scholarly journals Needs and Experiences of Children and Adolescents with Pediatric Multiple Sclerosis and Their Caregivers: A Systematic Review

Children ◽  
2021 ◽  
Vol 8 (6) ◽  
pp. 445
Author(s):  
Shashank Ghai ◽  
Elisabeth Kasilingam ◽  
Roberta Lanzillo ◽  
Masa Malenica ◽  
Vincent van Pesch ◽  
...  
Keyword(s):  
Mental Health ◽  
Multiple Sclerosis ◽  
Social Support ◽  
Systematic Review ◽  
Social Relationships ◽  
School Performance ◽  
Mixed Method ◽  
Pediatric Multiple Sclerosis ◽  
Negative Impacts

In the present study we conduct a systematic review to evaluate the needs and experience of people with pediatric multiple sclerosis (MS) and their caregivers. The literature search was conducted across 10 academic databases, adhering to PRISMA-P guidelines. Quality appraisal was conducted using the mixed method appraisal test for individual studies, and GRADE-CERQual to establish overall confidence of findings. Results were analyzed using a process of narrative synthesis. We identified 26 studies which included 2253 children/adolescents with MS (CAMS) and 1608 caregivers. MS was reported to negatively impact experiences for CAMS in domains such as of school performance, social relationships, mental health, and overall physical functioning. Specifically, fatigue and social support were reported as the most important barriers and facilitators for CAMS, respectively. In terms of caregiver experience, negative impacts were reported on social functioning, mental health, and quality of life. Additionally, lack of awareness concerning MS was one of the biggest challenges reported. Caregivers expressed needs for psychological and social support. This study provides the first evidence regarding the needs and experiences of CAMS and their caregivers. Findings can be used to address policy gaps for supporting families affected by pediatric MS.

Abstract 93: How is the Quality of Life and the Psychosocial Adjustment affected in Patients with Congenital Heart Disease?

2012 ◽  
Vol 5 (suppl_1) ◽  
Author(s):  
Marta Castro ◽  
Isabela Freitas ◽  
Sofia Sarmento ◽  
Flávio Teixeira ◽  
Rosália Coelho ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Social Relationships ◽  
School Performance ◽  
Psychosocial Adjustment ◽  
Congenital Heart ◽  
Negative Impact ◽  
Psychiatric Morbidity ◽  
Physical Limitations

Introduction: High rates of survival in Congenital Heart Disease (CHD) allowed patients to face different challenges in life cycle, and made the topics on adjustment and quality of life more and more central in healthcare. Hypothesis: We tested the hypothesis that CHD has a negative impact over psychosocial adjustment, psychiatric morbidity, quality of life and school performance, and that the severity of disease and the number of surgeries increase the negative impact over adjustment and the social support generates a buffer, good effect on it. Objective: We aimed to study Quality of Life (QOL), Psychosocial Adjustment (PSA), Psychiatric Morbidity, School Performance, Physical Limitations, and Social Support of adolescents and young adults with CHD. Methods: We evaluated 110 CHD patients, 62 males, aged from 12 to 26 years old (M=18.00 ± 3.62), 58 cyanotic. The participants were interviewed on such topics as social support, family/educational background, self-image, physical limitations and emotional adjustment, were administered a standardized psychiatric interview (SADS-L) and completed self-report questionnaires on QOL (WHOQOL-BREF) and PSA (YSR and ASR). Observational versions of the same questionnaires (CBCL, ABCL) were filled by one of their relatives. Full clinical and demographic history was collected. Results: We found a 22% rate of lifetime prevalence of psychopathology (14.5% in males and 31.3% in females) and 50% of school retentions (M=1.50 years + 0.50). Patients with severe forms of CHD showed worse PSA than those with moderate and mild forms of illness (internalization: u=939.000; p=0.030), the cyanotic versus acyanotic and those with moderate-to-severe residual lesions versus mild ones have worse QOL on physical dimension; those submitted to surgery showed worse QOL on physical (t=-2.525; p=0.013), psychological (t=-2.394; p=0,018), social relationships (t=-2.502; p=0,014) and general (u=1294,000; p=0.006) dimensions, and worse PSA (more withdrawn: u=719,000; p=0,037). Social support has a great impact improving patients’ physical (t=2.707; p=0,008), psychological (t= 2.755; p=0.007), social relationships (t=4.976; p=0,000), environment (t=3.085; p=0,003) and general (u=623.500; p=0,000) QOL and poorer social support resulted in more withdrawn (u=557.500; p=0.000) and social problems (u=748.500; p=0,023). Patients with more physical limitations showed worse physical (t=-2.093; p=0,039), psychological (t=-2.674; p=0.009) and general (u=971.500; p=0,002) QOL and more withdrawn (u=1023.000; p=0,015). Female patients showed more somatic complaints (u=260.000;p=0,011), anxiety/ depression (u=984.000;p=0,002), aggressive behavior (u=920.500;p=0,001), thought problems (u=1069.500;p=0,010), internalization (u=869.000;p=0,000) and externalization (u=1163.000; p=0,050). Good performance in school also showed a significant impact incrementing QOL and PSA. Conclusion: We concluded that we should set a special emphasis in maximizing social support and improving school performance, when supplying care in CHD, as they have a positive impact over self-confidence of patients and life adjustment.

scholarly journals ¿Podemos mejorar nuestra salud mental a través de la Danza?: una revisión sistemática (Can we improve mental health dancing?: A systematic review)

Retos ◽  
2015 ◽  
pp. 194-197
Author(s):  
Carmen Padilla Moledo ◽  
Javier Coterón López
Keyword(s):  
Mental Health ◽  
Systematic Review ◽  
Social Relationships ◽  
Family Relationships ◽  
Energy Levels ◽  
Calidad De Vida ◽  
Revisión Sistemática ◽  
Salud Mental ◽  
Reported Health

El presente artículo aporta una revisión sistemática sobre la posible influencia positiva de la danza sobre la salud mental. La revisión fue realizada entre febrero y mayo de 2013 incluyendo las siguientes bases de datos: MEDLINE, APAPsycNet, SPORTDiscus, y Google Academic. Sobre una base inicial de 1.262 artículos se seleccionaron un total de quince que correspondían con los criterios de inclusión de este trabajo. De estos quince estudios, doce de ellos hallaron que a través de un programa de intervención en danza los sujetos mejoraban los niveles de diferentes indicadores de salud mental tales como: estados de ánimo (depresión, niveles de energía, stress, ansiedad, angustia, preocupación), relaciones sociales y con los padres, autoestima, emociones negativas, bienestar, salud autopercibida, confianza en sí mismo, autoimágen corporal y calidad de vida. Aún a pesar de las limitaciones de los estudios presentados en esta revisión. Creemos que se abre una ventana para la consideración de la danza como estrategia de intervención válida para la mejora de la salud mental. No obstante, se trata de un área poco explorada que necesita un mayor número de estudios.Palabras clave: danza, salud mental.Abstract: this article reports a systematic review of literature published between february and may 2013 about the influence of dance on mental health. As database we use: MEDLINE, APAPsycNet, SPORTDiscus, y Google Academic. Over a possible database of 1.262 papers, a total of fifteen studies were selected (related to inclusion criteria of this study), twelve of them reported that dance improves levels of different indicators of mental health such as: mood (depressión, energy levels, stress, anxiety, distress, concern), social relationships, family relationships, self-esteem, negative affect, wellbeing, self-reported health, confidence, body image and quality of life. Although researches presented show several limitations. We think this review is the beginning for considering dance interventions programmes as an instrument for improving mental health. Anyway is a new area to explore and more research is need.Keywords: dance, mental Elath.

scholarly journals Loneliness as a mediator of social relationships and health-related quality of life among refugees living in North Rhine-Westphalia, Germany

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Matthias Hans Belau ◽  
Heiko Becher ◽  
Alexander Kraemer
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Social Support ◽  
Social Integration ◽  
Social Relationships ◽  
Health Related Quality ◽  
Mediation Analyses ◽  
Related Quality ◽  
Health Related

Abstract Background Since 2015, more than one million people fled to Germany – mainly from war-affected countries. Nevertheless, little is known about social determinants in refugees located in Germany. This study aims to test the mediation effect of loneliness between social relationships, comprising social integration and social support, and health-related quality of life among refugees living in North Rhine-Westphalia, Germany. Methods The investigation utilizes data from the FlueGe Health Study (N=326), a cross-sectional study conducted by Bielefeld University. The data was collected between February and November 2018 and included interviews and examinations. Participants were recruited from shared and private accommodation in several cities in North Rhine-Westphalia, Germany. We first analyzed correlations between social integration, social support, loneliness, and physical and mental component of health-related quality of life. We then conducted mediation analyses using structural equation modeling. Results The majority of respondents were socially isolated, perceiving a moderate degree of loneliness and social support. In addition, the physical and mental components of health-related quality of life indicate that participants predominantly experienced mental rather than physical impairments. Results from mediation analyses showed indirect effects of loneliness on the association between social integration and mental health (ß = 0.495, 95% bias-corrected and accelerated confidence interval (BCa CI) = [0.018, 0.972]), and between social support and both physical (ß = 0.022, 95% BCa CI = [0.004, 0.040]) and mental health (ß = 0.067, 95% BCa CI = [0.037, 0.097]). Conclusions Loneliness played a mediating role in the association between social relationships and health-related quality of life among refugees living in North Rhine-Westphalia, Germany. The results provide implications for both, health policy and the host society.

Social support is linked to mental health, quality of life, and motor function in multiple sclerosis

2021 ◽  
Author(s):  
Anne Kever ◽  
Korhan Buyukturkoglu ◽  
Claire S. Riley ◽  
Philip L. De Jager ◽  
Victoria M. Leavitt
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Multiple Sclerosis ◽  
Social Support ◽  
Motor Function ◽  
Health Quality ◽  
Health Quality Of Life

scholarly journals Vitamin D Supplementation and Mental Health in Multiple Sclerosis Patients: A Systematic Review

Nutrients ◽  
2021 ◽  
Vol 13 (12) ◽  
pp. 4207
Author(s):  
Dominika Głąbska ◽  
Aleksandra Kołota ◽  
Katarzyna Lachowicz ◽  
Dominika Skolmowska ◽  
Małgorzata Stachoń ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Multiple Sclerosis ◽  
Systematic Review ◽  
Vitamin D ◽  
Depressive Symptoms ◽  
Positive Influence ◽  
Vitamin D Supplementation ◽  
Multiple Sclerosis Patients

Vitamin D has a promising role in multiple sclerosis (MS) management, and it has been found to be beneficial for patients’ mental health, which is reduced in MS patients. The aim of the present study was to conduct a systematic review of the literature to assess the influence of vitamin D supplementation on mental health in MS patients. The systematic review was registered in the PROSPERO database (CRD42020155779) and it was conducted on the basis of the PRISMA guidelines. The search procedure was conducted using PubMed and Web of Science databases and it included studies published up until September 2021. Six studies were included in the systematic review. The risk of bias was analyzed using the Newcastle–Ottawa Scale (NOS). Within the included studies, there were two studies randomized against placebo and four other prospective studies. The studies presented vitamin D interventions randomized against placebo or not randomized, while supplementation was applied for various durations—from 4 weeks to 12 months, or the studies compared patients who applied vitamin D supplementation and those who did not apply it and verified the effect of the supplementation after a number of years. The mental health outcomes that were assessed included quality of life, depression/depressive symptoms, and fatigue as an additional element. The majority of studies supported the positive influence of vitamin D on the mental health of MS patients, including the study characterized as having the highest quality (randomized against placebo with the highest NOS score). All the studies that assessed the quality of life indicated the positive influence of vitamin D while the studies that did not find a positive influence of vitamin D were conducted for depression/depressive symptoms. In spite of the fact that only a small number of studies have been conducted so far, and only two studies were randomized against a placebo, some conclusions may be formulated. The systematic review allowed us to conclude that there may be a positive effect of vitamin D supplementation in MS patients, which was stated in all of the studies analyzing quality of life, as well as in one study analyzing depressive symptoms. Considering that vitamin D deficiency is common in MS patients, and the potential positive influence of supplementation on the quality of life, supplementation should be applied at least in doses that cover the recommended intake.

scholarly journals A Disproportionate Burden of Care: Gender Differences in Mental Health, Health-Related Quality of Life, and Social Support in Mexican Multiple Sclerosis Caregivers

2015 ◽  
Vol 2015 ◽  
pp. 1-9 ◽  
Author(s):  
Paul B. Perrin ◽  
Ivan Panyavin ◽  
Alejandra Morlett Paredes ◽  
Adriana Aguayo ◽  
Miguel Angel Macias ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Multiple Sclerosis ◽  
Social Support ◽  
Latin America ◽  
Women Caregivers ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background. Multiple sclerosis (MS) rates in Latin America are increasing, and caregivers there experience reduced mental and physical health. Based on rigid gender roles in Latin America, women more often assume caregiving duties, yet the differential impact on women of these duties is unknown.Methods. This study examined gender differences in mental health (Patient Health Questionnaire-9, Satisfaction with Life Scale, Rosenberg Self-Esteem Scale, State-Trait Anxiety Inventory, and Zarit Burden Inventory), health-related quality of life (HRQOL; Short Form-36), and social support (Interpersonal Support Evaluation List-12) in 81 (66.7% women) Mexican MS caregivers.Results. As compared to men caregivers, women had lower mental health (p=0.006), HRQOL (p<0.001), and social support (p<0.001). This was partially explained by women caregivers providing care for nearly twice as many hours/week as men (79.28 versus 48.48,p=0.018) and for nearly three times as many months (66.31 versus 24.30,p=0.002).Conclusions. Because gender roles in Latin America influence women to assume more substantial caregiving duties, MS caregiver interventions in Latin America—particularly for women caregivers—should address the influence of gender-role conformity on care and psychosocial functioning.

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