scholarly journals Types of information needs among cancer patients : a systematic review

2005 ◽  
Vol 15 (2) ◽  
Author(s):  
Ankem Kalyani
Keyword(s):  
Systematic Review ◽  
Cancer Patients ◽  
Information Needs ◽  
Types Of Information

scholarly journals Use of Mobile Devices to Help Cancer Patients Meet Their Information Needs in Non-Inpatient Settings: Systematic Review

10.2196/10026 ◽  
2018 ◽  
Vol 6 (12) ◽  
pp. e10026 ◽  
Author(s):  
Rebecca Richards ◽  
Paul Kinnersley ◽  
Kate Brain ◽  
Grace McCutchan ◽  
John Staffurth ◽  
...  
Keyword(s):  
Systematic Review ◽  
Cancer Patients ◽  
Mobile Devices ◽  
Information Needs ◽  
Inpatient Settings

scholarly journals What Are the Unmet Information Needs of Cancer Patients? A Qualitative Study

2017 ◽  
Vol 9 (12) ◽  
pp. 114 ◽  
Author(s):  
Fatima Yatim ◽  
Paula Cristofalo ◽  
Etienne Minvielle
Keyword(s):  
Cancer Patients ◽  
Information Needs ◽  
Qualitative Method ◽  
Healthcare Professionals ◽  
Medical Information ◽  
Holistic Approach ◽  
Cancer Center ◽  
Organizational Information ◽  
Cost Efficient ◽  
Types Of Information

OBJECTIVE: Identify the unmet information needs of cancer patients and understand the causes of patients’ dissatisfactionMETHODS: A qualitative method using interviews with cancer patients attending a Meeting and Information Area (ERI) at Gustave Roussy cancer center (France), and focus groups with the ERI professionals. The data were analysed using vertical and horizontal open coding.RESULTS: Firstly, the needs for medical information are important, but there are other types of information that patients need (e.g. organizational information). Secondly, patients’ dissatisfaction is not linked only to the lack of medical information; it also reflects other needs, which are not taken into account (e.g. accompanying information to make it understandable and useful). Thirdly, the relationships established over time between patients and professionals make possible the emergence of latent needs (ranging from basic information needs to requests for psychological support).CONCLUSION: Information must be considered in an integrated and holistic approach to facilitate patients’ navigation and improve their health literacy.PRACTICE IMPLICATIONS: The training of healthcare professionals is crucial, but this is not enough. The introduction of other, non-carers professionals is necessary to address a broad range of patients’ needs in a more effective and cost-efficient way.

scholarly journals Information Needs of Breast Cancer Patients: Theory-Generating Meta-Synthesis (Preprint)

2020 ◽  
Author(s):  
Hongru Lu ◽  
Juan Xie ◽  
Lynette Hammond Gerido ◽  
Ying Cheng ◽  
Ya Chen ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Information Needs ◽  
Disease Status ◽  
Cochrane Library ◽  
Theory Approach ◽  
Breast Cancer Patients ◽  
Moderating Variables ◽  
Types Of Information

BACKGROUND Breast cancer has become one of the most frequently diagnosed carcinomas and the leading cause of cancer deaths. The substantial growth in the number of breast cancer patients has put great pressure on health services. Meanwhile, the information patients need has increased and become more complicated. Therefore, a comprehensive and in-depth understanding of their information needs is urgently needed to improve the quality of health care. However, previous studies related to the information needs of breast cancer patients have focused on different perspectives and have only contributed to individual results. A systematic review and synthesis of breast cancer patients’ information needs is critical. OBJECTIVE This paper aims to systematically identify, evaluate, and synthesize existing primary qualitative research on the information needs of breast cancer patients. METHODS Web of Science, EBSCO, Scopus, ProQuest, PubMed, PsycINFO, The Cochrane Library, the Cumulative Index to Nursing and Allied Health Literature were searched on February 12 and July 9, 2019, to collect relevant studies. A Google Scholar search, interpersonal network recommendations, and reference chaining were also conducted. Eligible studies included qualitative or mixed-methods studies focusing on the information needs (across the cancer continuum) of breast cancer patients or their social networks. Subsequently, a Critical Appraisals Skills Programme checklist was used to assess the quality of included research. The results, findings, and discussions were extracted. Data analysis was guided by the theory-generating meta-synthesis and grounded theory approach. RESULTS Three themes, 19 categories, and 55 concepts emerged: (1) incentives (physical abnormality, inquiry from others, subjective norm, and problems during appointments); (2) types of information needs (prevention, etiology, diagnosis, clinical manifestation, treatment, prognosis, impact and resumption of normal life, scientific research, and social assistance); (3) moderating variables (attitudes, health literacy, demographic characteristics, disease status, as well as political and cultural environment). The studies revealed that the information needs of breast cancer patients were triggered by different incentives. Subsequently, the patients sought a variety of information among different stages of the cancer journey. Five types of variables were also found to moderate the formation of information needs. CONCLUSIONS This study contributes to a thorough model of information needs among breast cancer patients and provides practical suggestions for health and information professionals.

Information seeking for coping with cancer: a systematic review

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Emil Petersen ◽  
Jesper Gabs Jensen ◽  
Tove Faber Frandsen
Keyword(s):  
Systematic Review ◽  
Cancer Patients ◽  
Coping Strategy ◽  
Information Seeking ◽  
Information Needs ◽  
Information Science ◽  
Screening Process ◽  
Content Type ◽  
Life Threatening ◽  
The Impact

PurposeInformation seeking can be used to make sense of a situation or solve a problem. Information seeking can be considered a coping strategy when facing illness, crisis or other life-changing events. Cancer is a globally occurring, life-threatening disease, and this review aims to provide an overview of the existing literature on the active information seeking behaviour of cancer patients specifically focussing on how active information seeking serves as a coping strategy.Design/methodology/approachThis study adheres to current guidelines for conducting systematic reviews and consequently, thorough literature searches were conducted in four databases: Medline, Embase, CINAHL and Scopus which resulted in 7,179 publications. Following a careful screening process, this systematic review identifies 14 studies on the use of information seeking to cope with cancer.FindingsThe included studies consist of both qualitative and quantitative approaches to analysing the use of information seeking to cope with cancer. The included studies have focussed primarily on demographic factors, the impact of affect, information needs, sources and coping strategies.Research limitations/implicationsA number of research gaps within library and information science are identified. Bringing research in this field into information science could allow for a greater understanding of information literacy, the use of existing information and the process of information searching when using information seeking to cope with serious illness.Originality/valueThis systematic review focusses on how information seeking serves as a coping strategy for cancer patients and provides an overview of the recent literature.

scholarly journals Understanding and information needs of cancer patients regarding treatment‐focused genomic testing: A systematic review

2020 ◽  
Vol 29 (4) ◽  
pp. 632-638 ◽  
Author(s):  
Kamil Wolyniec ◽  
Jessica Sharp ◽  
Smaro Lazarakis ◽  
Linda Mileshkin ◽  
Penelope Schofield
Keyword(s):  
Systematic Review ◽  
Cancer Patients ◽  
Information Needs ◽  
Genomic Testing

scholarly journals Information Needs of Breast Cancer Patients: Theory-Generating Meta-Synthesis

10.2196/17907 ◽  
2020 ◽  
Vol 22 (7) ◽  
pp. e17907
Author(s):  
Hongru Lu ◽  
Juan Xie ◽  
Lynette Hammond Gerido ◽  
Ying Cheng ◽  
Ya Chen ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Patients ◽  
Information Needs ◽  
Disease Status ◽  
Cochrane Library ◽  
Theory Approach ◽  
Breast Cancer Patients ◽  
Moderating Variables ◽  
Types Of Information

Background Breast cancer has become one of the most frequently diagnosed carcinomas and the leading cause of cancer deaths. The substantial growth in the number of breast cancer patients has put great pressure on health services. Meanwhile, the information patients need has increased and become more complicated. Therefore, a comprehensive and in-depth understanding of their information needs is urgently needed to improve the quality of health care. However, previous studies related to the information needs of breast cancer patients have focused on different perspectives and have only contributed to individual results. A systematic review and synthesis of breast cancer patients’ information needs is critical. Objective This paper aims to systematically identify, evaluate, and synthesize existing primary qualitative research on the information needs of breast cancer patients. Methods Web of Science, EBSCO, Scopus, ProQuest, PubMed, PsycINFO, The Cochrane Library, the Cumulative Index to Nursing and Allied Health Literature were searched on February 12 and July 9, 2019, to collect relevant studies. A Google Scholar search, interpersonal network recommendations, and reference chaining were also conducted. Eligible studies included qualitative or mixed-methods studies focusing on the information needs (across the cancer continuum) of breast cancer patients or their social networks. Subsequently, a Critical Appraisals Skills Programme checklist was used to assess the quality of included research. The results, findings, and discussions were extracted. Data analysis was guided by the theory-generating meta-synthesis and grounded theory approach. Results Three themes, 19 categories, and 55 concepts emerged: (1) incentives (physical abnormality, inquiry from others, subjective norm, and problems during appointments); (2) types of information needs (prevention, etiology, diagnosis, clinical manifestation, treatment, prognosis, impact and resumption of normal life, scientific research, and social assistance); (3) moderating variables (attitudes, health literacy, demographic characteristics, disease status, as well as political and cultural environment). The studies revealed that the information needs of breast cancer patients were triggered by different incentives. Subsequently, the patients sought a variety of information among different stages of the cancer journey. Five types of variables were also found to moderate the formation of information needs. Conclusions This study contributes to a thorough model of information needs among breast cancer patients and provides practical suggestions for health and information professionals.

scholarly journals The extent to which cancer patients trust in cancer-related online information: a systematic review

PeerJ ◽  
2019 ◽  
Vol 7 ◽  
pp. e7634 ◽  
Author(s):  
Lukas Lange ◽  
Mona Leandra Peikert ◽  
Christiane Bleich ◽  
Holger Schulz
Keyword(s):  
Systematic Review ◽  
Cancer Patients ◽  
Health Care Providers ◽  
Information Needs ◽  
Cancer Information ◽  
The Internet ◽  
Systematic Research ◽  
Online Information ◽  
Care Providers ◽  
Related Information

Background The use of the internet to satisfy information needs is widespread among cancer patients. Patients’ decisions regarding whether to act upon the information they find strongly depend on the trustworthiness of the information and the medium. Patients who are younger, more highly educated and female are more likely to trust online information. The objectives of this systematic review were to examine the extent to which cancer patients trust in cancer-related online information, internet websites as a source of cancer-related information or the internet as a medium of cancer information. Methods A systematic review was conducted using five databases (PROSPERO registration number: CRD42017070190). Studies of any kind were included if they measured cancer patients’ trust in online health information. Study quality was assessed using the Research Triangle Institute (RTI) item bank. A narrative synthesis was undertaken to examine the included studies. Results Of the 7,314 citations obtained by the search, seven cross-sectional studies were included in the synthesis. A total of 1,054 patients reported having some or a great deal of trust in online cancer information; 154 patients reported moderately trusting such information; and 833 patients reported having no or little trust in online cancer information, internet websites as a source of cancer-related information or the internet as a medium of cancer-related information. Two of the seven studies reported between group comparisons for the above-stated patient characteristics. The methodological quality of the included studies was diverse. Conclusion The results of the included studies indicates that approximately half of cancer patients appear to trust cancer-specific online information, internet websites as a source of cancer-related information or the internet as an information medium. However, the small number of included studies, high heterogeneity of participants, methods and outcomes calls for further systematic research. It is important to understand that cancer patients do and will increasingly use trusted cancer information websites to search for information concerning their disease. Therefore, physicians and other health care providers should provide more support and advice to these patients.

Information needs and sources of information among cancer patients: a systematic review of research (1980–2003)

2005 ◽  
Vol 57 (3) ◽  
pp. 250-261 ◽  
Author(s):  
Lila J. Finney Rutten ◽  
Neeraj K. Arora ◽  
Alexis D. Bakos ◽  
Noreen Aziz ◽  
Julia Rowland
Keyword(s):  
Systematic Review ◽  
Cancer Patients ◽  
Information Needs ◽  
Sources Of Information
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