregivers in the last phase of the patient’s life is entwined with ensuring good care for and dignity of the patient. Healthcare professionals could strengthen the informal caregiver’s dignity by supporting their role.

scholarly journals Quality of Life after Total Glosso-Laryngectomy

2007 ◽  
Vol 54 (1) ◽  
pp. 29-38 ◽  
Author(s):  
Leanie Engelbrecht ◽  
Anita Van der Merwe
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
South African ◽  
Thematic Analysis ◽  
Oral Communication ◽  
Well Being ◽  
Shared Decision ◽  
Structured Interviews ◽  
Multi Disciplinary Team

The article explores the quality of life of two participants who had undergone total glosso-laryngectomy as treatment for advanced tongue base cancer. Semi-structured interviews were conducted and questions relating to the effects of treatment on physical, functional, social and psychological well-being were asked. Thematic analysis of the interviews was done to determine recurring themes in the answers of the participants. The findings showed that total glosso-laryngectomy has a significant impact on quality of life. A good quality of life can be maintained in a patient who has an extensive support structure and can achieve intelligible oral communication. Pre-operative counselling by a multi-disciplinary team is important for a person to make an informed decision regarding surgery for head and neck cancer. Shared decision-making needs to be addressed in the South African service delivery context.

scholarly journals Dignity of informal caregivers of migrant patients in the last phase of life. A qualitative study.

2020 ◽  
Author(s):  
Xanthe de Voogd ◽  
Dick Willems ◽  
Marieke Torensma ◽  
Bregje Onwuteaka-Philipsen ◽  
Jeanine Suurmond
Keyword(s):  
Quality Of Life ◽  
Healthcare Professionals ◽  
Informal Caregiver ◽  
Informal Caregivers ◽  
Good Care ◽  
Structured Interviews ◽  
Positive Interaction ◽  
Migrant Communities ◽  
Centered Care

Abstract Background: A key aim of palliative care is to improve the quality of life of patients and their families. To help ensure quality of life for the families of patients with migrant backgrounds, this study sought insights into the dignity of informal caregivers in migrant communities. This could improve understanding of family-centered care for migrant patients.Methods: Twenty semi-structured interviews with informal caregivers of Turkish, Moroccan, or Surinamese background living in the Netherlands were analyzed thematically.Results: The dignity of the patient and that of their informal caregivers were found to be strongly interrelated. Most important for the dignity of caregivers was ensuring good care for their patients and preserving the patients’ dignity. Ensuring good care involved advocating for good and dignified care and for satisfaction of a patient’s wishes. For many informal caregivers, it also included delivering care to the patient by themselves or together with other family members, despite having to give up part of their own lives. Providing care themselves was part of maintaining a good relationship with the patient; the care was to cater to the patient’s preferences and help preserve the patient’s dignity, and it could be accompanied by valuable aspects such as times for good conversations. Positive interaction between an informal caregiver and a patient positively influenced the informal caregiver’s dignity. Informal caregiver and patient dignity were often compromised simultaneously; when informal caregivers felt healthcare professionals were undermining a patient’s dignity, their own dignity suffered. According to informal caregivers, healthcare professionals can help them preserve dignity by taking seriously their advice about the patient, keeping them informed about the prognosis of the disease and of the patient, and dealing respectfully with differences in values at the end of life. Conclusion: The dignity of migrant patients’ informal caregivers in the last phase of a patient’s life is closely entwined with ensuring good care and dignity for the patient. Healthcare professionals can strengthen the dignity of informal caregivers by supporting their caregiving role.

scholarly journals N09 Sexuality as lived incompleteness: exploring intimacy and sexuality experiences of people living with inflammatory bowel disease

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S612-S613
Author(s):  
S Fourie ◽  
C Norton ◽  
D Jackson ◽  
W Czuber-Dochan
Keyword(s):  
Quality Of Life ◽  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Healthcare Professionals ◽  
Phenomenological Study ◽  
Well Being ◽  
Negative Effects ◽  
Inflammatory Bowel

Abstract Background Sexual function in those living with Inflammatory Bowel Disease (IBD) is known to be affected by their condition, with impact on their psychosocial well-being. Little is known about the causality of low sexual functions scores and their contribution to low quality of life reports. The aim of this study was to explore how intimacy and sexuality is experienced in the context of IBD. Methods This was a phenomenological study guided by van Manen’s methodology. Data were collected from 43 participants from interviews and narrative accounts submitted via Google Forms. Reflection on four existential domains (body, relationships, space and time) and thematic analysis were used to interpret the data. Results Four themes were generated from data analysis: Otherness of the sick body, Interrupted connectedness, Missing out on life fullness and Fragmented openness. These led to the overarching theme Sexuality as lived incompleteness, which reflected the essence of the experiences described by participants. Their experiences were deeply embedded in everyday life, and the IBD posed an obstacle to intimacy and sexuality, negatively affecting their life, relationships, family planning and their social position, imposing limitations and isolation. Conclusion IBD has a significant impact on sexual well-being with negative effects on overall quality of life, which may be unknown to healthcare professionals, therefore remain unaddressed. A better understanding of the potential issues could help healthcare professionals identify and address concerns and worries related to sexual well-being, and approach them in a reflective, holistic manner in situations arising in practice.

scholarly journals Dignity of informal caregivers of migrant patients in the last phase of life. A qualitative study.

2020 ◽  
Author(s):  
Xanthe de Voogd ◽  
Dick Willems ◽  
Marieke Torensma ◽  
Bregje Onwuteaka-Philipsen ◽  
Jeanine Suurmond
Keyword(s):  
Quality Of Life ◽  
Healthcare Professionals ◽  
Informal Caregiver ◽  
Informal Caregivers ◽  
Good Care ◽  
Structured Interviews ◽  
Positive Interaction ◽  
Migrant Communities ◽  
Centered Care

Abstract Background: A key aim of palliative care is to improve the quality of life of patients and their families. To help ensure quality of life for the families of patients with migrant backgrounds, this study sought insights into the dignity of informal caregivers in migrant communities. This could improve understanding of family-centered care for migrant patients.Methods: Twenty semi-structured interviews with informal caregivers of Turkish, Moroccan, or Surinamese background living in the Netherlands were analyzed thematically.Results: The dignity of the patient and that of their informal caregivers were found to be strongly interrelated. Most important for the dignity of caregivers was ensuring good care for their patients and preserving the patients’ dignity. Ensuring good care involved advocating for good and dignified care and for satisfaction of a patient’s wishes. For many informal caregivers, it also included delivering care to the patient by themselves or together with other family members, despite having to give up part of their own lives. Providing care themselves was part of maintaining a good relationship with the patient; the care was to cater to the patient’s preferences and help preserve the patient’s dignity, and it could be accompanied by valuable aspects such as times for good conversations. Positive interaction between an informal caregiver and a patient positively influenced the informal caregiver’s dignity. Informal caregiver and patient dignity were often compromised simultaneously; when informal caregivers felt healthcare professionals were undermining a patient’s dignity, their own dignity suffered. According to informal caregivers, healthcare professionals can help them preserve dignity by taking seriously their advice about the patient, keeping them informed about the prognosis of the disease and of the patient, and dealing respectfully with differences in values at the end of life. Conclusion: The dignity of migrant patients’ informal caregivers in the last phase of a patient’s life is closely entwined with ensuring good care and dignity for the patient. Healthcare professionals can strengthen the dignity of informal caregivers by supporting their caregiving role.

scholarly journals From Resistance to Creation: Socio-Environmental Activism in Chile’s “Sacrifice Zones”

2021 ◽  
Vol 13 (6) ◽  
pp. 3481
Author(s):  
Katia Valenzuela-Fuentes ◽  
Esteban Alarcón-Barrueto ◽  
Robinson Torres-Salinas
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Thematic Analysis ◽  
Capital Accumulation ◽  
Local Communities ◽  
Structured Interviews ◽  
Buen Vivir ◽  
Environmental Conflicts ◽  
Industrial Projects

The last decade has witnessed the proliferation of socio-environmental conflicts across Chile, characterized by the resistance of local communities against extractive and industrial projects. Increasingly, these conflicts have revealed the multiple injustices experienced by communities living in sacrifice zones. A sacrifice zone can be defined as a segregated place where the quality of life of its communities is compromised in the name of progress and capital accumulation. By focusing on socio-environmental struggles taking place in Quintero-Puchuncaví Bay, Coronel Bay, and Hualpén-Talcahuano Bay, three highly polluted and industrialized areas in Chile, this article explores the views and practices developed by grassroots activists in their quest for resisting and moving beyond the capitalist and extractivist model of development. By conducting a thematic analysis of semi-structured interviews with 32 socio-environmental activists, this qualitative study provides a detailed account of how they understand a sacrifice zone and resist in these areas. Furthermore, it describes alternatives to capitalist and extractivist development envisioned and enacted by grassroots movements, expanding on the notions of territorial sovereignty and “buen vivir”.

scholarly journals Dignity of informal caregivers of migrant patients in the last phase of life: a qualitative study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
X. de Voogd ◽  
D. L. Willems ◽  
M. Torensma ◽  
B. D. Onwuteaka-Philipsen ◽  
J. L. Suurmond
Keyword(s):  
Quality Of Life ◽  
Healthcare Professionals ◽  
Informal Caregiver ◽  
Informal Caregivers ◽  
Good Care ◽  
Structured Interviews ◽  
Positive Interaction ◽  
Migrant Communities ◽  
Centered Care

Abstract Background A key aim of palliative care is to improve the quality of life of patients and their families. To help ensure quality of life for the families of patients with migrant backgrounds, this study sought insights into the dignity of informal caregivers in migrant communities. This could improve understanding of family-centered care for migrant patients. Methods Twenty semi-structured interviews with informal caregivers of Turkish, Moroccan, or Surinamese background living in the Netherlands were analyzed thematically. Results The dignity of the patient and that of their informal caregivers were found to be strongly interrelated. Most important for the dignity of caregivers was ensuring good care for their patients and preserving the patients’ dignity. Ensuring good care involved advocating for good and dignified care and for satisfaction of a patient’s wishes. For many informal caregivers, it also included delivering care to the patient by themselves or together with other family members, despite having to give up part of their own lives. Providing care themselves was part of maintaining a good relationship with the patient; the care was to cater to the patient’s preferences and help preserve the patient’s dignity, and it could be accompanied by valuable aspects such as times for good conversations. Positive interaction between an informal caregiver and a patient positively influenced the informal caregiver’s dignity. Informal caregiver and patient dignity were often compromised simultaneously; when informal caregivers felt healthcare professionals were undermining a patient’s dignity, their own dignity suffered. According to informal caregivers, healthcare professionals can help them preserve dignity by taking seriously their advice about the patient, keeping them informed about the prognosis of the disease and of the patient, and dealing respectfully with differences in values at the end of life. Conclusion The dignity of migrant patients’ informal caregivers in the last phase of a patient’s life is closely entwined with ensuring good care and dignity for the patient. Healthcare professionals can strengthen the dignity of informal caregivers by supporting their caregiving role.

Dyspareunia

2021 ◽  
pp. 175573802110302
Author(s):  
Charlotte Morris ◽  
Catherine Briggs ◽  
Manju Navani
Keyword(s):  
Quality Of Life ◽  
Primary Care ◽  
Healthcare Professionals ◽  
Persistent Pain ◽  
Differential Diagnoses ◽  
Relationship Problems

Dyspareunia is persistent pain on attempted or successful vaginal penetration. It is under-reported, infrequently asked about by healthcare professionals, and affects quality of life and relationships. Dyspareunia is multifactorial and possesses biopsychosocial components. Pain may be distinct and localised, deep or persistent. Among the symptoms, women describe sensations of aching, throbbing and tearing. Disinterest in sex and relationship problems can result. This article discusses dyspareunia, its common differential diagnoses and aims to improve clinician confidence in assessing and managing dyspareunia in primary care.

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