Is Family Care on the Decline? A Longitudinal Investigation of the Substitution of Formal Long-Term Care Services for Informal Care

1993 ◽  
Vol 71 (4) ◽  
pp. 601 ◽  
Author(s):  
Sharon L. Tennstedt ◽  
Sybil L. Crawford ◽  
John B. McKinlay
Keyword(s):  
Informal Care ◽  
Long Term Care ◽  
Family Care ◽  
Term Care ◽  
Care Services ◽  
Longitudinal Investigation

scholarly journals How to understand informal caregiving patterns in Europe? The role of formal long-term care provisions and family care norms

2017 ◽  
Vol 46 (4) ◽  
pp. 436-447 ◽  
Author(s):  
Ellen Verbakel
Keyword(s):  
Informal Care ◽  
Long Term Care ◽  
Family Care ◽  
Well Being ◽  
Informal Caregiving ◽  
European Countries ◽  
Prevalence Rates ◽  
Term Care

Aims: Motivated by ageing populations, healthcare policies increasingly emphasize the role of informal care. This study examines how prevalence rates of informal caregivers and intensive caregivers (i.e. those who provide informal care for at least 11 hours a week) vary between European countries, and to what extent informal caregiving and intensive caregiving relate to countries’ formal long-term care provisions and family care norms. Methods: Multilevel logistic regression analyses on data from the European Social Survey Round 7 ( n = 32,894 respondents in n = 19 countries) were used to test (a) contradicting hypotheses regarding the role of formal long-term care provisions based on crowding-out, crowding-in and specialization arguments and (b) the hypothesis that strong family care norms are positively related to (intensive) informal caregiving. Results: Prevalence rates of informal caregiving varied between European countries, from 20% to 44%. Intensive caregiving ranged from 4% to 11%. Opposite patterns regarding the role of formal long-term care provisions were revealed: generous long-term care provisions in a country were related to a higher likelihood of providing informal care, but a lower likelihood of providing intensive care. Moreover, intensive caregiving was more likely when family care norms in a country were strong. Conclusions: This study provided support for the specialization argument by showing that generous formal long-term care provisions crowded-out intensive caregiving, but also encouraged more people to provide (some) informal care. Because especially intensive caregiving is burdensome, low levels of formal long-term care provisions might bring risks to caregivers’ well-being and healthcare systems’ sustainability.

scholarly journals Ludzie bardzo starzy – niewidoczna grupa docelowa polityki społecznej?

2014 ◽  
pp. 57-78 ◽  
Author(s):  
Piotr Szukalski
Keyword(s):  
Long Term Care ◽  
Oldest Old ◽  
Family Care ◽  
Policy Decision ◽  
Decision Makers ◽  
Term Care ◽  
Factors Affecting ◽  
Care Services ◽  
Population Forecasts

The next decades will see a sharp increase in the number of the oldest old in Poland. The increase in the number of people aged 80 years and more will be caused both by the cohort factors, as well as by a decrease in the probability of dying at advanced and very advanced age. The paper is focused on the results of official population forecasts for the oldest old and on the related challenges that should be treated as important by social policy decision makers. Particular attention is paid to surviving to the age of eligibility for receiving long-term care services, changes in health status of the oldest old, factors affecting the range of family care, and to circumstances of death.

Frailty, Sarcopenia and Long Term Care Utilization In Older Populations: A Systematic Review

2021 ◽  
pp. 1-9
Author(s):  
Q. Roquebert ◽  
J. Sicsic ◽  
B. Santos-Eggimann ◽  
N. Sirven ◽  
T. Rapp
Keyword(s):  
Systematic Review ◽  
Nursing Home ◽  
Informal Care ◽  
Long Term Care ◽  
Short Stay ◽  
Physical Frailty ◽  
Term Care ◽  
Care Services ◽  
Home Placement

This systematic literature review documents the link between frailty or sarcopenia, conceptualized as dimensions of physical health, and the use of long-term care services by older individuals. Long-term care services include formal and informal care provided at home as well as in institutions. A systematic review was performed according to PRISMA requirements using the following databases: PubMed-Medline, Embase, CINAHL, Web of Science, and Academic Search Premier. We included all quantitative studies published in English between January 2000 and December 2018 focusing on individuals aged 50 or more, using a relevant measurement of sarcopenia or physical frailty and a long-term care related outcome. A quality assessment was carried out using the questionnaire established by the Good Practice Task Force Report of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR). Five subsets of long-term care outcome were considered: 1/ nursing home placement (NHP), 2/ nursing home short stay (NHSS), 3/ formal personal care (FPC), 4/ formal home help (FHH), 5/ informal care (IC). Out of 1943 studies, 17 were finally included in the review. With some studies covering several LTC outcomes, frailty and / or sarcopenia were associated with increased LTC use in 17 out of 26 cases (NHP: 5/6, NHSS: 3/4, FPC: 5/7, FHH: 1/4, IC: 3/5) The association was not consistent in 5 cases (NHP: 1/6, NHSS: 1/4, FPC: 2/7, FHH: 0/4, IC: 1/5) and the association was either not significant or the results inconclusive in the remaining 9 cases. Overall, while results on sarcopenia are scarce, evidence support a positive association between frailty and LTC use. The evidence is stronger for the association of physical frailty with nursing home placement / short stay as well as on FPC. There is less (more heterogeneous) evidence regarding the correlation between physical frailty and FHH or IC use. Results need to be confirmed by more advanced statistical methods or design based on longitudinal data.

scholarly journals Informal carer in Portugal: moving towards political recognition in Portugal

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
I Fronteira ◽  
J Simoes ◽  
G Augusto
Keyword(s):  
Informal Care ◽  
Long Term Care ◽  
Well Being ◽  
Oecd Countries ◽  
Low Fertility ◽  
Informal Carer ◽  
Term Care ◽  
System Perspective ◽  
Informal Carers

Abstract Informal care represents around 80% of all long term care provided in EU countries. Nevertheless, the needs for this type of care are expected to increase in the coming years in all OECD countries. Portugal is among the OECD countries with the highest ageing index (21.5% of the population was older than 65 years in 2017) due to high life expectancy and low fertility rates. As this demographic trend establishes, Portugal is expected to have more than 40% of the population over 65 years in 2037, and the expected prevalence of dementia is 3%, in 2050. In 2015 there were 2.1% of people over 65 receiving long-term care, representing 52% of all long-term care users. Around 38% were receiving care at home. It is estimated that 287,000 people in Portugal depend on informal carers. The agenda towards the official recognition of informal cares has been push forward in the country. Since 2015, several recommendations have been issued by the Parliament as well as legislative initiatives and a proposal for a Status of the Informal Carer is currently under discussion. We analyse the process of formulation of this policy in terms of sectors and stakeholders involved, definition and scope of informal carer, rights and obligations, role of the person being cared for, formal protection (e.g., labor, social, financial, training) and implementation. Recognition of the informal carer is a sector wide approach. One of the main features is the economic, social and labor protection mainly through reconciliation between work life and caring activities and promotion of the carer’s well being. Notwithstanding, and from a health system perspective, community health teams are to be the focal point for informal carers, supporting and providing specific training whenever needed. Despite its relevance, informal care should not be professionalized and responsibility of care should not be shifted from health services to informal carers. Key messages Needs for informal care are expected to increase in the coming years in OECD countries. Recognition of the informal carer is a sector wide approach.

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