scholarly journals A Focus Group Study of Perceptions of Genetic Risk Disclosure in Members of the Public in Sweden: “I’ll Phone the Five Closest Ones, but What Happens to the Other Ten?”

2021 ◽  
Vol 11 (11) ◽  
pp. 1191
Author(s):  
Carolina Hawranek ◽  
Senada Hajdarevic ◽  
Anna Rosén
Keyword(s):  
Focus Group ◽  
Genetic Risk ◽  
Qualitative Content Analysis ◽  
Social Contexts ◽  
Risk Information ◽  
Future Research ◽  
Clinical Genetics ◽  
Full Potential ◽  
Risk Disclosure ◽  
Focus Group Study

This study explores perceptions and preferences on receiving genetic risk information about hereditary cancer risk in members of the Swedish public. We conducted qualitative content analysis of five focus group discussions with participants (n = 18) aged between 24 and 71 years, recruited from various social contexts. Two prominent phenomena surfaced around the interplay between the three stakeholders involved in risk disclosure: the individual, healthcare, and the relative at risk. First, there is a genuine will to share risk information that can benefit others, even if this is difficult and causes discomfort. Second, when the duty to inform becomes overwhelming, compromises are made, such as limiting one’s own responsibility of disclosure or projecting the main responsibility onto another party. In conclusion, our results reveal a discrepancy between public expectations and the actual services offered by clinical genetics. These expectations paired with desire for a more personalized process and shared decision-making highlight a missing link in today’s risk communication and suggest a need for developed clinical routines with stronger healthcare–patient collaboration. Future research needs to investigate the views of genetic professionals on how to address these expectations to co-create a transparent risk disclosure process which can realize the full potential of personalized prevention.

Consumer perceptions and demand for organic food in Australia: Focus group discussions

2005 ◽  
Vol 20 (3) ◽  
pp. 155-167 ◽  
Author(s):  
Hui-Shung Chang ◽  
Lydia Zepeda
Keyword(s):  
Focus Group ◽  
Food Production ◽  
Organic Food ◽  
Organic Production ◽  
Farm Animals ◽  
Future Research ◽  
Focus Group Study ◽  
Organic Foods ◽  
Positive Outlook ◽  
Food Sales

AbstractIn Australia, the retail value of organic food production was estimated at A$250 million, with farm-gate value at around A$90 million and exports at around A$40 million, in 2002. The current share of organic sales in total food sales in Australia is about 1%. The growth rate in organic production was forecast to continue at 10–30% per annum. Despite the positive outlook, there are consumer concerns about product recognition and product integrity. To understand how demand for organic products is changing, it is important to investigate consumer attitudes and knowledge about these issues. The objective of this study was to identify issues that may hinder or promote demand. Given the qualitative nature of these issues, we used a focus group study to probe consumers. While focus group results are a qualitative approach and not intended to be generalizable, the results suggest directions for future research. The participants raised concerns about the use of chemicals, the treatment of farm animals and the environmental impact of food production. Organic food consumers were found to be more knowledgeable about organic foods, as well as being more tolerant of higher prices and inaccessibility. The results also suggest that increasing consumers' awareness of organic farming and certification, as well as the availability of organic foods, may be the most effective way of moving organic foods into mainstream.

Mixed Methods Research in Knowledge Management Studies (2009–2014): A Content Analysis of Journal Articles

2020 ◽  
Vol 19 (03) ◽  
pp. 2050016
Author(s):  
Patrick Ngulube
Keyword(s):  
Knowledge Management ◽  
Content Analysis ◽  
Mixed Methods ◽  
Mixed Methods Research ◽  
Qualitative Content Analysis ◽  
Reliability And Validity ◽  
Social Contexts ◽  
Future Research ◽  
Qualitative Approaches ◽  
Complex Design

The purpose of this article is to investigate the adoption and utilisation of mixed methods research (MMR) in an emerging field, such as knowledge management (KM). Methodologies used by researchers have a bearing on the reliability and validity of the knowledge they produce. There is need to explore the prevalence in use of various methodologies over time. Such studies provide researchers time to reflect on their research practices. It is important to reflect on how researchers are adopting and utilising MMR approaches and what can be done to improve methodological approaches in research. A qualitative content analysis of articles from five leading KM-centric journals published between 2009 and 2014 was conducted for the research purpose. Our findings contribute to a better understanding of the utilisation of MMR in KM and provide guidance for those seeking to learn about and apply MMR approaches in research in context. Only 1.1% of the studies were classified as representing some form of MMR. Of the eight articles that were sampled, five of them did not explicitly identify themselves as MMR studies. Two of the articles did not give reasons for combining quantitative and qualitative approaches. None of the studies that were examined identified the MMR approach that was employed. Four of the MMR studies were exploratory, three were explanatory and one was convergent. All the articles were partially mixed studies. Few researchers indicated how they prioritised qualitative and quantitative strands. A handful of sampled studies used MMR and employed basic design typologies in contrast to complex typologies. It is recommended that KM research should embrace MMR and use complex design typologies in order to enhance their understanding of the complex problems that KM scholars encounter. Methodological pluralism has the potential of contributing to the growth in knowledge and development of many perspectives in the field: an appreciation of the advantages of using MMR and its potential to provide a holistic, innovative and robust perspective of research phenomena. The selection criteria in this study excluded other journals that cover KM research. Further research may uncover whether the prevalence rates reported in this study are consistent with those journals which were excluded in this study. Methodologies used by researchers for different kinds of research may be different. The research method employed in this study does not have the ability to establish that. Future studies may employ interviews and other data collection techniques in order to triangulate methods to determine why MMR was not prevalent. The future research directions should consider the extent to which personal, interpersonal and social contexts influence researchers to use MMR.

scholarly journals Factors related to sleep behavior in adolescents: a focus group study

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
A Vandendriessche ◽  
B Deforche ◽  
M Verloigne
Keyword(s):  
Focus Group ◽  
Psychosocial Factors ◽  
Self Efficacy ◽  
Intervention Development ◽  
Behavior Intervention ◽  
Future Research ◽  
Willingness To Participate ◽  
Focus Group Study ◽  
Sleep Behavior ◽  
Positive Attitudes

Abstract Background Adolescents' sleep behavior has deteriorated over the last decades. However, little research has been conducted into possible psychosocial factors related to this behavior, which is an important prerequisite to develop effective sleep behavior interventions. In addition, previous research showed that actively involving adolescents in the development of interventions increases the chance of effectivity and sustainability. This study examined psychosocial factors related to sleep behavior in adolescents and investigated adolescents' willingness to participate in the development of a sleep behavior intervention. Methods Nine focus group interviews were conducted with seventy-two students (63,9% girls, 14.8 (±1.0) years) using a standardized interview guide. Interviews were audio-recorded and thematic content analysis was performed using Nvivo 11. Results Adolescents had adequate knowledge of sleep hygiene and short-term consequences of sleep deficiency, but limited knowledge of sleep norms and long-term consequences. Positive attitudes towards sleep were outweighed by positive attitudes towards other behaviours such as screen time. Leisure activities, smartphones, television, schoolwork, early school time and worrying were mentioned as barriers for healthy sleep. Adolescents showed low self-efficacy towards changing their sleep behaviors and perceived a negative social norm towards sleep. Although some adolescents indicated parental rules to have a positive influence on their sleep, others indicated these sometimes provoked frustration. Finally, adolescents emphasized the importance of their participation in the development of a sleep behavior intervention at school, although adult guiding would be needed. Conclusions Future interventions promoting heathy sleep in adolescents could focus on psychosocial factors such as knowledge, attitudes, barriers, self-efficacy and social perceived norm and could involve adolescents in intervention development. Key messages Future interventions promoting heathy sleep in adolescents should in addition to knowledge, also focus on psychosocial factors such as attitudes, self-efficacy and perceived social norms. Adolescents emphasize the importance of their participation in the development of a sleep behavior intervention. This approach could be worth trying in future research.

scholarly journals Public preferences for communicating personal genomic risk information: a focus group study

2015 ◽  
Vol 19 (6) ◽  
pp. 1203-1214 ◽  
Author(s):  
Amelia K. Smit ◽  
Louise A. Keogh ◽  
Jolyn Hersch ◽  
Ainsley J. Newson ◽  
Phyllis Butow ◽  
...  
Keyword(s):  
Focus Group ◽  
Risk Information ◽  
Focus Group Study ◽  
Public Preferences ◽  
Personal Genomic ◽  
Genomic Risk

What does ?A gene for heart disease? mean? A focus group study of public understandings of genetic risk factors

2003 ◽  
Vol 119A (2) ◽  
pp. 156-161 ◽  
Author(s):  
Benjamin R. Bates ◽  
Alan Templeton ◽  
Paul J. Achter ◽  
Tina M. Harris ◽  
Celeste M. Condit
Keyword(s):  
Risk Factors ◽  
Heart Disease ◽  
Focus Group ◽  
Genetic Risk ◽  
Genetic Risk Factors ◽  
Focus Group Study

scholarly journals Group or individual Lifestyle-integrated Functional Exercise (LiFE)? A qualitative analysis of acceptability

2020 ◽  
Author(s):  
Leah Reicherzer ◽  
Franziska Kramer-Gmeiner ◽  
Sarah Labudek ◽  
Carl-Philipp Jansen ◽  
Corinna Nerz ◽  
...  
Keyword(s):  
Focus Group ◽  
Large Scale ◽  
Qualitative Content Analysis ◽  
Peer Group ◽  
Subjective Effects ◽  
Successful Implementation ◽  
Focus Group Study ◽  
Content Structure ◽  
Functional Exercise ◽  
Category Formation

Abstract Background: The Lifestyle-integrated Functional Exercise (LiFE) program is an effective but resource-intensive fall prevention program delivered one-to-one in participants’ homes. A recently developed group-based LiFE (gLiFE) could enhance large-scale implementability and decrease resource intensity. The aim of this qualitative focus group study is to compare participants’ experiences regarding acceptability of gLiFE vs LiFE.Methods: Programs were delivered in seven group sessions (gLiFE) or seven individual home visits (LiFE) within a multi-center, randomized non-inferiority trial. Four structured focus group discussions (90 – 100 minutes duration; one per format and study site) on content, structure, and subjective effects of gLiFE and LiFE were conducted. Qualitative content analysis using the method of inductive category formation by Mayring was applied for data analysis. Coding was managed using NVivo.Results: In both formats, participants (N=30, 22 women, ngLiFE=15, nLiFE=15, mean age 78.5±6.6 years) were positive about content, structure, and support received by trainers. Participants reflected on advantages of both formats: the social aspects of learning the program in a peer group (gLiFE), and benefits of learning the program at home (LiFE). In gLiFE, some difficulties with the implementation of activities were reported. In both formats, the majority of participants reported positive outcomes and successful implementation of new movement habits.Conclusion: This is the first study to examine participants’ views on and experiences with gLiFE and LiFE, revealing strengths and limitations of both formats that can be used for program refinement. Both formats were highly acceptable to participants, suggesting that gLiFE may have similar potential to be adopted by adults aged 70 years and older compared to LiFE.

scholarly journals Exploring Prostate Cancer Patients’ Interest and Preferences for Receiving Genetic Risk Information About Cancer Aggressiveness

2020 ◽  
Vol 14 (3) ◽  
pp. 155798832091962
Author(s):  
Siddhartha Roy ◽  
Clement K. Gwede ◽  
Teri L. Malo ◽  
Courtney L. Scherr ◽  
Selina Radlein ◽  
...  
Keyword(s):  
Prostate Cancer ◽  
Cancer Patients ◽  
Treatment Option ◽  
Genetic Risk ◽  
Risk Information ◽  
Future Research ◽  
Aggressive Prostate Cancer ◽  
Genetic Risk Information ◽  
Cancer Aggressiveness ◽  
To Receive

The number of cases of aggressive prostate cancer is increasing. Differentiating between aggressive and indolent cases has resulted in increased difficulty for the physician and patient to decide on the best treatment option. Due to this challenge, efforts are underway to profile genetic risk for prostate cancer aggressiveness, which may help physicians and patients at risk for developing aggressive prostate cancer to select an appropriate treatment option. This study explores patients’ interest in receiving genetic results, preference for how genetic risk information should be communicated, and willingness to share results with adult male first-degree relatives (FDRs). A nine-item survey was adapted to assess their beliefs and attitudes about genetic testing for prostate cancer aggressiveness. In addition, participants ( n = 50) responded to hypothetical scenarios and questions associated with perceived importance of risk disclosure, preferences for receiving genetic risk information, and sharing of results with FDRs. As the hypothetical risk estimate for aggressive prostate cancer increased, patients’ willingness to receive genetic risk information increased. This study found that most patients preferred receiving genetic risk education in the form of a DVD (76%), one-page informational sheet (75%), or educational booklet (70%). Almost all patients (98%) reported that they would be willing to share their test results with FDRs. The results of this study highlight prostate cancer patients’ desire to receive and share genetic risk information. Future research should focus on assessing the long-term benefits of receiving genetic information for prostate cancer patients and implications of sharing this information with FDRs.

Nexus between risk disclosure and corporate reputation: a longitudinal approach

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Nischay Arora ◽  
Ridhima Saggar ◽  
Balwinder Singh
Keyword(s):  
Corporate Reputation ◽  
Market Value ◽  
Risk Information ◽  
Future Research ◽  
Risk Disclosure ◽  
Total Risk ◽  
Content Type ◽  
Book Value ◽  
Market Capitalization ◽  
The Impact

PurposeThe study aims to explore the unexplored domain by examining the impact of risk disclosure on corporate reputation in an emerging economy, like India, characterized by huge information asymmetry and uncertainty.Design/methodology/approachIn total two measures of corporate reputation, i.e. market capitalization and excess of market value over book value have been deployed to measure reputation. Automated content analysis has been executed to measure the extent of total risk disclosure. The empirical analysis is premised on a sample of S&P BSE-100 index spanning over the period of ten years from 2009–2010 to 2018–2019; which eventually gets reduced to 58 nonfinancial firms. In order to unearth the risk–reputation relationship, a panel regression technique has been employed.FindingsThe main findings unmask that corporate risk disclosure has a positive bearing on corporate reputation. Substantiating legitimacy theory, its alternative measures like market capitalization and excess of market value over book value divulged to positively influence corporate reputation.Research limitations/implicationsThe study has certain limitations: since there is no standard method of measuring reputation, the results may vary subject to the changes in proxies of corporate reputation. The study also analyzed S&P BSE 100 index in India, and future research needs to approach a larger sample and in other emerging economies to fill up enough empirical evidence in this domain.Practical implicationsThe findings provide insight into the managers on making higher divulgence of material risk information for augmenting corporate reputation. In other words, it indirectly propels the firm to exhibit higher risk information for building reputational capital. From the investor's standpoint, they should admire such firms which dispel more risk information and should have positive outlook toward them, which in turn prompts them to disclose more risks.Originality/valueThis study is unique as it is the first longitudinal study examining the impact of risk disclosure on corporate reputation in Indian settings. It, thus, assists in furthering the risk disclosure literature where there is hardly any study that comprehensively looks into risk–reputation liaison among Indian nonfinancial companies.

scholarly journals Coping Processes of Patients with Ostomies in South Korea: A Focus Group Study

Healthcare ◽  
2020 ◽  
Vol 9 (1) ◽  
pp. 21
Author(s):  
Heesook Son ◽  
Youngmi Kang
Keyword(s):  
Focus Group ◽  
South Korea ◽  
Qualitative Content Analysis ◽  
Focus Group Interviews ◽  
Focus Group Study ◽  
Coping Process ◽  
Lack Of Information ◽  
Data Saturation ◽  
Negative Coping ◽  
Group Interviews

Despite the adverse effects of negative coping after receiving a stoma, there is a lack of information on how patients cope with ostomies and on their families’ experiences throughout the coping process. We aimed to explore the coping experiences of individuals with ostomies throughout their illness, applying the Corbin and Strauss Chronic Illness Trajectory Framework, using exploratory qualitative methods involving focus group interviews. Purposive sampling was utilized to recruit 19 participants (split across three groups) through an ostomy association in South Korea. Two focus group interviews were separately conducted from March through to May 2017 until data saturation was achieved. Using qualitative content analysis, we analyzed the transcribed interviews and identified words and themes to interpret the results. The coping experiences of patients with ostomies were expressed through three interrelated themes: struggling and suffering, learning how to live with ostomy, and living with ostomy. We found gender differences in spousal support and a struggle among older patients regarding social coping. The themes identified suggest that gender should be considered when designing interventions to help patients cope with ostomies.

scholarly journals Exploring the Potential Emotional and Behavioural Impact of Providing Personalised Genomic Risk Information to the Public: A Focus Group Study

2015 ◽  
Vol 18 (5) ◽  
pp. 309-317 ◽  
Author(s):  
Amelia K. Smit ◽  
Louise A. Keogh ◽  
Ainsley J. Newson ◽  
Jolyn Hersch ◽  
Phyllis Butow ◽  
...  
Keyword(s):  
Focus Group ◽  
Risk Information ◽  
Focus Group Study ◽  
The Public ◽  
Genomic Risk
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