scholarly journals Body Composition and Pulmonary Function in Cystic Fibrosis

2014 ◽  
Vol 2 ◽  
Author(s):  
Saba Sheikh ◽  
Babette S. Zemel ◽  
Virginia A. Stallings ◽  
Ronald C. Rubenstein ◽  
Andrea Kelly
Keyword(s):  
Cystic Fibrosis ◽  
Body Composition ◽  
Pulmonary Function

Effects of megestrol acetate on weight gain, body composition, and pulmonary function in patients with cystic fibrosis

2002 ◽  
Vol 140 (4) ◽  
pp. 439-444 ◽  
Author(s):  
Valerie Eubanks ◽  
Nicki Koppersmith ◽  
Nancy Wooldridge ◽  
J.P. Clancy ◽  
Raymond Lyrene ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Body Composition ◽  
Weight Gain ◽  
Pulmonary Function ◽  
Megestrol Acetate

Association between body composition and pulmonary function in children and young people with cystic fibrosis

Nutrition ◽  
2018 ◽  
Vol 48 ◽  
pp. 73-76 ◽  
Author(s):  
Patrizia Calella ◽  
Giuliana Valerio ◽  
Matt Thomas ◽  
Helen McCabe ◽  
Jake Taylor ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Body Composition ◽  
Young People ◽  
Pulmonary Function ◽  
Children And Young People

Pulmonary Function, Body Composition, and Protein Catabolism in Adults with Cystic Fibrosis

2002 ◽  
Vol 165 (4) ◽  
pp. 495-500 ◽  
Author(s):  
ALINA A. IONESCU ◽  
LISETTE S. NIXON ◽  
STEPHEN LUZIO ◽  
VANESSA LEWIS-JENKINS ◽  
WILLIAM D. EVANS ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Body Composition ◽  
Pulmonary Function ◽  
Protein Catabolism

scholarly journals Health Disparities among adults cared for at an urban cystic fibrosis program

2021 ◽  
Vol 16 (1) ◽  
Author(s):  
Emily DiMango ◽  
Kaitlyn Simpson ◽  
Elizabeth Menten ◽  
Claire Keating ◽  
Weijia Fan ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
New York ◽  
New York City ◽  
Health Disparities ◽  
Pulmonary Function ◽  
Health Outcomes ◽  
York City ◽  
Median Income ◽  
Cross Sectional ◽  
Caucasian Patients

Abstract Background Evidence is conflicting regarding differential health outcomes in racial and ethnic minorities with cystic fibrosis (CF), a rare genetic disease affecting approximately 28,000 Americans. We performed a cross-sectional analysis of health outcomes in Black/Latinx patients compared with non-Hispanic Caucasian patients cared for in a CF center in New York City. Adult patients enrolled in the CF Foundation Patient Registry at the Columbia University Adult CF Program and seen at least once during 2019 were included. Health metrics were compared between Black/Latinx and non-Hispanic Caucasian patients. Results 262 patients were eligible. 39 patients (15%) identified as Black/Latinx or non-Hispanic Caucasian. Descriptive statistics are reported with mean (standard deviation). Current age was 35.9 (13.3) years for non-Hispanic Caucasian and 32.0 (9.3) years for Black/Latinx patients (p = 0.087). Age of diagnosis did not differ between groups; 9.56 (15.96) years versus 11.59 (15.8) years for non-Hispanic Caucasian versus Black/Latinx respectively (p = 0.464). Pulmonary function, measured as mean forced expiratory volume in one second (FEV1) was 70.6 (22.5) percent predicted in non-Hispanic Caucasian versus 59.50 (27.9) percent predicted in Black/Latinx patients (p = 0.010). Number of visits to the CF clinic were similar between groups. When controlled for age, gender, co-morbidities, median income, and insurance status, there was a continued association between minority status and lower FEV1. Conclusions Minorities with CF have significantly lower pulmonary function, the major marker of survival, than non-Hispanic Caucasians, even when controlled for a variety of demographic and socioeconomic factors that are known to affect health status in CF. Significant health disparities based on race and ethnicity exist at a single CF center in New York City, despite apparent similarities in access to guideline based care at an accredited CF Center. This data confirms the importance of design of culturally appropriate preventative and management strategies to better understand how to direct interventions to this vulnerable population with a rare disease.

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