scholarly journals The employment concerns of Americans with multiple sclerosis: Perspectives from a national sample

Work ◽  
2015 ◽  
Vol 52 (4) ◽  
pp. 735-748 ◽  
Author(s):  
Phillip D. Rumrill ◽  
Richard T. Roessler ◽  
Jian Li ◽  
Katherine Daly ◽  
Mykal Leslie
Keyword(s):  
Multiple Sclerosis ◽  
National Sample ◽  
Employment Concerns

scholarly journals Evaluation of a Novel Preference Assessment Tool for Patients with Multiple Sclerosis

2018 ◽  
Vol 20 (6) ◽  
pp. 260-267 ◽  
Author(s):  
Nananda F. Col ◽  
Andrew J. Solomon ◽  
Vicky Springmann ◽  
Carolina Ionete ◽  
Enrique Alvarez ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Assessment Tool ◽  
Preference Assessment ◽  
National Sample ◽  
Treatment Goals ◽  
Brain Health ◽  
Factors Influencing ◽  
Disease Modifying Therapies ◽  
Patient Goals ◽  
English Speaking

AbstractBackground:We developed a preference assessment tool to help assess patient goals, values, and preferences for multiple sclerosis (MS) management. All preference items in the tool were generated by people with MS. The aim of this study was to evaluate this tool in a national sample of people with MS.Methods:English-speaking patients with MS aged 21 to 75 years with access to the internet were recruited. Participants completed the preference tool online, which included separate modules assessing three core preference areas: treatment goals, preferences for attributes of disease-modifying therapies, and factors influencing a change in treatment. The tool generated a summary of participants' treatment goals and preferences. Immediately after viewing the summary, participants were asked to evaluate the tool. Rankings of preference domains were compared with rankings obtained in another study.Results:In 135 people with MS who completed the tool and evaluation, the highest ranked goal was brain health (memory, thinking, brain), followed by disability concerns (walking, strength, vision). Rankings were highly similar to those in the referent study. Nearly all participants reported that the tool helped them understand their goals and priorities regarding MS and that the summary appropriately reflected what is important to them. Most participants (87%) wanted to discuss their treatment goals and priorities with their clinician.Conclusions:This preference assessment tool successfully captured patients' goals, values, and preferences for MS treatment and could potentially be used to help patients communicate their preferences to their clinician.

Risk Factors for Suicide in a National Sample of Veterans With Multiple Sclerosis

2020 ◽  
Vol 101 (7) ◽  
pp. 1138-1143
Author(s):  
Quinn D. Kellerman ◽  
Narineh Hartoonian ◽  
Megan L. Beier ◽  
Steven L. Leipertz ◽  
Charles Maynard ◽  
...  
Keyword(s):  
Risk Factors ◽  
Multiple Sclerosis ◽  
National Sample ◽  
Risk Factors For Suicide

Determinants of General Satisfaction With the Employment Situation Among People With Multiple Sclerosis

2020 ◽  
Vol 34 (2) ◽  
pp. 86-102
Author(s):  
Jian Li ◽  
Richard T. Roessler ◽  
Phillip D. Rumrill ◽  
James Krause
Keyword(s):  
Multiple Sclerosis ◽  
College Graduates ◽  
Washington Dc ◽  
Full Time ◽  
General Satisfaction ◽  
Perceived Quality Of Life ◽  
Employment Situation ◽  
National Multiple Sclerosis Society ◽  
Environmental Participation ◽  
Employment Concerns

BackgroundSocial and environmental participation endeavors are theorized to shape one's general satisfaction with the overall employment situation facing people with MS.ObjectiveResponding to a national survey of the employment concerns of Americans with multiple sclerosis (MS), this study examined the extent to which factors at the demographic, disease-related, and social and environmental participation levels contribute to the predictability power for general satisfaction with the employment situation for people with MS.MethodParticipants in this study consisted of 1,149 members of nine National Multiple Sclerosis Society (NMSS) chapters representing 21 states and Washington, DC. In a hierarchical multiple regression analysis, participants were mostly older (average age of 50 years) White (74%) individuals, nearly half of whom were unemployed (47%) but well educated (98% were high school graduates, 45% were college graduates).FindingsFindings underscore the complexity involved in predicting how satisfied people with MS are with their overall employment situation.ConclusionsYounger, less educated individuals with higher levels of perceived quality of life who were employed full-time and experiencing no or lower levels of cognitive impairment were more likely than other participants to be satisfied with 17 high-priority employment concerns.

Importance and satisfaction ratings on 38 key employment concerns among African American women with multiple sclerosis

2020 ◽  
Vol 52 (2) ◽  
pp. 173-183
Author(s):  
Phillip D. Rumrill ◽  
Rongxiu Wu ◽  
Penina Goldstein ◽  
Chithra Adams ◽  
Kathleen Sheppard-Jones ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
African American ◽  
African American Women ◽  
American Women ◽  
Employment Concerns

The factor structure of satisfaction ratings for selected employment concerns among people with multiple sclerosis

2019 ◽  
Vol 51 (1) ◽  
pp. 55-66 ◽  
Author(s):  
William R. Merchant ◽  
Jian Li ◽  
Phillip Rumrill ◽  
Richard T. Roessler
Keyword(s):  
Multiple Sclerosis ◽  
Factor Structure ◽  
Employment Concerns

scholarly journals Disease-Modifying Therapy Adherence and Associated Factors in a National Sample of Medicare Patients With Multiple Sclerosis

2020 ◽  
Vol 23 (3) ◽  
pp. 328-334
Author(s):  
Pengxiang Li ◽  
Vrushabh P. Ladage ◽  
Joseph Berger ◽  
Salim Chahin ◽  
Mehul Jhaveri ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Associated Factors ◽  
National Sample ◽  
Therapy Adherence ◽  
Disease Modifying Therapy ◽  
Medicare Patients ◽  
Disease Modifying

scholarly journals Two Multiple Sclerosis Quality-of-Life Measures: Comparison in a National Sample

2015 ◽  
Vol 42 (1) ◽  
pp. 55-63 ◽  
Author(s):  
Fraser Moore ◽  
Barbara Vickrey ◽  
Kathy Fortin ◽  
Liesly Lee
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Psychometric Properties ◽  
National Sample ◽  
Open Label ◽  
Relative Validity ◽  
Related Quality ◽  
Health Related ◽  
Responsiveness To Change

AbstractBackground: Multiple sclerosis (MS) has a profound impact on patients’ health-related quality of life (HRQoL). It is unclear how HRQoL can be best assessed for different purposes. This study aimed to compare two HRQoL questionnaires of differing lengths for feasibility of administration, patient perceptions and psychometric properties. Methods: This was an open-label, 24-month study in 334 patients with relapsing MS treated with subcutaneous interferon β-1a. At baseline and months 6, 12, 18 and 24, patients completed the Multiple Sclerosis International Quality of Life (MusiQoL) and Multiple Sclerosis Quality of Life-54 (MSQOL-54) questionnaires and compared them using an evaluation questionnaire. HRQoL scores over time and psychometric properties (correlations with clinical disease measures, relative validity and responsiveness to change) of the questionnaires were assessed. Results: A minority of patients had missing items on either HRQoL measure. Completion time was significantly shorter for MusiQoL versus MSQOL-54 (p<0.0001). Patients felt that MusiQoL was easier to use than MSQOL-54 but preferred MSQOL-54 in terms of thoroughness. Mean HRQoL scores increased significantly from baseline to 24 months; correlations of both measures were stronger with an anxiety and depression measure than with disability or recent relapse occurrence. Relative validity and responsiveness to change were similar for both instruments. Conclusion: The shorter MusiQoL is suitable for evaluating HRQoL in patients with MS and may be more practical to administer than the more thorough MSQOL-54.

A-71 Subjective Employment Concerns: Correlates and Impact on Employment Status One Year Later in Women with Multiple Sclerosis

2021 ◽  
Vol 36 (6) ◽  
pp. 1113-1113
Author(s):  
Jenna N Cohen ◽  
Marnina Stimmel ◽  
Frederick Foley
Keyword(s):  
Multiple Sclerosis ◽  
Depressive Symptoms ◽  
Cognitive Functioning ◽  
Cognitive Dysfunction ◽  
Employment Status ◽  
Low Risk ◽  
One Year ◽  
Chi Square Analysis ◽  
Over Time ◽  
Employment Concerns

Abstract Objective Loss of employment is common in multiple sclerosis (MS) and is associated with fatigue, depression, and cognitive dysfunction. This study looked at a “low-risk” group of women, with subclinical levels of these factors, to evaluate whether subjective concerns about employment would relate to decreased employment status over time. Secondarily, fatigue, depressive symptoms, and cognition were also examined in relation to employment concerns at baseline, to determine whether subjective concerns might indicate prodromal psychiatric and cognitive dysfunction. Methods Our sample includes 52 employed women with MS who participated in a larger quasi-experimental employment study. Screening included open-ended questions about employment concerns and measures of fatigue (Fatigue Severity Scale), depression (Patient Health Questionnaire), and cognitive functioning (Symbol-Digit Modalities Test). Because this subset of women were considered “low-risk,” they were followed over time (1 year) with no active intervention. Results Overall, 16/52 women (44%) voiced employment concerns. A chi-square analysis revealed that 5 (31.3%) of those women had decreased employment status at one year, while only 3 (8.3%) women without employment concerns had decreased employment status (p = 0.049, Fisher’s exact). Comparison of women with and without employment concerns (independent t-tests), indicated that those with concerns had higher depressive symptoms (p = 0.017); groups did not differ in cognitive functioning or fatigue at baseline. Conclusions Findings suggest that women with MS who were previously thought to be “low-risk” may still experience negative functional outcomes such as decreased employment status, when they voice subjective employment concerns. Employment concerns may also indicate prodromal depressive symptoms.

scholarly journals High-priority employment concerns of Hispanics/Latinos with multiple sclerosis in the United States

2016 ◽  
Vol 45 (2) ◽  
pp. 121-131 ◽  
Author(s):  
Richard T. Roessler ◽  
Phillip D. Rumrill ◽  
Jian Li ◽  
Katherine Daly ◽  
Karla Anhalt
Keyword(s):  
United States ◽  
Multiple Sclerosis ◽  
The United States ◽  
Employment Concerns
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