scholarly journals Understanding and information needs of cancer patients regarding treatment‐focused genomic testing: A systematic review

2020 ◽  
Vol 29 (4) ◽  
pp. 632-638 ◽  
Author(s):  
Kamil Wolyniec ◽  
Jessica Sharp ◽  
Smaro Lazarakis ◽  
Linda Mileshkin ◽  
Penelope Schofield
10.2196/10026 ◽  
2018 ◽  
Vol 6 (12) ◽  
pp. e10026 ◽  
Author(s):  
Rebecca Richards ◽  
Paul Kinnersley ◽  
Kate Brain ◽  
Grace McCutchan ◽  
John Staffurth ◽  
...  

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Emil Petersen ◽  
Jesper Gabs Jensen ◽  
Tove Faber Frandsen

PurposeInformation seeking can be used to make sense of a situation or solve a problem. Information seeking can be considered a coping strategy when facing illness, crisis or other life-changing events. Cancer is a globally occurring, life-threatening disease, and this review aims to provide an overview of the existing literature on the active information seeking behaviour of cancer patients specifically focussing on how active information seeking serves as a coping strategy.Design/methodology/approachThis study adheres to current guidelines for conducting systematic reviews and consequently, thorough literature searches were conducted in four databases: Medline, Embase, CINAHL and Scopus which resulted in 7,179 publications. Following a careful screening process, this systematic review identifies 14 studies on the use of information seeking to cope with cancer.FindingsThe included studies consist of both qualitative and quantitative approaches to analysing the use of information seeking to cope with cancer. The included studies have focussed primarily on demographic factors, the impact of affect, information needs, sources and coping strategies.Research limitations/implicationsA number of research gaps within library and information science are identified. Bringing research in this field into information science could allow for a greater understanding of information literacy, the use of existing information and the process of information searching when using information seeking to cope with serious illness.Originality/valueThis systematic review focusses on how information seeking serves as a coping strategy for cancer patients and provides an overview of the recent literature.


PeerJ ◽  
2019 ◽  
Vol 7 ◽  
pp. e7634 ◽  
Author(s):  
Lukas Lange ◽  
Mona Leandra Peikert ◽  
Christiane Bleich ◽  
Holger Schulz

Background The use of the internet to satisfy information needs is widespread among cancer patients. Patients’ decisions regarding whether to act upon the information they find strongly depend on the trustworthiness of the information and the medium. Patients who are younger, more highly educated and female are more likely to trust online information. The objectives of this systematic review were to examine the extent to which cancer patients trust in cancer-related online information, internet websites as a source of cancer-related information or the internet as a medium of cancer information. Methods A systematic review was conducted using five databases (PROSPERO registration number: CRD42017070190). Studies of any kind were included if they measured cancer patients’ trust in online health information. Study quality was assessed using the Research Triangle Institute (RTI) item bank. A narrative synthesis was undertaken to examine the included studies. Results Of the 7,314 citations obtained by the search, seven cross-sectional studies were included in the synthesis. A total of 1,054 patients reported having some or a great deal of trust in online cancer information; 154 patients reported moderately trusting such information; and 833 patients reported having no or little trust in online cancer information, internet websites as a source of cancer-related information or the internet as a medium of cancer-related information. Two of the seven studies reported between group comparisons for the above-stated patient characteristics. The methodological quality of the included studies was diverse. Conclusion The results of the included studies indicates that approximately half of cancer patients appear to trust cancer-specific online information, internet websites as a source of cancer-related information or the internet as an information medium. However, the small number of included studies, high heterogeneity of participants, methods and outcomes calls for further systematic research. It is important to understand that cancer patients do and will increasingly use trusted cancer information websites to search for information concerning their disease. Therefore, physicians and other health care providers should provide more support and advice to these patients.


2005 ◽  
Vol 57 (3) ◽  
pp. 250-261 ◽  
Author(s):  
Lila J. Finney Rutten ◽  
Neeraj K. Arora ◽  
Alexis D. Bakos ◽  
Noreen Aziz ◽  
Julia Rowland

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