scholarly journals Delivering Advance Care Planning Support at Scale: A Qualitative Interview Study in Twelve International Healthcare Organisations

2019 ◽  
Vol 0 (2019) ◽  
pp. 127
Author(s):  
Josie Dixon ◽  
Martin Knapp
Keyword(s):  
Advance Care Planning ◽  
Qualitative Interview ◽  
Interview Study ◽  
Care Planning ◽  
Planning Support ◽  
Qualitative Interview Study ◽  
Advance Care

scholarly journals Thinking ahead – the need for early Advance Care Planning for people on haemodialysis: A qualitative interview study

2014 ◽  
Vol 29 (5) ◽  
pp. 443-450 ◽  
Author(s):  
Katherine Bristowe ◽  
Helen L Horsley ◽  
Kate Shepherd ◽  
Heather Brown ◽  
Irene Carey ◽  
...  
Keyword(s):  
Advance Care Planning ◽  
Qualitative Interview ◽  
Interview Study ◽  
Care Planning ◽  
Qualitative Interview Study ◽  
Advance Care

scholarly journals “Hope for the best, prepare for the worst”: A qualitative interview study on parents’ needs and fears in pediatric advance care planning

2016 ◽  
Vol 31 (8) ◽  
pp. 764-771 ◽  
Author(s):  
Julia Desiree Lotz ◽  
Marion Daxer ◽  
Ralf J Jox ◽  
Gian Domenico Borasio ◽  
Monika Führer
Keyword(s):  
End Of Life ◽  
Advance Care Planning ◽  
Qualitative Interview ◽  
Interview Study ◽  
Medical Emergency ◽  
Severe Illness ◽  
Care Planning ◽  
Care Providers ◽  
Qualitative Interview Study ◽  
Advance Care

Background: Pediatric advance care planning is advocated by healthcare providers because it may increase the chance that patient and/or parent wishes are respected and thus improve end-of-life care. However, since end-of-life decisions for children are particularly difficult and charged with emotions, physicians are often afraid of addressing pediatric advance care planning. Aim: We aimed to investigate parents’ views and needs regarding pediatric advance care planning. Design: We performed a qualitative interview study with parents of children who had died from a severe illness. The interviews were analyzed by descriptive and evaluation coding according to Saldaña. Setting/Participants: We conducted semi-structured interviews with 11 parents of 9 children. Maximum variation was sought regarding the child’s illness, age at death, care setting, and parent gender. Results: Parents find it difficult to engage in pediatric advance care planning but consider it important. They argue for a sensitive, individualized, and gradual approach. Hope and quality of life issues are primary. Parents have many non-medical concerns that they want to discuss. Written advance directives are considered less important, but medical emergency plans are viewed as necessary in particular cases. Continuity of care and information should be improved through regular pediatric advance care planning meetings with the various care providers. Parents emphasize the importance of a continuous contact person to facilitate pediatric advance care planning. Conclusion: Despite a need for pediatric advance care planning, it is perceived as challenging. Needs-adjusted content and process and continuity of communication should be a main focus in pediatric advance care planning. Future research should focus on strategies that facilitate parent engagement in pediatric advance care planning to increase the benefit for the families.

Advance Care Planning in Nursing Home Patients With Dementia: A Qualitative Interview Study Among Family and Professional Caregivers

2015 ◽  
Vol 16 (11) ◽  
pp. 979-989 ◽  
Author(s):  
Mirjam C. van Soest-Poortvliet ◽  
Jenny T. van der Steen ◽  
Giselka Gutschow ◽  
Luc Deliens ◽  
Bregje D. Onwuteaka-Philipsen ◽  
...  
Keyword(s):  
Nursing Home ◽  
Advance Care Planning ◽  
Qualitative Interview ◽  
Interview Study ◽  
Care Planning ◽  
Nursing Home Patients ◽  
Qualitative Interview Study ◽  
Advance Care

scholarly journals ‘Traversing difficult terrain’. Advance care planning in residential aged care through multidisciplinary case conferences: A qualitative interview study exploring the experiences of families, staff and health professionals

2021 ◽  
pp. 026921632110132
Author(s):  
Suzanne Rainsford ◽  
Sally Hall Dykgraaf ◽  
Rosny Kasim ◽  
Christine Phillips ◽  
Nicholas Glasgow
Keyword(s):  
Advance Care Planning ◽  
Health Professionals ◽  
Aged Care ◽  
Shared Responsibility ◽  
Care Staff ◽  
Residential Aged Care ◽  
Care Planning ◽  
Qualitative Interview Study ◽  
Case Conferences ◽  
Advance Care

Background: Advance care planning improves the quality of end-of-life care for older persons in residential aged care; however, its uptake is low. Case conferencing facilitates advance care planning. Aim: To explore the experience of participating in advance care planning discussions facilitated through multidisciplinary case conferences from the perspectives of families, staff and health professionals. Design: A qualitative study (February–July 2019) using semi-structured interviews. Setting: Two residential aged care facilities in one Australian rural town. Participants: Fifteen informants [family ( n = 4), staff ( n = 5), health professionals ( n = 6)] who had participated in advance care planning discussions facilitated through multidisciplinary case conferences. Results: Advance care planning was like navigating an emotional landscape while facing the looming loss of a loved one. This emotional burden was exacerbated for substitute decision-makers, but made easier if the resident had capacity to be involved or had previously made their wishes clearly known. The ‘conversation’ was not a simple task, and required preparation time. Multidisciplinary case conferences facilitated informed decision-making and shared responsibility. Opportunity to consider all care options provided families with clarity, control and a sense of comfort. This enabled multiple stakeholders to bond and connect around the resident. Conclusion: While advance care planning is an important element of high quality care it involves significant emotional labour and burden for families, care staff and health professionals. It is not a simple administrative task to be completed, but a process that requires time and space for reflection and consensus-building to support well-considered decisions. Multidisciplinary case conferences support this process.

Advance Care Planning Among Older Adults of Turkish Origin in Belgium: Exploratory Interview Study

2020 ◽  
Author(s):  
Hakki Demirkapu ◽  
Lieve Van den Block ◽  
Stéphanie De Maesschalck ◽  
Aline De Vleminck ◽  
F. Zehra Colak ◽  
...  
Keyword(s):  
Older Adults ◽  
Advance Care Planning ◽  
Interview Study ◽  
Care Planning ◽  
Turkish Origin ◽  
Advance Care

scholarly journals P54 How patients and relatives perceive the concept of advance care planning: an interview study

2019 ◽  
Author(s):  
D van der Smissen ◽  
J Rietjens ◽  
S van Dulmen ◽  
J van Gemert-Pijnen ◽  
A van der Heide ◽  
...  
Keyword(s):  
Advance Care Planning ◽  
Interview Study ◽  
Care Planning ◽  
Advance Care
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