scholarly journals Impact of hearing impairment on quality of life of adolescents

2013 ◽  
Vol 66 (1-2) ◽  
pp. 32-39 ◽  
Author(s):  
Renata Skrbic ◽  
Vesela Milankov ◽  
Mila Veselinovic ◽  
Aleksandar Todorovic
Keyword(s):  
Quality Of Life ◽  
Hearing Impairment ◽  
Multidisciplinary Approach ◽  
Self Report ◽  
Average Score ◽  
Hearing Impairments ◽  
Proxy Report ◽  
Summary Scale ◽  
Novi Sad

Introduction. Hearing impairment, as a type of sensory disability affects the quality of life of adolescents. The aim of this study was to determine whether the quality of life of adolescents with hearing impairments was different from the quality of life of adolescents without disabilities, and to examine the correlation between self- reported quality of life and proxy- report by their parents. Materials and Methods. The study included 52 adolescents with hearing impairment and 122 adolescents without developmental disabilities, aged from 13 to 18 years and their parents. Data were collected by a standardized questionnaire, the PedsQLTM 4.0 Generic Core Scale. The survey was conducted during May and June 2011 in 6 schools in Novi Sad and Belgrade. Results. Adolescents with hearing impairment and their parents reported lower scores on all scales of questionnaire. The average score of physical health was 77.58; p<0.001 (adolescents), and 75; p=0,006 (parents); on psycho-social summary scale 75.35; p=0.025 (adolescents), and 73.37; p=0.02 (parents). On the overall scale, the adolescents scored 76.13; p<0.001, and parents reported 73.93; p<0.001. The parents assessed the quality of life lower than their children. On the total summary scale, a moderate agreement (r = 0.51) was found between self- report and proxy- report. Conclusion. Hearing loss affects all aspects of the quality of life of adolescents. A multidisciplinary approach is required in order to provide better conditions for functioning of these children and improve their quality of life.

scholarly journals Quality of life in Hungarian patients with cystic fibrosis

2013 ◽  
Vol 154 (20) ◽  
pp. 784-791 ◽  
Author(s):  
Réka Bodnár ◽  
Klára Holics ◽  
Rita Ujhelyi ◽  
László Kádár ◽  
Lajos Kovács ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Self Report ◽  
Clinical Severity ◽  
Proxy Report ◽  
Parent Proxy Report ◽  
Multisystemic Disease ◽  
Cystic Fibrosis Questionnaire ◽  
Parent Proxy

Introduction: Cystic fibrosis is a progressive multisystemic disease which affects the quality of life of patients. Aim: The aim of the study was to evaluate quality of life in Hungarian patients with cystic fibrosis. Methods: Validated Hungarian translation of The Cystic Fibrosis Questionnaire – Revised was used to measure quality of life. Clinical severity was determined on the basis of Shwachman–Kulczycki score. Lung function was measured using spirometry. Results: 59 patients were included from five centres in Hungary. The relationships between 8–13 year-old children self-report and parent proxy report was 0.77 (p<0.001) in physical functioning, 0.07 (p<0.001) in emotional functioning, 0.51 (p<0.001) in eating, 0.21 (p<0.001) in treatment burden, 0.54 (p<0.001) in body image, 0.49 (p<0.001) in respiratory symptoms and 0.40 (p<0.001) in digestive symptoms domains. Conclusions: In contrast to physical domains weak correlations were observed between answers obtained from children and their parents in psychosocial domains. The perception of both patients and their parents should be assessed when measuring quality of life in paediatric patients with cystic fibrosis. Orv. Hetil., 2013, 154, 784–791.

scholarly journals Health-related Quality of Life Profile of Indonesian Children and Its Determinants: a Community-based Study

2021 ◽  
Author(s):  
Mei Neni Sitaresmi ◽  
Braghmandita Widya Indraswari ◽  
Nisrina Maulida Rozanti ◽  
Zena Sabilatuttaqiyya ◽  
Abdul Wahab
Keyword(s):  
Quality Of Life ◽  
Self Report ◽  
Health Related Quality ◽  
Community Based ◽  
Proxy Report ◽  
Proxy Reports ◽  
Self Reports ◽  
Related Quality ◽  
Health Related

Abstract Background: Assessing health-related quality of life (HRQOL) and its determinants in children may provide a comprehensive view of child health. The study aimed to assess the HRQOL in Indonesian children and its determinants.Methods: We conducted a community-based cross-sectional study in the Sleman District of Yogyakarta Special Province, Indonesia, from August to November 2019. We recruited children aged 2 to 18 years old using the Sleman Health and Demography Surveillance System sample frame. We used the validated Indonesian version of Pediatric Quality of life InventoryTM (Peds QLTM) 4.0 Generic core scale, proxy-reports, and self-reports, to assess the HRQOL. Results: We recruited 633 proxies and 531 children aged 2-18 years. The mean total score of self-report and proxy-report were 89.9+ 8.5 and 93.3+6.4. There was a fair to moderate correlation between self-reports and proxy reports, with interclass correlation ranging from 0.34 to 0.47, all p<0.001. Half of the children (49.4% from proxy-report and 50.1% from self-report) reported having acute illness during the last month. Based on proxy-reports, multivariate regression analysis demonstrated lower HRQOL for children with acute health problems, younger age, history of low birth weight, abnormal delivery, lower fathers' educational level, and government-paid insurance for low-income families.Conclusion: In addition to sociodemographic determinants of a child's HRQOL, children’s health condition influences HRQOL in the general pediatric population. In low- and middle-income countries where acute infections and low birth weight are still prevalent, its prevention and appropriate interventions should improve child health.

Comparison of Patient and Proxy Reporting of Health-Related Quality of Life in Adolescent Athletes Who Suffer a Sports-Related Injury and Require Orthopedic Consultation

2013 ◽  
Vol 22 (4) ◽  
pp. 248-253 ◽  
Author(s):  
Alison R. Snyder Valier ◽  
Elizabeth M. Swank ◽  
Kenneth C. Lam ◽  
Matthew L. Hansen ◽  
Tamara C. Valovich McLeod
Keyword(s):  
Quality Of Life ◽  
Self Report ◽  
Health Related Quality ◽  
Adolescent Athletes ◽  
Proxy Report ◽  
Outcome Measurements ◽  
Related Quality ◽  
Health Related ◽  
Parent Proxy

Context:Accurate assessment of health-related quality of life (HRQoL) is important for quality patient care. Evaluation of HRQoL typically occurs with patient self-report, but some instruments, such as the Pediatric Quality of Life Inventory (PedsQL), allow for proxy reporting. Limited information exists comparing patient and proxy reports of HRQoL after sport-related injury in adolescent athletes.Objective:To compare patient ratings and parent-proxy ratings of HRQoL in adolescent athletes who suffer musculoskeletal injuries requiring orthopedic consultation. The authors hypothesized poor agreement between patient and parent-proxy ratings of HRQoL.Design:Cross-sectional study.Setting:Orthopedic practice.Patients:Thirteen adolescent patients with a sport-related musculoskeletal injury requiring orthopedic consultation and 1 of their parents participated.Interventions:During the initial visit to the physician’s office, each patient was asked to complete the PedsQL, and the patient’s parent was asked to complete the parent-proxy version of the PedsQL.Main Outcome Measurements:The PedsQL is a pediatric generic outcome measure that consists of a total score and 4 subscale scores: physical, emotional, social, and school functioning. Means and standard deviations were calculated for all scores, and comparisons between patient-self report and parent-proxy ratings of HRQoL were made for the PedsQL total score and subscale scores using Pearson product–moment correlations (r).Results:Pearson product–moment correlations showed little to fair insignificant relationships between patient self-report and parent-proxy report of the PedsQL for the total score (r = −.1) and all subscales (range r = .1 to .4).Conclusions:Our results suggest a lack of agreement between patient and parent-proxy ratings of HRQoL, with patients rating their HRQoL lower than their parent. Patient perception of HRQoL may be more accurate than proxy report, which supports the use of patient-rated HRQoL in patient evaluation. Assessments of HRQoL made by proxies, even those close to the patient, may not represent patient health status.

Meta-analysis of quality of life in children and adolescents with ADHD: By both parent proxy-report and child self-report using PedsQL™

2016 ◽  
Vol 51-52 ◽  
pp. 160-172 ◽  
Author(s):  
Yi-chen Lee ◽  
Hao-Jan Yang ◽  
Vincent Chin-hung Chen ◽  
Wan-Ting Lee ◽  
Ming-Jen Teng ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Children And Adolescents ◽  
Meta Analysis ◽  
Self Report ◽  
Proxy Report ◽  
Parent Proxy Report ◽  
Parent Proxy

scholarly journals Assessing the quality of life of asthmatic children using the PedQL™

2011 ◽  
Vol 51 (5) ◽  
pp. 245
Author(s):  
Yulia Wigoeno ◽  
Rini Sekartini ◽  
Darmawan Budi Setyanto ◽  
Sri Rezeki Hadinegoro
Keyword(s):  
Quality Of Life ◽  
Protective Factor ◽  
Male Gender ◽  
Self Report ◽  
Uncontrolled Asthma ◽  
Proxy Report ◽  
Female Ratio ◽  
Asthmatic Children ◽  
Parental Assessment

Background Asthma is the most common chronic respiratory illness in childhood. Its prevalence in Indonesia is 6.7 - 10%. Asthma influences growth, development and quality of life in affected children. Studies abroad have shown that children with asthma have a decreased quality of life (QoL), yet such data is limited in Indonesia.Objective To assess quality of life of asthmatic children in Indonesia, the influence of sociodemographic and medical characteristics on QoL, and to compare child self-reporting to their parents’ proxy-reporting.Methods This descriptive analysis, cross-sectional study was conducted from May to July 2010. We assessed the quality of life of asthmatic children aged 2-18 years using the PedsQLTM 4.0 generic scale.Results A total of 100 asthmatic children and their parents were included, with 43% of the subjects aged 8-12 years and a male to female ratio of 1.7:1. We observed that 26.8% of children who self-reported had impaired QoL, while 35% of children who reported by proxy had impaired QoL. In a multivariate analysis, we found the following characteristics to independently influence QoL: male gender (P 0.018 OR 0.26 95% CI 0.08 to 0.9) based on child self-report, and having partly controlled/uncontrolled asthma based on self-report and proxy-report (P 0.013 OR 6.24 95% CI 1.48 to 26.37 and P 0.018 OR 3.43 95% CI 1.24 to 10.05, respectively). There was good correlation between the self-report and the proxy-report on emotional and social functioning (r > 0.5), yet we found physical and school functioning to be weakly correlated (r < 0.5).Conclusions We observed a relatively high (26.8-35%) impaired QoL in asthmatic patients. Parental assessment of their child’s QoL was generally lower than the child’s self-assessment. Male gender is a protective factor against impaired QoL, but having partly controlled/uncontrolled asthma is a risk factor for lower QoL. [Paediatr Indones. 2011;51:245-51].

scholarly journals Predictors of quality of life ratings for persons with dementia simultaneously reported by patients and their caregivers: the Cache County (Utah) Study

2012 ◽  
Vol 24 (7) ◽  
pp. 1094-1102 ◽  
Author(s):  
Trevor Buckley ◽  
Elizabeth B. Fauth ◽  
Ann Morrison ◽  
JoAnn Tschanz ◽  
Peter V. Rabins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Rating Scale ◽  
Neuropsychiatric Symptoms ◽  
Population Based ◽  
Self Report ◽  
Clinical Dementia Rating ◽  
Proxy Report ◽  
Dementia Severity ◽  
Cache County

ABSTRACTBackground: Quality of life (QOL) is frequently assessed in persons with dementia (PWD) through self- and/or proxy-report. Determinants of QOL ratings are multidimensional and may differ between patients and caregiver proxies. This study compared self- and proxy-reported QOL ratings in a population-based study of PWD and their caregivers, and examined the extent to which discrepancies in reports were associated with characteristics of the PWD.Methods: The sample consisted of 246 patient/caregiver dyads from the initial visit of the Cache County Dementia Progression Study, with both members of the dyad rating PWD QOL. PWD age, gender, cognitive impairment (Mini-Mental State Examination), neuropsychiatric symptoms (Neuropsychiatric Inventory; NPI), dementia severity (Clinical Dementia Rating), medical comorbidities (General Medical Health Rating), and functional impairment (Dementia Severity Rating Scale) were examined as correlates of self- and proxy-reported QOL ratings and the differences between the QOL reports.Results: Self- and proxy-reported PWD QOL ratings were only modestly correlated. Medical comorbidity was associated with self-report whereas NPI was associated with proxy-report. Dementia severity was associated with discrepancies in self- and proxy-report, with worse patient cognition associated with poorer proxy-reported QOL ratings.Conclusions: PWD self- and proxy-reported QOL ratings are associated with different variables. Discrepancies between PWD and caregiver perceptions of PWD QOL should be recognized, particularly in cases of more severe dementia.

scholarly journals Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes

2019 ◽  
Vol 29 (2) ◽  
pp. 463-472 ◽  
Author(s):  
Alys W. Griffiths ◽  
Sarah J. Smith ◽  
Adam Martin ◽  
David Meads ◽  
Rachael Kelley ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Internal Consistency ◽  
Self Report ◽  
Care Staff ◽  
Care Homes ◽  
Proxy Report ◽  
Rater Reliability ◽  
Quality Of Life Measures ◽  
Report Quality

Abstract Purpose There are many validated quality-of-life (QoL) measures designed for people living with dementia. However, the majority of these are completed via proxy-report, despite indications from community-based studies that consistency between proxy-reporting and self-reporting is limited. The aim of this study was to understand the relationship between self- and proxy-reporting of one generic and three disease-specific quality-of-life measures in people living with dementia in care home settings. Methods As part of a randomised controlled trial, four quality-of-life measures (DEMQOL, EQ-5D-5L, QOL-AD and QUALID) were completed by people living with dementia, their friends or relatives or care staff proxies. Data were collected from 726 people living with dementia living in 50 care homes within England. Analyses were conducted to establish the internal consistency of each measure, and inter-rater reliability and correlation between the measures. Results Residents rated their quality of life higher than both relatives and staff on the EQ-5D-5L. The magnitude of correlations varied greatly, with the strongest correlations between EQ-5D-5L relative proxy and staff proxy. Internal consistency varied greatly between measures, although they seemed to be stable across types of participants. There was poor-to-fair inter-rater reliability on all measures between the different raters. Discussion There are large differences in how QoL is rated by people living with dementia, their relatives and care staff. These inconsistencies need to be considered when selecting measures and reporters within dementia research.

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