scholarly journals What is important for advance care planning in the palliative phase of people with intellectual disabilities? A multi‐perspective interview study

2019 ◽  
Vol 33 (2) ◽  
pp. 160-171
Author(s):  
Hille Voss ◽  
Anique Vogel ◽  
Annemieke M. A. Wagemans ◽  
Anneke L. Francke ◽  
Job F. M. Metsemakers ◽  
...  
Keyword(s):  
Intellectual Disabilities ◽  
Advance Care Planning ◽  
Interview Study ◽  
Care Planning ◽  
Advance Care ◽  
People With Intellectual Disabilities ◽  
Palliative Phase

scholarly journals Advance Care Planning in Palliative Care for People With Intellectual Disabilities: A Systematic Review

2017 ◽  
Vol 54 (6) ◽  
pp. 938-960.e1 ◽  
Author(s):  
Hille Voss ◽  
Anique Vogel ◽  
Annemieke M.A. Wagemans ◽  
Anneke L. Francke ◽  
Job F.M. Metsemakers ◽  
...  
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
Intellectual Disabilities ◽  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care ◽  
People With Intellectual Disabilities

Advance Care Planning for Persons with Intellectual Disabilities

GeroPsych ◽  
2018 ◽  
Vol 31 (2) ◽  
pp. 87-95 ◽  
Author(s):  
Monika T. Wicki
Keyword(s):  
Decision Making ◽  
Intellectual Disabilities ◽  
End Of Life ◽  
Advance Care Planning ◽  
Care Planning ◽  
End Of Life Decisions ◽  
Percent Agreement ◽  
Decision Making Capacity ◽  
Advance Care ◽  
Life Decisions

Abstract. As people live longer, they become more likely to die from prolonged, incurable, chronic illnesses occurring more frequently in old age. This study explores the usefulness, quality, and reliability of documented advance care planning interviews to determine the decision-making capacity of persons with intellectual disabilities (IDs). A volunteer sample of 60 persons rated the capacity to consent to treatment of four persons deciding on two end-of-life decisions. Sensitivity, specificity, and percent agreement were calculated. Interrater reliability was assessed using Fleiss’ κ and Krippendorff’s α. A Yates’ corrected χ2 was used to analyze differences in ratings between groups of raters. The sensitivity value was 62%; the specificity value was 95%. The percent agreement for all participants was 70%, Fleiss’ κ was 0.396, and Krippendorff’s α was 0.395. Of the participants, 72 found documented advance care planning discussions useful for diagnosing the decision-making capacity of people with IDs. The documented interviews helped to identify those persons with IDs who had the decision-making capacity. Documented interviews on end-of-life decisions could make a valuable contribution to fostering their self-determination in end-of-life issues.

scholarly journals Thinking ahead – the need for early Advance Care Planning for people on haemodialysis: A qualitative interview study

2014 ◽  
Vol 29 (5) ◽  
pp. 443-450 ◽  
Author(s):  
Katherine Bristowe ◽  
Helen L Horsley ◽  
Kate Shepherd ◽  
Heather Brown ◽  
Irene Carey ◽  
...  
Keyword(s):  
Advance Care Planning ◽  
Qualitative Interview ◽  
Interview Study ◽  
Care Planning ◽  
Qualitative Interview Study ◽  
Advance Care
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